June 2012- Vol. 8, ISS. 3 


Greetings! The summer months are upon us, and AboutFace is as busy as ever. On June 23rd, our 5th Annual Leap of Faith Skydiving Event is taking place in 8 locations across Canada. There is still time to sign up to jump and raise money to send kids to Camp Trailblazers! Or you can support Trailblazers and donate now by clicking HERE!


In this issue, we have a couple of great, inspirational stories from some of our families about having a baby with a facial difference, a guide on feeding a baby with a cleft lip and palate written by an Occupational Therapist at SickKids, as well as a feature on one of our dedicated volunteers. We also have a feature story about some of our Camp Trailblazers children who got to be a part of the Dreams Take Flight program and go to Disney World for the day!


As always, please check our Events and Resources sections for information on some of the exciting things going on at AboutFace! Enjoy!

In this issue...



 Feature Volunteer:
Linda Huntley
Intro by Emily Tye
Linda Huntley is an AboutFace volunteer from Nova Scotia where she is the Nurse Coordinator at the IWK Health Centre in Halifax. Linda first got involved with AboutFace in 2006, when she contacted us for information on how we could help her patients after she was referred to AboutFace by one of her patient's parents. Since then, she has been an invaluable member of the AboutFace volunteer team - hosting various fundraisers in support of AboutFace and volunteering at Camp Trailblazers for the past several years. Linda has raised over $4000 in support of AboutFace over the years that she has been involved with us. AboutFace is so thankful to have such a wonderful and dedicated volunteer such as Linda! Please click HERE to read Linda's story.
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by Nancy Brown
My name is Nancy Brown. I live in Gander, NL. I am married to my husband, Rob, and we have a 2 1/2 year old little girl named Hannah. Both my husband and little girl were born with bilateral cleft lips and cleft palates. My husband had numerous surgeries to repair his and remembers bits and pieces of some of more>>
Oral Feeding Babies With A Cleft Lip And/Or Cleft Palate
by Sharon Samaan, MSc(OT), OT Reg. (Ont.), Occupational Therapist at Sickkids


Parents of an infant with a cleft lip and/or palate may be concerned about whether their baby will have problems with their feeding. Overall, babies who are born with a cleft lip and/or cleft palate in isolation will be able to orally feed with the appropriate feeding support. The type of feeding (breastfeeding versus bottle feeding) that will be possible is dependent on the type of cleft a baby is born with.

What if my baby has a cleft lip?

Babies with a cleft lip can generally breastfeed or bottle feed similar more>>

Tyler's Story

by Jannick Theriault

tyler theriault Tyler was born early, at 35 weeks, in October 2010. My water broke spontaneously in the middle of the night. We weren't expecting the arrival of our first baby so soon and were definitely not ready for his condition when he was born. When I delivered Tyler, the doctors noticed he was swollen on one side of his face and had some excess skin under his chin. He was taken to the nursery since he had trouble with his breathing and was put in an incubator. The doctors didn't know what was wrong with Tyler more>>

"Dreams Take Flight" for Camp Trailblazers children

by Emily Tye, AboutFace Office Administrator

dreams take flight

 On May 8th, four campers from Camp Trailblazers Ontario - Morgan, Nick, Gage, and Alice, had the amazing opportunity of going to Disney World for one day with the Dreams Take Flight program - a national volunteer charitable more>> 

We hope you have enjoyed this E-newsletter! If you have a story to share or would like us to cover a topic or issue of interest, send us an email.
Thank you for your ongoing support and interest in AboutFace.
Anna Pileggi
Executive Director
"The smallest act of kindness is worth more than the grandest intention"