Spring 2008 Vol 2, Issue 1
  Bonne Nouvelle
Your "Good News" from TSA of Texas

TSA of TX:  Helping Children and Changing Lives 

Tourette Syndrome is a neurobehavioral (brain-based) movement disorder characterized by motor and vocal tics.  Beginning in childhood, it causes those affected to make movements and noises they cannot control.  Additionally, many are plagued by OCD, ADHD, oppositional behavior and other disorders.  Although medication may help control the symptoms, as of yet there is no cure.  TSA of Texas, one of the largest chapters in the country, is a 501(c)(3) non-profit organization.  We directly assist Texas area families and children in crisis, 24 hours a day, 365 days a year. 
du Ballon Rouge Is Here
Kids at dBRThis Friday, eighty-four happy children will be headed to TSA of Texas' annual children's weekend, du Ballon Rouge!  dBR is a unique time and place for children diagnosed with TS.  Held each year in the hill country of Texas, dBR provides attendees with opportunities for fishing, horseback riding, canoeing, arts and crafts, a ropes challenge course, swimming and team sports.  More importantly, it provides children an opportunity to spend time with others with TS and to not worry about exhibiting their sympthoms.  The weekend experience has an extemely positive impact on each child and can directly improve their quality of life. Be sure to look for our report on all the fun in the summer issue of Bonne Nouvelle.  You will also be treated to a story about a special young man, Harry Patterson, who raised money to sponsor seven children at dBR. 


TSA Conference Approaching Quickly

The biennial National TSA Conference will be held April 4th -6th in Alexandria, VA.  The conference offers training, networking, inspiration and fun for people with TS and their families.  Additionally, Trip to the Hill appointments are scheduled for Thursday, April 3rd.  Chapter representatives will visit with Congressional representatives to discuss important TS issues.  Watch for our report in the next issue of Bonne NouvelleLearn More>>

In This Issue
dBR Children's Weekend Is Here
TSA Conference Approaching Quickly
Save These Dates!
Occupational Therapy Strategies for TS
National TS Awareness Month
In Need of a Match Maker?
2008 Gala a Huge Success
Runners Support TSA at Chevron Marathon
Katy Youth Helps Others Understand TS
Support Group Spotlight: Katy
Information from TEA Conference
"Bonne Nouvelle"
Texas Support Groups
Physician Referral List
How Can TSA of Texas Help You?
How Can You Help TSA of Texas?
Texas Hotlines
Houston:  281-238-8096
Toll Free:  866-894-8686
Emergency Pager: 800-209-0796
Join our Mailing List!
Quick Links

Save These Dates!

  • March 28-30, 2008 - 6th Annual du Ballon Rouge Children's Weekend  Learn More>>
  • April 4-6, 2008 - National TSA Conference in Alexandria, VA  Learn More>>
  • May 15 - June 15, 2008 - National TSA Awareness Month
  • August 2008 - Summer Swim Parties throughout Texas
  • September 2008 - Baseball Outings throughout Texas
  • October 6, 2008 - Tee Off for Tourette:  The 14th Annual Golf Fundraiser will include door prizes, contests and a silent auction.
Occupational Therapy Strategies for TS

Occupational therapy is skilled treatment that helps individuals achieve independence in all facets of their lives.  Occupational therapy assists people in developing the skills necessary for "the job of living" independent and satisfying lives.  Occupational therapists look at how a person occupies his time to determine what is keeping an individual from participating as fully as possible in all areas of life.  There are many ways individuals with Tourette Syndrome can benefit from occupational therapy.  Click here to check out the new webstream and slide show by Marge Henning, COTA on the national TSA website. 

