| Spring 2011 | Vol 5, Issue 1 |
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Bonne Nouvelle
Your "Good News" from TSA of Texas |
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TSA of TX: Helping Children and Changing Lives | |
Tourette's syndrome (TS) is a chronic neurobehavioral movement disorder that begins in childhood. Those affected make motor movements and vocalizations they cannot control. Additionally, many are plagued by obsessive compulsive disorder, attention deficit hyperactivity disorder, dysgraphia and behavioral issues. Today's estimates indicate up to 3 percent (1 in 33) of all children may have Tourette's syndrome. In spite of its high incidence, TS continues to be greatly misunderstood. Although medication may help control the symptoms, as of yet there is no cure. TSA of Texas, one of the largest Chapters in the country, is a 501(c)(3) non-profit organization. We directly assist Texas area families and children in crisis, 24 hours a day, 365 days a year. |
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A Message from the President |
 Well, it's hard to believe 2010 has been closed and the yearbook put on the shelf. For the TSA of Texas, 2010 was a tough year financially. Given the greatly decreased donations in 2009 and into 2010, we found ourselves having to manage the money in new ways. Thankfully, we were able to keep our budget balanced without cutting services to our families. So a big thank you to all who were able to give of your time and money to help out this organization. 2011 has started off well: - Our January Gala was one of our best over the last several years.
- We've added a couple of new support groups across the state, so that means we'll be able to help more families struggling with TS.
- Our spring TS camp, du Ballon Rouge camping program, is almost here, so everyone is making preparations to have a great and fun filled weekend up in the hill country of Burton, Texas.
I wanted to take this opportunity to recognize a very long time friend of the TSA of Texas family. Randy Waldman, who has been a member of the TSA of Texas Executive Board as its treasurer, has stepped down after 23 years of service. Randy has given more hours than my calculator can add up. Words are hard to find to tell of all that he has done to help grow the organization from meeting in a home and a small support group to supporting families across the whole state of Texas. Randy - we love you and can't thank you enough for your giving to all of us and letting us be a part of your life. I would also like to let you all know that we have two new Executive Board members who have recently been appointed by the board. A big Texas welcome to Mrs. Debby Posso and Mrs. Shelley Matcha. Debby and Shelley are both long time friends of TSA of Texas and they both have a Texas size heart for our children with TS. Both have already spent countless hours volunteering their time in this organization and helping to make a difference in our children's lives. Debby and Shelley both bring their skills and abilities to bear on the efforts we are driving to help us to grow our organization. Thanks to Debby and Shelley for stepping up to help us with the challenges we have ahead. Well, as I close, I just wanted to let you know that we look forward to working with our TS families across this great state of ours and to that end, we have launched a new TSA of Texas website (see article below) and hope that everyone will make a visit to the new site and let us know what you think. I'll end by saying, out of the two major fund raisers we have each year, our Gala is in the books, but our Tee-Off for Tourette Golf Charity Event will be coming up on October 17, 2011. Please see the announcement below and our golf page on the new website and tell your family and friends to come out and play or make a donation to help support us. We are looking for sponsorships, so if you can help us, please pass on the golf information and I hope to see some of you at the golf event in October. Until next time, Daryl President of TSA of Texas |
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| Texas Hotlines |
| Houston: 281-238-8096
Toll Free: 866-894-8686
Emergency Pager: 800-209-0796
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| Texas Support Groups | | TSA of Texas has support groups in Austin, Dallas, Fort Worth, East Texas/Golden Triangle, Gulf Coast, Katy, Lubbock, North Houston and San Antonio. Learn More>>. To start a support group in your area, please contact us toll free at 866-894-8686. |
| Has TSA of Texas Helped You or Your Family? | |
We would love to hear it from you! If you could take a few moments of your time to let us know how TSA of Texas has impacted you or your family, we would be very grateful. Please send your story to tourettetexas@aol.com. |
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| Save the Date! |
- March 20, 2011- Application deadline for du Ballon Rouge 2011.
- March 25 - 27, 2011 - TSA of Texas' annual children's camping weekend, du Ballon Rouge. See article below for more information.
- April 2, 2011- Adult Theatre Outing to see Amadeus at 2:30 pm at the Alley Theatre in Houston. RSVP now to reserve your FREE tickets. See article below for more information.
- May 15 - June 15, 2011 - National TSA Awareness Month. What will you do to help others understand Tourette's syndrome? Please send your ideas to tourettetexas@aol.com.
- May 21, 2011 - Adult Theatre Outing to see Pygmalion at 2:30 at the Alley Theatre in Houston. RSVP to reserve your FREE tickets now. See article below for more information.
- July - August. 2011 - TSA of Texas Summer Swim Parties throughout the State. More information coming soon.
- October 17, 2011- 17th Annual Tee-Off for Tourette Charity Golf Event. See below for more information.
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| Check Out Our New Website | |
Our new site is streamlined to make it easier to navigate and easier to access important information. Its faster, more intuitive and a whole lot nicer to look at! Take a look around and let us know what you think. If you run into any problems, please email tourettetexas@aol.com.
www.tourettetexas.org
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| Du Ballon Rouge Children's Camping Weekend | |
CAMP APPLICATIONS CLOSE 3/20. PLEASE RESERVE YOUR CHILD'S PLACE NOW!
Send your wish, by red balloon, into a clear, blue Texas sky with hopes that it will come true - anything is possible at du Ballon Rouge!
