Fall 2011

Volume 5, Issue 3



Your "Good News" from TSA of Texas

TSA of TX:  Helping Children and Changing Lives 

Tourette's syndrome (TS) is a chronic neurobehavioral movement disorder that begins in childhood.  Those affected make motor movements and vocalizations they cannot control.  Additionally, many are plagued by obsessive compulsive disorder, attention deficit hyperactivity disorder, dysgraphia and behavioral issues.  Today's estimates indicate up to 3 percent (1 in 33) of all children may have Tourette's syndrome.  In spite of its high incidence, TS continues to be greatly misunderstood.  Although medication may help control the symptoms, as of yet there is no cure.  TSA of Texas, one of the largest Chapters in the country, is a 501(c)(3) non-profit organization.  We directly assist Texas area families and children in crisis, 24 hours a day, 365 days a year. 

 A Message from the President: 
                                                      Is Anything Missing?
Daryl Brister


As I sit in the airport waiting to board my plane, I'm looking outside and I'm amazed at what I see...

     It's been six months since I've last seen it.  As I look around, I see several other observers are looking outside and commenting on the sight as well.  Isn't it odd how we take things for granted and don't really appreciate them until they are no longer around us?  As I continue to stare outside at this missing element we have taken for granted, it occurs to me how it has affected our lives in several ways.

     For one thing, we've been told to cut back because of it.  It's been hotter because of it.  Our lakes and rivers have been lower because of it.  Our beautiful green lawns are no longer beautiful and green because of it.  That's right, I'm talking about RAIN.  Glorious, sweet rain!  And not just some little short scattered shower, but a really good downpour!  So, as I sit here and watch the rain fall down, I'm thinking of how much I've missed it and how grateful I am to see it again.

     I remember when I was a kid and dad or mom would let me go outside and play in the rain.  Those memories still bring a smile to my face thinking of the fun I had running around splashing in the pools of water.  Once, at my grandmother's farm, my cousin saddled up the horse right after a big rain storm that flooded the open field.  We took a piece of plywood and used a long rope to tie it to the horn of the saddle.  We then got on the board and my cousin ran the horse across the field while we held on for our lives. I guess you could say we invented the first Jet Ski prototype - man did we have fun that day!

     So, why all the fuss about rain?  Well, if you live here in Texas, it really is a very welcome sight!  We need more rain across the state to help stop the wild fires, water the crops, and keep more of our trees and plants from dying.  Still, you might wonder, what does this have to do with Tourette's?  Well, nothing really.  It just makes me wonder if there is anything missing in our kids' lives.  Is there anything that used to be part of their lives that rarely shows up since they were diagnosed with TS?  

     Our children (and adults) struggling with TS may not often see the kind of metaphorical rain in their lives that brings refreshment, renewal, and new life.  TS symptoms can make it difficult to just get through the day.  They keep watching and waiting for the rain to fall, but sometimes it's just a scattered shower here and there.  We need to make sure to give those with TS a downpour that will fill them up and lift their spirits!  They may always have more than they deserve of those who don't understand and are impatient, critical or even hurtful to them.  So those of us who know them best need to remember to take the time to let them know how proud we are of them, and how much we are there to support them and help them. 

     Our kids need us to remind them that they control their future. Not Tourette's. They need to know we are proud of them for managing and dealing with their disorder every day.  Take time to pour out your love and goodness to those with TS.  Find opportunities to advocate for them to those who still don't understand the disorder.  Rain down your praises on them so they have the opportunity to run around splashing in the puddles and creating memories that will bring a smile to their face when they are grown.  Who knows, one of them may be sitting in an airport one day watching the rain fall down outside and just smile.


