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We are thankful for you and all the wonderful work you do!
Please note the Catalyst Center will not be distributing a Week In Review for the week of Nov 29th due to the holiday.
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Quote of the Week: "Be thankful for problems. If they were less difficult, someone with less ability might have your job." - James A. Lowell
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News items to suggest? Click here for more information.
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Health Care Reform
Reform law ends most bias against mental health care
By: Mark Moran
Psychiatric News
November 19, 2010
Parity for and integration of mental health treatment with general medical care are operating principles of the new health care reform law, with fee crucial provisions for treating individuals with several and persistent mental illness.
...Read More
ACA update of Healthcare.gov's fact sheets
Healthcare.gov
November 2010
Heathcare.gov's Fact Sheets section has been updated with new information about what the Affordable Care Act means for Americans with disabilities.
...Read More
State orders health insurers to offer child-only policies (Kentucky)
By: Cheryl Truman
McClatchy/The Lexington Herald-Leader
November 18, 2010
Kentucky insurance commissioner has ordered insurers to resume offering child-only policies.
...Read More
Health plans must spend premiums on medical care
Associated Press
November 22, 2010
The medical loss ration, also known as MLR, rule requires insurance companies to spend at least 80 cents of the premium dollar on medical care and quality.
...Read More
Affordable Care Act bolsters the primary care workforce in medically underserved communities
Press Release
US Department of Health and Human Services
November 22, 2010
Provider shortages are a significant barrier to high quality primary and specialty care for CYSHCN. The National Health Service Corps has received $290 million in funding to help primary care clinicians repay student loans while service communities.
...Read More
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Medicaid
Article examines effect of Medicaid and SCHIP expansions on child mortality
MCH Alert Digest
November 20, 2010
New article in the American Journal of Public Health examines the impact of Medicaid and SCHIP expansions on reducing disparities in child mortality.
...Read More
Some states weigh unthinkable option: Ending Medicaid
By: Janet Adamy and Neil King Jr
The Wall Street Journal
November 22, 2010
Officials in several states, including Washington, Texas and South Carolina have publicly pitched the idea of dropping out of the Medicaid insurance program.
...Read More
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Data and Multimedia
2010 State Autism Profiles
Data and Downloadable PDFs
Easter Seals
Easter Seals has prepared a state by state report of Autism services.
...Read More
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Catalyst Picks
California ranks last in U.S. on index measuring system of care for children with special health care needs, study finds (California)
Prepared By: The Child and Adolescent Health Measurement Initiative (CAHMI)
Lucile Packard Foundation for Children's Health
November 17, 2010
In California, about 15 percent of families have a child with special health care need. A new report commissioned by the Foundation documents areas in which the state is lagging on providing high-quality services for these children and their families.
...Read More
Report: State variation in underinsurance among children with special health care needs in the United States
By: Michael Kogan, Paul Newacheck, Stephen Blumberg, Kathleen Heyman, Bonnie Strickland, Gopal Singh, Mary Beth Zeni
Pediatrics, Vol. 125 No. 4
March 2010
This report looks at the results of the National Survey of Children with Special Health Care needs and provides a state level analysis of underinsurance rates for CYSHCN.
...Read More
Issue Brief - Health Screening and Assessment for Children and Youth Entering Foster Care: State Requirements and Opportunities
Center for Health Care Strategies, Inc
November 2010
This brief contains the results from a survey of states looking at screening requirements and assessments for children being placed into foster care.
...Read More
Dependents under scrutiny
By: Dana Mattioli
The Wall Street Journal
November 22, 2010
Health-care worries prompt rise in audits to verify dependents' eligibility.
...Read More
Policy Statement: Principles of health care financing
By: Russell Libby
Pediatrics, Vol. 126, No. 5
October 25, 2010
The American Academy of Pediatrics has published a policy statement advocating financing strategies that would ensure that children have health insurance and access to care.
...Read More
Report: Nutrition and oral health considerations in children with special health care needs - Implications for oral health care providers
By: Amr Mours, Jill Fernandez, Marcia Daronch, Lena Zee and Cassandra Jones
Pediatric Dentistry, Vol 32 , No 4
October 25, 2010
This report highlights that children with special health care needs are at higher risk for oral diseases and provides recommendations for improving oral health services. This is an area that is a gap for CYSHCN due to underinsurance.
...Read More
Maximizing enrollment for kids program
Web-based Toolkit
NASHP
November 2010
On November 18th, NASHP unveiled a new online toolkit for states to self-assess and identify strengths and weaknesses in their current system to more effectively enroll and better retain eligible children in Medicaid and CHIP.
...Read More
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Quick Tips
Want an easy way to stay on top of health reform implementation?
The Kaiser Family Foundation has created several resources to help you out.
- The Scan provides a daily feed of easily-digestible summaries of the latest research and studies from the Foundation and other organizations, as well as official actions and other developments related to the health law. Subscribe to the RSS feed to get notified of the latest entries in The Scan.