Du Ballon Rouge (dBR) is a unique time and place. Held annually in the hill country of Texas, dBR provides a setting for children with Tourette's syndrome to experience events and activities that can change the quality and outcome of their life. "To enrich the lives of children diagnosed with Tourette's syndrome, through a unique outdoor experience that offers acceptance, provides hope, promotes discovery, and creates the opportunity to establish relationships with others afflicted by TS" - that's our mission!
- Acceptance. Campers can relax, have fun, and not be concerned about hiding their symptoms. They feel accepted because of who they are and not excluded because of their disorder.
- Hope. Campers express hope, through challenging activities, interaction with others, and a supportive staff, that their lives can be successful and fun.
- Discovery. Campers are exposed to activities and situations they may not have previously experienced. Smiles of accomplishment and understanding fill the weekend as campers discover unknown talents and interests.
- Relationships. The weekend provides the setting for participants to make new friends. New campers may be shy and uncomfortable with their new surroundings. However, new friendships can begin to develop immediately and continue to grow throughout the weekend. Many campers have shared similar experiences, remained in contact, and do things together once the weekend has ended.
The Program
The program, founded in 2003, is designed for children between the ages of 6 and 18 whose primary diagnosis is Tourette's syndrome (TS). Many participants exhibit other TS related conditions such as obsessive compulsive disorder (OCD) and attention deficit disorder (ADD). We are able to accommodate the needs of most campers, but the weekend outing has some limitations in accepting children whose needs are beyond the scope of its resources. Campers must be able to handle daily routines such as dressing and personal hygiene.
Campers are assigned to cabins based on their age and gender. They experience activities both as a cabin and as a group. Weekend activities include fishing, horseback riding, canoeing, arts and crafts, ropes challenge course, swimming, and team sports. The environment is fun, safe, and positive, and campers, while challenged to reach their individual potential, are not required to participate.
The Facility
DBR is held at Camp For All, a unique camping and retreat facility located in Burton, Texas, which is about 90 miles from Houston. Camp For All (CFA) works together with many special needs groups in providing programs that are "recreational, therapeutic, and educational". The CFA staff is professionally trained and is compassionate and supportive of each special needs group. You may access their website, www.campforall.org, for more information.
Counselors and DBR Staff
The staff of dBR are volunteers dedicated to providing the best experience for our campers. Our staff includes adults with Tourette's syndrome, outdoor experience, and medical training. The majority of the staff attended the first four years of dBR. Staff members attend training sessions and are prepared for the weekend. With proper executed parental authorization (where required), the medical personnel will handle all medications and medical issues for campers.
Du Ballon Rouge 2011
The 9th Annual du Ballon Rouge Weekend will be held Friday, March 25 through Sunday, March 27, 2011. Activities for campers begin with a campfire on Friday evening and conclude with our Red Balloon Ceremony on Sunday morning.
Click here for 2011 application forms. ALL campers - including returning campers - must complete new application forms each year. New campers are accepted on a first come - first served basis. All required forms must be received and approved by our medical staff before an invitation is made. CAMP APPLICATIONS CLOSE 3/20. PLEASE RESERVE YOUR CHILD'S PLACE NOW!
Currently, thanks to support from our wonderful donors, there is no cost for campers to attend dBR. Transportation, to and from the Camp For All facility, is not provided for campers.
Should you wish to help sponsor a child at camp, please send $100.00 for a virtual red balloon to:
Du Ballon Rouge
c/o TSA of Texas
3919 River Forest Drive
Richmond, TX 77406
All donations are tax deductible in accordance with IRS regulations. |
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Alley Theatre Outings for Adults |
TSA of Texas has a limited amount of FREE tickets available for the next two AlleyWays plays, Amadeus and Pygmalion. Tickets are first come, first served, so reserve yours now (limit of 2 per person at this time). After the performance, we generally grab some pizza and discuss what we've seen. Reserve your tickets for either play - or for both!
Please note that these outings are for ADULTS ONLY.
Please arrive no later than 2:15pm for each play.
Alley Theatre, 615 Texas Avenue, Houston, TX 77002
 A Tale of Obsession
Amadeus
Saturday, April 2nd, 2:30 pm
Peter Shaffer's Tony Award-winning play is a riveting tale of obsession and vengeance. Loosely based on the lives of Viennese court composer Antonio Salieri and his young rival Wolfgang Amadeus Mozart, Amadeus follows a murder plot that shocks and fascinates. After committing his life to God in order to be blessed with the ability to create the world's most sublime music, Salieri believes that God graced the rebellious Mozart with greater inspired creativity. Envious, Salieri schemes to destroy Mozart and, in so doing, rebukes God.
Profanity, violence, adult situations. Recommended for mature audiences.
 Dazzling Romantic Comedy
Pygmalion
Saturday, May 21st, 2:30 pm
A unique masterpiece, Pygmalion is one of George Bernard Shaw's most popular plays. It is the story of phonetics professor Henry Higgins who bets that he can transform Cockney flower girl Eliza Doolittle into a lovely lady and pass her off in high society. Pygmalion is a modern myth and also a strikingly contemporary view of sexual politics and the science of romance. The story inspired the well-known Lerner and Loewe musical My Fair Lady (1956).
RSVP with your name, play or plays desired, cell or phone, and number of tickets desired to Cindy at TouretteTexas@aol.com. |
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Best Things Parents Can Do to Help the Procrastinator |
 by Ann K. Dolin, M.Ed.