Until next time,

Daryl Brister

President of TSA of Texas





In This Issue
A Message from the President
Save the Date
Holiday Tree Photos Needed
2012 Gala: A Night of Magic
Live Auction Sneak Peek: Italian Getaway
TSA of Texas in Action
Targets for Tourettes Clay Shoot
Useful Smartphone Apps
Corpus Christi Support Group Premieres
Tee-Off for Tourette Pictures
Lubbock Support Group
Catch More Flies with Honey
Thank You to Our Supporters
Help Find the Genes for TS
Brain Imaging Research Studies
Bonne Nouvelle
Physician Referral List
Join our Mailing List!

Texas Hotlines

Houston:  281-238-8096

Toll Free:  866-894-8686
Emergency Pager: 281-932-0632

Quick Links


Find us on Facebook

Support Groups

All support groups are FREE of charge and have supervised fun for kids with TS and their siblings while adults meet separately.  TSA of Texas has support groups in:

A support group will be starting in Tyler very soon.  To be placed on our list for updates, please email tourettetexas@aol.com


To start a support group in your area, please contact us toll free at 866-894-8686. 

Send a Child to Camp

Du Ballon Rouge is the only program of its kind in the country where Texas children with TS can attend at no cost to the family.  This is possible only through the incredible generosity and support of our donors.   Your tax deductible contribution can help send a happy child to camp. Please help us continue the magic!  Just click here for more information and to download a donation form. 


Thank you!

Save the Date

  • November 13, 2011- The whole family is invited to attend Museum Day beginning at noon and there is no cost to attend! Choose from the Austin's Children Museum, the Fort Worth Museum of Science and History, the Houston Museum of Natural Science or the San Antonio Zoo and Aquarium.  RSVP by November 10, 2011 to TouretteTexas@aol.com with your first and last name, the museum you wish to attend, and the number of adults and children (with ages) attending. You will receive all details about your event in the confirming email. 
  • November 16, 2011- Holiday Potluck in Corpus Christi. Click here for details and RSVP information.
  • November 30, 2011 to January 2, 2012- Look for the TSA of Texas Holiday Tree at the annual exhibit in the main lobby of the Houston Museum of Natural Science. See article below for how you can help us with decorations by sending in a photo of your child to be placed on a star for the tree.
  • December 2011- Holiday Parties around Texas. The whole family is invited and there is no cost to attend! Watch our website www.TouretteTexas.org for more details coming soon!
  • December 8, 2011 - Austin Holiday Party at 6:00pm at Pump It Up. Please RSVP to TouretteTexas@aol.com with the number of adults and children attending. And don't forget your socks!
  • December 15, 2011- Join us for a Special Family Meeting in San Antonio with Dr. Samuel Zinner of Seattle Children's Hospital.  Click here for details and RSVP information.
  • January 26, 2012 - TSA of Texas GALA Fundraising Event! This year's theme is A Night of Magic: Making Tourette's Syndrome DisappearSee article below for more information.  
  • March 23, 2012- Targets for Tourette's Clay Shoot. More details coming soon!
  • March 23 - 25, 2012 - Our annual children's camping weekend, du Ballon Rouge. Applications are now available on our website at www.TouretteTexas.org. All campers, including returning campers, must complete a new application each year. New campers are accepted on a first come - first served basis. All required forms must be received and approved by our medical staff before acceptance is made.
  • April 19 - 22, 2012 - National TSA Conference at the Hyatt Regency Crystal City in Arlington, VA. Click here for more information or contact Valerie at valerie.degregorie@tsa-usa.org or (718) 224-2999 ext. 258.
Be a Star!  Send in a Photo for This Year's Holiday Tree


TSA of Texas has been invited to continue the tradition of decorating a Holiday Tree for the annual exhibit at the Houston Museum of Natural Science - a fun way to increase awareness for Tourette's syndrome.  Please help us with decorations for the tree by emailing or mailing a small photo of your child to place on a star on the tree. We must receive all photos before November 18, 2011. Questions? Contact us at TouretteTexas@aol.com.  Be sure to look for our tree in the HMNS lobby from November 30th through January 2nd.

