HCMA logoHCMA Newsletter October 2009
Special Alert - H1N1 and HCM
October is SCA Awareness Month - in this issue
:: First HCMA Butterfly Release
:: Hypertrophic Cardiomyopathy and Bulimia
:: HCMA off to Mayo Clinic
:: HCM Summit is just days away
needle Greetings!
The HCMA knows many of you are concerned about H1N1, the Flu and pneumonia.   The HCMA understands your concerns and we placed a call to Dr. Harry Lever of the Cleveland Clinic to ask for his opinion.
Dr. Lever stated "All patients and families with HCM should have the H1N1, Pneumonia and general Flu vaccines when they become available in their community"  He also cautioned that if you are not feeling well to communicate with your health care provider to ensure you receive prompt treatment. 
Please contact your personal physician first to arrange your vaccine, if your they do not have access contact you subspecialist (cardiologist or others) and if you can still not get access to vaccines contact your  health department.  We strongly recommend you call your doctors office and create a plan of action to protect you and your family from the flu and its complications.
 
butterfly release posterbutterfly release posterOCTOBER IS SUDDEN CARDIAC ARREST AWARENESS MONTH
Do you know the risk factors for SCA in HCM? Click here for more information 
Are you prepared to preform CPR? Learn CPR in your home - Click here
First HCMA Butterfly Release!
Learn more about this wonderful way to help raise awareness!

 butterfly release posterHCMA has created a unique new program to help more families participate in the Annual meeting AND raise awareness of HCM in YOUR local community.
HCMA 1st Annual Butterfly Release at the HCMA Annual Meeting
When is the release: June 4-6 2010
When do I start "Catching" butterflies? Start today and keep catching until April 30, 2010.

Butterflies make GREAT holiday gifts, birthday gifts, Valentines gifts, Easter gift, and  are PERFECT for Mothers Day gifts.
 

Hypertrophic Cardiomyopathy and Bulimia: An Insidious Mix

HCMA logoWhen our children are diagnosed with HCM we can sometimes forget they are also at risk for other medical issues, including mental health concerns. When the mother of a young lady lost to a deadly mix of HCM and bulimia approached the HCMA in hopes of alerting parents and health care providers about the risks of eating disorders and HCM we invited her to write about it. Take the time to read this important article and share this information with others  Read this story
HCMA off to Mayo Clinic for Patient meeting... will you join us?  
mayo
Hypertrophic Cardiomyopathy: Midwest Regional Meeting for Patients and Families is a complimentary event; please register to ensure your participation and lunch reservation. � Call (507) 266-6082
For more information click here

HCM Summit is just days away...its not too late to attend!

 
Dr. Barry Maron and HCM experts from around the world are set to gather in Minneapolis October 16-19 2009  - Sign up TODAY
Can't attend the HCM Summit - The HCMA will be preparing a report of the Summit and keeping you up to date on Facebook and Twitter!  If you are not a Facebook "friend" to Lisa Flanigan Salberg - please send a -request soon - you can also follow us on Twitter at HCMAUSA.