Catalyst Center Logo
Index
Click title to go directly to article
  1. Upcoming publications
  2. New Resource for Stakeholders: Week in Review
  3. Webcast: Impact of National Health Care Reform on Massachusetts CYSHCN and their Families
  4. The Catalyst Center Website: A Brand New Look and More User-Friendly than Ever
  5. The Latest in Catalyst Center Research: What Impact Do Medicaid Buy-in Programs for CYSHCN Have on Their Families?
  6. How Medicaid Buy-In Programs Can Fill the Insurance Gaps left by Unavailable or Unaffordable Child-only Plans

 

 
UpcomingPubsComing Soon:
 
"The Affordable Care Act and
Children with Special Health Care Needs:
An Analysis and Recommendations for State Policy-Makers"
a joint publication of the Catalyst Center and the
National Academy for State Health Policy (NASHP).
 
Not a subscriber?

Join our mailing list
and be notified upon its release!


WeekinReviewA New Resource for Stakeholders
The Week In Review
 
Watch your inbox every Monday for our Week In Review,
a once-a-week e-mail compilation of the latest national
news and events that impact coverage and financing of
care for CYSHCN. This is a brand new resource for stakeholders
who now more than ever need access to timely information
on the evolving opportunities and challenges in improving coverage and financing of care for CYSHCN. 
 

Visit the Catalyst Center website to read
"Dancing with Data"

a new how-to article on using statistical data and family stories to strengthen your work.
Do you have a question about 
health care financing policy for CYSHCN that you want us to address in our newsletter?
 
Email Meg
and let us know!
Visit our website to access our latest technical brief, "Care Coordination in a Statewide System of Care: Financing Models and Payment Strategies"

Receive this e-mail
as a forward?
Click the box below to receive notifications
of Catalyst Center events, publications, and more!

Join Our Mailing List

Webcast1Webcast: Impact of National Health Care Reform on

Massachusetts CSHCN and their Families

 

The national health care reform law, also known as the Patient Protection and Affordable Care Act (PPACA), was passed in March, 2010.  Its ambitious goals include expanding health care coverage to more Americans, strengthening consumer protections and improving the quality of health care. Many now-familiar elements of the 2006 Massachusetts state health care reform were included in PPACA, but there are also new components that may further shape Massachusetts health care. So, how will these changes impact families of CYSHCN in the state? In a webcast for MA Family Voices earlier this month, Meg Comeau, director of the Catalyst Center and the parent of a young adult with a complex genetic syndrome, described the changes national health care reform may bring to Massachusetts families raising children with special health care needs. To listen to a recording of the webcast, visit the MA Family Voices website. Additional resources on this topic include Meg's PowerPoint slides and an at-a-glance chart comparing national and MA state health care reform provisions.


BuyinThe Latest in Catalyst Center Research:

What Impact Do Medicaid Buy-in Programs Have on

Families of Children with Disabilities?

 

In collaboration with the Massachusetts and Louisiana State Medicaid programs and a group of family advisors in each state, the Catalyst Center has begun working on a new research project focusing on the impact of Medicaid buy-in programs on families of children with disabilities.  


Financial hardship is a common and formidable challenge for families of children with disabilities. The National Survey of CSHCN (www.cshcndata.org) reports that 18% of families of CSHCN face financial problems as a result of their child's condition, and nearly 24% of families report needing to cut back or stop working to better meet their child's needs. The inability of families of CSHCN to work limits their access to the private health insurance market, causing them to be under- or uninsured.  While Medicaid offers generous benefits and low cost-sharing - making it a robust coverage option for struggling parents - it also has strict income eligibility limits. Thus, families with income close to the poverty line have incentives to manage their income in order to qualify for Medicaid, at times causing parents to stop working or turn down opportunities for overtime, raises or promotions. The Catalyst Center believes Medicaid buy-in programs, especially those based on the Family Opportunity Act (FOA), may offer a solution to these issues, as well as improve access to health care for children with disabilities.