- The Document Finder provides brief summaries of and links to official federal government documents about health reform, including regulations and studies.
Kaiser's Health Reform Source, http://healthreform.kff.org, an online gateway providing easy access to new and comprehensive resources on the health reform law, provides these and other new features and tools including an interactive timeline showing when health reform provisions take effect, an animated video explaining how the law works, and FAQs. We encourage organizations and individuals to link to these resources. |
Reform law ends most bias against mental health care
By: Mark Moran
Psychiatric News
November 19, 2010
The Patient Protection and Affordable Care Act doesn't say much about mental health-and that's a good sign, said Richard Frank, Ph.D., deputy assistant secretary and director of the Office of Disability, Aging, and Long-Term Care Policy at the Department of Health and Human Services.
Frank, a health care economist and mental health policy expert who is no stranger to APA audiences, spoke last month at APA's Institute on Psychiatric Services in Boston.
He outlined the three central pillars of the new health care reform law-public insurance expansion, private insurance market reform, and payment and delivery system reform-noting that all three are intended to occur under an umbrella of parity and integration of mental health treatment with general medical care.
"Parity permeates the Affordable Care Act," Frank said. "The exceptionalism that has characterized mental health policy for the last 50 years is not a part of this law. I see the fact that there isn't very much singling out of mental health as a mark of success. Mental health is a part of the mainstream in this law."
At the same time, he noted that in a few crucial areas-especially the extension of traditional Medicaid benefits to the seriously and persistently mentally ill and the inclusion of community mental health centers in the definition of a "health home"-the law does contain special provisions that designate serious and persistent mental illness as requiring special attention.
Of overriding importance to the mental health community is the expansion of Medicaid eligibility to 133 percent of the federal poverty level, with income limits of $14,404 for individuals and $29,326 for a family of four. Additionally, the law provides 100 percent federal funding to all states for newly eligible Medicaid recipients for three years, and additional federal matching funds to states that already cover childless adults in their Medicaid programs.
"Medicaid has always been the single largest payer for mental health in this country, and it's going to be more important in the years ahead," Frank said.
Frank noted that based on 2003-2004 data, the percentage of people without a mental disorder of any kind, including substance abuse, among the uninsured was about 11 percent. But the percentage of uninsured with severe mental illness is about 20 percent, and the percentage of the uninsured with any other mental illness is 18 percent. (And among the uninsured, a remarkable 52 percent have some form of substance abuse disorder.)
"Right away, if you are expanding coverage, you are almost sure to disproportionately benefit people with mental illness," he said. "And the benefit for those with addictions is even more striking. While the law is important for people with mental illness, it's even more important in the world of addiction, and it creates new opportunities to rethink the way we finance and deliver care to people with addictions."
Importantly, he noted, the package of benefits for the expanded Medicaid population will not be the same as the traditional benefit, but will look more like the "benchmark benefit" linked to private-insurance models that was established in the State Children's Health Insurance Program (SCHIP) legislation.
(SCHIP, reauthorized in 2009, establishes a "benchmark" benefit that can be the coverage offered under the BlueCross/BlueShield plan for federal employees, a coverage plan that is offered to state employees, or a coverage plan that is offered by a health maintenance organization with the largest commercial enrollment in a state.)
But Frank noted also that there is within the health reform law a provision allowing for exemptions from the benchmark benefit for those with serious mental illness so that they could have access to the more generous traditional Medicaid benefit. "So for example, if you have schizophrenia or bipolar disorder but have not qualified for SSI or SSDI, you can still meet criteria for the traditional [Medicaid] benefit," Frank said.
The second important element of the Affordable Care Act is reform of the insurance market, establishing insurance market exchanges in 2014 that will operate much as large corporations such as IBM or General Electric do-or as state governments do-allowing individuals and small employers to shop for standardized health packages. The law includes an employer mandate, also beginning in 2014, requiring companies with 50 or more employees to offer coverage to employees.
These provisions all require parity coverage of mental illness, Frank said. The third component of the reform law is delivery-system and payment reform. And as part of that, a crucial element-and one where Frank said mental health has been singled out for exceptional treatment-is the state-based option for providing "health homes" for enrollees with chronic conditions. In part because of APA lobbying, that provision also includes persistent and serious mental illnesses in the definition of chronic illness.
Frank emphasized that the definition of a "health home" can include community mental health and home health agency services if they meet the criteria for integrating primary care and provide wraparound services. Wraparound services can include case management, home-based care, crisis intervention, individual and family therapy, treatment for substance abuse, transportation, and health education.
"This provision for Medicaid health homes integrates mental illness and addiction treatment into the mainstream thinking about chronic disease, while at the same time recognizing the special circumstances of people with severe and persistent mental illness."
