Great Progress, Huge Milestones
& The Fight Continues
www.adamlamson.com                                                                       Thursday, March 18, 2010

Adam & Friends
Name That Scar...
Recovery

Adam was in the hospital only four days following surgery and then headed back to the island to recuperate. Pictured here at the right - Adam with a few friends who came to help keep him entertained.

You too can help keep him entertained by logging on to his website with a story. Visit www.adamlamson.com and enter your version of what happened to produce the scar on his side. The incision for surgery left a 12 inch crescent shaped scar on his right side. We'd love to hear your version of what caused the scar. The winning story, chosen by Adam, will be the one he tells from here forward and also receive a candy bag from Dylan's Candy Bar in NYC. Some of the versions so far include Ninja Warriors, Samurai swordsmen, and an injury from saving orphans and puppies.

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Carl in a Jar
Treatment Update
Back In Chemo...

Adam is back at Sloan this week, starting on a new round of chemotherapy. He will receive chemo through the end of next week.

They have also done a simulation for treatment planning on his next step, radiation. Dr. Wolden will be the physician performing Adam's radiation.

Radiation therapy is an extremely powerful tool for these tumors, but young patients are especially sensitive to long-term side effects. Dr. Wolden approaches each patient as a unique individual, carefully designing a highly customized radiation therapy plan to maximize the benefits of treatment while minimizing side effects. She is a leader in the use of targeted approaches such as intensity-modulated radiation therapy (IMRT), image-guided radiation therapy (IGRT), and intra-operative radiation therapy (IORT) for pediatric cancers and for head and neck tumors in adults.

In comparison to other tumors, soft tissue sarcoma requires that a larger margin of normal tissue be subjected to radiation. This is because sarcoma can spread along and between muscles in ways that sometimes cannot be detected. Microscopically, sarcoma cells are discrete, but they can trickle out deceptively and be left behind after surgery. The further away from the tumor site, however, the less likely there are to be sarcoma cells. Radiation oncologists typically deliver radiation to tissue five centimeters (approximately two inches) beyond where the tumor was located.

Carl's Lab Report

The tumor in Adam's chest (Carl) began life as a teratoma. Teratomas are thought to be present at birth (congenital). They consist of germ cells, simply extra cells left over from conception. Some cells within the teratoma may mature into teeth and hair. Or they can be malignant, depending on the maturity and other types of cells that may be involved. Malignant teratomas are characterized by mestastis (spread of a tumor to another part of the body) along with local aggressive growth. In Adam's case, the cells mutated into Rhabdomysarcoma. Or as Adam put it, he had an evil twin - Carl.

The pathology report showed that the chemo had effectively killed Carl, with the rhabdomyosarcoma showing a "prominent treatment effect" (more than 90%). The two lymph nodes removed were benign, tissue taken from the surface of his heart also came back benign.

All in all - it's another great day in the Lamson households. Thank you for your thoughts and prayers.


PHOTO: Just in case you're freaked out by the photo, Carl in a jar is a simulation and not the real tumor. It's an art piece created by Sue for Adam to keep on his bookshelf.
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Adam Contact Information
Cell: (631) 312-4057
Email: lamsoa@rpi.edu
Address:
  Adam Lamson
  430 No Sea Mecox
  Southampton, NY 11968
If you have a story to share or pictures, please email them to Kim for inclusion in Adam's newsletter. We'd love to include them in future emails.

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Family Contact Information

Steve Email: terrainltd@gmail.com
Kim Email: kim@sparkbusinesssolutions.com
Sue Email: amberlms@optonline.net
Dan Email: dan.berry@motorola.com