HCMA logoHCMA Newsletter January 2010
HCMA Link to ESPN Interview
:: YOU can help!
:: First HCMA Butterfly Release
:: Hypertrophic Cardiomyopathy Membership
:: Hypertrophic Cardiomyopathy Summit Notes now available
 jeron lewis

 

Yesterday Lisa Salberg and Dr. Martin Maron appeared Live on ESPN

Today the you can view this important interview on the HCMA website by clicking here!

 

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The tragic news of Chicago Bears defensive end Gaines Adams, 26, and Southern Indiana center Jeron Lewis, 21, whose sudden deaths are both suspected to be from Hypertrophic Cardiomyopathy (HCM) have the sports news world buzzing.

 

To help people learn about HCM, Lisa and Dr. Martin Maron, HCMA advisor and Co- Director of the HCM Center at Tufts-New England Medical Center, were guests on the ESPN TV show, "Outside the Lines,"



 

Tell Your Family Members and Friends to Watch and Share this important link.

http://www.4hcm.org/newsroom/videos/213600.html

 

Help the HCMA Spread the Word That Undetected HCM is Deadly:

 

Marcia Kelley-Clark, chief deputy coroner for Greenwood County, S.C., said Gaines Adams' relatives were not aware of any kind of medical condition.

 

University of Southern Indiana spokesman Dan McDonnell said he wasn't aware of any preexisting medical conditions that could have contributed to Jeron's death.

 

www.4hcm.org


 

YOU can help save a life....

Donate now to help stop sudden cardiac arrest in the young, and protect athletes, children and young adults from untimely deaths.

Did you ever stop to think WHY isn't more being done to stop sudden death from HCM?  We think about that every day at the HCMA.  We need your support to help run the programs that are vital to ensuring we know the best ways to protect our youth while encouraging healthy lifestyles and accurate and timely diagnosis.  Unfortunately one major reason is funding... HCM receives very little funding to advance research and even less to promote public awareness.   Please support the HCMA with a donation to help us save the lives of those living with HCM... remember diagnosis is key as those with HCM can live long lives and accomplish so much!

Click Here to Donate NOW.... and thanks for having a big heart!HCMA logo
Annual HCMA Meeting and the First HCMA Butterfly Release!
Looking for that perfect  gift  or looking for a way to help fund your trip to the HCMA Annual Meeting?
 

Sponsor a butterfly or have your friends and family sponsor one! The sponsorship of a butterfly comes with a magent which can be wrapped or placed in a card.
 
butterfly release posterHCMA has created a unique new program to help more families participate in the Annual meeting AND raise awareness of HCM in YOUR local community.
HCMA 1st Annual Butterfly Release at the HCMA Annual Meeting
When is the release: June 4-6 2010
When do I start "Catching" butterflies? Start today and keep catching until April 30, 2010.

Butterflies make GREAT holiday gifts, birthday gifts, Valentines gifts, Easter gift, and  are PERFECT for Mothers Day gifts.
 
HCMA Membership! 
keychainYou can help support the HCMA today by renewing your membership, joining for the first time of just making a donation.  Memberhip for 2010 has 3 options to choose from with your $60.00 membership - a CPR Anytime Kit (to learn CPR at home), A copy of HCM for Patients Families and Interested Physicians (a must have book for all families with HCM) or our newest option - a USB Keychain with your medical information contained on it for emergencys.  Click here for more information.
Hypertrophic Cardiomyopathy Summit: Notes now available!
 
During the recent HCMA Summit 4 volunteers from the HCMA took notes in an attempt to capture the event for those unable to attend.   The HCMA has made these notes available online Click here.  Due to the length of the notes this article takes several pages.