National Tourette Syndrome Awareness Month
In 2004, Congress introduced a concurrent resolution (H. Con. Res. 430 and S. Con. Res 113), which recognizes the importance of early diagnosis, proper treatment and enhanced public awareness of TS and supporting the goals and ideals of a National Tourette Syndrome Awareness Month.  Since then, national TSA and the TSA chapters and support groups join together each year for an Awareness Campaign from May 15 to June 15.  The Awareness Campaign serves to educate the general public about TS at both the grassroots level and the national level through various activities. Special events, media campaigns, grass root fundraisers and information booths are all part of the campaign.  There are many ways you can participate in increasing awareness in your area during this month.  Here are just a few ideas:
  • Talk to your friends and family about TS.
  • Speak about TS at a local school, PTA meeting, police or fire department, Chamber of Commerce, a service organization or a religious organization.
  • Meet with your local government officials to explain TS and why it is important they support important legislative positions.   Learn More>>
  • Contact a local newspaper to see if they will run an article or public service announcement about TS.  Learn More>>
  • Organize a local fundraiser such as a garage sale, car wash, Mother's Day or Father's Day gift wrapping at the local mall, or a restaurant event.
In Need of a Match Maker????  Call Me!

by Daryl Brister

     When I think of a "Match Maker", I think of someone who has the ability and skill to understand a person's personality, desires, likes, etc. and would then in turn be able to find that person the "perfect" match that would complement them.

     Well - in case you thought I was referring to that kind of Match Maker, I have to inform you that I wasn't (but in case you are looking for that perfect match, call me - I've always wanted to try out my match making skills - no guarantees). Instead, I'm referring to what most companies today are making available to their employees by way of Matching Community Donations.

     Let me explain:  I work for BP, which is one of the large oil and gas companies. BP has several community donation plans that I, as an employee, can use to have them donate to the charity of my choice. (Hmmm, let me see who I want to donate to today??? TSA of Texas maybe - you bet!)  I actually have several options available to me at BP to match my donation in a dollar value:

  • I can donate a specific amount to money to TSA of Texas and BP will match it -- up to a certain amount. For example, I give $100 to TSA of Texas and BP will cut a check for $100 so that a total of $200 goes to TSA of Texas.
  • I can volunteer my time in service to TSA of Texas and BP will put a dollar value per hour of my time up to a certain amount and cut a check for TSA of Texas.
  • Our most recent Community Donation Program, called Fabric of America, was set up so that any employee could just ask BP, without any commitment on the employee's part, to donate up to $500 to the charity of choice on the employee's behalf.  Thus, BP simply writes the charity a check.
    • As a side note to this last bullet, I took advantage of this Fabric of America program and sent out an email to over 100 of my fellow BP employees asking them, if they didn't have a favorite charity they wanted BP to donate to, would they consider TSA of Texas. To date I believe TSA of Texas has received over $7,000 from BP! And all I did was ask some friends at work to help us out. That simple!

     So, what about your company?  Do they have similar programs? Most companies do have community programs like this that you can tap into as an employee. Check with your HR group or if you have a Government or Public Affairs team at your company, check with them to see what is likely in place. Some companies look to sponsor charities in a big way, so take the time to find out who you can speak with at your company and educate them about TS and the need we have to spread the word in our communities. All it takes is a small amount of your time and a short conversation.

     What's the worst that can happen? "I'm sorry we don't have anything available at this time."  (That means to check back later.)  Or the best that could happen is that your company donates $$$'s to TSA of Texas. So between my company and all your companies out there, we could really make a difference in the lives of kids & families struggling with TS.

     Remember out motto:  Helping Children and Changing Lives. You and I are doing this every day. Let's educate others and encourage them to join us in our efforts to really make a difference in our TSA of Texas community!

     Now, if anyone out there is really interested in giving me the opportunity to try out my match making skills, you can reach me at my new website - www.bubbasmatchingservices.com - we find South Louisiana's best - straight from the bayou to you!

