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SADS E-NewsletterJanuary 2011
In This Issue
New Director of Med. Education
Save The Date!
February Awareness
SADS Pedigree Project
17th Annual No Ball At All
Young Investigator Award
Race Salazar Poker Night
Knitting her way to the top!
Local Network Participation Survey
Want to network with other SADS families? Take the survey today!

Upcoming Events

Go Red Day -Feb 4, 2011 -Nationwide

Brandon Messing's Bar Mitzvah

-February 5 -Knoxville, TN

Annual Brian Price Memorial Jumpathon

- Feb 14, 2011 - Dallas, TX

To meet Laura from the SADS Foundation for lunch at this event, contact Laura.

International Rare Disease Day -Feb 28, 2011 -Worldwide

HRS Annual Scientific Sessions -May 4-7, 2011 -San Francisco, CA

Keith L. Young Memorial 5-K Run -June 11, 2011 -Green River, WY

"Tri" for Abbey Triathlon in memory of Abbey Wambach -Sep. 24, 2011 -Rockville, SC


SADS International Conference -Oct 1-2, 2011 -Atlanta, GA

details coming soon!

For information about any of these events, or for assistance planning your own special event, contact Laura or call 800-786-7723.
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Climb to Conquer SADS

Plans are coming together for the 2011 Annual Climb to Conquer SADS.

Contact Laura or call 800-786-7723 to get involved!

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Check out the latest from the SADS Foundation!
SADS Announces New Director of Medical Education
The SADS Foundation is pleased to announce the the new Director of Medical Education--Christine Fontanella.  Christine has worked with us for many years from the corporate side and we're glad she's joining us.  Christine brings valuable insight on the nuances of genetic testing and is very familiar with working with physicians to ensure patients receive the best care available.  She is a perfect fit for this position at the SADS Foundation.


The Board of Directors and staff at the SADS Foundation would like to welcome Christine aboard, we're glad to have you!

Save The Date!

The SADS Foundation's International Conference will be October 1-2, 2011 in Atlanta, GA.  Details coming soon!  If you're interested in assisting the SADS Foundation with this conference, contact Laura or call 800-786-7723. 

February is American Heart Month

Last week, we sent an email about the upcoming month of February which is nationally appointed American Heart Month dedicated to raising awareness of heart conditions. In celebration of this campaign, the SADS Foundation has put together a "Red Kit" filled with awareness materials and wristbands.  In less than one week we've had over 50 SADS Red Kit orders! SADS staff member, Adrienne, could hardly fit them all in her car to drop off at the post office!   

Gymnastics Team w/ Wristbands

Lorelle Fredrickson shared her SADS Red Kit with her daughter Kayle's gymnastics team.  Aren't they cute?

The SADS Red Kit is perfect for raising awareness in the office, your child's school class, or even an athletic team!  


It's not too late to order your SADS Red Kit for February.  To order your kit, contact Adrienne or call 800-786-7723.

A special thanks to those families who have taken the time (it only takes a few minutes) to enroll in the SADS Pedigree Project.  For those who haven't enrolled,  this is your chance to advance research, help ensure family members are properly screened and help other families living with SADS conditions--register today!


So far SADS has been able to help hundreds of individuals and families who have enrolled in the SADS Pedigree Project by:

  • providing the latest information about the lower cost of genetic testing ($500 or less for the first index test and $350 with no insurance for the family test-or less with insurance)
  • providing emails or letters that you can download and send to relatives to inform them and help them obtain screening (we can email or you can send)
  • helping to determine  if undiagnosed children, parents, and siblings have been well screened
  • providing referrals to labs studying diagnosed SADS individuals with a negative genetic test result
  • helping to find doctors for family members


  • each diagnosed member in your family
  • other family members who have a diagnosed parent, child, or sibling

If you have questions or would like assistance registering, please contact Joanne or call 800-786-7723.

SADS 17th Annual No Ball At All Campaign

Be a part of this annual campaign by joining the No Ball At All Dinner Committee.  Contact Laura or call 800-786-7723 to join the committee and help build on this meaningful tradition. 

SADS Young Investigator Award

Applications are now being accepted for the 2011 SADS Young Investigator Awards in Cardiac Channelopathy Research.  Meant to encourage the next generation of researchers, these awards will recognize two outstanding, original academic works in the field of cardiac channelopathies. Award recipients will receive $500 and their institution will receive $1,250 at the HRS annual scientific sessions in May. 


Remembering Race Salazar

Race Salazar passed away last year at the age of 19 due to an undiagnosed SADS condition. The SADS Foundation has been working closely with Race's mom, Karie Salazar, and her family as they pick up the pieces and carry on through this tragedy.  Karie organized the First Annual Texas Hold'Em Benefit Dinner on January 8th in Folsom, CA in memory of Race.

 Race Salazar BenefitThe night began with a presentation by SADS' own Laura Wall, who emphasized the warning signs of SADS conditions as well as SADS life-saving programs.  The event was wildly successful with over 400 attendees!  Special thanks to Race's friends and family who attended and supported this beautiful event.

See photos from the event. 
Knitting her way to the top!
Alice Smith is a mother and long-standing SADS volunteer who lost her son, Stephen, to a SADS condition several years ago. This past spring she contacted the SADS Foundation with an idea to hold a fundraiser selling scarves.  We knew she would be successful but we never imagined she'd raise over $4,000 for SADS life-saving programs!  Way to go, Alice!  We truly appreciate you and everyone who gave their time to make these beautiful scarves.

Alice, Laura, Joanne, Christine, Adrienne, Sarah, Amy and Bonnie
The SADS Foundation