Summer 2012 Newsletter 
Excitement Building for
Next  Gala!
Saturday
April 6, 2013

Hyatt Regency Hotel in Greenwich, CT.

Monthly Support Group Schedule
The Lyme Disease Support Group fall schedule will begin on Thursday September 6 with a screening of Dr. Joe Burrascano's DVD "Putting Lyme Behind You". All meetings are held at Greenwich Town Hall, Evaristo Room, 3rd floor, 7pm-8.30pm.

Support Group
IN THIS ISSUE
New Research Reveals
LDA/Columbia University 13th Annual Scientific Conference
What's in a Name?
CT Lyme Riders Raise $10,000 for LRA.
October Golf Tournament
4th Annual Fall Boutique and Appraisal Day
Meet Lyme Research Alliance's Person of the Month: Janet Vaccaro
The Most Expensive Case of Lyme Disease In History?
New Research Report
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New Research Reveals

 

Grey squirrel confirmed as Lyme disease reservoir 

Squirrels in the St. Louis, Missouri area, especially the eastern gray squirrel, may play a larger role in transmitting pathogens to ticks than previously recognized according to a new study. Researchers at Washington University in St. Louis and the University of Illinois Urbana-Champaign, using a sophisticated DNA assay, found the eastern gray squirrel is "an important bloodmeal source in nymphs harboring Erhlichia and Borrelia species." The research is published in the May 2012 issue of the Journal of Medical Entymology.

 

In-utero transmission of babesiosis confirmed. Westchester County researchers have confirmed for the first time a case of a pregnant woman passing babesiosis to her unborn baby. The finding is important because it gives physicians another cause to investigate when evaluating infants with symptoms that can't be easily explained. 

 

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LDA/Columbia University 13th Annual
Scientific Conference
    

We are pleased to share that The Lyme Disease Association will hold its 13th annual scientific conference, Lyme & Other Tick-Borne Diseases: Microbial Persistence and Tick-Borne Diseases - New Scientific and Clinical Directions, at the Hyatt Bellevue in Philadelphia, PA, on Saturday and Sunday, September 29 & 30, 2012. The conference will be jointly sponsored by the Columbia University College of Physicians and Surgeons.

   

The conference will feature prominent speakers on the topic of tick-borne diseases and clinical practitioners. The conference is designed for physicians and scientists, but the public is invited to register to attend. This is a great opportunity to hear leading researchers present their progress and latest scientific findings.

 

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What's in a Name?
  

A whole lot! Since our name change in May, Lyme Research Alliance has been gradually replacing Time for Lyme in our consciousness as well as on the website and in our materials. The reaction has been overwhelmingly positive in the corporate community where we are making early approaches to offer preferred sponsorships for next year's Gala. The name speaks more clearly to what we stand for. And to ensure continuity for those who have been loyal supporters of this organization, the April 6 2013 Gala will be named the Lyme Research Alliance Time for Lyme Gala. To recap our reasons for the renaming, "LRA has grown from a grassroots neighborhood organization in Greenwich, CT, to a respected nonprofit funding Lyme disease research at leading medical research centers around the country," says Co-President, Debbie Siciliano. "The renaming comes at a time when it's more urgent than ever for us to continue building strong alliances to support independent research leading to a reliable diagnostic test and ultimate cure for persistent Lyme, one of the most serious epidemics of our time."  

 

Read the press release 

CT Lyme Riders Raise $10,000 for LRA

donation

CT Lyme Riders, a local motorcycle group that works to raise awareness of Lyme disease, recently contributed $10,000 to Lyme Research Alliance to support LRA-funded research teams working urgently to develop an accurate and reliable diagnostic test for the disease. Lyme Riders raises funds by sponsoring an annual 80-mile Poker Run that starts and finishes in Colchester, CT.  Pictured (left to right):  Victor Chasse, a CT Lyme Riders member, Tony Gargano, the group's co-founder, and Peter Wild, Lyme Research Alliance's executive director. Missing from the picture is Sandy Brule, co-founder.
October Golf Tournament
  

golf Lyme Research Alliance will host its first annual Golf Tournament on Thursday, October 11, 2012 at prestigious The Stanwich Club in Greenwich, CT. The tournament is led by event chairs, Jim Edwards, Tony Frascella, Alan Herzog, Malcolm McAvity and Kelly O'Dea of Greenwich who wanted to band together in an effort to raise the much needed funds to move promising research projects forward. 

    


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4th Annual Fall Boutique and Appraisal Day
  

Shop and Support Research for Lyme and other Tick-Borne Diseases. A portion of each purchase will be donated to Lyme Research Alliance

 

Lyme Research Alliance will host the 4th Annual Fall Boutique and Appraisal Day on Monday, October 22nd from 6pm-8pm and Tuesday, October 23th, from 9:00am to 4:30pm at the Christ Church Parish Hall at 254 East Putnam Avenue in Greenwich, CT.  

 

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Meet Lyme Research Alliance's Person of the Month: Janet Vaccaro

"I was never one to rock the boat, but I had to take a stand in the fight against Lyme," says Stamford mother of three.  

 

When Board Member Janet Vaccaro and her family moved into their Stamford home in 1994, they had no idea what lay ahead of them. Janet, who held a part-time job at a nursery school in New Canaan, expected she'd simply enjoy a quiet life with her husband and three young sons. Yet fate has a way of changing even the best laid plans.

 

Janet, then 40, soon started experiencing a rash on her torso, fevers, then swollen ankles and a troublesome shoulder. Months passed without doctors being able to determine what was wrong. "It got to the point that I wondered if I was causing my own problems," she said. But her symptoms grew worse. Finally, Janet reached the point where she had to give up her job because she was suffering from severe memory and joint problems.  

 

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The Most Expensive Case of Lyme Disease In History?
   

The well-publicized case at JP Morgan Chase - called "arguably the most expensive case of Lyme disease in history" - highlights the extent to which Lyme deeply affects our lives and reverberates often silently, through the economy. In case you missed it, while a senior banker charged with overseeing trading at JP Morgan Chase was sidelined with Lyme disease, the group's London trading arm was engaging in a series of trades later characterized by the bank's management as "reckless" that ultimately cost the bank more than $5 billion in losses.

 
Read the article. 

New Research Report
 

A new brochure is available, describing the many and productive research programs currently being funded by Lyme Research Alliance.