2012 Gala:  "A Night of Magic"

Gala Logo 2012

We invite you to attend our 2012 Gala fundraiser "A Night of Magic: Making Tourette's Syndrome Disappear."


"A Night of Magic" will be held on Thursday, January 26, 2012 at the Houston Country Club.  Guests will be treated to a festive evening of reception, a roving magician, musical entertainment, dinner and both silent and live auctions.  Live auction items will include a fabulous wine cellar; an Italian getaway in Chianti, Italy; a signed Jim O'Leary Waterford 50th Anniversary centerpiece; and a miniature poodle puppy.  Silent auction items include trips, fine dining, sports memorabilia and more.


Click here for ticket and table pricing. All tickets purchased prior to November 15th will be listed in the formal Gala Invitation. Donations of any size are also welcomed. To donate an item or gift certificate for Auction, please download the donor form here.


Thursday, January 26, 2012

Houston Country Club, 7:00pm
Dr. Brian and Renee Miles
Robert "Robin" Morse, J.D.
Evalyn Shea

Amber Stocco, M.D.


Click here to see Highlights of the January, 2011 Gala. To receive an invitation in the mail, please send your name and mailing address to TouretteTexas@aol.com.

Live Auction Sneak Peek:  Italian Getaway
 Our Live Auction at Gala 2012 is simply too fabulous to wait to tell you about it!  This year, we are offering a Fabulous Italian Getaway for 14 persons!

     Enjoy a week stay at Serravalle, a 20,000+ square foot Estate in Chianti for 14 guests.  The property includes an underground suite for exercise, wine tasting and other fun activities.  Arranged visits to Siena, Chianti Hill towns and Florence.  The Florence "highlights tour" includes Top pieces of the Uffizzi Gallery, Michelangelo's Davide with guide and more.  There's also shopping at Incisa/Montevarchi designer outlets and a private wine tasting in a Tuscan region winery.  Includes daily continental breakfast, full access to the estate grounds, vineyards, heated pool, jacuzzi and olive orchards.  Guests will enjoy 24/7 access to on-site, live-in estate managers and concierge support as well as maid and laundry service.  This trip, at the minimum bid, breaks down to $240 / person / day or $195* Euros / person / day - basically a private villa for the price of a 3-star hotel!  Minimum bid is $25,000.  


Gather your friends and family together to place a group bid on this once in a lifetime vacation!  View more of the Villa at http://www.serravalleinchianti.com/For information on placing a bid without attending the Gala, contact TouretteTexas@aol.com.


*Based on current exchange rates.

Trip expires 2 years from auction night.  Entry tickets and transport costs (if any) not included.  Tours or other visit detail subject to change if unavailable.  No substitutions or credits can be given for these tours (or any other part of the donation if not used or desired).  Non-refundable full payment due at time of winning bid.  Winner to sign acknowledgement.




TSA of Texas in Action This Quarter


     Besides answering numerous phone calls from concerned parents and educators; mailing out scores of TS information packets; providing free consulting and direct support to many families struggling with TS or in crisis; holding support group meetings across the state; participating in Macy's Shop for a Cause; hosting our most successful golf tournament ever; sending families with TS to Astros and Texas Rangers baseball games; and planning Museum Day and holiday parties, TSA of Texas staff and volunteers have also been busy increasing awareness all over Texas. A few of our highlights this quarter include:

