yada yada: July 2009
The Type 1 Diabetes Network
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Brisbane Event September
Lantus & Cancer Risk
Pump Clinics
Type 1 Twitter
Parents Night
Hot Discussion Topics
Team Type 1
Health Reform Report
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Greetings!

Unfortunately, we have a few bits of bad news this month: pump clinics having to close down and some worrying research about Lantus increasing risks of cancer - nothing definitive on either yet, but read on and click through for what we do know.

On a brighter note, great news just in that Team Type 1 have again won the Race Across America, an ultra-endurance bicycle contest - inspiring stuff.  And we have a few events on the horizon - a big one in Brisbane and a parents night in Frankston.  Plus health reform - will it deliver anything of meaning for Type 1?  Watch this space -  closely.
Event in Brisbane - 13 September
 
After the great success of the recent seminar run by The Type 1 Diabetes Network (us!) and Medtronic in Brisbane all about exercise, which was attended by more than 70 people, we are delighted to announce another event for Brisbanites.

TOPIC:
Carbohydrates and Type 1 Diabetes
Everything you need to know about:
- carb counting; - lifestyle flexibility
- weight management; - low carb diets

SPEAKER:
Brigid Knight, Accredited Practising Dietitian, Credentialed Diabetes Educator, DAFNE Co-ordinator Queensland.

WHEN: Sunday 13 September 2009, 2-4pm

WHERE: New Farm Uniting Church, 52 Merthyr Road, New Farm

COST: Free.  Catering will be provided.

For more information, click here
Or email Susan in Brisbane on brisbane@d1.org.au.

********* Sponsored Announcement *********
Abbott
LANTUS & CANCER RISK ?!?!
You may have seen the media reports a couple of weeks ago about a study published in Diabetologia which showed that Lantus increased the risk of developing cancer.   Obviously people using Lantus are concerned.

The Australian Diabetes Society (ADS, the endos) have now provided their interpretation of the research and some excerpts of their advice published on 1st July are as follows:

ADS agree with the main summary points identified in the Diabetologia editorial ....

The ADS have been notified that sanofi-aventis are planning to analyse local Australian data on exposure to insulin glargine (Lantus) and report on frequencies of various cancer subtypes, and will be examining the Origina study data of almost 12,000 patients prospectively followed for up to 5-8 years, more closely for any cancer signal. ...

In summary, while ADS do not consider that the current evidence allows a definitive recommendation on the use of insulin glargine (Lantus) in relation to cancer risk or presence, it is prudent practice to advise alternative management if after discussion a patient has ongoing concern.

For the full statement from ADS, Click Here.

For links to the original study, a range of reports, and to see how other people who use Lantus are responding to this, see the discussion on the Reality Check forum > click here.
Has Your Pump Start Been Cancelled?
We have had reports of some privately-run pump clinics having to close down in light of disputes where private health insurance funds are reneging on prior approval to reimburse the costs of pumps.   

We are concerned that access to pumps would be limited if public hospitals are the only avenue through which they can be accessed and/or hospital admission was mandatory.

If you are having issues with accessing a pump, please let us know. Hit reply to this email or join to the discussion online.

Click here...
Check us out on Twitter - two weeks left of our trial!


TwitterOur trial of Twitter is continuing.

Check us out and let us know what you think, and whether we should continue with it.  

We are Tweeting hot topics from the Reality Check discussion forum so you don't miss anything there, news, events, and other things Type 1.   Thanks to Tristan, Susannah and Susan for keeping up the Tweets.

Go to:
http://www.twitter.com/T1DN
Parents' Night in Frankston, Melbourne
Kate Gilbert, Founder & President of The Type 1 Diabetes Network will speak at an event just for parents of kids or young adults with Type 1 in Frankston, near Melbourne shortly. 

Date: Tuesday 15th September at 6.45 pm for 7-8:30pm.
Venue: Diabetes Clinic, 13 Hastings Road, Frankston, 3199
 
For more info and to RSVP contact Tania or Brie on 03 9784 7670.
 QUICK SHOTS

 
Hot topics on Reality Check online discussion this week:

On Munted Pancreas, parents of type 1 kids are talking about

************ SPONSORED ANNOUNCEMENT ************
Roche Accu-Chek Performa Nano
Type 1s Cycling to the Top - an Aussie amongst them
Team Type 1 Team Type 1 have again had great success in the Race Across America, a gruelling 'ultra-endurance' bicycle race across.... you guessed it ... America - all 3,000 miles of it.

Team Type 1 won the 8-person male team category, completing the race in a record time of just five days, nine hours and five minutes.  The team included a local Type 1:   Amongst the 8 riders with Type 1 was a local- Simon Bennett from Bendigo.  Read about Simon...
 
The two-person male category was also won by a Type 1 - Adam Driscoll as part of the 'Adventures for a Cure' came on top too.
Health & Hospitals Reform - what for Type 1?
Today, the National Health & Hospitals Reform Commission released their long-awaited final report.  We will have to wait and see which the government agrees to adopt before getting too excited, but it would seem that change and improvement is in the air.  The full report is available at www.nhhrc.org.au.

The Consumer Health Forum, who represent many consumer organisations  including us, the Type 1 D Network, have had a chance to review the report and have so far commented that:

'This is an exciting time for stakeholders in Australia's health system.  It's a time of significant change, challenge and promise.  At the end of the process, we want to see health consumers delivered a health system more responsive to their needs.' 
 
We'll be chatting about whether what people with Type 1 want and need is in there, and whether the Ten Key Issues we all identified last year in the Statement of Issues affecting Australians with Type 1 Diabetes are going to be addressed, in the coming weeks - join us in the Reality Check forum. What do you think?  Let us know if you are pleased or concerned. 
 
All the best 'til next month
 
Kate & Mel
The Type 1 Diabetes Network Inc.
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