yada yada: July 2011 Special Edition
Support, Information and a Voice for the Type 1 Community  
Support, Information and a Voice for the Type 1 Community
In This Issue
New online module!
Were you misdiagnosed?
Achieb=ving incredible things despite D
Upcoming meets
Quick Shots - Hot Topics on our Forums
Quick Links
Join Our List
Join Our Mailing List

Greetings!

 

Welcome to this special edition of Yada Yada to celebrate

National Diabetes Week! Even though National Diabetes Week is focussed on type 2 diabetes, the message on getting our eyes checked is relevant for us Type-1ers too. Besides, we thought we'd take the opportunity to make our own little National Diabetes Week for type 1 with this special edition of the newsletter. So we bring to you some exciting news about our new online module for health professionals, some inspiration from our members on the fabulous milestones they've achieved despite having T1 and a little bit about being misdiagnosed. We'll have our usual Yada Yada

edition at the end of the month too - double happiness!



************Sponsored Announcement************

 

  For more information visit  www.sweettalkdiabetes.com  

We've created an online module for health professionals!

Do you remember back in March we published the results of a survey conducted by the T1DN? We had asked people what they wished their health professionals understood about living with type 1, and 278 responded. The results were very interesting!

 

Many of the comments expressed a lot of emotion and frustration with the lack of understanding sometimes shown by health professionals about the day-to-day burden of type 1.There are a lot of very articulate people in our membership, so the comments make for very compelling reading. Read  a summary of the survey results here (or read the full report here).

 

So what did we do with all this great information?

 

We created an eLearning module, targeting health professionals, to help them understand the experience of living with type 1.This module is now ready - if you'd like to take a look, click here. It'll be free for anyone to access from the T1DN site, and will be accredited so health professionals can earn continuing professional development points by completing it.    

 

The module follows the day-to-day life of three characters who have type 1: Javier, Cathie and Ai-Lin.We built their stories from common experiences mentioned on Reality Check, and from specific events volunteered by the T1DN management committee. Javier and Cathie are even based loosely on two of our management committee members! Can you guess who they are?

 

Here are some of the things our characters have to deal with - these may be familiar to you:

·       Plane travel

·       Dealing with hypos while looking after children

·       Running out of testing supplies at the last minute

·       Eating out - i.e. guessing carb quantities

·       Unexpectedly getting served a piece of birthday cake

·       Having a hypo on the train

·       Going out with friends for a few (or more than a few!) drinks

·       Giving a presentation and not wanting to hypo

 

By being proactive and offering health professionals this fantastic, interesting and convenient way to improve their knowledge, we hope that we'll be contributing to more positive relationships and better outcomes for people with type 1.

 

Interested in checking out the online module? Register (quick and easy) here.

******************Sponsored Announcement*****************

 

For more information visit www.abbottdiabetescare.com.au

Were you misdiagnosed?

Photo by Bernard Farrell

Did you know that up to 15% of us Type-1ers gets misdiagnosed? Well, that's what a new report by the UK Royal College of GPs says. The misdiagnosis occurs because GPs can no longer rely on age, obesity and level of hypoglycaemia to distinguish between types 1 and 2. It certainly doesn't help either when this year's National Diabetes Week is solely focussed on type 2 diabetes!

 

T1DN committee member Susan Greenbank was misdiagnosed with glandular fever for 6 weeks - and was only correctly diagnosed with type 1 when she ended up in a ketoacidosis coma! Unfortunately, we're sure there are plenty of other stories like this one. Do you have one? Jump onto the Reality Check forum to tell us about it.


What incredible things do you do despite having D? 

Photo by Wally Gobetz

Having D makes day-to-day stuff that bit more challenging - but it certainly doesn't stop us from having fun and achieving great things! One of our members posted this exact topic on the Reality Check
forum, and the replies have been nothing short of inspirational: 
  • having children
  • travelling solo
  • trekking the Peru Inca trail
  • living on campus at uni
  • skydiving and bungee jumping
  • travelling overland in India and Nepal
  • driving across Australia in a Morris Minor
  • running a marathon
  • living alone
  • getting a Masters degree by research.

 

There was also this reply that made us all laugh: "Eat as much chocolate as I like followed by a little squirt of insulin."

 

What incredible things have you done? Please share them here - we'd love to hear about all your achievements!

*****************Sponsored Announcement*******************


 For more information visit www.accu-chek.com.au 
Want to catch up with some other type 1-ers?

These informal meets are the perfect way to meet others in your area who have type 1 diabetes. Organised by everyday people, these unofficial get-togethers are a fun and relaxed way to get to talk to people who really understand!

Keep an eye on the Meet Forum for meets in your area, or why not organise a meet yourself?
 
Quick shots

Hot topics on the Reality Check online forum include:
On Munted Pancreas, Parents of Kids with D are discussing:
I hope you enjoyed this special edition of Yada Yada. As usual, if you have any suggestions, just reply to this email.

All the best!
 

From everyone at  

The Type 1 Diabetes Network  

Join Our List
Join Our Mailing List