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Capital Candlelighters Newsletter
. . . because kids can't fight cancer alone!
February, 2009
In This Issue
--Spring Party March 21!
--Million Penny Drive
--February '09 Family Gathering
--Seminar: New Leukemia & Lymphoma treatments
--Golf Outing Scheduled
--Real Pain, Fake Cures
Come to the
Spring Party!


Mom and daughters as princesses

Saturday, March 21
5:30 pm

BounceU
4009 Felland Road
(Madison's East side)

Jump into Spring on the inflatable indoor play structures- big enough for teens, moms and dads, too!   Food and drink, crafts and games in the party rooms.   No RSVP needed--if you're feeling well, come and socialize!!

(Our quarterly social events are for childhood cancer patients and survivors, their siblings and parents/guardians)

Featured Article
Shiny Lincoln Penny
MILLION PENNY DRIVE
MARCH 1 - 31, 2009

Using Small Change to Make a Big Change For Local Kids With Cancer!

If your school, workplace or community group would like to take part in this year's Million Penny Drive, we'll sign them up!  It's easy and fun!  A Million Pennies = $10,000, which would help provide a lot of gas cards, groceries, utility assistance and car repairs for families in need.  Participants can collect funds for any length of time during March.  We can provide posters, coin jars or milk jug labels, incentive prizes and more!  Questions?  call 608-231-8006 or email anne@capcan.org.

Sponsor Feature:

Sign from The Old Fashioned in Madison

The Old Fashioned
Serving Wisconsin Fare on the Capitol Square

Visit Our Sponsor
We offer our profound thanks to these recent donors:

Monsanto Matching Gift Program

In memory of Georgia M. Spurgeon:
  Dawn and Mike Grelle
  Rita Reed
  Linda Robinette

  Kevin Straka
  Tom and Patty Woods

Gina Bath


In honor of Sam Osterhaus:
Lands' End

In memory of Mary T. Harzheim:
  The MTH Foundation

Kaianna Obee

Sean Gifford, Liberty Mutual Insurance
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Thank you!

Greetings Capital Candlelighters' families and friends! 

I moved to Wisconsin as a young adult, and was shocked to discover that what my teachers in Missouri had taught me was wrong.  Up here, February is the LONGEST month (July seems to be the shortest--it goes by in a few days!)  I hope you have lots of opportunities to brighten up this long month and have some fun with your nearest and dearest. 

Patients, survivors and their families are encouraged to join us for a bounce to welcome the beginning of spring at our annual Spring Party on March 21st (see the article in the left column).

We continue to be blessed with contributions that allow us to provide emergency financial assistance to families of children currently on treatment for cancer.  Those of you who hold a fundraiser or write a check or donate a gas card--please know that we treasure your kindness to these wonderful kids who are fighting the battle of a lifetime.  You make sure that heating bills are paid, car repairs are completed, rent is covered and groceries are in the cupboard when parents have to miss work to care for their children.  We don't have enough words to thank you.  

Monthly Family Gathering  Wednesday, February 4th
Mom and daughters as princesses

PATIENT AND SIBLING SUPPORT

JOIN OTHER FAMILIES OF CHILDREN WITH CANCER AT OUR MONTHLY GATHERING!


Vitense Golfland
Beltline Hwy at Whitney Way
6 pm
Dinner provided by the Green Tree Grill

Kids play, do activities, enjoy indoor mini-golf and arcade games with our great volunteers from the UW Occupational Therapy graduate program while adults have time to share and talk.

No Charge       No RSVP necessary
Monthly Family Gatherings funded by a grant from
The Evjue Foundation, charitable arm of The Capital Times

Future Family Gatherings:  March 4th; April 1st, May 6th, June 3rd
Current and Emerging Treatments for Blood Cancers
Spotlight on new discoveries in NHL, Leukemia, and Myeloma from the American Society of Hematology (ASH) Annual Meeting


A Free Program From the Leukemia and Lymphoma Society,

Saturday February 7, 2009
Sheraton Madison Hotel
  706 John Nolen Drive., Madison, WI 
8:30 - 9:00 a.m.   Registration
9:00 - 12:30 p.m. Presentation
Complimentary Breakfast & Lunch Included
 

Plenary Topics:    Communicating with your doctor about treatment options (Meg Gaines); Clinical Trials, Emerging Therapies in Blood Cancers (Lisa Peronto)
Breakout Sessions:    Aggressive Lymphomas, Indolent Lymphomas, Myeloma, Leukemias

Pre-Registration is required-- please contact: Barbara Nehls-Lowe 608-826-1030 or 800-901-0771, ext. 1, barbara.nehls-lowe@lls.org
Save the Date!      May 16th, 2009
HBO Banner

Mark your calendar for the most fun day of golf all year!  The Haraldson Brothers' Open golf classic tees off at noon on Saturday, May 16.  Bring a friend or 3 and enjoy the challenges and beautiful scenery of the Evansville Golf Course.  Afterwards, come back to the clubhouse for a great dinner, a raffle drawing, silent auction, door prizes and awards!  

Send a quick email to anne@capcan.org with your name and address if you want to receive a registration packet in the mail. 

If you are interested in being a hole sponsor or event sponsor, contact Joel Haraldson at 608-825-3906.  We'll make sure people see the name of your business and know that you support area kids with cancer!!  If you have an item to donate for the silent auction, please call Anne at 608-231-8006.
How to Spot Fake Cancer Cures
Quack!Most of us parenting a child with cancer have been approached by someone offering a product or procedure to "cure" the cancer.  Some of these can be nutritional supplements (like the young woman at the gymnastics studio who saw Joseph's bald head and asked if I'd heard about the amazing vitamins that could rid the body of cancer.  It just so happened that she was a distributor of these incredible products).  Others come in the form of electrical or magnetic devices, unapproved 'medicines' or even entire 'clinics' promoted on web sites or through DVDs.  Some of these claim to be a sure cure, which is why "doctors don't want you to know about them!"   They profit from the fear and desperation of patients and their families, and they aren't subject to any scientific testing or oversight.  Some may be harmless, but others, even labeled as "natural" or "organic" may be very dangerous, since there is no regulation of their purity or potency. 

The Food and Drug Administration has recently added to its list of "187 Fake 'Cancer Cures' Consumers Should Avoid."   The full list of companies is
here.  For further help in assessing a potential treatment, the Federal Trade Commission has a web site called "Cure-ious?"

If you find something that you think might be beneficial to your child or teen, either to fight the cancer or to relieve symptoms caused by an aggressive treatment protocol, bring it to your nurse practitioner or your oncologist when you come to clinic.  They will not think worse of you for looking into treatment options on your own, and they can help you decide if this is something safe and worthwhile.  Even innocuous-looking items like vitamins or herbs can interfere with the current treatments or make symptoms worse, so it's important to work as a team with your child's doctor. 

There are valuable and helpful complementary practices your child can take part in to relieve stress and feel better.  You can bring the UW Integrative Medicine program into your treatment team to help you find techniques that work with the treatment plan to ease pain, lessen nausea and perhaps strengthen the immune system.
Until next month--don't take any wooden nickels, and save your pennies, dimes and quarters for our coin jars!  
With Gratitude,

Anne Spurgeon
Executive Director
Capital Candlelighters Childhood Cancer Alliance
608-231-8006
http://www.capcan.org