April 2012


Here's the latest news from the SADS Foundation!  If you happen to miss an e-newsletter or action alert, you can always check the SADS library for a list of previously published emails.

Boston Area Volunteers Needed

The SADS Foundation will be in Boston beginning Tuesday, May 8th for the PACES Pre-Conference and then the Heart Rhythm Society's 33rd Annual Scientific Sessions the rest of the week. We're seeking volunteers to join staff members at the SADS Foundation booth at the Boston Convention Center. If you are in the area, please give some of your time to help out. Feel free to bring a friend, too! If you're able to join us, please contact Adrienne Butterwick or call 800-STOP-SAD.

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AED Giveaway from

This year, will be giving away 100 AEDs to to worthy causes and organizations in order to raise awareness of the need for AEDs (automated external defibrillators) anywhere and everywhere sudden cardiac arrest can potentially strike.

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Plasma Biomarkers for Prediction of SCD: Another Piece of the Risk Stratification Puzzle?

In this article, authors Rasmus Havmoller, MD, PhD and Sumeet S. Chugh, MD, discuss the role that plasma biomarkers may play in the prediction of SCD.  They conclude there is a critical need for better methods to identify individuals in the general population who are at high risk of SCD. Future risk stratification models will rely on multiple predictors, and 1 plasma biomarker is likely to solve a piece of this puzzle. At present, some biomarkers have shown promise, but none of these are ready for clinical use. Future investigative approaches should use a uniform definition of SCD and perform evaluations in many subjects representing the general population, with analyses performed within and across the sexes, multiple ethnicities, and age groups.  This article can be found in Circ Arrhythm Electrophysiol 2012;5;237-243.

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Family Seminar
Boston Family Seminar

The SADS Foundation is partnering with the Heart Rhythm Society and the Sudden Cardiac Arrest Association for an informative family seminar, "Living and Thriving With the Risk of Sudden Cardiac Death", in Boston, MA on Saturday, May 12, 2012.  This is a free event but requires prior registration as space is limited.

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New Materials

We're excited to announce a new section of our website for Spanish language materials including a poster and risk assessment form. Special thanks to Veronica Jaime and Dr. Alejandra Guerchicoff for their translation assistance.

Also, check out the latest addition to our new medical awareness cards: Timothy Syndrome.  The Timothy Syndrome cards will be instrumental in helping educate anesthesiologists and orthopedic surgeons on the warning signs and treatment for Timothy Syndrome.  All of the SADS Foundation materials are available to download directly from the SADS website or you may submit a materials request for hard copies mailed to you free of cost.

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Washington, D.C. Family Meeting

Andy Golden and Sandra Yesnowitz have organized the first Maryland/D.C. area family meeting happening on May 19, 2012 from 10:00 AM to 1:00 PM. This is an informal gathering for all those affected by a SADS condition in the D.C./Maryland area to come meet other families, share your experiences and create lasting connections.

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SADS Sponsors Medical Education in Washington, D.C.

Dr. Michael Ackerman participated in multiple SADS sponsored medical education seminars in the DC area on April 12th and 13th.  Local physicians and healthcare providers learned about cardiac channelopathies and productive Q&A sessions followed each lecture.  Thank you to Transgenomic, Inc. for providing the SADS Foundation with an unrestricted grant which made these programs possible.  And thank you to SADS Scientific Advisor Dr. Charlie Berul for his assistance In arranging these lectures.

Please contact Christine Fontanella or call 800-STOP-SAD if you are interested in working with us to bring medical education to your hospital or facility

Fairfield Medical Center Partnership

We've been fortunate to work with several of the staff members including Bob Williams, RN, at Fairfield Medical Center in Lancaster, Ohio for medical seminars and a community seminar this past February.  They have been extremely dedicated to raising awareness in their community and are now planning to host a series of CPR trainings in the Lancaster area on May 19th, 2012.  The goal of this community CPR day is to train as many people as possible in life-saving CPR.  We're proud to work with such an amazing group and look forward to accomplishing even more in the future with their talented team as we work to produce a SADS Safe Schools pilot project in Ohio.  Stay tuned for details!

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Where's Bob? Quest Continues into 2012

This year Bob DeVries, "Where's Bob?", is continuing his quest of visiting all 30 baseball parks in one season.  Be sure to check out the line up for when Bob will be at a game in your city and join him! 
Also, we're offering a little sneak peak at the new "Flat Bob" campaign launching this summer.  Similar to the popular Flat Stanley campaign, we'll have action items for Flat Bob throughout the summer.  Click here to be the first to print your own Flat Bob so you can be ready for the first action item next month!  

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AAP Issues Statement on Pediatric SCA

This month, the American Association of Pediatrics issued a policy statement regarding pediatric sudden cardiac arrest (SCA).  Authors, Drs. Campbell, Berger and Ackerman report that approximately 2,000 patients younger than 25 will die of SCA each year, with some studies indicating an increase in SCA.  Thus, it is crucial that all pediatricians are able to properly recognize warning signs of conditions that can cause SCA, exercise appropriate screening methods and better understand the role of a comprehensive and accurate family history.  This statement has been endorsed by the American College of Cardiology, the American Heart Association and the Heart Rhythm Society.

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Volunteer Appreciation Month Continues

This month we're saying "thank you" to all of you who help us work to achieve our goal of supporting families and saving lives. Please take a minute to share your volunteer story and we'll send you a thank you card and special SADS Foundation pin! 
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Get Healthy With Katie and Support SADS

Katie Fischer of Carol Stream, IL has generously offered to donate a portion of the proceeds from her health products to the SADS Foundation now through May 31, 2012.  She offers many popular products including P90X, TurboFire and Insanity.

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Quilt Drawing Deadline: Sunday, May 6th!
 There is still time to purchase tickets for an opportunity drawing to win this beautiful quilt made by the Northern Star Quilters Guild in Somers, New York.

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Coming Events:
SADS Foundation Medical Education Seminar: Chicago April 20, 2012
Where's Bob? Chicago Wrigley Field: April 21, 2012
Run for Ryan (In Memory of Ryan Lopynski): April 22, 2012
SADS Foundation Medical Education Seminar: Boston April 27, 2012   
Where's Bob? Rays vs. Orioles: August 5, 2012