Epilepsy Foundation Northwest

August 2010 Issue

Upcoming Events

Education & Networking

Portland, OR     August 11


Education & Networking

Portland, OR     August 20


Camp Discovery

Stanwood, WA     August 31


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The Epilepsy Foundation Northwest is funded independently by individuals, corporations and foundations. Our fundraising efforts to support          northwest people are separate of the national Epilepsy Foundation.

The Epilepsy Foundation Northwest is now accepting Monthly Recurring Donations.

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New EFNW Board Chair

Rae Lynne Stewart of Portland, OR was recently elected to chair the Board of Directors for the Epilepsy Foundation Northwest.  Ms. Stewart is the managing director for eWomenNetwork in Portland and the owner/founder for Naturally Clean Northwest.  Ms. Stewart has served on the EFNW Board for several years acting as the chair of the Northwest Run/Walk for Epilepsy which has grown to include six northwest cities.

Ms. Stewart and her daughter, Kaitlyn, represented EFNW at the 2008 national Epilepsy Foundation "Kid's Speak Up" Conference where they met with northwest Congressional representatives to advocate about epilepsy.  Ms. Stewart is joined by four other board members from the
Portland area representing Oregon within the affiliate territory. 

For more information about how to become a board member contact any EFNW office via www.epilepsynw.org/contact.


YEA! Youth Summit Retreat


  YEA summit


YEA! hosted its first annual youth retreat July 31-August 1 at Long Lake in Nine Mile, WA. Youth leaders from Oregon and Washington attended along with EFNW staff.  The two-day retreat featured team bonding activities, advocacy and leadership training, recreational activities, and youth-driven planning for the future of YEA! 

 

Attendees shared experiences about living with epilepsy and overcoming obstacles in their daily lives.  The group organized a mock advocacy project utilizing individual skills and talents while bringing together group collaboration.  They also spent time setting the stage for the future of YEA! by planning out activities and programs for the coming year.

 

After the work was done, everyone enjoyed swimming, movies, games, great food and more during the two-day event.


Learn more about YEAH! here...



Social Security Disability



Am I Disabled?  Tips on Collecting Social Security Disability With Epilepsy


An Article by Portland Attorney Sara Staggs

Social Security benefits can seem almost impossible to obtain. In fact, many claims are only approved upon appeal from the initial denial.  In addition, allegations of epilepsy are among the most difficult types of claims adjudicated by the Social Security Administration (SSA), and many errors can, and often do, occur with both the Social Security judges and the treating doctors.  


Read the rest of this article...

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