Success of Gala Means Benefits Continue to Texas Families Dealing with TS! 
Linda Davis Blumenfeld and Sheryl Kadmon     Paris:  Cite des Lumieres, a Frankly French Evening, TSA of Texas' major fundraising event, was held on Thursday, January 31.  Attendees enjoyed cocktails and wine, entertainment by The Gypsies and a fabulous French multi-course dinner, all set in the sparkling, festive atmosphere of one of Houston's premiere country clubs.  Silent and Live auctions added to the fun and excitement.
     Chaired by Linda Davis Blumenfeld along with Honorary Chair Vera Brown, this year's gala honored Marcie Kirkpatrick Lipsitz, TSA National board member and civic leader; June Bowen, a long-time Houston community leader; and Cathy Jankovic, media producer/editor for the Parkinson's Disease Center and Movement Disorders Clinic.  Our corporate honoree was the Methodist Hospital, a generous sponsor of TSA of Texas over the past 21 years. 

     Although great fun, the evening also holds a higher purpose as it provides the largest portion of funds used to benefit the many thousands of children and families throughout Texas who are dealing with TS.  Plans are already underway for the 2009 Gala.  While once again hosting a dinner evening at the Houston Country Club in January, TSA of Texas also plans capital campaigns in other Texas cities, thus tapping "deep into the hearts" and generosity of donors throughout the state and ensuring the expansion of services for ALL Texans with TS.

Runners Support TSA at Chevron Marathon in Houston
On Sunday, January 13, 2008, over 18,000 registered runners and walkers participated in the Chevron Houston Marathon, the Aramco Half Marathon and the EP5K Walk, challenging themselves while raising money and awareness for their favorite charities.  This year, through the National TEAM TSA program, three TS families ran and walked for TSA.  TSA of Texas will receive 30% of the funds they raised (after expenses).  Our deepest thanks go out to these families for their incredible efforts!  Here are their stories:

Team TSA Runners

Meredith Morgan of Spring

Speaking on behalf of my son Tyler and myself, we had a great experience participating in the marathon for TSA because it was for such a good cause. I could see the look in Tyler's eyes as we headed for the finish line of how much he wanted to finish and how proud of himself he was. The people cheering us on gave us great encouragement and after we crossed the finish line, people were hi-fiving Tyler and he was grinning ear to ear, just so proud of himself. This marathon was for such a good cause and was something wonderful he and I could do together. For a little boy who has never had much of a self esteem, he sure had an unforgettable one yesterday. He was so proud of his medal, he wore it until bed time.


Stephanie Mitzner of Seabrook

This was my first marathon.  I began training for the marathon 26 weeks before the event.  Running for a reason made the hardest and coldest days of training easier.  I would often think of my son Michael and all our family and friends that were supporting our cause (TS) when I needed motivation to keep going.  The experience was rewarding.  I hope to do it again.  So many people were excited to support me in this community event.  They were excited to be connected to it.  Many of them told me they watched the marathon on the TV.  They had told other family and friends that they had sponsored one of the runners who was raising money for TSA.  Who knows how many more people were made more aware.  My women's club proudly published a write up about it in our Texas monthly bulletin that was read by hundreds.  The outreach just mushrooms.  It is exciting.  I hope all the people who were undecided to support me this year will be eager to be a part of it in 2009.  I encourage anyone who wants to do a run to join a running club and just start.  Short runs can be the most fun. See you at the finish line!


Loli Gonzalez-Hill of Manor

We left my folk's house at 5:30 a.m. so we could get a parking spot.  We had a great time. There were runners of all ages, sizes, from different backgrounds and on wheelchairs. Many were running for different causes. I was running for TSA and my hero, my son Kyle.  Kyle was in awe by all the runners. He was wondering why all the runners were throwing clothes around. We explained that they get hot with too much clothing on while they run. But the cool thing is that all the clothes are collected and given to the homeless shelter. Kyle walked quite a bit and was a real trooper despite being cold. He hopes to start training so he can run some of the 5K races as well. There is no reason why kids with TS can't run races.  As I came to the finish line, I could hear my loud sister screaming my name and Kyle cheering me on. That was a lot of fun. I hope that people noticed us and the TSA shirts we were wearing. I do know some people were reading my shirt as I was running by them. We hope to run the race again next year and maybe even run the half-marathon. 

