Welcome to the February Edition of the Catalyst Center E-Newsletter!
Starting in March 2011, our e-newsletter will have a new name. Watch your inbox for the next issue of Catalyst Center Coverage. |
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Your Questions, Answered: The Affordable Care Act and CYSHCN In each monthly issue of the Catalyst Center e-newsletter, we'll tackle a question we've been asked about the Affordable Care Act (ACA) and its implications for children and youth with special health care needs (CYSHCN). If YOU have a question, please contact Emily Winter, Catalyst Center Research Assistant and e-newsletter editor, at ewinter@bu.edu. While we can't guarantee we can answer every question, we'll try to get to as many as we can. Q: What resources will be available to help families of CYSHCN understand what coverage plans or subsidies they are eligible for under the Affordable Care Act (ACA)? A: The ACA contains many new consumer protections and options for health care coverage that will be important to CYSHCN and their families. It also includes several new resources to help families of CYSHCN understand what coverage options they are eligible for, make the best choices for their individual needs and resolve any problems they may have with their existing benefits. Here are some highlights: No Wrong Door: Simplified Eligibility Determination In an effort to minimize the burdens in getting and keeping health coverage the ACA requires enrollment systems to be consumer-friendly, coordinated, simplified and technology-enabled. One of the main enrollment provisions of the ACA requires states to provide seamless coordination and transition among programs to ensure continuous coverage. This coordination includes Medicaid, CHIP and the Exchanges to ensure that there is "no wrong door" for determining eligibility. Individuals who seek coverage through Medicaid, CHIP or an Exchange will be screened for eligibility for all programs utilizing a single, streamlined application form that can be submitted online, in person, by mail or by phone. States are also required to establish a Medicaid and CHIP enrollment website that is connected to an Exchange. States will use electronic resources and databases to verify eligibility at enrollment and renewal. Resource: Explaining Health Reform: Eligibility and Enrollment Processes for Medicaid, CHIP and Subsidies in the Exchanges (August, 2010). The Henry J. Kaiser Family Foundation. Link: http://www.kff.org/healthreform/upload/8090.pdf The state-based Family-to-Family Health Information Centers The Family-to-Family Health Information Centers (F2F HICs) are important resources for helping families of CYSHCN navigate the complex system of health insurance. The ACA provided $5 million to continue funding the F2F HICs in each state and the District of Columbia. These centers are led and staffed by experienced family members of CYSHCN. One of the many helpful services they provide is benefits counseling to assist families in securing the health care coverage and services their child needs. Resource: For more information or to find the F2F HIC in your state please visit the Family Voices website. Link: http://www.familyvoices.org/page?id=0034 Consumer Assistance Program Grants In October 2010, grant awards of nearly $30 million dollars were issued to states to create new or enhance existing consumer assistance programs. Some are being developed by states themselves and some are partnering with non-profit organizations. With this new grant money, new and existing Consumer Assistance Programs will: - Help consumers enroll in health coverage;
- Help consumers file complaints and appeals against health plans;
- Educate consumers about their rights and empower them to take action;
- Track complaints to help identify problems and strengthen enforcement of consumer protections.
Resource: A summary of how each state will use the new Consumer Assistance Program grant money can be found at http://www.healthcare.gov/news/factsheets/capgrants_states.html. Resource: Consumer Assistance Program Grants: Helping States Give Consumers Greater Control of their Health Care (October 2010). The US Department of Health and Human Services. Link: http://www.healthcare.gov/news/factsheets/cap_grants.html Find Insurance Options on Healthcare.gov The US Department of Health and Human Services (HHS) has created a website to help individuals, families, people with disabilities, seniors, young adults and employers find insurance options, learn about ways to stay healthy, compare health care quality and understand the different provisions of ACA as they roll out over time. The section on finding insurance options offers an online tool that consumers can use to find the private, public and community programs that might meet their needs. Resource: Find Insurance Options Tool at http://finder.healthcare.gov/ General Resource The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers (January 2011). The National Academy for State Health Policy for the Catalyst Center. Link: http://hdwg.org/sites/default/files/ACAandCSHCNpaper.pdf |
The Massachusetts Child Psychiatry Access Project:
Combining Innovation and Collaboration to Enhance
Children's Mental Health Services in the Primary Care Setting
Read this article on our website.