Frank called the "health home" as envisioned in the law a "broader conception of chronic disease [than commonly envisioned]" and one that "relaxes the idea that a health home is uniquely located in a primary care practice." Some $50 million is earmarked for co-locating primary care services within behavioral health centers to ensure that people with severe and persistent mental illness receive medical care, and a similar amount is designated for fostering mental health care in community health centers.
Overall, the way that treatment for mental illness, including substance abuse, is regarded within the reform law is "a great mark of advance and something that we should celebrate, not fear," Frank told psychiatrists at the meeting.
"I think this is really a historic moment in terms of how we care for the sickest people with mental illness and addictive disorders," he said, "It is a huge opportunity to improve the way we pay for care for people who are extremely vulnerable, but also to rethink how we use our resources.
"Mental illness and substance abuse treatment are entering the mainstream," Frank said. "We don't mention mental health all the time [in the law] because we don't have to. We have parity, and we have an administration and a field that are committed to doing integration where it is sensible, and recognizing the places where it has its limits."
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ACA update of Healthcare.gov's fact sheets
Healthcare.gov
November 2010
This new fact sheet from HealthCare.gov describes what the Affordable Care Act means for Americans with disabilities. The Act will stop insurance company discrimination based on a preexisting condition. Beginning in 2014 the law will prohibit insurance companies from denying coverage or charging more to a person based on their medical history. It will also provide new choices for long-term supports and services, as well as accessible, quality and affordable health care for people with disabilities.
To view the fact sheets please click here.
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State orders health insurers to offer child-only policies (Kentucky)
By: Cheryl Truman
McClatchy/The Lexington Herald-Leader
November 18, 2010
Kentucky Insurance Commissioner Sharon Clark has ordered all individual health insurers selling in Kentucky to offer an open enrollment period in January for Kentuckians younger than 19, effectively requiring balking insurers to resume sales of "child-only" policies.
The state Public Protection Cabinet had ordered the change as a result of an Oct. 13 hearing in which insurers were asked to explain why they stopped writing "child-only" policies Sept. 23. That was the date when the companies no longer could deny coverage because of a pre-existing health condition under the federal Patient Protection and Affordable Care Act.
The state insurance department said the decision by insurers to stop offering such policies was a violation of state law and discriminated against those younger than 19 who need individual health insurance. Clark said Thursday she was concerned that families needing a "child-only" policy would be forced into the Kentucky Access high-risk pool.
Thursday's order makes annual open enrollment available each January beginning in 2011 and running through 2013. Federal health care reform will prohibit insurers from denying coverage, regardless of health status, in 2014. The order requires insurers to set rules to discourage consumers from dropping coverage after medical services have been received, provide a mechanism to obtain coverage outside open enrollment for qualifying events, and limit the number of plans offered to those younger than 19.
"I believe this order is fair to insurers and offers Kentucky families the opportunity to obtain medical coverage for children in that age bracket, both healthy and unhealthy," Clark said in a news release. ...Back |
Health plans must spend premiums on medical care
Associated Press
November 22, 2010
Health insurance premiums should go for actual medical care - not insurers' overhead and profits - the Obama administration said Monday in rules that for the first time require the companies to give consumers a rebate. The regulation unveiled by the Health and Human Services department calls for insurance companies to spend at least 80 cents of the premium dollar on medical care and quality. For employer plans covering more than 50 people, the requirement is 85 cents. Insurers that fall short of the mark will have to issue their customers a rebate.
Part of the new health care law, the rule is meant to give consumers a better deal. Administration officials said it will prevent insurers from wasting valuable premiums on administration, marketing and executive bonuses. "While some level of overhead costs is certainly necessary, we believe they have gotten out of hand," said Health and Human Services Secretary Kathleen Sebelius. Some insurers have complained the approach is heavy handed, and doesn't take into account costs of marketing to individuals and small employers. Indeed, some are threatening to pull out of the individual market, and four states have already asked the federal government for an exemption from the rule, fearing it could lead to loss of coverage.
But industry watchers said the final regulations wound up being more manageable than investors initially feared. Analyst Les Funtleyder, who covers the industry for Miller Tabak, noted that HHS has wide latitude to adjust the rules to prevent market disruptions. "From an expectations point of view, these are rules that managed care can live with in 2011," he said.
Currently, there is no uniform requirement that health insurers spend a minimum share of premiums on medical care. Consumer groups say somewhere between 80 to 85 cents on the dollar represents good value, but many plans spend in the range of 60 to 80 cents. That will change Jan. 1, when the rule goes into effect. Starting in 2012, as many as 9 million customers could get rebates averaging $164, officials estimate. It could be a discount on premiums or a payment by check or credit card.