  • Sheryl Kadmon, TSA of Texas Executive Director, hosted nine Back to School In-Service programs at support group meetings across the state. Sheryl also presented Educational In-Services to school districts in Tyler, Wichita Falls and Lewisville, while also conferencing in on over 20 ARDs.
  • Lisa Henry, North Houston/The Woodlands Support Group leader, presented a school-wide children's In-Service on T.S.
  • Amy Lopez, Dallas/North Texas Support Group leader, attended a Region 10 TS Workshop and met with many educators.
  • Sherrie RuyleFort Worth Support Group leader, found sponsors to treat her group to a movie and to a summer party. 
  • Pam Weaks, Lubbock Support Group Leader, participated in a Back 2 School Expo, providing important information about TS and her group.
  • Debby Posso and Cindy Sacks presented at several City of Houston Health Fairs.
  • Mary Harris, the only full-time Children's Support Group Leader, helped the children in Austin to create ingenious Halloween spiders .  
  • Trish Rubio  recorded a public service announcement for Community Health Charities in San Antonio.  Watch it here
  • Daryl and Barbara Brister chaired the most successful Tee-Off for Tourette's Charity Golf Tournament to date.  Special thanks to Evalyn Shea for her amazing slide presentation that day and to Deborah Posso for chairing the great Silent Auction.    
  • Wendy Marcus Perez, San Antonio Support Group Leader, along with Linda Hodgson, Ricky Hodgson, Alley Salazar  and Victor Salazar  manned a TSA of Texas information booth at the AccessAbility Fest at Morgan's Wonderland in San Antonio.
  • Adults in Houston were treated to plays at the Alley Theatre, courtesy of the AlleyWays program. 
  • Bernadette and Andre Heintz spoke at two support group meetings on a Disability Conference. 
  • Our fabulous Youth Ambassadors, Link and Kirk Lipstiz, Tyler Ray Morris, Christopher Posso, Corey Pursell, Megan Romeo and Leigh-Andrea Zegarelli, continued their programs of outreach and awareness around the state.
  • The TSA of Texas Grant Writing Committee, chaired by Cindy Sacks, was honored to receive grants from The Brad Cohen Tourette Foundation, Inc. and The Gordon Hartman Family Foundation.  TSA of Texas is exceedingly grateful to both of these foundations for their support.
  • Corey Pursell and ASSIST 2015 at Texas A&M will sell brightly colored shoelaces on November 19th in Academic Place to raise funds and awareness for TSA of Texas.  Thank you Aggie supporters!  Email tourettetexas@aol.com if you would like to purchase any shoelaces

A huge thank you to everyone who makes it possible for us to help improve the quality of life for kids and adults with TS and their families!!!

Save the Date:  Targets for Tourettes Clay Shoot
Clay Shoot LogoMarch 23, 2012
Targets for Tourettes Clay Shoot
TSA of Texas 
Keith & Jyl Calcote, Chairs
More details coming soon!
Can Smartphone Apps Help Keep Your Family Organized?
     The latest smartphone apps can make it a little more fun to stay organized while encouraging autonomy and independence.  Take a look at the list below to see if any of these will work for your family.   If you have a favorite app that is not listed, please send it to us at TouretteTexas@aol.com


  • Cozi Family Organizer - Gives the whole family a shared calendar that's color coded for each member. Also includes a to-do-list, shopping list and a family journal with text and photos.
  • EpicWin - A to-do list with a role-playing game spin. As you complete chores and reminders, you earn XP to improve and develop your character in an ongoing quest to improve stats, gain riches, and level-up.
  • In Class - Helps students keep track of classes and tasks for the day in one place. It even sends a text before class so that students will never be late again.  Also lets you take video, audio and photo notes and syncs it all in one place.
  • Google Calendar - View, add or edit appointments when you're on the go.  Share your calendar and view the calendar's of other family members as well.  
  • IdeaSketch- Easily organize ideas.  Draw a diagram - mind map, concept map, or flow chart - and convert it to a text outline, and vice versa. Great for brainstorming new ideas, illustrating concepts, making lists and outlines, planning presentations, creating organizational charts, and more.
  • iReward Chart- Makes it easy to reward your children for good behavior and keep them motivated. Stars are earned as tasks are completed.  Then your child can pick from the default list of suggested rewards, or you can set up your own custom rewards especially tailored for your child.
  • iStudiez Pro - Easily keep track of school schedules, homework, exams and grades. Other helpful features include planner tools, notifications, and grade and GPA tracking features.
  • Picture Scheduler - Great for organizing those who prefer visual and/or auditory supports.  Create picture, text, video or audio tasks (or combine them) and receive reminders even if the app is closed.
  • Routines - Keep track of your recurring tasks so they don't clutter your calendar, email and other to-do lists.  Receive reminders minutes/hours/days before the task or on the date of the task itself.
  • RxMindMe - Uses multitasking to alert you every time you need to take a prescription. Enter all your prescriptions, setup reminders, and track when you have taken them.
  • Stay on Task - Checks up on you to make sure you're doing your work. A random timer means you can't predict when it will check on you.  Perfect for anyone who needs to stay focused while doing independent work. - Allows you to input a task and completion time, then shows the time elapsed and the time remaining. It even has an intermittent vibration reminder to help keep you on task.
  • Time Since - Helps you remember birthdays, when you last had your hair cut, how long since you went to the dentist, etc.  
  • Time Timer - The disappearing red-disk allows you to actually see time, making the passage of time obvious and tangible.  Great for helping kids focus on getting ready for school, completing their homework or sticking to a practice schedule.
Corpus Christi Support Group Premieres