The Catalyst Center has spent the last five years collecting and disseminating examples of innovative and effective state-based strategies that improve coverage and financing of care for children and youth with special health care needs (CYSHCN). In this issue of the Catalyst Center e-newsletter, we highlight one such program called the Massachusetts Child Psychiatry Access Project, or MCPAP. Initiated in Massachusetts in 2004, the MCPAP model has since been implemented in nine other states and is in the planning phase in three more. It is recognized by families and practitioners alike as a best practice in increasing access and quality of mental health care services for children.[1]
Let's start with some background information on the issues MCPAP was created to address. Many children with mental health needs can benefit from a variety of treatments and therapies; however, their access to these services is often quite limited due to several factors.[2] Families who seek care for their children with mental health needs frequently face long wait times for an appointment because of the scarcity of child psychiatrists, or must travel great distances to access a children's mental health professional who accepts the family's insurance. This results in increased transportation expenses as well as more time away from work or school. In the 2007 National Survey of Children's Health, nearly a third families of children with mental health needs reported their insurance was inadequate to meet their child's needs, in large part due to high out-of-pocket expenses.[3] In a recent survey of Massachusetts families, out-of-pocket costs were reported as the greatest barrier in accessing the mental health services their children need.[4] Families with private insurance often face limits in coverage around mental health services and/or lack coverage for wrap-around services, respite, or care coordination.[5] And, children who lack insurance altogether face significant barriers in accessing mental health care; if their families cannot afford to pay for services out-of-pocket, the children may not receive care at all.
Of particular concern to children with mental health needs and their families is the shortage of children's mental health professionals. A 2006 article published in the Journal of the American Academy of Child and Adolescent Psychiatry stated that there are 6,300 child psychiatrists currently in practice in the US - substantially less than the estimated national need of 30,000.[6] Furthermore, the number of these practitioners is not increasing at a rate substantial enough to meet the growing population of children who are identified as having mental health needs. A 2009 report by the American Academy of Child and Adolescent Psychiatry found that to simply maintain the current levels of psychiatric service provision to children, the US will need over 12,600 pediatric psychiatrists by 2020 - many more than the 8,312 psychiatrists anticipated to be in practice at that time. In fact, enrollment in pediatric psychiatry residency programs has actually been declining.[7]
Because of the ongoing shortage of pediatric mental health professionals and the growing need for children's mental health services, primary care physicians (PCPs) often have the responsibility of recognizing, diagnosing, treating and monitoring mental health disorders in children; however, PCPs face a challenge in receiving compensation for providing these services due to mental health "carve-outs". Many insurers - both public and private - require separate coding and billing for mental health services, thus carving them out from other health-related benefits. Because PCPs are not always credentialed to provide mental health services, they are often ineligible to bill for this care provision.[8] All of these barriers, both to the families in accessing care and to the PCPs in providing it, can mean the children who need mental health care do not receive it. This can result in continuation or exacerbation of the child's mental health illness, along with its consequences: compared to children without mental health needs, children with mental health needs are more likely to repeat a grade in school and to have poorly developed social skills; their parents are more likely to feel parenting-related stress and less likely to be in good physical and mental health; their families are more likely to struggle to find consistent, high-quality child care; and many parents are forced to quit their job or refuse employment to care for their child. Ultimately, these concerns are the result of inadequate insurance or mental health care access, affordability, and/or quality, and demonstrate that children's mental health services is an area of substantial unmet need.[9]
In 2004, MCPAP was rolled out in Massachusetts as a pilot program to increase pediatricians' access to children's mental health consultations, including advice on prescribing psychotropic drugs to pediatric patients. Funded by the Massachusetts Department of Mental Health (DMH), the initiative was the offshoot of a meeting of Medicaid personnel from several New England states, convened to discuss concerns about the growing number of children enrolled in Medicaid who were being prescribed psychotropic medications by pediatricians.[10] Operated by the Massachusetts Behavioral Health Partnership, a managed care organization contracted with DMH, MCPAP enrolls primary care practices across the state, offering PCPs support in their care of children with mental health needs. PCPs treating children with mental health needs can access the consultation services via telephone within 30 minutes, Monday through Friday, connecting with child psychiatrists, psychologists, and social workers. In-person consultations can be arranged when necessary. These consultations can provide the PCPs with an assessment of the patient's clinical or psychiatric needs, answer the physician's questions about diagnosis and treatment, assist with referrals to mental health specialists, social workers and care coordinators, and provide the PCP with additional community resources to offer the family.[11]