There are many students who put off work until the last minute. Although their reasons vary, one thing is for sure - procrastinators underestimate the time it will take to complete their work and overestimate how much time is available to do it. When procrastination impacts academics, students need parental intervention in order to change the behaviors that are limiting their success.
Procrastination was a real issue for Julie, a second grader, and her seventh grade brother, James. Their parents came to see me because the issues surrounding homework were causing a serious divide in their parent/child relationship. The suggestions I gave to the Anderson family can work for your family, too.
Tip # 1 - Establish a Start Time Routine
The most significant problem facing Julie's family was a lack of routine. Mom and Dad had few expectations for when, where, and how homework would be done. We discussed easy ways to establish routines, including the time at which the children would start homework.
The first step in setting up a routine actually begins with an after-school break. Most students, regardless of age, need some downtime after school. About a half hour is usually sufficient time to grab a snack and relax, but it's not enough time to become overly involved in another activity. Beginning homework after this break is often a good idea for younger children. This way, if they have after-school activities, their routine is the same. They are still allowed a break following the activity, and then, homework is to begin. Older students may want flexibility, and for them, consider giving a choice of beginning homework after school, before dinner, or right after dinner.
Once you've established a start time, put it in writing, and for even more reinforcement, color code it. Visual reminders are far superior to verbal ones and also allow students to adhere to a routine more independently. Review the schedule and post it in a prominent place (the refrigerator, homework area, or desk). The Andersons found that a written schedule alone helped to take the emotion out of their requests to begin homework. Now, it was the posted schedule that conveyed the start time, not just Mom and Dad.
Tip #2 - Play Beat the Clock
Another easy and entertaining way to curb procrastination is a simple game that has been around for a long time - Beat the Clock. It works especially well for procrastinators. I encouraged Julie and James' parents to introduce the game by saying, "This game is a fun way to get homework done so that you have more time to play." They first determined how long it would take them to complete an assignment and then set the timer. They said, "If you can get this worksheet finished before the timer goes off, you earn a token. If you collect four tokens this week (Mon-Thurs) then you can trade them in for additional screen time, pizza dinner, or additional allowance." Both kids thought Beat the Clock was a great idea. It motivated them to start homework on time without argument.
Of course, each child's reward will be different. You may find that tokens and a larger reward at the end of the week do not motivate your child. Sometimes, daily rewards are more effective. Discuss this openly and then negotiate a compromise if the ideas suggested are too lofty.
Tip #3 - Try the Tolerable 10
Timers are excellent tools for older students as well. My middle and high school students frequently lament that they just can't muster the energy to get started. Enter the Tolerable 10. By setting the timer for only 10 minutes and sitting down and getting to work for this short amount of time, these students often realize that the task isn't so overwhelming after all. They often find that once they start, they can keep on going.
At first, you may have to set the timer for your child, but after awhile simply leave it in the study area as a visual reminder to use it independently. There are many timers available on the market, but my favorite is the Time Timer (www.timetimer.com) shown here. Julie and James liked this timer better than the traditional kitchen timer because it provides a visual depiction.
Tip # 4 - Order Assignments Easy to Hard and Then Repeat
Some procrastinators are more than willing to start and complete their easy homework assignments, but put off the work they dread until late in the evening. For these students, a different approach to prioritizing daily assignments may be necessary. If your child has only one or two simple assignments, agree on the time at which she'll begin and insist that the work be done before anything else. Homework, typically an unpleasant task, is rewarded with free time, the pleasant task.
If your child has multiple assignments, coach her to start with a tough task followed by an easy one, and to repeat this sequence (hard, easy, hard, easy). Prompt her to label the order in which she will do the homework (1st, 2nd, 3rd, etc.) next to the assignment in her planner. Following something particularly challenging, encourage your child to take a short break by grabbing a snack, playing with the cat, or shooting some hoops. Avoid anything with a screen, such as video games, because they tend to pull kids into another world and the momentum will be lost.
By providing a posted schedule, an easy to hard list of tasks, and a few interesting strategies like Beat the Clock and Tolerable 10, most child will be on their way to an on-time start!
