Austin - Blanton Museum of Art on November 15

             Beaumont - Fire Museum of Texas on November 21

             Dallas - Museum of Nature and Science on November 15

             Houston - Houston Museum of Natural Science on Nov. 15

             San Antonio - Witte Museum on November 15

Choose your favorite Museum from the list below - lots of great possibilities!
 
ALL Museum Tickets are FREE to our families with TS, but are by prior reservation ONLY.
RSVP to Cindy by November 12 (November 17 for Beaumont) at TouretteTexas@aol.com.  Include the Museum/City you wish to attend, your name, phone number, the number of children, and the number of adults attending.

 

AUSTIN:  Blanton Museum of Art
Sunday, November 15

1:00 - 5:00 pm

 

The Blanton Museum of Art at The University of Texas at Austin is one of the foremost university art museums in the country, and has the largest and most comprehensive collection of art in Central Texas. The museum welcomes and engages all visitors by offering personal, extraordinary experiences that connect art and ideas, reaching within and beyond the university to stimulate the thriving, creative community that is Austin, Texas. The Blanton's permanent collection of more than 18,000 works is recognized for its European paintings, an encyclopedic collection of prints and drawings, and modern and contemporary American and Latin American art.  Located at the intersection of Martin Luther King Jr. Boulevard and Congress Avenue, the museum is across the street from the Bob Bullock Texas State History Museum and is adjacent to downtown Austin.  For more information, visit www.blantonmuseum.org.

 

BEAUMONT:  Fire Museum of Texas and Cardinal Boat Tour 
Saturday, November 21
11:00 am to 3:00 pm
 

Begin your day at 11:00 am by joining us for a picnic lunch at the Fire Museum of Texas in Beaumont.  Bring your own lunch; TSA will provide drinks and some snacks.  Next, enjoy a special tour of the Fire Museum of Texas, 400 Walnut Street in Beaumont.   Dedicated to the preservation and education of the rich history of the fire fighting service, fire prevention education and fire safety, the Museum is housed in a working historic 1927 Central Fire Station.  Visit www.firemuseumoftexas.org.  Finally, enjoy a leisurely boat trip from 1:00 pm to 3:00 pm on the ecologically diverse Neches River. The Neches has been called "The Last Wild River" in east Texas. A comfortable, open boat, the Cardinal, showcases this beautiful river with its unique ecosystem and dense bottomland forests of hardwoods and pine trees.  The Neches is home to more than 200 tree species, 47 mammals, 300 birds and many reptiles and amphibians. As you view nature at its best, you will learn the history of the river and its vast and diverse ecosystems. Visit www.lulearn.com.

 

DALLAS:  Museum of Nature and Science 
Sunday, November 15

12:00 to 5:00 pm 

 

The Museum of Nature and Science is Dallas' premiere museum of North Texas history, culture and natural science. Your visit includes the new spy skills exhibition: "The Science of Spying."  The Museum also offers permanent exhibits that include prehistoric Texas history, mineral collections, wildlife dioramas, and even some live animals!  Other exhibits include the Lagoon Nature Walk, Paleontology Lab and more.  In addition, you will see an IMAX film on the Museum's 79 foot tall domed screen --  the 3:00 pm showing of "Dinosaurs: Giants of Patagonia" - which takes the audience on an unprecedented and unique journey into the world of the largest known dinosaurs.  Museum information is available at www.natureandscience.org.

 

HOUSTON:  Houston Museum of Natural Science 
Sunday, November 15

12:00 to 5:00 pm 

 

If you attended last year's Museum Day, you know your family is in for a great time!  Take your time visiting all the regular exhibits in the Museum such as the Paleontology Hall, Weiss Energy Hall, Welch Chemistry Hall, Gems & Minerals and more!  PLUS, choose your favorite: either the gorgeous Cockrell Butterfly Exhibit or the always exciting IMAX at 2:00 pm to see "A Christmas Carol," a special 90 minute film starring Jim Carrey.  As in past years, we will have a conference room reserved for us to rest, mingle and snack on cookies and drinks.  Or buy your own meal at the Museum McDonald's and then join us in the conference room.  Museum info is available at www.hmns.org. 

 

SAN ANTONIO:  Witte Museum 
Sunday, November 15

12:00 to 5:00 pm 

 
Explore the special exhibit "Circus Folk: Secrets Behind the Big Top", plus all regular exhibits, such as the H.E.B. Science Treehouse, Mummies: Unwrapping the Past, World of Water and more! The Witte Museum is San Antonio's premiere museum of South Texas history, culture and natural science.  Located in Brackenridge Park, the Witte offers permanent exhibits that include dinosaur skeletons, cave drawings, wildlife dioramas, and even some live animals!  Several historic homes have been reconstructed on the campus, which also features the very popular H.E.B. Science Treehouse.  Changing galleries include Texas artists, textiles and showcase exhibits, some locally produced and some traveling national exhibits.  Bring a lunch or snack and eat on the beautiful grounds of the Museum.  For more information on the Witte, visit www.wittemuseum.org. 