Katy Youth Helps Others Understand TS
Brenton and his proud parentsBrenton Brister, age 21, of Katy, Texas, has come a long way.  In high school, he was unable to walk down a hallway without banging his knee into the wall repeatedly because it didn't feel "just right."  Brenton is now standing tall in front of groups of people and giving talks about what it was like to be a child growing up with TS and about living with TS now as a young adult. In the spring of 2007, Brenton and his mother, Barbara Brister, led a breakout session on "The Clock is Tic-cing - Time to Learn About TS" at the Fourth Annual Sam Houston Council for Exceptional Children "Meeting the Needs of All Learners" Special Education Conference held in Huntsville, Texas. This was the first time that the conference included information about TS and the feedback was very positive.  Many who attended the session were greatly touched by Brenton's talk and his willingness to share his personal struggles. As a result, Brenton was invited to participate again at the Fifth Annual Conference held in February 2008. Brenton and his parents guided the group through "Understanding Tourette Syndrome" and Brenton led a Q&A session.
Brenton is currently completing his core classes at Cy Fair College and is planning to transfer in the fall.
Support Group Spotlight:  Katy
by Barbara and Daryl Brister, Katy Support Group Leaders
Katy Support Group

     Since 2003, the Katy TS Support Group has been consistently meeting on the second Wednesday of each month from 7:00 PM until 8:30 PM at Christus St. Catherine Hospital. The adults and kids each have their own meeting in areas close in proximity. On occasion, the two groups are combined when a particular activity, dinner, or party is planned.

       Each year, we try to provide a wide variety of speakers on many topics related to TS. Our own executive director, Sheryl Kadmon, joins us each fall for our "Back to School" talk which is always heartily received by our parents who learn more about advocating for their child. During the group meetings or by way of email, new information is also passed along by viewing videos, hearing reports from various conferences, and the latest information from the National TSA. The importance of getting the right information into the hands of our support group families who can then pass it along to teachers, family members, and friends is imperative.  We try to vary the group with open discussion which is always great to be able to have the chance to share ideas or gain insight in dealing with the many different issues which might be helpful in each other's life. For newly diagnosed families, this is so beneficial as they get to hear stories of how other families may be coping with some of the same problems that they may be facing.

       Information, alone, is not our only reason for meeting once a month together. We also love a reason to have a party! We combine both adult and kids' groups for pizza nights with board games or video games. Our annual Valentine, School's Out, and December Holiday parties are filled with good food and crafts for the kids.

During the kids' group meeting, they enjoy making various crafts, playing games, eating snacks, and just being together. A volunteer parent or college student along with a professional helps to monitor the youth activities. Knowing that their children are safe, busy, and happy allows the parents to focus on their time during the adult meeting and just having a short break for even an hour is important for our parents to be able to have a time where they can share their thoughts and feelings.

Both email and phone support is on-going. Many times, emails are received stating how even though someone may not be able to attend our group in person, they are appreciative of keeping up with the news from the support group and what a great help that has been.

       Looking back over the years, one of the greatest outcomes of the group's meetings is the relationships that are formed. Friendships have blossomed, among many of our kids as well as the adults, which have allowed for other get-togethers with each other. For our youth from early elementary age through college, the support group offers the opportunity to come to a safe and fun place where they are accepted for who they are.


The Katy Support Group meets the second Wednesday of each month.  For more information, contact Barbara or Daryl at 281-395-5392 or darbar4@comcast.net. 
My First TEA Conference 
by Emily Stark, North Texas Support Group Leader
Part TWO of TWO

     This article is based upon information gathered by Ms. Stark at the Parents Organization Academy Conference on November 15-16, 2007.  The conference was sponsored by the Parent Coordination Network, Region 9 ESC, and the Texas Education Agency.  If you have specific questions regarding yuor child or school, please contact Sheryl Kadmon, TSA of Texas Executive Directors, at 281-238-8096.  Part ONE of TWO appeared in the Bonne Nouvelle Winter issue.


