Upcoming Events
Become part of the 16th annual "No Ball at All" campaign!
Benefit for Climb hosted by Shannon Kiss -Atlanta, GA - June 1, 2010
SADS Family Seminar at New York
University -June 5, 2010
--Register here!
4th Annual Jamie Miller Invitational Swim Meet -Columbus, IN -June 4-6, 2010
Violette Levy's Graduation Celebration -Sarasota, FL -June 6, 2010
Climb to Conquer SADS -Mt. Ranier, WA -July 7-11, 2010
The 3rd Annual Run for Rosanna -Van Nuys, CA -July 24, 2010
4th Annual Christie's Heartoberfest -Ballston Lake, NY -September 18, 2010
Layton Oktoberfest -Colorado Springs, CO -September 18, 2010
To add to your special fund-raising event please contact Laura or call 800-786-7723
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Climb to Conquer SADS
Sponsor a climber today!
Click here for more information.
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Greetings!
So many things are happening at the SADS Foundation! Don't miss a thing, and enjoy this month's e-newsletter. |
SADS Medical Education Program - Goal Achieved!
By now you may have heard that the SADS Foundation was offered a challenge
grant of $50,000 by Mr. Frederick Smith, President & CEO of Fed Ex.
Mr.
Smith lost his daughter, Wendy, a few years ago, due to a medical
misdiagnosis of
Long QT. He has become a staunch supporter of the work of the
Foundation, and
has offered this grant to the SADS Foundation in order to advance
our Medical
Education Program.
We are more than pleased to announce that we have not only met the challenge but we have surpassed it! This means we will be launching the SADS Medical Education Program this calender year! Stay tuned for updates on this exciting new program as it unfolds.
We are sincerely grateful to the family of Mr. Fred Smith for their continued support of the SADS Foundation.
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SADS Family Seminar: New York
There is
still time to register for the SADS NYU Family Seminar! This is for everyone
even if you don't have a family member with an ICD. Come learn the latest
research about genetic cardiac arrhythmias from one of the world's foremost
experts - Dr. Silvia Priori.
Come learn
about ICDs from true "experts" - those who live with them! Learn from families
who do not have an ICD why that treatment was not recommended or chosen.
 The
patient panel will include:
--A 12 year
old who had an event-her LQTS is managed by beta blockers without an ICD.
--A young
adult college student who experienced a cardiac arrest at age 7 and "grew up"
with an ICD.
--A young
adult woman who experienced a cardiac arrest a year ago and her "experience
with life post-ICD has been wonderful"!
To register
click here! (School Nurses; click here to register) |
Pedigree Project
Be one
of the first
10 families to complete your pedigree and receive a free SADS goody bag for your whole
family! The Family Pedigree Project assists SADS
families to map out their own p edigrees to identify other individuals
who may
be at risk. Completing your family health history (or pedigree) can save
lives directly. After a child is
diagnosed with LQTS or any other arrhythmia, other siblings may be at
risk, as
well as parents, grandparents, aunts, uncles and cousins. With this program, we hope to identify and save even more lives at risk.
Click here to read about the project and get started today! |
Heart Rhythm Society 2010
May 11-15, the SADS staff attended and exhibited at the Heart Rhythm Society's annual conference in Denver, Colorado. Among several interesting scientific sessions, the SADS Scientific Advisors had a great meeting.
Also, the SADS Young Investigator Award was given at the annual PACES (Pediatric and Congenital Electrophysiology Society) dinner. This year, the award was given to two recipients: Edward Glasscock of Baylor University (below left) and Suraj Kapa of the University of Pennsylvania (below right with Dr. Ackerman).
 
Volunteers came to show their support at the SADS booth. A special thanks to: DeLores Peressini & the Badger Family (below left) and Glenda Stafford & the Layton Family (below right) .  |
New Research About Beta-blockers and LQTS from HRS
Scientific Meeting
Research was presented at the recent HRS meeting that
concluded that propranolol (Inderol) has a significantly better QTc-shortening
effect than metoprolol or atenolol. This research confirms what the SADS
Foundation has been recommending for years and should lead to better protection
for LQTS families.
Check our website for a summary of other
abstracts/posters from HRS that are of interest to SADS families or watch for
your copy of the 2nd Quarter SADS Literature Review coming in
July. |
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 Bob DeVries is traveling to every Major League Baseball stadium this summer to raise awareness of SADS conditions in memory of his wife Shawn DeVries. You can follow along with Bob on his travels by checking the Where's Bob? page to see where he'll be next. You can also find Bob on Facebook! Next stop, Detroit!
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Board Spotlight
SADS Foundation Board President, Dr. Michael Ackerman, has been  elected membership to the American Society of Clinical Investigation. The ASCI is an honor society of physician-scientists, those who
translate findings in the laboratory to the advancement of clinical
practice. Founded in 1908, the Society is home to more than 2,900
members who are in the upper ranks of academic medicine and industrial
healthcare. Please join us in congratulating Dr. Ackerman for this prestigious achievement.
SADS Board Member, Dr. Silvia Priori, has been inducted to the Heart  Rhythm Society Board of Trustees. Dr. Priori is internationally recognized for her studies identifying
the genetic basis and optimum therapy for patients at risk of inherited
forms of cardiac arrhythmias. Her presence within the Heart Rhythm Society will help bring a focus on SCA and SADS conditions as they plan for the future. Congratulations, Silvia!
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National CPR and AED Awareness Week: June 1-7, 2010
Next week begins national CPR and AED awareness week. In celebration of this, the National Safety Council is offering free emergenc y care training! First Aid and CPR with AED is a three-hour online course that
teaches participants how to respond should someone need assistance.
First aid topics include breathing emergencies, sudden illness and
injury, and bleeding. You can register for this online course by visiting the NSC website. |
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Sincerely,
Alice, Laura, Joanne, Heidi and Adrienne
SADS Foundation
508 East South Temple, Suite 202
Salt Lake City, UT 84102
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