Ann K. Dolin, M.Ed., is the founder and president of Educational Connections, Inc., a comprehensive provider of educational services in Fairfax, VA and Bethesda, MD. In her new book, Homework Made Simple: Tips, Tools and Solutions for Stress-Free Homework, Dolin offers proven solutions to help the six key types of students who struggle with homework. Learn more at anndolin.com or ectutoring.com. |
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American Idol Contestant James Durbin Has Tourette's |
But Tourette's does not have him! Be sure to watch James Durbin on this season's "American Idol." After auditioning and successfully making it past several rounds, he is now a finalist about to compete on the highly popular TV singing competition show. The Santa Cruz rocker has wowed the judges with his passionate performances, but wowed America even more with his personal story about living with Tourette's syndrome as well as Asperger's. With an average of over 23 million viewers per episode and millions more who watch online, "American Idol" has created unprecedented national awareness of Tourette Syndrome through James' appearances and openness about his disorder. If James continues through to the final top 10 (announced March 24) then he will be part of the highly popular nationwide tour which will bring him even more success and exposure, creating extraordinary awareness and understanding about TS. So don't forget to tune in and watch James' next performance and vote as many times as you can to help him advance to the next round! Check out his audition below:  | | James Durbin - American Idol - Season 10 - "You Shook Me"/"Dream On" - Audition - Feb 09, 2011 - HD |
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2011 Gala Fundraiser Sends 100 Texas Kids to Camp and More | |
A heart felt thank you to everyone who participated in our 2011 Gala fundraiser, Taking Wing: Celebrating 25 Years of Helping Texans with Tourette's Syndrome. Like all non-profit organizations, TSA of Texas has struggled in the current economy. But thanks to all of the generous Texans who opened their hearts and their pocketbooks for our 2011 Gala fundraiser, we will be able to send 100 kids to du Ballon Rouge as well as continue all of our existing programs! Held on Thursday, January 27, 2011 at the Houston Country Club, the evening was hosted by Honorary Chairmen Dede and Connie Weil and Co-Chairmen Dr. Shelley-Sekula-Gibbs, Robert Gibbs, Elysse Greenberg and Adam Borestky. Honorees Renee Hawkins, Christine Hunter, R.N. and Janet Jacobs were celebrated for their many years of support and service to TSA of Texas. Attendees were treated to a premiere screening of "Tourette's Up Close," a Cut-To-Create film by Zach Jankovic about the TSA of Texas du Ballon Rouge camping weekend for children. After the screening, the dining room was awash in red balloons, as guests helped send children to dBR Camp by purchasing red balloons at $100 each. Many thanks for everyone's generous support of our children! Live auction items included a fabulous wine cellar and an adorable Shih Tzu puppy, while the silent auction featured trips, fine dining, sports memorabilia and more.
 | | Honoree Christine Hunter, R.N. |
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Honorees Janet Jacobs
& Renee Hawkins |
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Honorary Chairmen
Dede and Connie Weil |
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Co-Chairmen Dr. Shelley Sekula-Gibbs &
Robert Gibbs |
 | | Co-Chairmen Adam Borestky & Elysse Greenberg |
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Live Auction Shih Tzu Puppy with New Owners - The Jankovics |
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Selling Red Ballons to
Send Kids to dBR Camp |
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Festive Table Decorations |
Many thanks to our Chairmen, Honorees, guests, sponsors, auction donors, and volunteers!
To be included in next year's invitations, please send your name and mailing address
to TouretteTexas@aol.com. |
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Thank You to Our Supporters! |
 Thank you to everyone who supports TSA of Texas. You have helped to accomplish a lot for the community we serve, and we very much respect your contributions and desire to be good stewards of your hard-earned money. Only because of you can we continue our mission of education, support, advocacy and direct client services. Your generosity truly makes a difference in the lives of children and families struggling with the challenges of Tourette's syndrome.
Gala Underwriters
Renee and John Hawkins
Janet and Mark Jacobs
Gala Benefactors
Anonymous
Elaine and Marvy Finger
Sherrill and Kevin Garland
Sheryl and Dr. Dov Kadmon
Betsy and Hunter Nelson
Edlyn and David Pursell
Sanford C. Bernstein & Co., LLC
Sutherland Asbil & Brennan LLP
Gala Sponsors
Alvarez & Marsal
Bracewell & Giuliani LLC
Cathy and Dr. Joseph Jankovic
Stedman West Foundation
Dede and Connie Weil, Jr.
Gala Patrons
Yaell and Jo Agar
Cathy and Robert Binstock
Jyl and Keith Calcote
Sharon C. Clutter
Suesan and Daniel Creacy
Deloitte
Celia and Cornelius Dupre'
Michelle and Greg Elliott / Mollie and Kent Wallace
Friends of Renee Hawkins & Janet Jacobs
Friends of Janet Jacobs & Renee Hawkins
Shelley Sekula-Gibbs, M.D. and Robert Gibbs
Presbyterian School 4th Grade Parents
Isla and T.R. Reckling, III
Gala Individual Underwriters
Beverly and Dan Arnold
Holly and John Brennan
Mr. and Mrs. Lynn Elliott
Hildebrand Fund
Paula and Steve Letbetter
Joan Schnitzer Levy
Barbara and Barry Lewis
The Melvin Lipsitz Family Foundation
Rosalyn and Barry Margolis
Dianne and Donnie Migl
Shirley and Bruce Stein
Phoebe and Bobby Tudor
Gala Individual Benefactors
Joan and Stanford Alexander
Susan and Jim Boone
Rose and Harry Cullen
Sue and Jerry Deutser
Nancy and Bill Drushel
Sarah and Doug Foshee
Forest Oil. Inc.
Warren Harris
Barbara and Charles Hurwitz
Karen and Mark Johnson
Joan and Marvin Kaplan
Saranne and Livingston Kosberg
Max and Rochelle Levit Family / Milton and Lee Levit Family
Rita and John Madden
Suzanne S. Miller
Carrin F. Patman
Yvonne Ward-Hughes
Erla and Harvey Zuber
Gala Individual Sponsors
Jerry Johnston Andrew
Bernice Feld
Aileen Gordon
Suzette and Evan Harrel
Paula Jarrett
Nina and Jake Kaplan
Jack Lapin
Frann C. Lichtenstein
Dr. Rita and Cookie Muthappa
Patricia and Dee Osborne
Paula and Irving Pozmantier
Joyce and Ambassador Arthur Schechter
Marilyn and Christopher Winters
Gala Individual Patrons
Tori Adams / Jim DuBose
Carmen and Bill Bagby
Marilyn Biles
Ginger and Jack Blanton
Loretta Blasser
Dr. and Mrs. Bruce Boretsky
Barbara and Daryl Brister
Dr. Ricque Brister
Jean and Dr. Gene Burke
Lydia and James Chao
Julie and Casey Doherty
Caroline and Stephen Esses
Marlene and Alan Finger
Nannette and Jerry Finger
Linda K. Finger
Patsy and Greg Fourticq
Paula and Alfred Friedlander
Lauren and Dr. Jeff Friedman
Veda and Morris Glesby
Carolyn and Carlos Hamilton, Jr., M.D.
