April Newsletter From Your Friends @ the

Hypertrophic Cardiomyopathy Association
 
Issue: # 3
March 2009
Heart Link
HCMA logo 
Official Newsletter of the HCMA 
In This Issue
HRS
Quick Links
Join Our List
Join Our Mailing List
HCMA
Annual Meeting
 
May 29-31, 2009   Registration
Medical Education
4th International Summit on HCM
October 16-18 2009
Minneapolis MN
Registration to open April 2009
11th Annual Lori Flanigan Memorial Golf Outing
A tribute to Larry Flanigan 
June 1, 2009
Rockaway NJ 
 
 
 
  
 
Dear HCMA Supporter,

To some, Spring means cleaning or planting a garden. For us, it's a time to prepare for our  Annual Conference and theLori Flanigan Memorial Golf Outing. This year's Conference will be especially historic! The first patient ever diagnosed with HCM in 1959, Claude Brady, will be attending and you can meet him and ask him all your questions. He will be reunited with the physician who diagnosed him, Dr. Eugene Braunwald. We know it will truly be an HCMA defining moment.

This time of year is also full of lots of other HCM memorial walks and fundraisers, so scroll down to see which event/charity is right for you. If can't make it, your contributions are greatly appreciated. After all, it's these events which help us raise money toward finding a cure. Every little bit helps. 

Past Conference participants have expressed strong feelings about why the HCMA is important, like HCMA helped save my life!or Without the HCMA I would be so very LOST and confused. I love that I have a great support system! Whether it's because you cherish the support and community, or simply want to know the very latest about HCMA research and development, we hope to see you will come to be empowered and create an action plan  which we are developing for you and your family! Medical professionals can earn CME and contact hours for participating in this Conference.

And lastly, we'd like to ask you to share "your story"Please BLOG on our Message Boards about your own personal HCMA story, so that we can spread the word to raise awareness. "Real" people have to share "real" stories to get the media's attention.
 
Lisa Salberg 
CEO & Founder
 
 
EVENTS AND FUNDRAISERS

May 13-16, 2009  HRS - Heart Rhythm Society Scientific Sessions is the professional group for Electrophysiologist doctors and one of the three major meetings we've been attending for the past ten years. These are the doctors that manage the ICD's the HCM community uses. This is just one of the ways we "do the foot work"  to bring you the latest information about how to help you!  The HCMA will be at booth 243 to raise the awareness of HCM among cardiac patients at the Boston Convention & Exhibition Center. Click here to learn more.

May 10, 2009   Elizabeth McNamee Memorial Run is Sunday  @ 9:30 AM Address West Islip High School - 1 Lions Path  5K- $20, Pre Reg. $25 Race Day 1 Mile Fun Run/Walk $15,Pre Reg. $15 Race Day. All participants will receive race day t-shirt while supplies last. Click here to learn more.

May 16, 2009   Tyler James Gingery Memorial Walk Bristol Central High School- (Rain date 5/17) Registration: 9am-10am Walk: 10am-12pm address: 480 Wolcott St. Bristol, CT 06011 Click here to learn more.