     A huge thanks to the Houston Museum of Natural Science for inviting TSA of Texas to participate once again in its annual Holiday Tree Exhibit.  Select non-profits are chosen by the museum to decorate 10-12 foot live firs, which are then displayed in the Museum Grand Hall through the Holidays (see our 2008 "Mardi Gras" theme in the picture to your right).  TSA of Texas' theme this year is "Deep in Our Hearts in Texas," a red, white & true-blue Texas-sized way to promote TS awareness and to showcase our work with children with TS.    Join us in decorating our tree on Monday, November 30 at the museum, or take your family to the Houston Museum of Natural Science between November 30, 2009 and January 4, 2010 to view all trees in the exhibit.

     Eleven happy TSA of Texas adults enjoyed a delightful Sunday afternoon in October at the Houston Alley Theatre's performance of "Our Town," followed by pizza and discussion after the play.  The Alley Theatre's AlleyWays Program allows TSA of Texas to purchase certain Alley tickets at a deep discount and then donate them "first come, first served" to you!  Our next Alley outing will be January 16, 2010, a 2:30 pm performance of "Wonderland," a musical based on "Alice in Wonderland."  Contact Cindy at TouretteTexas@aol.com for more details.

     Our annual fundraising gala will be held January 29, 2010 at the Houston Country Club.  A festive evening of reception, dinner and silent auction, Gala is THE major fundraiser of the year for TSA of Texas.  It provides us with funds needed for events, camp, in-service, support groups, direct client services and more -- throughout the entire state!  This year, more than ever, we need your support!  This year's theme is "Deep in Our Hearts in Texas" and we hope you will open your Texas-sized heart!  If you have ever considered attending gala or making a cash donation, do it now!  Or - help us solicit corporate sponsorships and tables.   Perhaps you can gather items for auction.  Every bit you do helps us all.  Contact Cindy at TouretteTexas@aol.com for more details.