Bernadette Heintz / Scot Jackson
Peggy and Glenn House
Dr. Joohi Jimenez-Shahed and Ernesto Jimenez
Drs. Shelena and Ayeez Lalji
Johnetta Lallinger
Maxine and Dr. Herman Lapin
Debbie and Dr. Stephen Lapin
Susan and Jack Lee
David Mathiesen
Kris McGee
Gerald Miller
Stephanie and Michael Mitzner
Lisa and Mark Morris
Nancy and Lucian Morrison
William O'Donnell
Drs. Vera Hashem and William Ondo
Rochelle and Sheldon Oster
Jay Plotkin
Deborah and Doug Posso
Nicole Postolos
Minnette Robinson
Kathleen and Dick Rogers
Regina Rogers
Leah and Dr. Josh Rotenberg
Henry Sekula
Evalyn Shea
Maria and Marion Spiers
Gail Stillwell
Dr, Amber and Marcus Stocco
Shannon and Nicholas Swyker
Allen Tanner
Jay Tarnow, M.D.
Sheryl Johnson Todd
Carey and David Walsh
Pam and Roy Weaks
Shelley and Andrew Weathers
Bobbie and Stanley Weinstein
Cyvia and Melvyn Wolff
Gala Individual Donations
Wendy and Philip Bentlif
Katherine Brady
Elizabeth and Rodger Brown
Dorothy E. Caram
Sharon and Tom Copper
Suzanne and Robert Craig
Frank Dimaria
Martha N. Erwin
Ellie Francisco
Leila Gilbert
Lea and Richard Goodman
Punkin and Walter Hecht
Helen and Donald Hodges
Grace Ison
Liz Jameson
Jennie Karotkin
Joan E Lyons
Judy and Rodney Margolis
Mary Catherine Miller
George P. Mitchell
Loretta Muilenburg
Frances Nussbaum
Ione and Robert Reder
Marlene and Dr. Anthony Riela
Deborah and Bernard Roan
Mary Rose Sekula
Donna and Harold Selke
Carol and James Tindall
Susie and Hobby VanZandt
Lisa and Barron Wallace
Joanne Wilson
Gala Fund A Need
Celia Dupre'
Linda and Dr. Michael Eisemann
Mary Frappier
Janet and Mark Jacobs
Deborah and Doug Posso
Gala Red Balloons
Katherine Amandes
Stacy and Ron Anderson
Beth and Sean Barton
Julia and Adam Besetzny
Cathy and Bob Binstock
Elysse Greenberg and Adam Boretsky
Sharon and Dr. Daniel Brener
Holly and John Brennan
Jyl and Keith Calcote
Sharon C. Clutter
Kate and Keith Cooper
Suesan and Daniel Creacy
Debra and Cle Dade
Matt Edwards
Linda and Dr. Michael Eisemann
Colleen Elliott
Sarah and Matt Fornea
Patsy and Greg Fourticq
Shelley Sekula-Gibbs, M.D. and Robert Gibbs
Bailey and Simon Haidamous
Suzette Harrel
Renee and John Hawkins
Cathy Hawley
Laurie and Dr. Ace Holley
Pat Holmes
Christine and Branson Hunter
Elizabeth and Ben Jackson
Bernadette Heintz and Scot Jackson
Janet and Mark Jacobs
Cathy and Dr. Joseph Jankovic
Shirley and Trevor Jeffries
Anna and Tim Jones
Katherine and Sean Keenan
Emily and Stewart Kennedy
Jodie King
Don Kyle
Drs. Shelena and Ayeez Lalji
Angela and Gary Landowski
Maxine and Dr. Herman Lapin
Debbie and Dr. Stephen Lapin
Angie Lutz
Dr. Vivian and Doug MacDonnell
Lisa McCollam
Rene' and Dr. Brian Miles
Isabel and Chris Murphy
Dr. Rita and Cookie Muthappa
Drs. Vera Hashem and William Ondo
Jen and Dan Pickering
Rev. Rachel and Dr. James Poysky
Edlyn and David Pursell
Judith and William Pursell
Carlin and Damon Putman
Alice Rohrman
Leah and Dr. Josh Rotenberg
Kirby and Stephanie Shanks
Kevin Six
Bobbie and Barry Snowden
Richard Snowden
Trini Mendenhall Sosa and Frank Sosa
Gail Stillwell
Sheryl Johnson Todd
Sara Jane Wilson
Cyvia and Melvyn Wolff
Teri and Travis Wylie
Melinda Yee
Gala Auction Donors
Alexander's Fine Portrait Design
Alley Theatre
Auntie Pasto's
James Avery Craftsman
Lisa Avery
Avon - Jeanette Morgan
Bath Junkie - River Oaks
Carol Baumgartner
Nancy Benevides - ReMax SW
Barbie and Bill Benton
Beyond Beaute' Day Spa
Birraporetti's
Blue Bell Creameries
Jyl and Keith Calcote
Campers of the du Ballon Rouge
Carrabba's
Charlotte's Saddlery
Cheesecake Factory
Children's Museum of Houston
Da Camera of Houston
Sandra Davis
Disney Corporation
Doubletree Hotel Houston-Downtown
El Tiempo Mexican Restaurant
The Empty Vase
Events
Tammy Eyring
Robert Flatt
Fleming's Prime Steakhouse and Wine Bar
Fondren Five Star Kennels
Tom Forestier - Winstead
Fort Worth Sheraton Hotel & Spa
Lauren Friedman
Friends of TSA of Texas
Mary Nelle Gehle
Elysse Greenberg and Adam Boretsky
GreenScences Toys
Greenway Plaza Renaissance Hotel
Michele Hart
Homewood Suites by Hilton
Houston Astros Baseball Club
Houston Ballet
Houston Grand Opera - Anthony Freud, General Director
Houston Symphony
Houstonian Golf and Country Club
Houstonian Hotel
Christine Hunter
Cathy and Dr. Joseph Jankovic
Devin Jones - Bar None Kennels
Vicki Jones, LCSW
Sheryl Kadmon
Carmen Kamas, D.D.S.
