Epilepsy Foundation Northwest

July 2010 Issue

Upcoming Events

YEA! Youth Epilepsy Advocates

Portland, OR July 10, 2010


Women & Epilepsy Conference

Anchorage, AK July 20, 2010


YEA! Youth Summit

Spokane, WA July 31-August 1, 2010


Camp Discovery

Stanwood, WA August 31, 2010


View all Epilepsy Northwest Events

Support EFNW

The Epilepsy Foundation Northwest is funded independently by individuals, corporations and foundations. Our fundraising efforts to support          northwest people are separate of the national Epilepsy Foundation.

The Epilepsy Foundation Northwest is now accepting Monthly Recurring Donations.

Donate to Epilepsy Foundation Northwest

Camp Discovery

Snohomish County, WA
Aug. 31 - Sept. 3, 2010


The annual summer camp presented by the Epilepsy Foundation Northwest, Camp Discovery, is held the end of August each year.  The Camp is located at the Camp Fire USA's Camp Killoqua on beautiful Crabapple Lake just east of Lake Goodwin in Snohomish County (Stanwood and Everett), WA.  Children will experience archery, rock climbing, canoeing, hiking, swimming, arts/crafts, campfire games and much more.
 
The Camp is for children with epilepsy age 7-17 for which there is no charge.  Siblings are also invited at a cost of $125 per child.  Parents are encouraged to be Camp Counselors and participate in this life experience with their children.  Other volunteers are also welcomed to help as Camp Counselors and in other capacities.
 
2010 Camper registration and Volunteer forms are available at www.epilepsynw.org - Programs/Camp Disovery.


       Women & Epilepsy 

      Across the Lifespan


Tuesday, July 20th, 9am to 3:30pm at the BP Energy Center in Anchorage.

This free workshop covers issues with medications, hormones, puberty, pregnancy, menopause, and later life, along with impacts on emotional and cognitive functioning, such as memory, depression, family life, relationships, and self-esteem. Presenters include Dr. Gail Anderson, Professor of Pharmacology, University of Washington; Deborah Carr, Epilepsy Foundation of America; Mary Margaret (Mo) Hillstrand, ANP, LLC, General Neurology, Anchorage; and Dr. Vaishali Phatak, Clinical Neuropsychologist, University of Washington.


Register online AK Life Span

Or email ptorres@epilepsynw.org


This workshop is made possible through Project Access, funded by HRSA, MCHB Epilepsy Foundation Local co-sponsors include Epilepsy Foundation Northwest, Stone Soup Group, and UAA Center for Human Development.


Resource Link

Epilepsy Foundation Northwest

EFNW Upcoming Events

Oregon Community Resouces

Washington Community Resouces

Montana Community Resouces

Alaska Community Resouces

Local Epilepsy Centers

Epilepsy Northwest News & Blog

Volunteer Opportunities 

 
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Northwest Run/Walk A Huge Success!


 4E (For Ethan)
 Ellie's Peeps - Portland, OR

The Northwest Run/Walk for Epilepsy took place this past June 19 and 20 to huge success! The annual event raised over $95,000 and hosted over 1,000 participants. The multi-city event benefits uncompensated programs and services provided for people with epilepsy throughout the northwest.

Some 37 teams raised over $500 per team qualifying them for prizes and helping to set new team records for most money raised. Team Swedish Meatballs from Seattle raised over $8,400 making them the first place team in the northwest. Highest individual fundraising honors went to Miranda Levy of Seattle's Team Carpe Diem raising over $5,600 for her team and the event.

4E (For Ethan)

4E (For Ethan) - Portland, OR

Portland enjoyed a huge increase in participants with 320 registrants and bringing in over $24,000. Team Callie's Royal Court enjoyed top team honors with over $3,200 raised and Megan Gilgen with top individual honors with over $1,500 raised.

Team Spokane created great awareness at Riverfront Park raising over $6,000 and hosting nearly 100 participants. Team Abers with Cory Plager and Team Justin with Cinzia Escobido took top honors in Spokane.

First time event participants Tri-Cities, Anchorage and Juneau came through with strong showings. Tri-Cities alone raised over $8,500 and received great local media coverage to help bring awareness about epilepsy to the community. Juneau and Anchorage also produced great media coverage and raised over several thousand dollars to help support public education programs.

Donation sites are still available for each location (see below) to support your favorite city, team or individual.

Seattle Children's Hospital


New Webpage Launched
 
Seattle Children's Epilepsy Program provides promising options for children with epilepsy. The program is part of the University of Washington Regional Epilepsy Center. Seattle Children's, along with other northwest epilepsy centers, is a leader in treating children diagnosed with epilepsy and those whose seizures cannot be controlled by medicines.

The Seattle Children's epilepsy team includes experts in epilepsy, neurosurgery, neuropsychology, neuroradiology and other specially trained nurses and staff. Seattle Children's Epilepsy Center is a fully functioning facility with all the latest research and treatment capabilities. For more information go to:
Epilepsy Programs
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I Only Have Seizures When I'm Asleep.Why?


Answer by John W. Miller, MD, PhD
 

Although many people with epilepsy find that their seizures are affected by sleep, different individuals have very different patterns. Some only have seizures during sleep; some only have them when they are awake.

 

It's also not unusual for seizures to be stronger if they happen during sleep. People with some types of epilepsy often have seizures right after they wake up in the morning. With most types of epilepsy, lack of sleep or poor sleep can trigger seizures. Read more: Article

 



Epilepsy Foundation Northwest

Portland

5251 NE Glisan St.

#A203

Portland, OR 97213

Phone: 503-228-7651

Spokane

PO Box 173

Spokane, WA 99210

Phone: 503-325-1128

Seattle

2311 N. 45th St.

#134

Seattle, WA 98103

Phone: 206-547-4551

Visit Us: www.epilepsynw.org
Email: mail@epilepsynw.org
_______________________________________

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