Consumers shopping for health insurance in the future will be able to compare what plans in their area spend on medical care. They'll have to learn some new jargon: the proportion insurers spend on care is termed the "medical loss ratio." Overall, the new requirement applies to plans that cover about 75 million people. One major exception involves large employer plans. Generally major companies pay their employees' health care expenses directly, hiring an insurance company to act as an outside administrator. To employees, it looks like they are covered by an insurer, but it's actually their company that's paying. Because most big firms pay up front, they already have a strong incentive to be as efficient as possible.
Administration officials say they don't anticipate the kinds of dire disruptions that some health insurance companies have warned about. "No one is going to lose their coverage," said Jay Angoff, head of the HHS office of insurance oversight. Developed in conjunction with state insurance regulators, the regulation provides for adjustments to ease the impact of the requirements if problems emerge.
Very small insurers with fewer than 1,000 enrollees will not be required to provide rebates, and those with fewer than 75,000 enrollees will get an adjustment. Limited benefit plans popular in low-wage industries will get more time to comply, and may also be able to claim adjustments. States can apply for a waiver if state regulators conclude that the requirement would destabilize local markets, for example if a large insurer pulled out. ...Back |
Affordable Care Act bolsters the primary care workforce in medically underserved communities
Press Release
US Department of Health and Human Services
November 22, 2010HHS Secretary Kathleen Sebelius today announced the launch of the new application cycle for the National Health Service Corps (NHSC) Loan Repayment Program, during a visit to Total Health Care, a community health center in Baltimore. The NHSC offers primary care medical, dental and mental health clinicians up to $60,000 to repay student loans in exchange for two years of service at health care facilities in medically underserved areas. This year's investment in the program, which includes $290 million from the Affordable Care Act, seeks to address shortages in the primary health care workforce and translates into greater access to healthcare for those who might otherwise go without.
"As we continue to seek ways to impact both the primary care workforce shortage and the increasing debt burden on new providers, NHSC serves as a model for addressing both challenges simultaneously," said Secretary Sebelius. "Increasing access to primary care physicians who can support the physical and mental well-being of individuals can help prevent disease and illness, and ensure everyone - regardless of where they live - has access to comprehensive, high quality care."
The Affordable Care Act also provides more flexibility in how the Corps administers the loan repayment program. In addition to monetary awards that are higher than previous years, the Corps will give members the option of working half-time to fulfill their service obligation and provide credit for some teaching hours.
"The NHSC sites are located in some of the most geographically isolated and economically distressed areas of the country," said HRSA Administrator Mary K. Wakefield, PhD., RN. "The health care professionals who answer this call to serve in the NHSC will join thousands of dedicated primary care clinicians who bring quality health care to underserved communities and vulnerable populations."
"By the end of FY2011, we expect that over 10,800 clinicians will be caring for more than 11 million people, more than tripling the National Health Service Corps since 2008," said NHSC Director Rebecca Spitzgo. "By 2015, with the historic funding opportunities offered by ARRA and the Affordable Care Act, the Corps will support more than 15,000 new primary care professionals." For the first time, providers may apply to the NHSC loan repayment program online where they will find tutorials and additional information to assist in the application process. ...Back
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Article examines effect of Medicaid and SCHIP expansions on child mortality
MCH Alert Digest
November 20, 2010
Medicaid and State Children's Health Insurance Program (SCHIP) "expansions worked equally well in improving the health of Black children and White children. At the same time, the Medicaid and SCHIP expansions do not appear to have reduced relative racial disparities in child mortality, which remained unchanged in this time period,"
state the authors of an article published in the December 2010 issue of the American Journal of Public Health. Most research on the impact of the expansions of coverage has focused on improvements in access to care and use of services. The article examines the association between child mortality and those expansions and the effect of the expansions on racial disparities in child mortality.
The researchers (1) obtained the complete National Center for Health Statistics individual-level multiple-cause-of-death mortality data from 1985 through 2004 from a public use data archive; (2) extracted records for children ages 1-17, along with the cause of death, year of death, state of residence, and child demographic characteristics (age and race); and (3) tabulated the number of deaths from natural
(disease-related) and external (injuries, homicide, and suicide) causes, by state, year, three racial categories (black, white, and "other"), and three age categories (ages 1-4, 6-11, and 12-17). They analyzed data for the broad categories of natural and external causes of mortality, developed descriptive trends in mortality rates by age and race, and studied the relationship between Medicaid and SCHIP eligibility and child mortality.
The authors found that
"It is not evident from this study that expanded health insurance coverage for children was a successful strategy for reducing relative racial disparities in child mortality through 2003," conclude the authors. They add, "reducing racial disparities may require many different types of changes at the national and community level, of which improved health insurance coverage is just one such change."
Howell E, Decker S, Hogan S, et al. 2010. Declining child mortality and continuing racial disparities in the era of the Medicaid and SCHIP insurance coverage expansions. American Journal of Public Health 100(12):2500-2506. Abstract available at http://ajph.aphapublications.org/cgi/content/abstract/100/12/2500.