Esta Kronberg, M.D.
La Columbe d'Or Hotel
Lady Bling Design
Laurenzo's
Le Mistral
Allison Levine / Stella and Dot
Dr. Vivian MacDonnell
Magnolia House
Magpie's
Mamacita's Mexican Restaurant
Man's Best Friend
Mariposa Miche
Kaye Marvins Photography
Shelley and Steve Matcha
Deborah and Richard McKim
Mercury Baroque
Messina Hof Winery and Resort
Dianne Migl
Stephanie Mitzner
Museum of Fine Arts, Houston
National Oilwell Varco
Neiman Marcus Galleria Houston
Linda Noble, DVM / Tanglewood Animal Hospital
Susan Palacios
Wendy and Dr. Richard Perez
Deborah and Doug Posso
Edlyn and David Pursell
Carlin and Damon Putman
Ray's Gourmet Country
Rice Epicurean Market / Phil Cohen
Sandra and Scot Riddle
Randy Roach
Lori Robertson
The Round Top Collection
Nolan Ryan Foundation
Cindy Sacks
Saks Fifth Avenue
Shelley Sekula-Gibbs, M.D.
Sensia Studio and Japanese Day Spa
Susan Slocum
Wayne Smith Jewelers
Bobbie Snowden
Sorrento Ristorante
Star Cinema Grill;
Eliza and Stuart Stedman
The Strip House
Sweetwater Country Club
Taste of Texas
Theatre Under the Stars
Dominic Walsh Dance Theatre
Debbie West
West U Fitness
Whipple Tree Farms / Dianne Gallatin
Willow House
Sara and Bob Wilson
The Woodlands Country Club - John Schoenbeck
Tammy Zegarelli
Other Donors
Houston Hash House Harriers
Mary Harris / United Way
Trish Rubio / HCA
Camp:
Cindy and Thomas Adzema
Natalie and Alonso Armendariz
Tour 18 Golf Mulligans:
Regis Ferriera
Tributes:
Linda and Larry Blumenfeld
Marcia and Samuel Lewis
Janis and Albert Taube |
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Nourishment Author Melissa Binstock Holds Houston Book Signing |
Over 200 people turned out for author Melissa Binstock's book signing on March 12 at Barnes and Noble in River Oaks, Houston. Melissa's newly released memoir, Nourishment: Feeding My Starving Soul When My Mind and Body Betrayed Me, was published by Health Communications earlier this year. It recounts Melissa's struggle -- as well as her ability to thrive -- in the face of Tourette's syndrome and numerous psychological disorders including OCD, ADHD, dyslexia, and anorexia. Melissa was the featured speaker at the Tourette Syndrome Assocation of Texas 2010 Gala, sharing her moving story and inspirational attitude. To find out more about Nourishment, visit www.nourishmentthebook.com. You can purchase the book at your local Barnes and Noble and Borders bookstores, or online at www.barnesandnoble.com, www.borders.com or www.Amazon.com.
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Help Find the Genes for TS |
The Tourette Syndrome Association International Consortium for Genetics (TSAICG) has identified several chromosomes that may contain genes for TS. The TSAICG is collaborating with the National Institute of Neurological Diseases and Stroke (NINDS) and TSA to continue genetic studies and confirm these findings. But to do so,
We need to enroll 3,000 people who have TS.
Taking part in the study involves answering questions about your tics and related symptoms. Or, if you are the parent of a youth with TS who is 6 to 17 years old, answering questions about your child's symptoms. If your answers to these questions qualify you for the second part of the study, you will be asked to donate a sample of blood for genetic analyses.
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Brain Imaging Research Studies |
We are currently conducting two brain imaging studies to learn more about the roles of two brain chemicals (dopamine and serotonin) in Tourette's syndrome and obsessive-compulsive disorder (OCD).
People with Tourette's syndrome (TS), people with TS and OCD, people with OCD, and healthy people without OCD and without TS, ages 18 to 70 years are needed to participate in brain
imaging research studies performed at The Johns Hopkins University and supported by the National Institutes of Health.
