Pink-Link
April 2007
Hello from Pink-Link
 
Greetings!
I hope this newsletter finds you feeling well. Pink-Link continues to grow as the word gets out about our supportive services. We now have over 500 members! I hope you're taking advantage of everything we have to offer in obtaining a healthy survivorship. We've received a couple of emails from women with metastatic disease asking for more information to help them. We've added "metastatic" to our breast cancer profile so those women can connect with other metastatic survivors. If you have metastatic disease, please update your profile to reflect this change. During the month of April, Pink-Link will be exhibiting at the Oncology Nurses Society Annual conference in Las Vegas. We're looking forward to meeting nurses from across the country who dedicate their lives to helping survivors like us.
 
The Stone Age was less Depressing 

by Lianne Avila, MA,MFT

    After a diagnosis of Breast Cancer, many women have reported symptoms of Depression.  For some this may pass but for others the symptoms may stay and perhaps get worse.  A recent scientific study showed a significant decrease in depression in those that implemented these six simple elements into their lives'.

Read more
 
Nutrition and Skin Protection

by Janice Baker, Registered Dietician, Certified Diabetes Educator   

    Protecting your skin against excess sun exposure is the most important part of reducing your risk of skin cancer.  We also know that other factors are important in risk reduction, such as avoiding tanning booths, using a broad-spectrum sunscreen with an SPF rating of 15 or greater - reapplied frequently, avoiding smoking and annual skin cancer exams with a dermatologist who can show you how to do monthly skin examinations at home. 

To read the rest of Janice's article, click here
 
Six L's of Caring and Coping - Live
by Dave Balch, Founder of The Patient/Partner Project

Dealing with cancer is not just about cancer; it's about life with cancer.  It's about all of the stresses, joys, and responsibilities you already had in your life in addition to the new stresses and responsibilities that come with serious illness.  It's easy to get bogged down.

Read more of Dave's article
 
Massage Benefits for Survivors 
by Toni Muirhead, Licensed Massage Therapist

Massage done safely can relieve the physical side effects of surgery, chemotherapy and radiation treatment.  Massage, done by a massage therapist trained in safe practices for patients in treatment for cancer, can offer a gentle touch to quiet the mind, create a feeling of calmness, and relieve the muscle tension due to illness and inactivity. 

Continue reading
 
New Book to help Children understand Cancer Book cover
by Ellen McVicker, author

In 2002, Ellen McVicker, Aurora, Colorado resident and teacher for over 20 years, wrote a story for her cousin, Nanci Hersh, a New Jersey resident who was just diagnosed with breast cancer.  The story was a gift from Ellen to help Nanci explain her recently diagnosed cancer to her two young sons.   Two years later, Nanci, an award-winning artist, agreed to illustrate Ellen's words. On October 1st, 2006, Butterfly Kisses and Wishes on Wings - When someone you love has cancer,  a hopeful, helpful book for kids was released.

Continue reading

 
Questions to ask your Doctors 
by www.PLWC.org
Patients Living with Cancer

Regular and open communication with your doctors is important in making informed decisions about your health care. Consider asking the following questions of your doctors-breast surgeon, medical oncologist, radiation oncologist, plastic surgeon, and fertility specialist-so that you can learn more about your diagnosis, treatment plan, and possible side effects. These questions should be viewed as a starting point in communicating with your doctors, rather than a complete list. (Some questions appear in more than one section because the order in which patients see specific doctors can differ.)

Continue reading
 
Volunteers Needed 
 

The Dr. Susan Love Research Foundation is on a mission: to eradicate breast cancer and improve the quality of women's health through innovative research, education and advocacy.  Through our research, we are working towards an unprecedented understanding of  where breast cancer begins-in the breast ducts-and we now have the tools to get there. The intraductal research holds the potential to expand our knowledge in way that will truly allow us to end breast cancer. That is why it is the focus of our research and that of the researchers we fund.

Read more
 
Stomp Cancer Fundraising Campaign 

Scott Mactavish, a filmmaker, author and thirteen-year Hollywood veteran, is pleased to announce the launch of the Stomp Cancer fundraising campaign. Mactavish's film SUMMER RUNNING: The Race to Cure Breast Cancer starring Sissy Spacek is now available on DVD exclusively at the Stomp Cancer website, with net proceeds going directly to cancer research.

When you buy the DVD via the Pink-Link website, Scott will donate $4.00 directly to Pink-Link!

Click here to read more, buy the DVD and donate to Pink-Link
 
In This Issue
The Stone Age was less Depressing
Nutrition and Skin Protection
Six L's of Caring and Coping - Live
Massage Benefits for Survivors
New Book to help Children understand Cance
Questions to ask your Doctors
Volunteers Needed
Stomp Cancer Fundraising Campaign
One Member's Journey
Donate to Pink-Link
One Member's Journey

My name is Carolyne Williams and I was diagnosed in January, 2007 with a borderline low grade malignant phyllodes tumor.  The tumor measured 7.5 cm in its widest section.  It was a very fast growing, bulky, moveable mass in my left breast.  The only symptom was a rapid increase in breast size, where I went from an A cup in my left breast, to a B cup.   I put off seeing a doctor about it for 3 months, because I was hoping it would just go away, or that it was normal breast growth.   After 3 months however, it started becoming very painful and very hard, similar to the feeling of a breast implant gone wrong.

To read the rest of Carolyne's journey,
click here
Pink-Link is a 501(c)3 nonprofit organization and all of our services are free. We always welcome your donations!

Victoria Tashman
Pink-Link
310-995-5204