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Some states weigh unthinkable option: Ending Medicaid
By: Janet Adamy and Neil King Jr
The Wall Street Journal
November 22, 2010Huge budget shortfalls are prompting a handful of states to begin discussing a once-unthinkable scenario: dropping out of the Medicaid insurance program for the poor. Elected and appointed officials in nearly a half-dozen states, including Washington, Texas and South Carolina, have publicly thrown out the idea. Wyoming and Nevada this year produced detailed studies of what would happen should they withdraw from the program. Wyoming found that Medicaid accounts for 63% of the state's nursing-home revenue.
The idea of abandoning Medicaid as a solution is so extreme that even proponents don't expect any state will follow through, but officials are floating the discussions because dire budgetary pressures have forced them to at least look at even the most drastic options. Medicaid, begun in 1965 and jointly funded by federal and state dollars, is the nexus of care for the neediest Americans, and a huge payer to hospitals, nursing homes and doctors. Medicaid enrollment totaled 62 million nationwide in 2007, the most recent data available.
But Medicaid has become one of the biggest items on state budgets, and states complain they don't have enough flexibility to pare it without losing their federal matching funds. The federal government, on average, covers 57% of the cost of the program for states. In exchange, states must keep Medicaid open to all who qualify. Some states, in particular those led by Republicans, are calculating whether they'd be better off giving up the federal funding and replacing Medicaid with a narrower program of their own. Texas Gov. Rick Perry has proposed that his state get out of Medicaid in favor of a state-run system unburdened by federal mandates-including the one that prohibits states from reducing eligibility for the program if they want to qualify for the federal matching funds.
"We feel very comfortable that we could come up with a more equitable, a more efficient, and obviously a more cost-effective way to deliver health care," he said. How to tackle the soaring cost of Medicaid was one of the big topics in the hallways at the Republican Governors Association gathering in San Diego last week. Mr. Perry said that in private discussions, most attendees agreed they wanted more freedom in choosing how to provide health care to the poor.
Officials at the federal Centers for Medicare and Medicaid Services dismiss the withdrawal discussions and say they're working to make the program more effective for states. "Medicaid's a strong program and it's getting stronger," said Donald Berwick, the agency's administrator. A new innovation center at the agency is looking for ways to tie Medicaid spending more to the quality of care, rather than quantity. In Washington state, which has a Democratic governor, Medicaid Director Doug Porter says he discussed the idea of dropping out of Medicaid with members of a citizen advisory committee the governor pulled together to tackle a $5.7 billion budget shortfall over the next two years.
"It's not a serious consideration, but it's illustrative that people are even thinking about it," Mr. Porter said. "That I'm doing it is stunning." However, many elderly people rely on Medicaid to pay for long-term care at nursing homes, and that makes pulling out a "deal killer," Mr. Porter said. No good alternative currently exists to cover such nursing-home costs. Major cuts are in store for Washington's Medicaid program anyway. To plug the budget gap, the state is proposing eliminating coverage of prescription drugs, physical therapy and vision, dental and hearing treatments for adults next year.
Some policy experts say the most feasible scenario would be withdrawing from Medicaid in 2014 when the new health-care law overhaul is set to add 16 million Americans to the program's ranks. A quirk in the law passed in March suggests that a portion of the new Medicaid enrollees could instead qualify to get a tax credit to buy private insurance on state-run exchanges, although Democrats say that wasn't the intent of the law.
Indiana Gov. Mitch Daniels said he put a different proposal before the Republican governors assembled in San Diego: that they all band together to create a multistate insurance pool for the uninsured. But the states would do it, he said, only on the condition that the federal government agreed to eliminate some of the mandates embedded in the health overhaul. Wyoming's report said the 2014 Medicaid expansion would strain the state budget. "However, the strain that will ensue should Wyoming determine to opt-out of participating in Medicaid without a solid plan to replace it is truly immeasurable," the report said. ...Back
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2010 State Autism Profiles
Data and Downloadable PDFs
Easter Seals
The Centers for Disease Control and Prevention (CDC) presented new findings that revealed as many as one in 110 children in the United States are now diagnosed with autism. While no known cure is yet available, autism is treatable. Many states are responding to what is now described as an epidemic by offering more services for children and adults with autism.
Easter Seals has prepared a state-of-the-state report of autism services in the 50 states, the District of Columbia and Puerto Rico. The profiles highlight the number of children with autism who have received the state's special education services, state insurance coverage for autism if available, Medicaid services specific for individuals with autism, educational programs provided to students with autism or training that focused on autism, special education criteria, other state-led resources, and sponsors of autism legislation.