     The Corpus Christi Support Group held its premiere meeting on Wednesday, October 26, 2011 at Driscoll Children's Hospital.  Support Group Leader Mary Perez and Executive Director Sheryl Kadmon met with an enthusiastic and enthralled group of adults, while the children played and made crafts in another room.  It was hard to tell who was happier - the adults to have the information and support or the kids to find new friends and snacks!   One attendee later emailed:  I'm so thankful that we've found a resource

     The next Corpus Christi meeting will be on Wednesday, November 16th - a Pot Luck dinner and viewing of "I Have Tourette's, But Tourette's Doesn't Have Me."  Contact Mary at mary-l-perez@abcglobal.net for more information or to RSVP. 

  17th Annual Tee-Off for Tourette Charity Golf Event


A huge thank you to everyone who participated in, donated to, and volunteered for this year's Tee-Off for Tourette!


The event, held on October 17, 2011, was the most successful tournament to date!  More than $25,000 was raised to support families dealing with TS. 


We are very grateful for your generosity, and we hope you will come out to help us break this new record in 2012 for kids with TS across Texas!



Happy Birthday, Lubbock Support Group!

by Pam Weaks, Lubbock Support Group Leader

      By nature, I am a person who procrastinates when faced with a daunting task.  This is exactly why it  took so long to get our support group off the ground.  My grandson was diagnosed with ADHD in 2007 and with Tourette's syndrome in 2008.  I immersed myself in trying to find out everything I could about TS.  I read every article I could find on the web, I bought books that had Tourette's in the index, and I attended the 5th International Scientific Symposium on Tourette's Syndrome in New York City in 2009.  So I learned more about what we were facing, but I didn't have anyone to share this information with or to share our concerns, fears, and frustrations.  My grandson was on a medication that was helping for 6 months and I thought, "Wow, this isn't so bad after all!" Then the medication stopped working over a weekend and the reality of the nature of TS soaked in.

I was taking "a moment" at the local coffee shop when a friend stopped in.  We were talking about school and such and I shared with her that my grandson had Tourette's.  She looked amazed and revealed that her son had been diagnosed as well.  We sat and talked for over an hour.  It felt so good to know a real person who was going through the same thing as we were.  She and I decided a support group would be a real help to those families like us who were diagnosed and then left with ...and now what?

     With the help and encouragement of Sheryl Kadmon, Executive Director of TSA of Texas, and her staff, our support group met for the first time on August 8, 2010.  Sheryl came and made a back to school presentation to 25 adults.  There were 11 children, those with TS and their siblings, in the children's meeting which runs concurrently with the adult group.  Now we were getting somewhere! Using the "back to school information" we had the knowledge of how to inform educators about TS and how to best assist our children to be successful in school.

