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Upcoming Events
Become part of the 16th annual "No Ball at All" campaign!
Ben Curtis Charity Golf Day in Australia- Mar 19, 2010
Benefit Concert From the Heart in Memphis, March 29
Medical Seminar: Understanding SCD in Children - Arizona - April 17, 2010
SADS Family Seminar in Cincinnati, OH - May 1, 2010
SADS Family and Medical Seminar at New York University -June 5, 2010--More info coming soon!
To add to your special fund-raising event please contact Laura or call 800-783-7723
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Greetings!
Here's the latest news from the SADS Foundation. Please take a moment and catch up on the most recent happenings. |
SADS Family Seminar--next stop Cincinnati, Ohio!When: Saturday May 1, 2010
8:30 AM to 12 PM
Where: Cincinnati
Children's Hospital
Fifth Third Bank Auditorium
Cost: FREE!
Featuring:
Jeffrey
Towbin, M.D.
Directory of Cardiology, Cincinnati Children's Hospital
Co-Director Heart Institute, Cincinnati Children's Hospital
Timothy Knilans, M.D.
Director, Clinical Cardiac Electrophysiology & Pacing Heart
Institute
Cincinnati Children's Hospital
Erin M. Miller, M.S. CGC
Genetic Counselor
Heart
Institute
Cincinnati Children's Hospital
For more information about this event, or to register, please contact Joanne or call 1-800-STOP-SAD (800-786-7723)
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FDA Alert: Invirase (Saquinavir ) and Norvir (Ritonavir)
The U.S. Food and Drug Administration (FDA) is reviewing
clinical trial data about a potentially serious effect on the heart from the
use of Invirase (saquinavir) in combination with Norvir (ritonavir). The data suggest that together the two drugs
may affect the QT interval of the heart.
A prolonged QT interval can increase the risk for abnormal heart
rhythms, including a serious abnormal rhythm called torsades de pointes.
The FDA's analysis of these data is ongoing. Patients
concerned about possible
risks associated with using Invirase and Norvir should continue to
take their prescribed medication and talk to their healthcare
professional.
Click here to read the FDA press release.
Click here to see the NEW list of Drugs to Avoid in Brugada Syndrome. For information about the Mexiletine drug shortage, click here.
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SADS Returns from New York!
One of the highlights of the NY trip is that we secured the National Chairpeople
for the 4th annual Climb to Conquer SADS. Anthony and Cathy Lucatuorto have
graciously accepted this job, and are busy matching climbers and families.
For
anyone who would like to be part of this exciting event, they can e-mail
Anthony Lucatuorto at lucatuor@optonline.net or Laura.
For more information on the Climb to Conquer SADS, please visit our website.
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Sincerely,
Alice, Laura, Joanne, Heidi and Adrienne
SADS Foundation
508 East South Temple, Suite 202
Salt Lake City, UT 84102
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