To view the state profiles please visit the Easter Seals website. ...Back |
California ranks last in U.S. on index measuring system of care for children with special health care needs, study finds (California)
Prepared By: The Child and Adolescent Health Measurement Initiative (CAHMI)
Lucile Packard Foundation for Children's Health
November 17, 2010
An estimated one in seven children in California has a special health care need, yet the state ranked worst in the nation on a composite index that measures whether these children have adequate health insurance, receive basic preventive care, and receive medical care that is comprehensive, ongoing and family-centered, according to a study released today. Children with special health care needs are those who have a chronic condition that requires health care beyond what is needed by most children. Conditions may range from mild, manageable asthma to highly complex conditions such as cerebral palsy or heart disease.
"These children are one of the most vulnerable segments of our society, and in many senses the system in California is not doing well for them," said David Alexander, a pediatrician who is president and CEO of the Lucile Packard Foundation for Children's Health, which commissioned the study. Nearly all children with special health care needs in California experience some limitations in their daily lives. However, about one in four of the 1.4 million special needs children in California experiences difficulties severe enough that they are unable to do things other children their age can do. These children and their families usually have the most difficulty in finding medical and dental care, child care, transportation, educational assistance, medical equipment, consistent health insurance, and a range of other services.
"This is particularly concerning because advances in medical care mean that many children are surviving who previously would not have, and it will become increasingly difficult for our already overburdened system to care for them adequately," Alexander said. The composite index noted in the study does not evaluate the quality of the medical treatment that individual children receive, which is often excellent, Alexander said. Rather, it assesses adequacy of insurance, access to care, and other measures of how well the system functions, such as whether families are involved in the care. "We must make significant improvements in these areas," he said.
The study, Children with Special Health Care Needs: A Profile of Key Issues in California, analyzes the most recently available data from two surveys of parents sponsored in every state by the U.S. Maternal and Child Health Bureau: the 2007 National Survey of Children's Health and the 2006 National Survey of Children with Special Health Care Needs. "Children with special health care needs in California have exceptionally complex conditions, and there is no question that many families are struggling to meet their basic requirements," said lead study author Christina Bethell, professor in the Department of Pediatrics at Oregon Health and Science University and director of the Child and Adolescent Health Measurement Initiative, where the study was conducted. "One of our significant findings was that nearly one in four of these children has parents who cut back or stopped working due to their child's health. This has a tremendous impact not only on families but also on employers."
In other key findings:
- Ethnic/racial and economic disparities in California are stark among children with special needs. Children of color and publicly insured children are much more likely to have poorer health status and sub-optimal health care.
- Children with special needs are much more likely to repeat a grade and to miss more days of school than children without special needs.
- California ranked 45th among states in addressing the transition from pediatric to adult care.
- California had the nation's highest percentage of children whose parents reported stress from parenting their special needs child.
The barriers to creating a higher quality system are longstanding and complex, with no single solution, Alexander said. Ensuring that all children have adequate health insurance, and streamlining the way care is financed are two important steps, he said. Advocates and policymakers also need to press for treating children in an environment where their multiple health and social needs can be coordinated, and families can be involved in decision making, Alexander said.
Although California ranks poorly on many indicators, the state is not alone, Alexander said. "Throughout the country, children with special needs receive care in a system that is poorly designed to meet their specific requirements. As health reform is implemented, we must be sure that the needs of this growing population finally are addressed."
ABOUT THE FOUNDATION: The Lucile Packard Foundation for Children's Health, a non-profit public charity, works to improve children's health by bringing public attention to key issues, particularly those related to children with special health care needs.
ABOUT CAHMI: The Child and Adolescent Health Measurement Initiatives a research and policy group based at Oregon Health & Science University that focuses on the development, implementation, and strategic dissemination of data based on measures of child and adolescent health and health care quality.
The full report and the executive summary are available at http://www.lpfch.org/specialneeds/press.html ...Back
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Report: State variation in underinsurance among children with special health care needs in the United States
By: Michael Kogan, Paul Newacheck, Stephen Blumberg, Kathleen Heyman, Bonnie Strickland, Gopal Singh, Mary Beth Zeni
Pediatrics, Vol. 125 No. 4
March 2010
Abstract
OBJECTIVE National attention has focused on providing health insurance coverage for children. Less awareness has been given to underinsurance, particularly for children with special health care needs (CSHCN). Defined as having inadequate benefits, underinsurance may be a particular problem for CSHCN because of their greater needs for medical care.
METHODS We used the 2005-2006 National Survey of Children With Special Health Care Needs, a nationally representative study of >40 000 CSHCN, to address state variations in underinsurance. CSHCN with health insurance were considered underinsured when a parent reported that the child's insurance did not usually or always cover needed services and providers or reasonably cover costs. We calculated the unadjusted prevalence of underinsurance for each state. Using logistic regression, we estimated state-specific odds and prevalence for underinsurance after adjusting for poverty level, race/ethnicity, gender, family structure, language use, insurance type, and severity of child's health condition. We also conducted multilevel analyses incorporating state-level contextual data on Medicaid and the State Children's Health Insurance Program.