Participants will be asked to take part in:
1) comprehensive physical, psychological, psychiatric, and neurological examinations,
2) positron emission tomography (PET) scans, and
3) a magnetic resonance imaging (MRI) scan.
Participants will receive compensation for their time. Travel expenses to Baltimore, MD and accommodations will be covered.
To learn more and have your questions answered, contact: Dr. James Brasic at 410-955-8354, Dr. Vanessa Raymont at 410-955-0255 or Mr. Stephen Condouris at 410-955-8501
Note: By contacting the investigators, you are in no way obligated to participate.
Principal Investigator: Dean F. Wong, M.D., Ph.D.
JHM IRB Protocols #s: 98-11-29-04 and 94-06-21--05
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In Thinking Back About My Life....Tourette's | |
 a poem by Doug Soderstrom
In thinking back
about all those days
when so many of the
boys and girls of my youth
would make fun of me
for no other reason
than the fact that
I was somehow different
that I was perhaps crazy.
At the time I didn't know
that I had a neurological disorder
referred to as Tourette's Syndrome
in fact, at that point in time
no one had even heard of such a thing
but that didn't keep the other kids
from making fun of me
and often making me
the butt of their jokes. To make things worse
since I didn't reach my growth spurt
until the last two years of high school
I spent the first sixteen years of my life
terribly afraid to strike back
for fear that I might get beaten up
and therefore developed a horrible habit of
allowing others to pick on me.
So,
what others saw was
the good guy
the nice young man
who was
always smiling
as if their shenanigans
didn't bother me
but, deep down
the painful feelings
the disrespect
the ridicule
the insults
the rejection
all of it
slowly but surely
began turning into anger
and at times even rage
but unable
at least psychologically
to defend myself
I often ended up
"crying" deep down within
trying to find a place to hide
hoping that the world
would simply go away
and just leave me alone.
And yes
even though I had hoped
that things might change
once I became an adult
the assaults continued
because
at least in that of
my own case
the extremely embarrassing
symptoms of Tourette's
blinking eyes
twitching nose
moving mouth
head jerks
the sniffs and the snorts
the occasional inappropriate comment
along with the constant shoulder shrugs
those things referred to as tics
did not subside with age
as they did for
the vast majority of folks
suffering from Tourette's
but the disorder
as I moved on in years
continued its downward spiral
and took an even
greater toll on my life
as I struggled "to perfect"
the art of self-defense
that constantly
fluctuated between the poles
of being way too passive
or
much too aggressive
and the rare occasion of
finding the "magic mark"
of being able to respond
in an assertive manner
until at age sixty-seven
when I was fortunate
enough to find a neurologist
able to treat the disorder
but even in adulthood
there were those
who by that age
should have known better
yet for whatever reason
did not seem
to understand
or perhaps even care
that such symptoms
were not that of a "crazy man"
but merely the earmarks
of an inherited
neurological disorder!
But now that I have entered
the eighth decade of my life
and yes, still attempting to make sense
of so many things
that have gone on before
it has become rather clear to me
that life hasn't changed very much
that life is a continuum
every decade sharing
its "own particular load"
with those that follow
weaknesses and limitations
like a shadow
attached to the
underbelly of our lives
continuing to plague us
at every stage
each and everyone
his own particular cross
to bear
a choice
an opportunity
to curse God
for saddling us
with so many
crushing problems
or
on the brighter side
even though
the road might be rough
and the journey long
an opportunity
to thank God
for a chance to prove
that we will not give up
that we have what it takes
for in having assured us
that He will be with us
until the end
the strength to carry on
toward the goal
of achieving the prize
of fulfilling
our purpose
at long last
our mission
in life.
Doug Soderstom is a retired Professor of Psychology living in Wharton, Texas. He has been writing poetry for the past ten years. Having lived with Tourette's syndrome for the past seventy years, this piece sums up his long term struggle with the disorder. |
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Free to Good Homes | |
A dear friend of TSA of Texas, a young woman of only 25, recently passed away. A devoted lover of animals, she had several pets. Although her family has accommodated as many animals as possible, there are still three cats looking for new homes. All the cats are male, neutered, up to date on shots, and ready to cuddle and play. For more information, please email Cindy at TouretteTexas@aol.com. The boys are all In the Houston area.
Maverick and Goose (any "Top Gun" fans out there?) are brothers and only 3 years old. Maverick is black with long hair and a little white and while he looks like he would be a rascal, he actually is calm and loves to lounge. If you can't find him, check in the laundry basket or on the tv for a fluffy tail! He likes playing "alpha" cat and struts around. He secretly thinks he is the coolest cat in town. Goose is a good old boy, with short black hair and a little white. He is a casualcat and walks around as if he is looking for something - most likely for someone to pet him. He likes attention and is always pleasant and no trouble. The brothers would like to stay together, if possible.