A significant barrier to accessing children's mental health care is alleviated by MCPAP's "insurance-blind" policy; MCPAP is available for PCPs providing care to any child with mental health needs, regardless of the child's insurance status. In June 2009, 58.3% of children served through MCPAP had private insurance, 32.7% had public coverage only, 7.9% had both public and private coverage, and 1.1% were uninsured.[12] As of December 2010, primary care practice enrollment in MCPAP reached 401 - nearly all primary care practices in the state. The utilization rate of physicians enrolled in MCPAP is also high, with between 65% and 75% of the enrolled primary care practices accessing MCPAP services each quarter. By December 2010, MCPAP was facilitating mental health consultations to PCPs who serve approximately 85% of Massachusetts children and youth. Its annual operating budget is $3.2 million at full implementation, which comes to $.018 per child, per month.[13]-[14]
A promising, innovative model to ensure accessible, affordable care with consultation from credentialed providers to children with mental health needs, MCPAP scores well with physicians and families alike.[15] The MCPAP model has been replicated in Arkansas, Illinois, Iowa, Maine, New York, Ohio, Texas, Washington, and Wyoming, and is in the planning phases in Connecticut, New Jersey, and California. MCPAP is a cost-effective, comprehensive initiative for increasing access to mental health services for the children who need them. Visit the MCPAP website to learn more.
Read an article that mentions MCPAP and listen to a streaming newscast on the shortage of children's mental health professionals in Massachusetts on WBUR FM.
Like this example of a state-based innovative financing strategy?
There are more examples of innovative, effective projects like this on our Web site, organized under four general categories:
Visit the financing strategies pages again on March 1st, when we'll be unveiling new examples from our 2010 surveys of state Title V and Medicaid programs and family leadership organizations!
References
[1] Holt, W. "The Massachusetts Child Psychiatry Access Project: Supporting Mental Health Treatment in Primary Care, A Case Study by the Commonwealth Fund", March 2010. Accessed January 27, 2011 at http://www.mcpap.com/aboutData.asp
[2]US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. "The Mental and Emotional Well-Being of Children: A Portrait of the States and the Nation 2007", Rockville, Maryland: U.S. Department of Health and Human Services, June 2010. Accessed January 27, 2011 at http://www.mchb.hrsa.gov/nsch/07emohealth/moreinfo/pdf/nsch07.pdf.
[5] US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. "The Mental and Emotional Well-Being of Children: A Portrait of the States and the Nation 2007", Rockville, Maryland: U.S. Department of Health and Human Services, June 2010. Accessed January 27, 2011 at http://www.mchb.hrsa.gov/nsch/07emohealth/moreinfo/pdf/nsch07.pdf.
[6]Thomas C. and Holzer C. "The Continuing Shortage of Child and Adolescent Psychiatrists," Journal of the American Academy of Child and Adolescent Psychiatry, Sept. 2006 45(9):1023-31.
[7]American Academy of Child and Adolescent Psychiatry, Committee on Health Care Access and Economics: Task Force on Mental Health. Background to published article "Improving Mental Health Services in Primary Care: Reducing Administrative and Financial barriers to Access and Collaboration," Pediatrics,2009, 123:1248-1251.
[9] US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. "The Mental and Emotional Well-Being of Children: A Portrait of the States and the Nation 2007", Rockville, Maryland: U.S. Department of Health and Human Services, June 2010. Accessed January 27, 2011 at http://www.mchb.hrsa.gov/nsch/07emohealth/moreinfo/pdf/nsch07.pdf.
[11]Holt, W. "The Massachusetts Child Psychiatry Access Project: Supporting Mental Health Treatment in Primary Care, A Case Study by the Commonwealth Fund", March 2010. Accessed January 27, 2011 at http://www.mcpap.com/aboutData.asp
[12] Ibid.
[14] Straus, J. Personal communication, February 3, 2011
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We Must Preserve Health Care Reform
Ensuring children access to comprehensive health coverage
is one of the smartest, most cost-effective choices our country can make.
By Marian Wright Edelman
January 24, 2011
Reprinted with permission from Other Words
Katie H. in Texas suffers severe seizure-like attacks that last as long as 11 hours, caused by an undiagnosed neuro-developmental disorder. She's also deaf in one ear, has an eating disorder and requires daily medication for asthma. In her short life, she has already made numerous visits to the emergency room and had several hospital stays.
