March 2012

SDSF logo final
SDSF Family Conference  Announcement 
For those who did not see this announcement:
SDSF Family Conference at CAMP SUNSHINE 
Casco, Maine
Dates for 2012 are:

JUNE 24 - 29

The applications for our group are ready and found online on the Camp Sunshine web site. If you have any questions about the application, please call/email the Camp. They are wonderful and can help answer anything. They are in charge of notifying you if you/your family is accepted to the session. They just have to make sure that everyone is healthy enough to attend. 

Camp Sunshine sign











SDSF holds it's bi-annual conference at the spectacular Camp Sunshine, a camp for kids with life threatening illnesses and their families. The Camp can accommodate 40 families on a first come-first-serve basis but don't panic. It all works out.   Download the application, fill it out and return to Camp. You will need doctor's appointments to fill out the physician's portion of the application and there is a Medical Guidelines section to help answer questions about your patient who is currently on treatments and/or anticipates to be on them during Camp.


It might say that only children 18 and younger may attend but that isn't the case for our SDS session. We have had many patients in their 20s attend with their families and we encourage any families with young adults to apply.

Please note that SDSF does not make any decisions concerning the applications. We help organize the week, provide the funding for many things including our donation to Camp, flying the SDS experts to Camp for our 2 days of seminars and one-on-one meetings with them, linens for the families, notebooks for the doctor seminars etc. Please address all of your questions concerning medical or acceptance issues to Camp.

Please read this newsletter article from Camp in 2010 to see what it is all about. As my daughter said to me at the last session, "Mom, I feel the most me here at this Camp where I don't have to hide having a disease, taking enzymes etc - everyone here knows what SDS is all about."

I am happy to answer any questions. Hope to see you at Camp!

Blair Van Brunt
President, SDSF


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The Sharing Link logo
If you have never been to our family conference at Camp Sunhine, I encourage you to join The Sharing Link and post your questions. Many in our SDS community who are part of The Sharing Link have been to Camp Sunshine and can answer you. Just create a Yahoo account and you will be directed to the "SDS List"
Past Camp Sunshine Pictures - 2010
Camp Sunshine volunteers

  Canadian contingent Camp Sunshine show
Camp Sunshine group picCamp Sunshine group shotgiant chess board
Dads at Karaoke nightsending off a wish boat Father and SonPutting wish boats in water

games at Camp  masquerade party at camp  fun in arts and crafts
Wish boat with SDSF logo
Shwachman-Diamond Syndrome Foundation Shwachman-Diamond Syndrome Foundation
FOUNDER:  Joan Mowery 1994

Blair Van Brunt - President
Bryan Sample - Treasurer
Donna Garfield - Secretary
Ed Bickle - Publicity
Sridshar Mani - Discovery Team

Other Amazing Leaders
 Joan Mowery - Family Follow Up 
 Joyce Wall - Anna Angel Basket Coordinator

Kim McDowell - Administrative Assistant

ATTORNEY:  Ann Bodewes Stephens, Herzog Crebs
BOOKEEPER: Letitia Cote, Quickbooks Advanced Certified Proadvisor
Shwachman Diamond Syndrome Foundation
127 Western Avenue
Sherborn, MA  01770
1-888-825-SDSF (7373)
[email protected]