Oscar Wildcat is not a "wild" cat at all; he is instead sweet and kind. Because he is partially sight impaired, he walks around very carefully and will occasionally walk into something. He is amazing in that he uses all his senses to find the kitty litter or food. He is very polite and waits his turn. An orange and white one year old tabby, Oscar has packed a few extra pounds from his middle, but the vet said this is not a problem, just "la vita loca" -- living a good life. A home with no other cats or a few kind cats would be appreciated. |
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Oscar Wildcat |
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Maverick |
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Goose |
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Korbin Finds a New Interest at du Ballon Rouge | |
 by Korbin's mom, Michelle
Last year at du Ballon Rouge, Korbin came home with a chicken egg. Well, when it never hatched, Korbin developed an obsession with chickens that would not go away. So we finally found a place and purchased four chickens. We live in a residential area so luckily no one has noticed! We recently came home from a trip and found our first ever chicken egg! Hopefully, this year at camp Korbin will not want a cow or something, LOL! |
| "Bonne Nouvelle" |
Kaity Bellis of Amarillo, age 10, has been on the All A Honor Roll all year. Tim Brennan started his own lawn service, Dodenhoff Landscape Maintenance, in 2009 and merged this year with another lawn service company. He is also an artist with a BFA from UT Arlington, 1979. Isaiah DeAnda of Lubbock, age 10, placed 2nd in his school spelling bee. He also has made straight As for the 5th six weeks in a row. Adam Farris of Houston, age 22, is juggling 2 part time jobs while going to college. He will graduate in just over a year an Office Skills certificate from Houston Community College. He lives independently and was recently accepted into a leadership group for young adults with challenges and is even a committee chair. Daniel Maloney of Houston, age 25, has recently lost eighty pounds in eight months through, gastric bypass, eating healthier, and exercising. Tyler Morris has participated in a Destination Imagination team for the past 8 years with his closest friends who are also his biggest supporters. The team recently won 1st place in the Regional tournament and will progress to the State Tournament in Lubbock in April. They also participated in  "DI Extreme" for their first time and took home a DaVinci award for innovation in their impromptu performance. Anthony Ruyle, son of Fort Worth Support Group leader Sherrie Ruyle, recently returned from an educational trip to Washington, D.C. sponsored by "National Youth Leadership Forum for National Security." He toured the CIA headquarters, the Pentagon, the Department of State and other parts of the D.C. area. He also attended discussions on North Korea, WikiLeaks, China, Russia and modern day espionage. Anthony will be leaving soon on another educational trip to Germany, Luxembourg, and France. Anthony was chosen for this trip via recommendation and personal interviews to Fort Worth's "Sister Cities" program. Pablo Thiel of Austin, age 12, is part of a robotics team, the Saber Robotics. His team just won first place at both the State & Regional levels, and is now going on to compete in the Nationals. Their robot uses "nano-bubbles" technology and is to be implanted the human blood stream of people with cardiac problems & senses if/when that person is having a heart attack. The nano-bubbles then release medication to slow or stop the attack. The team conducted their research with physicians from Dell Children's Hospital & nano bubble scientists. Pablo also received straight As. Leigh-Andrea Zegarelli, age 17, a junior, recently received awards for B Honor Roll and Highest Grade Point Average for English lll, American Literature, and Geology. She also received an award for Newcomer of the Year and 2nd Team All District for Varsity Volleyball. She has been selected as a Texas Youth Ambassador for TSA of Texas and is a finalist in the Miss Texas Teen National American Miss Pageant.
Congratulations to all of these hard working superstars!
Please send us your "Bonne Nouvelle!" Has your child received straight A's? Recently graduated from college? Are you, as a person with TS, successfully juggling home and family? We would love to hear about your "good news" for future issues. Please send your information to TouretteTexas@aol.com. |
| Physician Referral List |
| TSA of Texas maintains a list of Texas physicians who are experienced with TS. To receive a PRL for your area, please email TouretteTexas@aol.com with your city location. We are also seeking to expand our list, particularly in smaller cities, so if you have a physician who does a great job dealing with TS, please email us his or her contact information. PHYSICIANS: if you are interested in learning more about TS or being considered for our PRL, please contact Sheryl Kadmon, Executive Director, at 281-238-8096 or 866-896-8484. |
| How Can TSA of Texas Help You? |
TSA of Texas is here to assist families dealing with TS throughout the state. We offer:
- EDUCATIONAL PRESENTATIONS for physicians, school districts, students, parents and the community.
- INFORMATION DISSEMINATION via packets, brochures and telephone conversations.
- LIBRARY of DVDs, videotapes and books.
- REFERRAL to physicians, therapists, community services, and state and county agencies.
- ADVOCACY through assistance with ARDs, IEP, 504 or OHI classification.
- SUPPORT GROUPS throughout the state.
- CHILDREN'S WEEKEND camping program "du Ballon Rouge."
- FAMILY ACTIVITIES such as baseball games, museum visits, swim parties, and more.
- SPECIAL FUNDING sources such as the Kenneth H. Davis Family Assistance Fund and Fund A Need.
- ...and much, much MORE!
Call TSA of Texas at 281-238-8096 (toll-free 1-866-894-8686) or email TouretteTexas@aol.com for more information. If you have needs other than those listed above, please let us know and we will do our best to help. | | How Can You Help TSA of Texas? | |
TSA of Texas funds its services through private donations, fundraising events and grant support. We receive no state or federal funding. You can help TSA of Texas and support Texas families dealing with TS by:
- ATTENDING our fundraising events (e.g., our major Gala held each January and our Tee-Off for Tourette in October)
- DONATING items or gift certificates for Silent Auction at Gala or Tee-Off
- ORDERING a tribute card sent in honor of someone's special event,
- CONTRIBUTING via cash, check or credit card to our general fund or a support group of your choice,
- LINKING your Randall's or Tom Thumb Remarkable Card to charity #2493, or
- REQUESTING a Kroger Neighbor to Neighbor bar code to link to your Kroger Share card..
All donations are totally tax deductible. Learn More>> |
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