Capital Candlelighters' Logo
Capital Candlelighters Newsletter
. . . because kids can't fight cancer alone!
September, 2009
In This Issue
--Summer Picnic Smiles
--Young Adult Survivors
--Monthly Family Support
--Suzy's Run/Walk
Summer Picnic

Summer Picnic Fun!

Thanks to the MTH Foundation for sponsoring our 2009 Summer Picnic on July 12th at Elver Park.  Beautiful weather, good food, fun activities and a touching butterfly release made for a very special day.
Online Support!

Candlelighters Childhood Cancer Foundation sponsors an online discussion board and support forum for those affected by childhood cancer.  Join today and share the journey with others all over the country.

We offer our profound thanks to these recent donors and supporters:

MTH Foundation

Maurice Rosefelt Memorial Fund

Deonne Salon and Day Spa

Mr. Richard Piacenza

Badgerland Financial
of Baraboo

Junior's Promotions

Race4Cure
of Fort Atkinson.

Serna-Liebl Photography

Suzy Favor Hamilton

This issue of the newsletter is dedicated to
the memory of Rumer Thomas.

The Old Fashioned Tavern and Restaurant

('serving Wisconsin Fare on the Capitol Square') will target the proceeds of their September and October weekend brunch meat raffles to Capital Candlelighters!

[Note from Anne:  Don't miss their 2 for 1 burger night on Wednesdays. While you're there, thank them for supporting local kids with cancer!]

Quick Links

Candlelighters USA
Capital Candlelighters

Simplified Scrip Logo
purchase gift cards to all your favorite stores and a percentage will benefit Capital Candlelighters!

City-Scrip Logo
purchase gift certificates to Madison area businesses at 25%-50% off to benefit Capital Candlelighters!

Want to donate directly?
Make a Donation
You can donate securely to Capital Candlelighters
in $5.00 increments at this link (ex. quantity of 2 = $10, quantity of 4 = $20, etc.)
Thank you!

September is Childhood Cancer Awareness Month
Spread The Word!
Please plan to walk or run with us
in honor and in memory of kids and teens
with cancer at Suzy's Run/Walk
September 27th   10 am   Vilas Park

. . . because kids can't fight cancer alone!

Healthy and Ready to Work

Kids
Health care transition for young adults

Young adult cancer patients and cancer survivors face a unique developmental step.  Unlike most young people, they already have a complex and detailed medical history, some of which may have happened when they were very young.  After being accustomed to having a parent keep track of their past and present tests, treatments and medications, these young adults have to take over responsibility for their own medical care.

-They must learn the details of their own medical history and medical needs, and be able to explain them to caregivers
in their new home, workplace or college setting.
-
They have to learn to become their own appointment makers and their own advocates with medical personnel.
-Many need to learn what their legal rights are in terms of access to insurance, workplace or campus accommodations for a disability, and medical privacy.

The AFCH social workers have excellent materials and advice to guide young adults and their parents smoothly through this transition.  You can also find great resources online at the Healthy and Ready to Work website, http://www.hrtw.org/
Capital Candlelighters Childhood Cancer
Monthly Family Gathering
Wednesday, September 2nd

Mini golf kid
Vitense Golfland
Beltline Hwy at Whitney Way    6:00 pm

Dinner from the Green Tree Grill

Youth are supervised by UW Occupational Therapy grad student volunteers while adults have chat time.  Mini-golf, arcade play, Hi-Ball, batting cages, crafts - something for everyone! 

Free of charge to families of kids/teens with cancer
Suzy's Run/Walk for Capital Candlelighters
Sunday, September 27th at 10:00 am
Vilas Park Shelter   Madison, WI   


Suzy's Run Honorary Starters 2009

A 5K Run and Walk/ 10K Run
to Support Area Kids with Cancer


You can form a team for your family, workplace, school or club, or just register to run or walk individually.  Come out on a beautiful fall day during Childhood Cancer Awareness Month and join Suzy Favor Hamilton to support local kids fighting cancer!

Great pledge prizes at all levels for participants who collect pledges, from water bottles and fleece blankets to Nike jackets and electronics!

 
Grand Prize - 10" Acer Netbook computer, with case and wireless mouse
First Prize - FlipVideo Ultra HD
Second Prize - 8GB iPod Nano

Suzy's Run/Walk lets our community learn about and pay tribute to the children and teens battling cancer right here among them.  Register to run or walk today, create a pledge page (click "become a fundraiser") or simply donate to help.

Suzy's Run web site!

Our friends at Storybridge.tv have produced a video to help our community learn more about Capital Candlelighters and the impact of childhood cancer through the voices of three families.  See kids, parents and Suzy herself talk about the good that comes from your participation in Suzy's Run!

http://www.storybridge.tv/everystep

Capital Candlelighters was founded nearly 30 years ago by parents of kids treated for cancer in Madison.  We are now in our 10th year of expanded programs, providing educational, financial and transportation support to families and raising community awareness as well as offering social and emotional support.

It's an interesting time for many of us involved with Candlelighters, both personally and as an organization.

As in most areas of life, our blessings and challenges seem to arrive hand in hand, and how we greet the former (with gratitude and humility, we hope) and face the latter (with optimism and courage, we hope) is what defines our character.

--The difficult economy has made things tough financially over the last several months, but wonderful friends like the Maurice Rosefelt Memorial Fund and Deonne Salon and Day Spa have stepped up to make sure that childhood cancer families most in need are able to obtain car repairs, and pay for groceries, utilities and other basics to protect the health and safety of their kids who are undergoing cancer treatment. 
--We are making the transition to a new board president in October.  We want to thank Mr. Jim Gilmore (dad to survivor James) for his many years of service in helping us to grow and build this organization.  Jim is a passionate advocate for Capital Candlelighters and has helped to open many doors for us.  Like any good leader he has trained and prepared the board well for the future, but we will miss him!  [More about his successor, Jim Egle (dad to survivor Maria) soon!]
--David and I just delivered our 12 year cancer survivor, Joseph, to his first semester in college.  All the excitement left us unprepared for how awfully quiet our nest is feeling these days, but we are truly thankful to have reached this ordinary, completely miraculous day.

Capital Candlelighters supports the 250+ families of kids on treatment for cancer at AFCH because of the devoted support we receive from community members like YOU.  THANK YOU for your ongoing commitment to these great children and their families, walking beside them at the most frightening time in their lives.  May your blessings be rich and your challenges small.

Sincerely,

Anne Spurgeon
Executive Director
Capital Candlelighters Childhood Cancer Alliance
608-231-8006
http://www.capcan.org

. . . because kids can't fight cancer alone!