      This is the second of a two part discussion on tics, Tourette syndrome and ADHD.  In the last newsletter, some of the issues of treating individuals who has both tics and ADHD with the traditional stimulant medications of methylphenidate (ex. Ritalin, Concerta, Daytrana, Metadate, Focalin) or amphetamine (ex. Dexadrine, Adderall, Vyvanse) were examined.  In this article some other treatments and issues will be discussed
     Despite the fact that the stimulant medications are the most efficacious medications for treating ADHD in persons with or without tics, it has been reported that the most common drug prescribed in this country for children and adolescents with TS to initially treat their ADHD (or even their tics) is clonidine (Catapres) or, more recently, a related compound, guanfacine (Tenex).  These medications are not very effective for the treatment of either ADHD or tics, but they are relatively safe and have not been felt to increase tic severity. It has been observed that these medications may decrease tic severity by as much as twenty-five percent.  In some individuals the improvement might be greater and in others, less or not at all.  The major drawback, especially with clonidine, is that these medications can cause sedation and cognitive dulling.  Not exactly the type of side effect one desires in a child with ADHD or, for that matter, in any child.  Actually, because of its sedative properties, clonidine may be prescribed to treat the insomnia side effect sometimes seen with stimulant therapy.
     Another, medication to treat ADHD and FDA approved in 2003 is atomxetine (Strattera). Although this drug was initially touted as not increasing tics, subsequently there have been occasional reports that it does. In fact, just this year, the FDA instructed its manufacturer, Eli Lilly, to stop promoting it as a "tic-free" medication.  Additionally, although there was much promotion of and excitement about atomexitine when it was first released, it has not seemed to be as effective in treating ADHD as once hoped.  Many physicians only prescribe it as a back-up or second-line drug.
     Another drug that has been very occasionally used in the treatment of ADHD is bupropion (Wellbutrin).  This medication is an anti-depressant and not specifically indicated for the treatment of ADHD.  It is of questionable efficacy but is occasionally prescribed by some physicians when other medications fail or have intolerable side effects.  Another drug, modofinil (Provigil), originally developed for the treatment of narcolepsy, has been studied for the treatment of ADHD and initially showed some promise.  However, the FDA refused to approve it for this indication because during the drug trials several cases of Stevens-Johnson syndrome, a significant and potentially life-threatening side effect, were reported.  The FDA concluded that the risk was too high to justify approval.  In spite of this and allowed under FDA statutes concerning off-label use, some physicians are judiciously prescribing modofinil with anecdotal reports of some good results.
     There are other alternative or complimentary treatments being advocated by some.  These include optometric interventions such as special glasses and vision therapy.  The American Academy of Pediatrics and the American College of Pediatric Ophthalmology and Strabismus Surgery have both published policy statements against recommending these therapies as there does not seem to be any credible, scientifically valid studies to support their efficacy. Additionally, biofeedback, hypnosis, magnet therapy, homeopathic remedies, and other alternative medications, including omega 3 fatty acids, have been touted and promoted, especially on the internet.  Although one often hears claims and testimonials of remarkable improvements or cures for many non-traditional therapies, all have yet to be proved to be effective by rigorous scientific study and many have been proved to be totally ineffective. And although some of these methods may seem safe and innocuous, others may not be without risk.
     Another diagnostic and treatment method being touted is the use of brain SPECT (single photon emission computed tomography) and PET (positron emission tomography) scans to diagnose and help direct the choice of medication in the treatment of ADHD. Unfortunately, these radiological scans are still very much research tools and have yet to be proved to be useful in clinical practice.  Although the scientific explanations sound convincing and the pictures look impressive, the claims about the efficacy of using these kinds of studies are currently not warranted as noted by most reputable specialists, researchers and organizations in the field.  Additionally, the work-up is expensive and not usually covered by most health care insurance plans.
     Finally, when evaluating any child for ADHD, the medical professional must also consider other disorders that can masquerade as ADHD or co-exist with ADHD.  These include conditions such as depression, anxiety, OCD and sleep disorders.  One can imagine that if a child is sad, worrying, obsessing over something or not sleeping well, he/she may not be able to pay attention in the classroom, concentrate while doing homework or may become frustrated and moody and perform what appears to be impulsive acts.
     In conclusion, if one is a parent of a child with Tourette syndrome and possible ADHD, or an adult with Tourette syndrome and ADHD, ensure that the professional providing the evaluation and potential treatment is fully knowledgeable and experienced in all the issues discussed above.  Although I would encourage one to start with a recommendation from one's own primary care physician, often he/she may have their own bias or may not be well informed about the issues or know the appropriate people to which to refer.  Do your homework.  Consider contacting a specialist affiliated with an academic medical center or check with advocacy organizations such as TSAGW, TSA and CHADD.  Be careful of claims on internet websites.  Failure to find the right professional could result in an incorrect diagnosis, inappropriate and/or inadequate treatment and, most importantly, continued difficulties in school, at home and/or in the workplace.  Proper diagnosis and treatment can make tremendous difference for an individual and his/her family.
  

     Please note that the views and opinions expressed above are Dr. Bergman's, not those of TSA of Texas, and are intended for informational and educational purposes only.  The information is not intended to replace professional advice from one's own physician.  With respect to treatment, you should contact your own medical provider(s).  There are no express or implied warranties or representations of any kind regarding any of the information above.  Dr. Bergman and TSA of Texas disclaims all liability of any kind for the content of any information transmitted to or received by any individual or entity in connection with such individual or entity's use of this article and does not endorse or recommend in any way any such information.

by Melinda Dunaway,

TSA Birmingham Support Group Steering Committee

 

     Job hunting!  Interviews!  Starting a new job!  It can all be so stressful for anyone that is looking for work.  Add a noticeable neurological disorder and you can double that stress.  If you are one of the 12 million or so people in the U.S. looking for a job - you know that the job hunting process itself is a full-time job.  If you have Tourette Syndrome - you have unique concerns to consider in this process.
     There are basic interview tips for all interviewees such as
1) Always arrive 5-10 minutes prior to your interview
2) Research the company you are interviewing with and know as much as you can about their history, what they do and their culture & values (e.g., web site, articles or Annual Report.)
3) Dress for success
4) Make good eye contact
5) Prepare good questions to ask about the company and the specific job duties
6) Follow-up with a thank you card or email.
     In addition to the basics, a person with Tourette Syndrome has so much more to prepare for.  Anytime there is a  situation that may be a distraction to the interviewer, it is best to address this during the interview so there will be no question or doubt in the interviewer's mind.  You don't want to leave an interview and have the hiring manager wondering, 'why did this person roll his eyes at me repeatedly?'.  If the interviewer is busy trying to figure out your tics, he may be unable to truly evaluate your experience and skills during an interview.
     How do I approach this awkward moment in my interview?  Honesty is the best policy.  If your tics are not noticeable, then you probably have no reason to bring up your TS.  If they are, you must address the situation.
     If your tics are verbal or make it difficult to communicate over the phone, do most of your communication (prior to your interview) by email.  The less time on the phone - the less time for your tics to be noticed.  If phone calls are necessary and your tics are obvious on the call, you may have to address it over the phone.  Your goal is to get the interview.  Once you get in front of the hiring manager, he/she can get to know you and fairly evaluate your skills.
When you get the interview, it is your time to shine!  In order to keep the tics from being a question in the interviewers mind, explain it early in the conversation.  It may go something like this:

