yada yada: April 2009
The Type 1 Diabetes Network
In This Issue
T1DN Survey on MIsdiagnosis Hits the News
Diabetes & Youtube
Diabetes Design Competition
Whose Diabetes is it anway?
Hot Discussion Topics
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Greetings!

Type 1 diabetes has been in the news this month, thanks to all the wonderful people who filled out the survery in our last edition of Yada!  Our study confirmed that misdiagnosis of type 1 is common and it's been great to see type 1 diabetes hit the news, highlighting that type 1 and type 2 diabetes are different conditions AND that type 1 isn't just for kids.
 
Whilst we're on the topic of diabetes in the media, we bring you the good, the bad and the ugly of diabetes related videos on YouTube, some blogs including one featuring art made out of diabetes supplies, our favourite celebrity advocate Mary Tyler-Moore speaks in USAToday and Kate wonders whose diabetes she has anyway?
************ SPONSORED ANNOUNCEMENT ************
 Abbott
T1DN Survey Confirms Misdiagnosis of Type 1
 
Widespread misdiagnosis of Type 1 diabetes in adults is resulting in serious, life threatening but avoidable complications including hyperglycemia or high blood sugar levels, blackouts and even diabetic coma, according to a recent national survey by diabetes charity The Type 1 Diabetes Network.
 
The national survey of over 850 people with Type 1 diabetes who were diagnosed as adults, found that one in three adults were diagnosed with a condition other than Type 1 diabetes when they first visited their healthcare professional.
 The findings come as the national diabetes not-for-profit group marks the 5th anniversary of their Starter Kit, a resource created especially for newly diagnosed adults with Type 1 diabetes and supported by Abbott Diabetes Care.
To read more about the study Click here.
 
Check out the discussion of media coverage on the forum.
Diabetes on Youtube

 
newsThere's a variety of diabetes inspired videos on Youtube, some truly dreadful some informative and some pretty funny.  Here's a selection of the good, the bad and the ugly.
 
Santa Clause gave me Diabetes
 
"His Girlfriend calls him sweet pee cos there's sugar in his p*&^..." just one of the lines in this musical ode to getting diabetes in your Christmas stocking from "Santa you fat bastard..."
 
Type 1 Mom Song
 
A day with type 1 diabetes set to the tune of the William Tell Overture, tests, carb counting, pump in the toilet accident and running out of strips.  Parents and kids who've had d will particularly appreciate this.  It's amusing but the message is spot on too and a good way of spreading awareness.
 
Check it out here 
 
My Meter Talks to Me
 
Ok, so this is a bit lame but it made me chuckle.
 
 
 
Diabetes Song.
 
What the?
 
The only excuse for this travesty is that he was majorly hypo at the time. 
 
This is soooo crap,  when they run out of anything better to sing "I'm gonna die" becomes a bit of a refrain (d'uh actually so is everyone).  A number of commenters say they found this offensive, I thought pitiful was more on the mark. 
 
 Click here if you must but don't say we didn't warn you!
 
 
 
Diabetes Design Competition, Win $$$s
Do you have a great idea to improve life with diabetes?  Well, here's your chance to win $US10,000.  The diabetes mine website is running a competition for innovative designs to make life with diabetes easier.   Click here for all the details.
Why Mary Tyler-Moore Doesn't Wear White
 
Most of the T1 community know that Mary Tyler-Moore has type 1 diabetes and that's she a great ambassador and advocate for our community.  USA Today has this great feature on her, that includes an accurate description of difference between T1 and type 2 and what it's like to live with T1. 
 
Amongst other matter of fact real life comments there's
 
""I shoot myself right through my clothes there at the table, right here in my thigh. I seldom wear white as a result," she says with a chuckle."
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Accu-chek  Performa
Whose Diabetes is it Anyway?

Visit Type 1 Talk to read another instalment in Kate's musings about life with the big D.
 
 "The chronic disease tsunami is coming. The diabetes edpidemic is here. Government and health organisations all seem to be running around trying to improve chronic disease care. A lot of work is going into developing health systems and pathways and programs for people with chronic disease. Integration, prevention, health reform, hospital reform, the health sector is full of change and movement focused on chronic disease.

But I have a chronic disease, quite a serious one, and so far this year I have spent not one second receiving services of any kind from 'the health system'. My insulin is generously subsidised, thank you PBS, and my pharmacist takes my contribution of money with a smile. Pump supplies ditto. But otherwise it's me and my diabetes...."
 
Blogs of Interest
 
Informative, outraged, amusing or just plain weird, there's a blog site for, and increasingly by them all these days.  Here are a few that have come to our attention lately. 
 
If you've found an interesting blog, hit reply and tell us about it.
 
Information about living Gluten Free
 
Lots of our members also have celiacs, the blog site CeliacChicks has lots of stuff about living gluten-free.
 
Diabetes Supplies Art
 
Worried about what to do with all that potential landfill from your used diabetes supplies?  Turn it into art!!
 
Here's a site devoted to diabetes supplies art  
 
Diabetes Video Games
 
I thought it bizzare enough that one videogame to educate people about diabetes was created, like ghee that'd be fun.  We've brought you the delights of Captain Novolin in this newsletter before, but this blogger tells us about The Magi and the SleepingStar, the superhero has to save his family and defeat the baddies all while managing his diabetes!
QUICK SHOTS

 
Hot topics on Reality Check online discussion this week:

 

Jump over to www.realitycheck.org.au for much more.

There's almost 2,000 years of T1 Diabetes experience there!
 
That's it for a relatively light hearted edition of whats new and exciting in the world of diabetes for this month.
 

Hit reply if you have any stories of your own or interesting websites or videos to share with us, or suggestions for future issues.
 
All the best,
 
Kate & Mel
The Type 1 Diabetes Network Inc.
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