RESULTS Bivariate and multivariate analyses indicated that CSHCN's state of residence had a strong association with insurance adequacy. State-level unadjusted underinsurance rates ranged from 24% (Hawaii) to 38% (Illinois). After multivariate adjustments, the range was largely unchanged: 23% (Hawaii) to 38% (New Jersey). Multilevel analyses indicated that Medicaid income eligibility levels were inversely associated with the odds of being underinsured.
CONCLUSIONS The individual-level and macro-level factors examined only partly explain state variations in underinsurance. Furthermore, the macro-level factors explained only a small portion of the variance; however, other macro-level factors may be relevant for the observed patterns. ...Back |
Issue Brief - Health Screening and Assessment for Children and Youth Entering Foster Care: State Requirements and Opportunities
Center for Health Care Strategies, Inc
November 2010Issue Brief - Health Screening and Assessment for Children and Youth Entering Foster Care: State Requirements and Opportunities
Early assessment and intervention are critical to the well-being of children and youth entering foster care - a population with a high prevalence of physical, behavioral, and oral health needs. This issue brief reports on a 50-state survey conducted by the Center for Health Care Strategies (CHCS) to understand child welfare agency requirements for health screenings and assessments upon a child's removal from the home.
The survey found: - Virtually all states require an initial physical, behavioral, or oral health screening, and more than half of states mandate all three;
- State-required time frames for completion of health screenings vary significantly, and do not consistently reflect nationally recognized guidelines; and
- State mandates for follow-up health assessments are less rigorous than for initial screenings.
Findings suggest significant opportunities for states to strengthen screening requirements to more effectively guide care management and support better health outcomes for the high-risk foster care population. Made possible through support from the Annie E. Casey Foundation and the Centers for Medicare & Medicaid Services. Read the issue brief » ...Back
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Dependents under scrutiny
By: Dana Mattioli
The Wall Street Journal
November 22, 2010
More employers are scrutinizing employees' health-insurance dependents in order to weed out ineligible beneficiaries. Employers are looking to cut costs amid a sputtering economy and worries that health-care reform will accelerate rising corporate health-care expenses. So some companies are conducting audits to verify dependents' eligibility, to make sure they aren't paying for people they shouldn't be.
Benefits-consulting companies say interest in dependent audits has been growing for the past few years, but has ticked up more recently. ConSova Corp., whose business is mostly dependent audits, says sales have increased 150% this year over last year, and that it has already booked four times as many dependent audits for 2011 than it did in 2010. Budco's Budco Health Service Solutions, another firm that conducts dependent audits, says it expects to perform 25% to 30% more such audits in the first quarter of 2011 over the year-earlier period.
These companies aim to verify the relationships of dependents such as spouses and children, soliciting documents including marriage and birth certificates. In many cases, employers haven't previously asked employees to verify dependents' eligibility. "Historically it's been the honor system," says Michael Smith, chief executive of ConSova, of Lakewood, Colo. "If you say that's your spouse, they believe you," he says.
Employers next year will pay an estimated $7,612 in health-care premiums on average per employee, a 7.8% increase over this year, according to Aon Hewitt. Employers paid an average of $2,100 annually per dependent in 2009, the most recent year available, according to human-resources consulting firm Mercer. In most cases where an audit finds ineligible dependents, employees appear to have made honest mistakes. Some have enrolled non-immediate family members without realizing coverage shouldn't extend to them, or they forgot to remove children who graduate from college or got too old.
Other times, employees are cheating. Budco says one third of the ineligible dependents it finds are the result of fraud, mostly in divorces when spouses try to keep their exes on their plans, says Dave Chojnacki, executive vice president of Budco Health Service Solutions. In many minor cases, companies remove the dependent without penalty. For more serious offenses, employers sometimes ask workers for repayment or fire them, says Mr. Chojnacki.
It can violate federal law if an employee knowingly provides false information in writing to an employee benefits plan. But employees rarely get sued for this, partly because the amounts at stake are generally small, says Tom Christina, an attorney at Ogletree, Deakins, Nash, Smoak & Stewart. Government contractor Science Applications International Corp. began an audit this month. It had done spot audits before, but never a full-scale one. Now, the McClean, Va., based company is asking 30,000 of its employees to verify dependents.
"We wanted to make sure we weren't spending more than we should have and wanted to position ourselves well for upcoming changes in health-care legislation," says Brian Keenan, executive vice president of human resources at SAIC. The company has seen health-care costs rise over the last several years. Mr. Keenan expects the audit to save the company between $3 million and $4 million next year. He expects the impact of health-care reform to cost the company between $2 million and $3 million in 2011.
He says the company will deal with offenders on a case by case basis. At the very least, it will drop ineligible dependents. If it finds fraud, it will take more serious action, he says. Defense contractor DynCorp International LLC is completing its first dependent audit of its 8,000 U.S. employees and expects to save more than $800,000 next year, says Don Platt, director of corporate benefits. So far, the audit has discovered 160 deceased dependents and more than 90 ineligible children, says Mr. Platt.