     We are so fortunate to have a wonderful meeting facility and an individual who opens the building and helps with set up for the meetings each month.  We try to combine guest speakers with open forum meetings so there is time to share and keep up with each other's challenges and successes. We average 11 adults and 8 children at our meetings, which meet the second Sunday of each month except for December and July.  Our children's group, which has two volunteer activity leaders, usually has a craft activity and a guest speaker or a game.  We had a bowling party in February and a swimming party in June.  The families take turns providing portions of the refreshments each month. We participated in the Back 2 School Expo sponsored by the local newspaper where we provided information about TS and publicized our group.  Thanks to Maye DeAnda, my friend who gave me that push to start the group, we also have a colorful brochure explaining TS and providing information about our group which we have distributed to area doctors' offices. Getting the word out about our meetings continues to be a challenge even though we have the support of the local newspaper and our brochures. The TSA Facebook page and the TSA website, for which we are extremely grateful, have provided information for those outside our area.

     Our group is like a family where you can be yourself. That makes me smile.


   Lubbock support group    Lubbock support group    Pam Weaks

You Can Catch a Whole Lot More Flies with Honey Than Vinegar

by Emily Stark, Dallas Support Group


     I am in a very large room, sitting behind a table, talking to people about Tourette's syndrome.  All around me are other organizations that also deal with neurological issues. I am talking to a teacher who tells me about her student and what she is currently dealing with, when suddenly she asks, "How do I make the parents understand that I want to help them; I want to help their child; I want us all to work together?"
    This teacher approached me -- not a parent or a child reaching out for help -- but a teacher who truly seemed to care; and it occurred to me that as parents of children with issues, we spend so much time going from doctor to doctor, getting a diagnosis, trying to find a magic pill that will make all of our child's suffering (and ours) go away.  While fighting to get the proper IEP and accommodations in the classroom, we sometimes forget that the school and staff are there to help us.  And most times, they want to help us; they want our child to succeed in the classroom so their classroom can succeed.  Keeping this mind, I want to remind all parents of children with TS and the rest of the alphabet soup, especially those of us who happen to have TS ourselves, to take a step back and remember those impulse control issues don't always just happen with our children, but with us as well.
    I am fully aware of my lack of impulse control. I have to bite my tongue all the time to keep from blurting out things I know I will instantly regret. It's not always easy, but I have found a little trick that some of you might find helpful: write it down, immediately. Get out all of your anger, frustration, outbursts, crying, all of it -- get it out of your system by writing it down, JUST DON'T SEND IT. Usually when I reread the email the next day, my important points are still valid, but the manner in which I deliver it can easily be improved.  What's that old saying my grandpa used to say - "You can catch a whole lot more flies with honey than with vinegar." Not that teachers are flies, but you get the picture
This small step could make the difference in getting the help you and/or your child needs. 

     And remember, old dogs can learn new tricks (I'm just full of clichés aren't I?!?!).  Keep reading, keep learning!  ALWAYSYou never know when you're going to come across a paragraph that feels like it was written to you, JUST YOU.  It may be relevant to your situation at the moment; it may be something you remember down the road that will help you; but if you stop reading and stop learning, you could miss out, and there might be something, just some small something, that could change your world.
     So my advice to other parents out there: keep reading, keep learning and remember, don't hit send right away!

Editor's note:  Diplomacy and knowledge are the key factors for smooth sailing through school. For large "bumps" in the road - the TSA of Texas office can help with free consultation services.

Thank You to Our Supporters
A heartfelt thank you to everyone who supports TSA of Texas. Only because of you can we continue our mission of education, support, advocacy and direct client services. Your generosity truly makes a difference in the lives of children and families struggling with the challenges of Tourette's syndrome.  



