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For those who did not see this announcement:
SDSF Family Conference at CAMP SUNSHINE
Casco, Maine
Dates for 2012 are:
JUNE 24 - 29
The applications for our group are ready and found online on the Camp Sunshine web site. If you have any questions about the application, please call/email the Camp. They are wonderful and can help answer anything. They are in charge of notifying you if you/your family is accepted to the session. They just have to make sure that everyone is healthy enough to attend.
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SDSF holds it's bi-annual conference at the spectacular Camp Sunshine, a camp for kids with life threatening illnesses and their families. The Camp can accommodate 40 families on a first come-first-serve basis but don't panic. It all works out. Download the application, fill it out and return to Camp. You will need doctor's appointments to fill out the physician's portion of the application and there is a Medical Guidelines section to help answer questions about your patient who is currently on treatments and/or anticipates to be on them during Camp.
It might say that only children 18 and younger may attend but that isn't the case for our SDS session. We have had many patients in their 20s attend with their families and we encourage any families with young adults to apply.
Please note that SDSF does not make any decisions concerning the applications. We help organize the week, provide the funding for many things including our donation to Camp, flying the SDS experts to Camp for our 2 days of seminars and one-on-one meetings with them, linens for the families, notebooks for the doctor seminars etc. Please address all of your questions concerning medical or acceptance issues to Camp.
Please read this newsletter article from Camp in 2010 to see what it is all about. As my daughter said to me at the last session, "Mom, I feel the most me here at this Camp where I don't have to hide having a disease, taking enzymes etc - everyone here knows what SDS is all about."I am happy to answer any questions. Hope to see you at Camp!
Blair Van Brunt
President, SDSF
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Shwachman-Diamond Syndrome Foundation