     The Transition/Graduation portion of the conference was very informative.  A website www.transitionintexas.org is currently still under construction, however it has some great information already available to help students transition from high school and into the workplace and/or college.  One thing the speakers stressed was this: when preparing your child for life after high school, document all of his/her accomplishments during high school and middle school -- for example, community service, volunteer work, public speaking, office skills, etc.  When the time comes to help your student make decisions about their future, this information will be handy in not only providing services your child may still need, but will assist in determining whether trade school, a two year junior college or a four year university is the best option for your child.  Texas Education Code Section 89.1070 outlines Graduation Requirements.

     When you review the graduation requirements, keep in mind that there are various options to the TAKS testing in the state of Texas.  During your ARD meetings, you should discuss which version of the TAKS your child will take, keeping in mind the graduation requirements and type of diploma you can receive. You have the general education TAKS (which is what the majority of the students take); you have the TAKS-ALT (which is the general education TAKS, however it is a much larger font, more space between the questions and fewer questions); you also have the TAKS-M which (means "modified" and is the same as TAKS-ALT but having fewer answer choices -- 3 instead of 4; simplified sentence structure; as well as other accommodations.)   There will be an M sample online soon for you to review.

     One good point was made -- when determining accommodations for your child, make sure your child is AWARE of their accommodations.  Do not only have accommodations for your child during the TAKS testing.  This can stress the child out more because at the last minute they are removed from the general education classroom to go to another location to take the TAKS test.  As you expect the school to keep you informed of your child's situation, you should keep your child abreast of what is expected of them and what they are entitled to for accommodations.

     Most anything you need to know about TEA and Special Education can be found at www.tea.state.tx.us/special.ed/. They have a listing of all the documentation available to the public; you can read it online or print it off for later reference.  This section of TEA's website is kept updated, so refer to this site regularly to keep up to date on any changes that may occur; or if you feel you aren't getting the right answers, go here to find what you need.  Always remember it's good practice to know Code Sections when discussing problems you may be having.  The more informed you are, the less likely you will have problems with the school.

      The Response to Intervention (RTI) presentation was outlined as an "alternative" to the general education initiative -- an instructional model for ALL students, designed to address both academic and behavioral issues and intended to ensure that instructional practices and interventions are implemented to assist struggling students.  It was NOT set up as a program for students with disabilities or as another "hoop" to jump through in order to get into special education.  This system was researched and created by numerous organizations within TEA; national associations dealing with education; Parent/Teacher Associations; and various universities within the state of Texas.  It was adopted to specifically create a curriculum for general education using multi-tiered interventions; increasing in intensity based on a particular student's needs; monitoring by the student's progress; and analyzing data models at most schools and RTI contacts at each Region.

      The Texas Behavior Support Initiative (TBSI) was an outline of Senate Bill 1196 effective September 1, 2001 which provides "it is the policy of this state to treat all students with respect and dignity."  It prohibits use of locked seclusionary time-out in Texas Public schools, and it applies to charter schools. The initiative defines just what seclusion, restraint and time-out can be and allows the use of locked time-out in defined emergency situations.  Each school campus should have several employees who have been specifically trained on the TBSI program for "crisis prevention intervention" (CPI).  According to the statistics, academic and social failures are related. Students with problems often suffer from academic and social deficits, and those academic deficits are among the most powerful predictors of social failure and problem behavior.  This is a circle that must be broken.

     The Schoolwide Positive Behavior program is an initiative that uses positive behavior supports for all students, including those with disabilities.  This is a three tiered model of support: the universal support which applies to all students; the selected support which applies to at risk students used in small groups and classroom strategies; and the targeted support which is for high risk students and provides individual intervention.  There are seven training modules that each core team on campus must have completed.  It is my understanding that Region 4 offers this training on-line; however, I was unable to access it as a parent.  Nonetheless, your school should know of and be fully trained with regard to this program.  There are websites listed at the end of this article which pertain to TBSI.