When Katie lost her health coverage, her father tried to buy private insurance through his employer. But at $1,000 a month - 30 percent of his salary - he couldn't afford it. No other private insurer would offer the family coverage for Katie because of her pre-existing conditions.
Thanks to the landmark health care reform law Congress approved last year, millions of children such as Katie will get the health coverage they need to grow up healthy.
Known officially as the Patient Protection and Affordable Care Act, the hard-fought changes President Barack Obama signed into law in 2010 marked a major step toward ensuring affordable and comprehensive health coverage for millions of children and families in America. It will give more than 35 million Americans access to the critical health coverage they need to survive and thrive. Among other important protections, the Affordable Care Act prohibits insurers from denying health coverage to children who desperately need it - those already sick with "pre-existing conditions."
In our wealthy nation, no child should be born at risk of future health and learning difficulties because of preventable causes. Infants shouldn't die in their first year of life because their mothers lacked adequate prenatal or postnatal care.
Undiagnosed, untreated and poorly managed health problems increase a child's chances of falling behind in school or having disciplinary problems, thus lowering a child's chances of succeeding in and out of school. Without care, more children will do poorly in school at a time when we need to be improving our global competitiveness. Good health at birth and throughout childhood is essential for them as children and as productive future workers.
Ensuring children access to comprehensive health coverage is one of the smartest, most cost-effective choices our country can make. The hidden costs of not insuring children include high costs of uncompensated care for those without insurance; use of costly emergency room care instead of early access to primary care; long-term treatment of preventable illnesses; and the costs of untreated emotional problems in children whose unmet needs bring them to the child welfare or juvenile justice systems.
Millions of children and families already depend on the protections in the Affordable Care Act. Millions more will do so as the law's provisions are implemented in the coming years. It's a travesty that these new and long-overdue protections are under attack. Every House Republican, joined by three Democrats, voted on Wednesday to repeal them. The Senate's unlikely to follow suit, but GOP lawmakers intend to make it impossible to fund.
Their votes could potentially deny at least 16 million children, parents and childless adults eligibility for Medicaid; threaten the successful Children's Health Insurance Program that now provides more than 7 million children health coverage and is expected to double in size by 2015; and deny health coverage for the more than 1.2 million young adults now eligible for coverage through their parents' health plans as they graduate from school and seek work up to age 26.
Rescinding these reforms would undermine opportunities to help hundreds of thousands of children with disabilities and other special needs. It would again permit insurance companies to unjustly deny health coverage to children such as Katie with pre-existing conditions and set annual limits and lifetime caps on their coverage.
Repeal efforts make no economic sense and would threaten our children's and taxpayers' financial futures. Repealing the health care law would increase America's deficit by $230 billion in just one decade, according to the nonpartisan Congressional Budget Office.
Our nation must protect these long-overdue gains for children and families. Our health care reform is already helping children and families and stopping some of the most egregious abuses committed by health insurance companies. Why would any sensible person want to take these protections away?
Marian Wright Edelman is president of the Children's Defense fund.
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EVENT:
2011 AMCHP and Family Voices Co-located National Conferences
February 12-15, 2011
FULL CONFERENCE PROGRAM NOW AVAILABLE
Attending the Conference? View the full program to get all the information you need to make the most of this exciting event. Learn about what's new this year, view a complete schedule of presentations and workshops, find out about family involvement, and more!
Visit the Conference website to download the program.
- Attend our workshop, Medicaid Buy-in Programs: Do they make a difference to families of children and youth with special health care needs? on Monday, February 14 from 2:45 to 4:00 PM in the Diplomat Room.
- And don't forget to stop by and visit the Catalyst Center at booth #15 in the exhibit hall!
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Announcing a New Report
from the New England Alliance for Children's Health (NEACH, a Community Catalyst initiative)
and the New England Council
Investing in Our Future:
New England Business Leaders' Views
on Children's Health Advocacy
December 2010
This recent publication presents findings from a study that assessed the business community's interest in becoming more actively involved in children's health advocacy work at both the federal and state level. Click here to read the full report or download the PDF.
