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Dear HCMA Supporter,
To some, Spring means cleaning or planting a garden. For us, it's a time to prepare for our Annual Conference and theLori Flanigan Memorial Golf Outing. This year's Conference will be especially historic! The first patient ever diagnosed with HCM in
1959, Claude Brady, will be attending and you can meet him and ask him all your questions. He will be reunited with the physician who diagnosed him, Dr.
Eugene Braunwald. We know it will truly be an HCMA defining moment.
This time of year is also full of lots of other HCM memorial walks and fundraisers, so scroll down to see which event/charity is right for you. If can't make it, your contributions are greatly appreciated.
After all, it's these events which help us raise money toward finding a
cure. Every little bit helps. Past Conference participants
have expressed strong feelings about why the HCMA is important, like HCMA helped save my life!or Without the HCMA I would be so very
LOST and
confused. I love that I have a great
support system! Whether it's because you cherish the support and community, or simply want to know the very latest about HCMA research and development, we hope to see you will come to be empowered and create an action plan which we are developing for you and your family! Medical
professionals can earn CME and contact hours for participating in this Conference.
And lastly, we'd like to ask you to share "your story". Please BLOG on our Message Boards about your own personal HCMA story, so that we can spread the word to raise awareness. "Real" people have to share "real" stories to get the media's attention. Lisa Salberg CEO & Founder |
EVENTS AND FUNDRAISERS
May 13-16, 2009 HRS - Heart Rhythm Society Scientific Sessions is
the professional group for Electrophysiologist doctors and one of the three major meetings we've been attending for the past ten years. These are the doctors that manage the
ICD's the HCM community uses. This is just one of the ways we "do the foot work" to bring you the latest information about how to help you! The HCMA will be at booth 243 to raise the awareness of HCM among cardiac patients at the Boston Convention & Exhibition Center. Click here to learn more.
May 10, 2009 Elizabeth McNamee Memorial Run is
Sunday @ 9:30 AM Address West Islip High School - 1 Lions
Path 5K- $20, Pre Reg. $25 Race Day 1 Mile Fun Run/Walk $15,Pre Reg.
$15 Race Day. All participants will receive race day t-shirt while
supplies last. Click here to learn more.
May 16, 2009 Tyler James Gingery Memorial Walk Bristol Central High School- (Rain date 5/17)
Registration: 9am-10am Walk: 10am-12pm
address:
480 Wolcott St.
Bristol, CT 06011 Click here to learn more. |