Help Find the Genes for TS
The Tourette Syndrome Association International Consortium for Genetics (TSAICG) has identified several chromosomes that may contain genes for TS. The TSAICG is collaborating with the National Institute of Neurological Diseases and Stroke (NINDS) and TSA to continue genetic studies and confirm these findings. But to do so,

We need to enroll 3,000 people who have TS.

Taking part in the study involves answering questions about your tics and related symptoms. Or, if you are the parent of a youth with TS who is 6 to 17 years old, answering questions about your child's symptoms. If your answers to these questions qualify you for the second part of the study, you will be asked to donate a sample of blood for genetic analyses.

To learn more about this research, please visit www.findTSgenes.org.   
Brain Imaging Research Studies
We are currently conducting two brain imaging studies to learn more about the roles of two brain chemicals (dopamine and serotonin) in Tourette's syndrome and obsessive-compulsive disorder (OCD).

People with Tourette's syndrome (TS), people with TS and OCD, people with OCD, and healthy people without OCD and without TS, ages 18 to 70 years are needed to participate in brain
imaging research studies performed at The Johns Hopkins University and supported by the National Institutes of Health.

Participants will be asked to take part in:
1) comprehensive physical, psychological, psychiatric, and neurological examinations,
2) positron emission tomography (PET) scans, and
3) a magnetic resonance imaging (MRI) scan.

Participants will receive compensation for their time. Travel expenses to Baltimore, MD and accommodations will be covered.

To learn more and have your questions answered, contact: Dr. James Brasic at 410-955-8354, Dr. Vanessa Raymont at 410-955-0255 or Mr. Stephen Condouris at 410-955-8501
Note: By contacting the investigators, you are in no way obligated to participate.

Principal Investigator: Dean F. Wong, M.D., Ph.D.
JHM IRB Protocols #s: 98-11-29-04 and 94-06-21--05


"Bonne Nouvelle"
Luke Blackmon of Carthage, age 12, is a straight A student in advanced levels, excels in Boy Scouts and is involved in youth at church.  He has learned to deal with his tics with a great sense of humor and always has an upbeat attitude.  Amanda Bosson of Lewisville, age 17, is a National
Ricky Hodgson
Ricky Hodgson
Merit Semifinalist. This means that she is one of the top 16,000 Seniors in the nation academically and is moving forward to compete for National Merit Finalist. 
Ricky Hodgson of San Antonio, age 22, is doing a good job of juggling work and evening classes at community college. He also rides the city bus to and from work.  Kayne Lockett of San Antonio, age 17, plays high school football and has been on the A/B honor roll 5 times recently.  Nikos Lopez of Austin, age 9, played goalie for his soccer team and blocked three goals in one game.  Aidan Masterson of the Woodlands, age 8, received straight As for the 1st grading period.  He is also excelling in Kuk Sool Won Korean Martial Arts and will be testing for his next belt soon.  Hunter Mauzy of Anna, age 10, made the UIL Spelling Team.  He is studying everyday and hopes to bring home a win!  Becca McKinnon of Plano, age 8, received straight A's on her first report card this semester and was named to the Principal's Honor Roll.  Her lowest grade was a 95.  Micah Osei of Houston made the A/B honor roll at his school for the first 6 weeks.  Christopher Posso of Houston, age 17, finished his final year as an EcoTeen summer volunteer at the Houston Museum of Natural Science this summer.  He is in his senior year of high school and plans to continue volunteering at the Museum as opportunities arise.  Evan Potter of Corpus Christi, age 10, received straight A's on his report card for the first six weeks of 4th grade.  He also played a successful first season of football.  Naomi Richardson of Fort Worth, age 9, just  
learned how to do a back handspring, a front flip, and front and side splits.  Kaleb Ronning of Santa Fe, age 12, has been picked to play on a select baseball team.  Sterling Smith of Richmond, age 14, received the wonderful news that his heart condition is all better.  He immediately enrolled in Shaolin Kung-Fu where he has excelled and earned his sword.  Rily Stewart's high school band in
Carrollton won Best in Class, Best in Winds, Best in Effect and Grand Champion at a recent
Leigh-Andrea Zegarelli
competition - a first in the school's history.  The band now moves forward to the UIL State competition in November.  Rily is the Section Leader for the Trombone Section.  He is also a member of the Wind Symphony and Jazz 1, the top two performance bands in the District.  Rily is a member of the ACE program for the 
gifted and talented and participates in the Distinguished Academic Program.  Texas Youth Ambassador Leigh- Andrea Zegarelli, of Houston, was crowned Homecoming Queen, inducted into the NHS, selected for Student Council and awarded 2nd Team All District in Volleyball.  She is Varsity Volleyball Captain as well as Co-Captain of the Fellowship of Christian Athletes.  Leigh-Andrea has been giving Tourette's syndrome presentations as a Youth Ambassador and will give one to a staff of Occupational Therapists at a local hospital soon.


