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Greetings!
This month we have everything from Lobbying to Blogging, Psychology to Pregnancy, Dating to Denton - all in the tune of D1. Enjoy! |
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NEW BLOG begins with PUMP EXILE |
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 Kate Gilbert launches
Type 1 Talk
"I dragged myself out of bed and hesitated to collect up my pump
dragging behind, then remembered it wasn't there. One less thing to
worry about as I stumbled through to the kitchen in the dark, hunting
for the jelly bean jar.
But would I have been doing this if my pump had
been there?
Blood sugar had been good an hour before, off to bed and
just getting to sleep as the heart starts pounding and brain slowly
kicks in that sleep is not on the cards just yet...."
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TYPE 1 OLYMPIAN WINS GOLD!
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 We were thrilled to find ourselves a Type 1 Olympian, and even more excited when he won GOLD!
Kevin Hansen, 26, has had Type 1 since he was 10 and is in the US Volleyball team.
At diagnosis he and his family were helpfully told "that sports would be difficult
to pursue". Clearly he thought he'd show them where to shove that idea!!
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OUR STATEMENT OF TYPE 1 ISSUES LAUNCHED!
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 Our Statement of Issues affecting Australians with Type 1 Diabetes was launched to a packed room at the national diabetes conference on 29th August 2008. 150 people attended - standing room only!Kate Gilbert began with a presentation on the need for the Issues Statement and the process we went through to develop it.
Anthony Lambert-Johnston took the audience through
his various complications and the complexity involved in management - including a quiz, a great joke about specialists and some outrageous
statistics.
Brisbane Endo A/Prof Maarten Kamp spoke extremely passionately
about his various experiences with patients and in particular younger
adults and teenagers. He also made a great point about the fact
that the issues statement was developed largely by those with T1
themselves and that we are not waiting for 'some else' to fix things
for us.
The Hon. Guy Barnett, Senator for Tasmania (pictured) shared
some of his own experiences with the audience, and stories from some of his
constituents who are also living with Type 1 Diabetes - especially the difficulties with access to specialist
medical advice and medical
technologies in Tasmania (his insulin pump was proudly on display).
Senator Barnett officially launched the Statement, and a lively Q&A session concluded the event.
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CAN YOU HELP US FIX TYPE 1?
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 We are forming a Network of Type 1 Diabetes Issue Champions
Don't forget we are looking for
people to join our Network of
Type 1 Issue Champions.
Pick one of the Issues from the Statement launched last month. Come up with lots of ideas - big or small - to chip away at it. Get in touch and join our web and teleconference discussions of what other Issue Champions are up to.
Kicking off in the coming weeks - if you're keen call Kate Gilbert on 0402 515 825 or email kate@d1.org.au. |
Diabetes & Psychology CONFERENCE LOWDOWN
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The Australasian Society for Psychological Research into Diabetes conference hit Melbourne a few weeks ago, and a quick rundown on bits of interest to Type 1 is:
- Diabetes Burnout. The
Type 1 D Network (us!) presented results of the Diabetes Burnout survey which many of you completed. In a nutshell, we
found that some people might be experiencing depression when they talk about
'Diabetes Burnout' but there is also a large group of people experiencing something
else (prolonged stress and burnout) which psychology doesn't well explain.
- Seratonin
receptors in brain and Psych distress in people with diabetes - Women are of
highest risk. Two papers were presented about this: one identified significant
gender differences and recommended that diabetes in female children might
predict psychological stress as an adult, so specific screening and treatment
should be targeted at female children with D.
- Seeing the same doctor or other health professional really helps. Evaluation of a program training practice nurses to help
people with Diabetes and Depression found that the number 1 thing from patient perspective was having
one constant person to help them. We hear this all the time and need to keep
advocating for how important it is.
- Type 1s represented on the Society's Committee. Type 1 Diabetes Network President Kate Gilbert was elected to the committee of the Society as their consumer representative for the coming year, and will be assisting with development of Psychological Guidelines for Diabetes.
More from the conference, click here. |
TYPE 1 ON DENTON'S ENOUGH ROPE
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Andrew Denton interviews Gina Pash about Type 1 D
Gina Pash,who Syndeysiders may know for her great work increasing support for young adults, gave a terrific interview on Enough Rope last Monday.
About life with Type 1, life after Type 1 and her pancreas-kidney transplant earlier this year.
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PREGNANCY BOOKLET - PICS OF YOUR BUBS?
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We are excited that the famous green booklet, Can I Have a Healthy Baby?, that Reality Check, DA-Vic and ADiPS produced together is soon to be re-printed en masse and sent to ALL women of childbearing age with diabetes throughout Australia.
For the re-print, we are looking for photos of your gorgeous babies!? If you would like to contribute pics, please send them to Renza at DA-Vic by email to rscibilia@diabetesvic.org.au.
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TYPE 1 AWARENESS VIDEO HITS YouTube |
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Diabetes UK has worked with lots of young people with Type 1 to develop this pretty cool little ad explaining what Type 1 Diabetes is - and what it isn't!
Not "fat and old" - like, ya know!
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CONTINUOUS GLUCOSE MONITORS WORK!
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Results from first major study
The New England Journal of Medicine has just published results from a trial of 332 people, which showed that using a CGMS reduced HbA1c by average of 0.53% (significant) in adults over 25 years of age. Interestingly, there was NOT a significant improvement in children or adolescents.
Read the NEJM article Some continuous monitors are available in Australia, (though not easily and not without $$$).
Several of our members have written about their experiences of getting them and using them.
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HOT TOPICS
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Our online forums are always full of lively
discussion, and invaluable sharing of ideas and experiences.
Topics running hot at the moment include:
Click through to check it out and join in anytime.
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| *************Sponsored Announcement**************** |
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| We hope you enjoyed this issue of Yada. Don't forget to tell us what you think, or send us your news for the next issue.
All the best,
Kate & Mel
The Type 1 Diabetes Network Inc. |
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