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Recent Media Highlights
Florida judge rules against health law By: Janet Adamy Wall Street Journal January 31, 2011 A Florida federal judge ruled January 30th that the Affordable Care Act's requirement that individuals purchase insurance or pay a fee is outside Congress' constitutional authority. The judge also ruled that the entire law must be declared void as a result of the mandate to carry insurance. A previous ruling by a judge in Virginia also found the individual mandate unconstitutional but only applied his ruling to part of the law. Two other lower courts have found in favor of the constitutionality of the ACA. All four rulings are being appealed and it is expected that a final decision will eventually be made by the Supreme Court. The plaintiffs in yesterday's ruling include the states of Alabama, Alaska, Arizona, Colorado, Florida, Georgia, Idaho, Indiana, Iowa, Kansas, Louisiana, Maine, Michigan, Mississippi, Nebraska, Nevada, North Dakota, Ohio, Pennsylvania, South Carolina, South Dakota, Texas, Utah, Washington, Wisconsin, and Wyoming. Click here to view the 1/31/11 ruling by US District Court Judge Roger Vinson. State of the Union: Building on the early success of health reform By: Karen Davis The Commonwealth Fund January 26, 2011 This new blog post gives an overview of the State of the Union address in relation to remarks President Obama made about the benefits of the Affordable Care Act. One of the benefits highlighted by the President include improved access to affordable and comprehensive coverage for adults and children with pre-existing conditions. The President further pushed for curbing the growth in health care costs by making health care safer. Child-only health plans endangered By: Sarah Kliff and J. Lester Feder Politico January 27, 2011 Since the law that barred insurers from denying or limiting policies to children with pre-existing conditions, insurers in 34 states have decided to leave the market for child-only policies. The change in regulation by HHS to allow states to institute an open enrollment period has done little to stop this trend. Eight states have taken regulatory or legislative action to encourage or compel insurance companies to continue offering child-only policies. According to a survey of state insurance departments by Republican Senate committee staff, 20 states currently have no carriers offering child-only policies. These include the following: Texas, Florida, Illinois, Alaska, Arizona, Connecticut, Delaware, Georgia, Minnesota, Nebraska, Nevada, New Mexico, North Dakota, Oklahoma, Rhode Island, South Carolina, Tennessee, Utah, West Virginia and Wyoming.
No easy answer for state's Medicaid woes, Berwick says
By: Jason Millman
The Hill
January 27, 2011
Under the health care reform law, states that fail to maintain Medicaid coverage levels may lose some or all of their federal match. But a majority of states are asking the federal government for relief from this requirement as they face massive budget shortfalls. In this article, Centers for Medicare and Medicaid Services Administrator Don Berwick says there is no simple answer but his agency is committed to developing options to help states while protecting beneficiaries. 2011 State of the States State Coverage Initiatives (SCI) February 2011 This week State Coverage Initiatives will release its annual "State of the States" report which offers a comprehensive review of coverage expansion efforts in all 50 states and the District of Columbia. This year's edition will highlight efforts states have made in implementing the Affordable Care Act (ACA) as well as accomplishments in controlling costs and improving quality of care. To view the report please visit SCI's website: www.statecoverage.org
States use Medicaid cuts to fix state budget gaps
State Coverage Initiatives (SCI)
January 28, 2011 In these times of decreased revenue and increased enrollment in public benefit programs, states are looking for ways to close their budget deficits and Medicaid is a focus for many. Some have done so by improving their fraud and abuse prevention measures and others states, such as New York, Illinois and South Carolina, are expanding their Medicaid managed care programs. Some states such as California, Florida and Texas are considering more drastic measures such as tightening eligibility requirements, restricting benefits and services, and implementing budget cuts. This article from the Robert Wood Johnson Foundation's State Coverage Initiatives describes some of the ways in which states are trying to manage their budget shortfalls. |
Is there a topic related to coverage and financing of care for CYSHCN
that you would like us to address in an e-newsletter article?
If so, please email Emily Winter, Catalyst Center Research Assistant
and e-newsletter editor, with your suggestions. |
The Catalyst Center is a national technical assistance and research center
dedicated to working with states and stakeholder groups on
improving health care insurance and financing for
Children and Youth with Special Health Care Needs (CYSHCN).
For more information please visit us at www.catalystctr.org or
contact Meg Comeau, Project Director at mcomeau@bu.edu.
The Catalyst Center is funded under grant #U41MC13618 from the
Maternal and Child Health Bureau, Health Resources and Services Administration
US Department of Health and Human Services.
The Catalyst Center Health & Disability Working Group Boston University School of Public Health 715 Albany Street Boston, MA 02118-2526
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