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Summer Picnic 2009
ELVER PARK
'NEW' SHELTER
Sunday, July 12
Noon to 3
No RSVP needed
Play games, meet other families, share some laughs and fun.
Sponsored by a generous gift from the MTH Foundation
(Our quarterly social events are for childhood cancer and blood disorders patients and survivors, their siblings and parents/guardians) |
SAVE THE DATE!Suzy's Run/Walk for Capital Candlelighters September 27, 200910 amVilas Park in Madison |
Thanks to our generous sponsor!
Sertoma of Madison
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We offer our profound thanks to these recent donors:
Donations in memory of Mary E. Cullen
Donations in honor of Wyatt Scheckel and Ethan Smith
Sertoma Club of Madison
Monsanto Matching Fund
Curt and Sandy Bakk
Madison Rotary Foundation
Joel and Sharon Haraldson
SWIS District of Optimist International
Sandra M. Johnston
Diane M. Humboldt
Sean D. Gifford
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This issue of the newsletter is dedicated to the memory of sweet Keagen Koch.
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Quick Links
Candlelighters USA
Capital Candlelighters
purchase gift cards to benefit Capital Candlelighters purchase gift certificates to local businesses at 25%-50% off to benefit Capital Candlelighters!
Want to donate directly?
 You can donate securely to Capital Candlelighters
in $5.00 increments at this link (ex. quantity of 2 = $10, quantity of 4 = $20, etc.)
Thank you!
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Capital Candlelighters' families and friends-
Greetings to all of you from the Capital Candlelighters' office!
We've been busy answering calls and emails from a growing number of families of kids on treatment for cancer who are struggling to manage household and medical expenses during these difficult financial times. Please keep these great kids and families in your thoughts, and please consider taking part in the upcoming HBO Golf Classic (May 16th) and the 2009 Suzy's Run/Walk (Sep 27th). These are our major annual fundraising events, and the proceeds help us to provide emergency support so we can relieve families of children and teens fighting cancer of some of their worries about paying for transportation to treatment, utilities, groceries or other basic expenses.
Our Peds Heme-Onc Hero Bead program is still going strong at the American Family Children's Hospital. Remember, if you need to catch up on beads or would like to get started but your child has already been on treatment for a while, you are welcome to come by the Capital Candlelighters' office on Segoe Road and collect the cords and beads you need. We also invite bereaved families to collect and string beads to document their child or teen's cancer journey. Give us a call and schedule a time to come by. |
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Monthly Family Gathering Wednesday, May 6th
JOIN OTHER FAMILIES OF CHILDREN WITH CANCER AT OUR MONTHLY GATHERING! Vitense Golfland
Beltline Hwy at Whitney Way
6 pm
Dinner provided by the Green Tree Grill
Kids play, do activities, enjoy mini-golf and arcade games
with our great volunteers from the UW Occupational Therapy graduate program. Adults have time to relax, share ideas and experiences and support one another.
No Charge No RSVP necessary
Monthly Family Gatherings funded by a grant from
The Evjue Foundation, charitable arm of The Capital Times
Upcoming meetings June 3, July 1, August 5
A team of UW Physical Therapy graduate students will come to our June 3rd meeting to discuss and demonstrate their new guide for maintaining and regaining physical strength and balance for childhood cancer patients. Mark Your Calendar!
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New Article on Health Complications in Childhood Cancer Survivors
Many of us struggle to keep up with the evolving health information for childhood cancer survivors. An excellent new article, researched and written by several of the foremost experts in the field, was published just this month in the Journal of Clinical Oncology. You can find it in your local medical library or request a copy by email from anne@capcan.org.
Melissa M. Hudson, etal., "High-Risk Populations
Identified in Childhood Cancer Survivor Study Investigations:
Implications for Risk-Based Surveillance," J Clin Oncol 27, April 2009.
From the abstract: "Childhood cancer
survivors often experience complications related to cancer and its
treatment that may adversely affect
quality of life and increase the risk of premature death." The article reviews data from over 10,000 participants in the Childhood Cancer Survivor Study (CCSS) to help identify "childhood cancer survivor populations at
high risk for
specific organ
toxicity and secondary carcinogenesis and how this has informed
clinical screening practices . . . CCSS investigations have
characterized specific groups to be at highest risk of morbidity
related to endocrine and
reproductive dysfunction, pulmonary toxicity, cerebrovascular injury,
neurologic and neurosensory sequelae,
and subsequent neoplasms. Factors influencing risk for specific outcomes related to the
individual survivor (eg, sex, race/ethnicity, age at diagnosis,
attained age), sociodemographic
status (eg, education, household income, health insurance) and cancer
history (eg, diagnosis,
treatment, time from diagnosis) have been consistently identified.
These CCSS investigations that
clarify risk for treatment complications related to specific treatment
modalities, cumulative dose
exposures, and sociodemographic factors identify profiles of survivors
at high risk for cancer-related
morbidity who deserve heightened surveillance to optimize outcomes after treatment for childhood cancer."
Quoted excerpts © 2009 by American Society of Clinical Oncology
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Sat.,
June 6, 2009 from 9 a.m. - 1 p.m.
Drop off old medications at one of these locations:
1) City Transfer Site, Madison 121 E. Olin Ave (next to city pool)
2) Middleton High School parking lot, 2100 Bristol St.
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HBO Golf Classic to benefit Capital Candlelighters
May 16,2009 Evansville Golf Club Noon
 Click this link to download your printable registration form for the 12th annual HBO Golf Classic! Don't miss your chance to support local kids with cancer and live it up with a great afternoon of golf. Your $85 fee includes 18 holes of golf, a cart, dinner and door prizes. Trophies will be given for best scores. Take part in the 11:30 am golf clinic, play games on selected holes on the course, try your luck with the raffle and silent auction, and enjoy the company of good people in the service of a great cause! |
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Hope to see you at the HBO!
Sincerely,
Anne Spurgeon
Executive Director
Capital Candlelighters Childhood Cancer Alliance
608-231-8006
http://www.capcan.org
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