In November 2010, the Catalyst Center team will begin conducting a survey of families of children enrolled in the Medicaid buy-in programs in MA and LA. The study is set to run through October of 2011, at which point we hope to have gathered significant data on the impact on families' access to health care for enrolled children with disabilities, family finances and general functioning, and parental employment and insurance choices. Our goal is that the results of the study will help us better understand the benefits of Medicaid buy-in programs from the perspective of the families who are enrolled. Our results will be disseminated to state policymakers and advocates throughout the U.S., with the hope that states will work to create their own Medicaid buy-in programs that are tailored to best meet the needs of the families of children with disabilities residing there.

Article1The Catalyst Center Website:

A Brand New Look and More User-Friendly than Ever


The Catalyst Center has re-designed and enhanced its website! You can view the website by going to this link: (www.catalystctr.org)


In looking at how our website was being used, we noticed that the financial strategies sections were not attracting the attention that they should.  


We tested the website with a variety of current and potential users to determine the cause of this, and learned that the design of the financing strategies section made it hard for users to find the information they were looking for.  Users also told us there were things they would like to see on the website that it lacked, such as a search function and an improved glossary.


We are committed to being responsive to the needs of our partners in improving financing of care for CYSHCN.  We have reorganized the content within the four state financing strategies sections to make it easier to find specific models and programs of interest.  They include:  


Cover More Kids

 Close Benefit GapsClose benefit gaps.

Pay for Additional ServicesPay for additional services.

Build Capacity

In addition, we added a search function and an interactive glossary as requested, and have made the state data pages easier to find and access. Now, you can also sign up for the Catalyst Center E-Newsletter and share information found on the website through social networking sites, such as Facebook and Twitter.


 As part of enhancing the website, we have added more photos of children with special health care needs and several family stories that highlight the impact of uninsurance and underinsurance. Thank you to all of the families who contributed!


We will continue adding to our health care financing strategies sections, including updated examples of financial strategies from our recent surveys of Title V and Medicaid programs and Family Leaders.  Look for new issue briefs on the impact of health care reform on CYSHCN, along with other important topics, on our publications and more section. 


We greatly appreciate any comments or suggestions you may have! You can email us at mcomeau@bu.edu. Thank you for your support.


The Catalyst Center Team


ChildonlyHow Medicaid Buy-In Programs Can Fill the Insurance Gaps

left by Unavailable or Unaffordable Child-only Plans


Among the first of the provisions under the Affordable Care Act (ACA) to go into effect, the ban on insurance companies denying coverage or benefits to children under age 19 with pre-existing conditions (Section 2704) applies to group plans or individual policies beginning on or after September 23, 2010. This represents a significant victory for children with special health care needs (CSHCN) and their families.  Prior to ACA, outright denials of coverage or limits on benefits made it difficult for thousands of families of privately insured CSHCN to access adequate and affordable coverage for their children and put them at risk for financial hardship and medical debt.


While families of CSHCN and advocates were cheering, there was a disappointing response from the insurance industry.   Recently, many of the nation's largest insurance firms declared they would stop selling child-only policies out of fear that as a result of Section 2704, they would have to accept high-cost children with pre-existing conditions into these plans.  Insurers argued that this provision would enable parents to misuse the insurance system, by getting coverage only when their child needed care and subsequently dropping it when their child's medical expenses were paid for. In a letter dated September 24th to America's Health Insurance Plans (AHIP), the industry trade group, US Department of Health and Human Services (HHS) Secretary Kathleen Sebelius protested the insurance companies' decision, stating that insurers were not living up to their original commitment to ensure access to coverage for children with pre-existing conditions.