     The last presentation was the Texas Complaint Resolution Process.  I wish we could have had an entire day just for this topic.  There are five stages of the conflict resolution process: prevention, disagreement, conflict, procedural safeguards and legal review.  This is my understanding of how it works: the first step is local resolution; you want to try and resolve within the walls of your own school, if at all possible.  If you cannot resolve, the next step would be to write and file your complaint.  When filing your complaint letter, it is always good practice to either mail via certified mail, return receipt requested (so you know when it has been received) or UPS/FedEx.  Using email or fax can be tricky - servers can go down and you are never quite sure if anyone has received your complaint. It is the same with a fax; even though your machine says you have confirmation of reaching its final destination, that doesn't mean the end machine won't run out of paper or get lost in memory.  So go with the old standards!  Once they have received your complaint the clock begins ticking.

     Your complaint should be filed with the state board, the local superintendent, your school and the director of special education within your district.  A complaints team will be assigned to you.  Make sure your letter includes as much factual information as you can provide. Include your name; address; telephone numbers; relationship to the student; student's name; date of birth; school identification number (if they have one); the school's name and address; the services your child qualifies for; what violation has been committed in connection with those services; and what your resolution to the situation would be.  Provide documentation, if you have any, of the complaint to go along with the letter. This may include printed emails, faxes, correspondence, notes from teachers, etc. regarding why the services were not provided as written in your IEP.  You do not need to provide copies of your ARD paperwork, as the complaint team will get that from the school.  Within a few days of the complaint team's receipt of your letter, you should have a telephone call or follow up letter acknowledging receipt.

     If you receive a letter back, which most likely you will, you must comply with the letter and stick to the time-frame they give you.  In other words, if they tell you they need documentation that you have not already provided, and they want said documentation within two (2) weeks, MAKE SURE YOU GET IT DONE and sent to them in a timely manner.  Otherwise, you have not met their compliance and you may have to start all over again.  The complaints team may request other documentation from you; just make sure you comply.  An investigation will begin upon receipt of the additional documentation requested, and then a report is produced.  You will be given a copy of the report.  A corrective action response letter will then be sent out with the results of the investigation and their recommendations for corrective actions. All of this is usually done with 30-90 days, BUT be advised that this process gives the school one (1) year to implement corrective actions from date of issuance (in other words from the date of the corrective actions letter you receive.)

     During the conference, I received so much helpful information, it was a little overwhelming. However, every one in attendance had wonderful website information to hand out so you could return home and research on your own (see Resource sites at end of this article).  The speakers were very informative and knowledgeable, and provided me with answers to the many questions I receive from parents and my own school personnel.  If they hold another Parent Organization Academy, I hope to be invited back!

     Remember to keep an eye on your own Region's website for upcoming training seminars that parents can attend (www.esc#.net), usually free of charge.  Check out the Special Populations and find out who your director is.  They can provide a world of services you never knew you, as a taxpayer, are entitled to!


Helpful Resource sites provided by the presenters:

"Bonne Nouvelle"

Tim Brennan of North Richland Hills has completed all required course work and passed both state exams for his teaching certificate!  He plans to begin teaching this fall.  Ryan Cook of Allen (age 10) represented his grade level on his school's UIL spelling team!  He has also been on the "A" honor roll all year and earned the Webelos badge in Cub Scouts!  Shawn Gayan, a seventh grader from Dallas, has just been awarded his first class rank in Boy Scouts!  Shawn also plays the euphoniam and was a soloist in his school band concert performance in February!   John Michael Gerken (age 11) had a fantastic school year!  He struggled with difficult TS symptoms last year, but this year he showed everyone what he can do making all As and Bs!  Emilie Jacobs of Nacogdoches (age 8) is reading 153 words per minute which is more than one year above her grade level.  This ties her for the top reader in the school's entire second grade!  Cooper Pickle will graduate from Paris High School this May as a Texas Scholar!  Cooper has taken accelerated and honors courses all 4 years of high school.  He has also played tenors in the marching band, even qualifying for state competitions in solo and percussion ensemble.  He was also chosen as a member of the Link Crew (a freshman orientation team).  Cooper plans to attend Paris Junior College in the fall and then transfer to a university to earn a degree in Applied Arts and Science.  Matt Plante has joined the Army National Guard!  Landon Rosenbrock of Port Lavaca (age 12) recently won a first place medal singing his solo "Passing By" in a choir contest!  Michael Sacks of Houston (age 21) recently graduated from the Texas Department of Criminal Justice.  Michael was awarded the Top Academic Award, the Top Gun Award and was selected to give the graduation speech!  Landon Schaeffer was hired as a paid staff member at Camp for All in Burton, Texas!  Landon is working weekends while attending Texas A&M in College Station.  Alexander Taylor of Garland (age 13) recently won an Award of Excellence for poetry in the Council of PTAs Reflections contest!  He also earned a "one" for his solo string bass performance in the UIL competition!  CONGRATULATIONS to all of these hard working Super Stars!!!  