Congratulations to all of these hard working superstars!

Please send us your "Bonne Nouvelle!" Has your child received straight A's? Recently graduated from college? Are you, as a person with TS, successfully juggling home and family? We would love to hear about your "good news" for future issues. Please send your information to TouretteTexas@aol.com.

Physician Referral List

TSA of Texas maintains a list of Texas physicians who are experienced with TS.  To receive a PRL for your area, please email TouretteTexas@aol.com with your city location.  We are also seeking to expand our list, particularly in smaller cities, so if you have a physician who does a great job dealing with TS, please email us his or her contact information.  PHYSICIANS:  if you are interested in learning more about TS or being considered for our PRL, please contact Sheryl Kadmon, Executive Director, at 281-238-8096 or 866-896-8484.

How Can TSA of Texas Help You?

TSA of Texas is here to assist families dealing with TS throughout the state.  We offer:

  • EDUCATIONAL PRESENTATIONS for physicians, school districts, students, parents and the community.   
  • INFORMATION DISSEMINATION via packets, brochures and telephone conversations.  
  • LIBRARY of DVDs, videotapes and books. 
  • REFERRAL to physicians, therapists, community services, and state and county agencies.  
  • ADVOCACY through assistance with ARDs, IEP, 504 or OHI classification.  
  • SUPPORT GROUPS throughout the state.  
  • CHILDREN'S WEEKEND camping program "du Ballon Rouge."
  • FAMILY ACTIVITIES such as baseball games, museum visits, swim parties, and more. 
  • SPECIAL FUNDING sources such as the Kenneth H. Davis Family Assistance Fund and Fund A Need. 
  • ...and much, much MORE! 

Call TSA of Texas at 281-238-8096 (toll-free 1-866-894-8686) or email TouretteTexas@aol.com for more information.  If you have needs other than those listed above, please let us know and we will do our best to help. 

How Can You Help TSA of Texas? 

TSA of Texas funds its services through private donations, fundraising events and grant support.  We receive no state or federal funding.  You can help TSA of Texas and support Texas families dealing with TS by:

  • ATTENDING our fundraising events (e.g., our major Gala held each January and our Tee-Off for Tourette in October),
  • DONATING items or gift certificates for Silent Auction at Gala or Tee-Off,
  • ORDERING a tribute card sent in honor of someone's special event,  
  • CONTRIBUTING via cash, check or credit card to our general fund or a support group of your choice,
  • DESIGNATING TSA of Texas to receive 10-100% of your final sale price the next time you list something on EBAY.  Or look for listings that support TSA of Texas when you shop at the TSA of Texas eBay Giving Works page.
  • LINKING your Randall's or Tom Thumb Remarkable Card to charity #2493, or 
  • REQUESTING a Kroger Neighbor to Neighbor bar code to link to your Kroger Share card.

All donations are totally tax deductible.  Learn More>>  

Bonne Nouvelle is published quarterly by TSA of Texas.  It is edited by Shelley Matcha and Cindy Sacks.