DynCorp considered making employees repay the company, but decided not to because it was complicated to determine how much each employee would owe, says Mr. Platt. New employees now have to verify dependents with documents, says Mr. Platt. They also have to sign a form saying that the information they are providing is accurate and if found to be untrue they will be terminated.
National Semiconductor Corp. is currently doing a health-care dependent audit through Xerox Corp.'s ACS. The Santa Clara, Calif., based analog-chip maker is asking 1,400 employees with dependents to attest that their dependent information complies with National's rules. The audit will be completed at the end of November and the company expects to save between 3% and 8% of its health-care spend, according to a spokeswoman. "In light of U.S. health-care reform, the audit provides an opportunity for us to evaluate everything and clean-up our data," the spokeswoman says. ...Back |
Policy Statement: Principles of health care financing
By: Russell Libby
Pediatrics, Vol. 126, No. 5
October 25, 2010
The American Academy of Pediatrics advocates that all children must have health insurance coverage that ensures them access to affordable and comprehensive quality care. Access to care depends on the design and implementation of payment systems that ensure the economic viability of the medical home; support and grow the professional pediatric workforce; promote the adoption and implementation of health information technology; enhance medical education, training, and research; and encourage and reward quality-improvement programs that advance and strengthen the medical home.
Health insurance plans must be portable from state to state, with administrative procedures to eliminate breaks and gaps in coverage to ensure continuous coverage from year to year. Plans should ensure free choice of clinicians and foster coordination with public and private community-based programs for infants, children, and adolescents through the age of 26. The scope of services provided by all health plans must include preventive, acute and chronic illness, behavioral, inpatient, emergency, and home health care. These plans must be affordable and have cost-sharing policies that protect patients and families from financial strain and are without risk of loss of benefits because of plan design, current illness, or preexisting condition. ...Back
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Report: Nutrition and oral health considerations in children with special health care needs - Implications for oral health care providers
By: Amr Mours, Jill Fernandez, Marcia Daronch, Lena Zee and Cassandra Jones
Pediatric Dentistry, Vol 32 , No 4
October 25, 2010
Children with special health care needs are at increased risk for oral diseases. The purpose of this article was to discuss: nutritional and oral health factors routinely observed in most chronic childhood disorders; dietary modifications associated with select systemic disorders and how they may impact oral health in children; and the following factors common to chronic disorders associated with diet modifications-decreased appetite and increased nutritional risk; frequency of food intake; parental overindulgence; long-term use of cariogenic medications; and xerostomia.
Characteristics of childhood disorders that require dietary modifications (congenital heart disease, cystic fibrosis, cancer, AIDS/HIV, diabetes mellitus, and phenylketonuria) are summarized. In addition, healthy dietary modifications and oral health recommendations are suggested. Implementation of these recommendations can assist the dentist and dental team as they join physicians and nutritionists in delivering the best possible care to children with special health care needs. ...Back |
Maximizing enrollment for kids program
Web-based Toolkit
NASHP
November 2010
This Self Assessment Toolkit is based on the diagnostic assessment that each of the eight state grantees participated in during the initial phase of the Maximizing Enrollment for Kids program, an initiative funded by the Robert Wood Johnson Foundation. This web-based interactive toolkit, developed by NASHP, is intended to guide states through an assessment of their enrollment and retention processes and procedures to identify strengths, weaknesses and opportunities for improvements. This diagnostic tool can help states determine where to target their limited resources to further reduce enrollment barriers and increase program efficiency.
The Self Assessment Toolkit is designed specifically for states, but does allow for engagement from interested stakeholders as a way to gain additional perspective during the assessment process. It seeks to provide states with access to available information on enrollment and retention simplifications, best practices and tools to help work toward meaningful improvements that can result in enrolling more eligible, but un-enrolled children.
Self Assessment Toolkit includes four modules that states can use with interested stakeholders either in combination or separately to identify issues and develop plans for improvement.
Features include: - An online questionnaire that will provide states with a tailored report, highlighting workable best practices and strategies to improve enrollment and retention;
- Questionnaires that provide a vehicle for obtaining objective stakeholder feedback on areas for improvement; and
- Instructions on how to harness the information gleaned during the assessment process to develop improvement plans.
Please click here to access the Self-Assessment Toolkit. ...Back
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If you have suggestions for news items related to coverage and financing of care for CSHCN, please email Sheila Phicil by 12 pm EST on Friday at sphicil@bu.edu.
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The Catalyst Center is a national center dedicated to improving health care insurance and financing for Children and Youth with Special Health Care Needs (CYSHCN). For more information please visit us at www.catalystctr.org or contact Meg Comeau, Program Director at mcomeau@bu.edu.
The Catalyst Center Health & Disability Working Group Boston University School of Public Health 715 Albany Street Boston, MA 02118-2526
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