Since then, HHS and  the National Association of Insurance Commissioners (NAIC) have been working together to address the concerns of insurers and encourage them to continue selling child-only policies, while concurrently making sure families can access the coverage options they need. Some of the proposed compromises (which must be consistent with current state law) include permitting insurers to charge different rates for child-only policies and dependent children, to determine the number and length of open-enrollment periods for children under 19, and to impose a surcharge on parents who drop coverage and then reapply when their child needs additional care. Another proposed compromise is allowing insurers to charge premiums based on a child's health status until 2014, when different ACA provisions (Sections 2702 and 2703) guaranteeing policy issuance and renewal go into effect.  Advocates remain concerned that even if private insurers decide to resume selling child-only policies on the basis of these agreements, premiums are likely to increase for the plans - making child-only coverage far less accessible to the majority of families who need it (Haberkorn, September 25, 2010).


Child-only policies are mostly utilized by low- to middle-income families who do not qualify for Medicaid or CHIP but who cannot afford to insure everyone in their household. Families raising children with special health care needs find child-only policies especially helpful, because by definition their children use more health care services than typically healthy children do.


What options will families of CSHCN have if they cannot access child-only policies in the private market, either because these plans are unavailable or because the premiums are prohibitively high?  A Medicaid buy-in program based on the Family Opportunity Act (FOA) is one particularly effective option that could help fill in the gap left by the loss of access to child-only plans. An FOA Medicaid buy-in program allows families of children who meet specific disability and income criteria[1] to pay a modest premium and "buy-in" to Medicaid benefits, either as their child's only source of coverage or as a supplement to existing private insurance.  Medicaid can serve as a lifeline to financially struggling families and their children with special health care needs, as it limits the out-of-pocket costs families must pay for their child's care and also offers more robust benefits than typical private insurance (exemplified by Medicaid's comprehensive child health component known as Early Periodic Screening, Diagnosis, and Treatment (EPSDT).


With many states facing budget deficits, what are the public policy advantages in choosing to offer an FOA Medicaid buy-in program?  In addition to expanding comprehensive and affordable coverage to children currently at risk for un- or underinsurance, the current federal matching rate applies for children in families who make less than 300% of the Federal Poverty Level, meaning the entire cost for covering new enrollees in an FOA buy-in program is not shouldered by the state alone.  The state share will be further reduced because the majority of buy-in program enrollees will have existing private insurance, which will continue to cover expensive services like hospitalizations and prescription drugs. 


As the provisions of the ACA roll out over the next three years, responses that work against the law's intent to make comprehensive and affordable coverage more available and protect consumers will likely continue.  Some of these as-yet unknown challenges and the compromises that follow could result in gaps or inadequacies in insurance coverage within specific populations, with CSHCN being a particularly vulnerable group.  The dropping of child-only plans was the first of these.  Medicaid buy-in programs are a proven innovative strategy to fill the coverage gap created by unavailable or unaffordable child-only plans, and states should consider this option as a potential mechanism to continue to ensure CSHCN receive the best coverage available to meet their needs.


For additional information on FOA buy-in programs, refer to our publication, "Frequently Asked Questions about the Family Opportunity Act's Medicaid Buy-In Option". In addition, the Catalyst Center has estimated the number of children who would be eligible for an FOA buy-in program in each state.  Contact us for your state's estimate.  We also welcome any questions you may have regarding the content of this article - click here to email us.



References

Haberkorn, J. (September 25, 2010). HHS hits insurers on kids' coverage. Politico.  Retrieved October 17, 2010, from http://www.politico.com/news/stories/0910/42707.html

 



[1] Children under age 19 who meet the Supplemental Security Income (SSI) functional disability criteria and whose adjusted gross family income is less than 300% of the Federal Poverty Level are eligible under an FOA Medicaid buy-in program. There are other kinds of buy-in programs that have different disability and/or income criteria.  See the Catalyst Center web page on Medicaid Buy-in Programs or contact us for more information.

Meg Comeau, MHA
Director, The Catalyst Center:
Improving Financing of Care for Children and Youth with Special Health Care Needs
Health & Disability Working Group
Boston University School of Public Health
715 Albany Street
Boston, MA  02118-2526
www.catalystctr.org
mcomeau@bu.edu