Interviewer: "Mrs. Jones, thank you for coming in today to meet with us about the Accounting Clerk position"

Candidate: "I appreciate your time and am very excited about this opportunity.  I would like to let you know that during our meeting, you may notice that I move my head a lot and snap my jaw open.  This is caused by a neurological condition I was born with called Tourette Syndrome.  Have you heard of it?  (Allow them time to respond and ask questions)  My TS has never stopped me from accomplishing my goals or being a great employee.  My TS will not affect my job performance."

     As with any situation, once an individual has been made aware that you have Tourette Syndrome, the ball is in their court.  It is up to them to decide whether or not to let that be a barrier.  It is completely out of your control at this point.  Do not waste your energy trying to persuade someone to accept you.  If a potential employer, potential friend, or potential relationship of any nature cannot accept your TS, you do not need that person to be a part of your life.  That is not the kind of relationships to strive for and not the kind of employer you would want to work for.
     Many people have had successful careers with their TS in tow including teachers, surgeons, motivational speakers, actors, musicians, and athletes just to name a few.  Remember to remain confident in your abilities and not let TS stop you from finding the job you were meant to be in.  
 
Melinda is a local Technical Staffing Specialist helping people find employment for the past 10 years.  As part of her job, she coaches candidates on interviewing and making the best impression.  Melinda is also the proud mother of a son with Tourette Syndrome.  Specific job hunting/interviewing questions can be emailed to Melinda at ts_parent@yahoo.com. 

     Here is what IDEA 2004 says, quoted directly from Wright's Law: Special Education Law, 2nd Edition, pages 102-103:

     

     TSA of Texas is now accepting applications from motivated, involved teens and their partnering adult.  This is an excellent opportunity for interested teens to learn public speaking, build friendships with the other teens involved with the program, and represent the TS community by raising awareness through the many Youth Ambassador Program activities.
  
What is the Youth Ambassador program?
The TSA Youth Ambassador Program gives young people with TS, their siblings, friends and classmates the preparation they need to speak about TS before their peers at school, sports leagues, scout troops, camps and after school programs.  Understanding and tolerance are the program's goals.
 
What is the TSA Youth Ambassador Leadership Training?
The TSA Youth Ambassador Leadership Training is a two day comprehensive program aimed at training exceptional teen leaders and their accompanying parent/adult guardian to become TSA Youth Ambassadors.
 
The preliminary agenda includes:
- support on public speaking
- guidance on how to present the program and presentation logistics
- participating in TSA's annual Trip to the Hill, including Congressional Briefing
- ice breakers and other fun activities for the teens
 
Who should apply to attend the TSA Youth Ambassador Leadership Training?
Teens 13 years of age and up with or without TS can apply, as long as they are committed to the goals of the program and want to help promote understanding of the disorder.  Also, the partnering adult does not need to be the teen's parent - they can be another responsible adult who has the consent of the parent.  Participation in the Youth Ambassador Program, requires a strong commitment from both the teen and the parent/adult guardian to take the time to be trained and follow through on the program's responsibilities.
 
What are the April 2010 Training logistics?
Dates:      April 13-15, 2010
Location:  Hilton Alexandria Mark Center, 5000 Seminary Road, Alexandria, VA
Costs:      The estimated expense items include hotel for 2 nights, program and meals, materials and Trip to the Hill Transportation, airfare and any additional expenses for non-conference related meals and activities.  Some small scholarship may be available to help with some expenses.

     by Linda

     I was talking to my son's college reading teacher today and just asked her if she noticed Ricky's palilalia. I had to explain it to her first and mentioned it comes in three's.

     She said yes she had noticed it...and that it has been an advantage to him!!!  I asked how.  She said that she had Ricky explain a difficult mathematical question (from a reading text). He was the only one with the correct answer.The first time he explained it, not many students were understanding how he got the answer. The second time he explained it, using different words but having the same message, more were understanding. By the third time, still rephrased again, almost all understood how he got the answer.   By the time he was through, there were oooh's and ahhh's and 'wow, is he smart' coming from the other college students. So I guess this part of TS is to his advantage in reading.

     Our deepest thanks to all of the individuals and organizations that allow us to continue our mission of education, support, advocacy and direct client services.  Your generosity truly make a difference in the lives of children and families struggling with the challenges of Tourette's syndrome.