     Please send us your "Bonne Nouvelle!"  Has your child received straight A's?  Recently graduated from college?  Are you, as a person with TS, successfully juggling home and family?  We would love to hear about your "good news" for future issues.  Or --  is there a topic or story you would like to see us cover in the future?  A question you have for our Medical Advisory Board?  Send your question, story and/or pictures to TouretteTexas@aol.com.
Texas Support Groups
TSA of Texas has support groups in Austin, Channelview, Clear Lake, Dallas, Fort Worth, Golden Triangle, Katy, North Houston and San AntonioLearn More>>To start a support group in your area, please contact Sheryl Kadmon, Executive Director of TSA of Texas, at 281-238-8096 or toll free at 866-894-8686.   
Physician Referral List
TSA of Texas maintains a list of Texas physicians who are experienced with TS.  To receive a PRL for your area, please email TouretteTexas@aol.com with your city location.  We are also seeking to expand our list, particularly in smaller cities, so if you have a physician who does a great job dealing with TS, please email us his or her contact information.  PHYSICIANS:  if you are interested in learning more about TS or being considered for our PRL, please contact Sheryl Kadmon, Executive Director, at 281-238-8096 or 866-896-8484.
How Can TSA of Texas Help You?
TSA of Texas is here to assist families dealing with TS throughout the state.  We offer:
  • EDUCATIONAL PRESENTATIONS for physicians, school districts, students, parents and the community.   
  • INFORMATION DISSEMINATION via packets, brochures and telephone conversations.  
  • LIBRARY of DVDs, videotapes and books. 
  • REFERRAL to physicians, therapists, community services, and state and county agencies.  
  • ADVOCACY through assistance with ARDs, IEP, 504 or OHI classification.  
  • SUPPORT GROUPS throughout the state.  
  • CHILDREN'S WEEKEND camping program "du Ballon Rouge."
  • FAMILY ACTIVITIES such as baseball games, museum visits, swim parties, and more. 
  • SPECIAL FUNDING sources such as the Kenneth H. Davis Family Assistance Fund and Fund A Need. 
  • ...and much, much MORE! 

Call TSA of Texas at 281-238-8096 (toll-free 1-866-894-8686) or email TouretteTexas@aol.com for more information.  If you have needs other than those listed above, please let us know and we will do our best to help. 

How Can You Help TSA of Texas? 

TSA of Texas funds its services through private donations, fundraising events and grant support.  We receive no state or federal funding.  You can help TSA of Texas and support Texas families dealing with TS by:

  • ATTENDING our fundraising events (e.g., our major Gala on 1/31/2008),
  • DONATING an item or gift certificate for Silent Auction at Gala,
  • ORDERING a tribute card sent in honor of someone's special event,  
  • CONTRIBUTING via cash, check or credit card to our general fund,
  • LINKING your Randall's Remarkable Card to charity #2493, and 
  • REQUESTING a Kroger Share Card.

All donations are totally tax deductible.  Learn More>>  

Bonne Nouvelle is published quarterly by TSA of Texas.  It is edited by Shelley Matcha and Cindy Sacks.