Friends of FSH Research Reveals Latest Auction News

Pacific Northwest Friends of FSH Research

Friends of FSH Research Newsletter

October 2009 Edition

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Auction Item Updates

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See our Redesigned Website! Take a Look!

www.fshfriends.org

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Telling Your Story

The importance of your personal story cannot be overstated- if you or your loved one has FSH Muscular Dystrophy your story could help to make an impact.

Your story conveys to others in our community why FSH research is needed and how a treatment or therapy could change your life.

Please send your stories to:
[email protected]

Your desires regarding your privacy will be honored.

Thank you.

Impacting FSH Research Today

Greetings!

Our 6th annual "FiSHing for a Cure" Caribbean Gala
Dinner and Auction will be held on January 30, 2010, in the new Grand Ballroom at the Bellevue Hyatt. Don't miss this chance to experience the luxury of this beautiful facility and make a difference for those living with Facio-
scapulohumeral Muscular Dystrophy (FSH).

When our family embarked upon our mission of stimulating and funding Facioscapulohumeral Muscular Dystrophy research, we had absolutely no idea of what to expect. YOU, our donors, supporters and friends have been incredible!

With your support - we are making a difference!

FSH research, a area long ignored, is now an emerging field of study growing both in the number of studies funded as well as the number of researchers at work.

My warmest thanks to each of you,
Terry Colella

Eastside Women in Business
presents
Queen of Hearts Gala

Please join us at this event - a chance for great food, fun and music on a Sunday, October 11th at the Belletini in Bellevue, Washington. This is one event you will not want to miss!!

50 percent of the proceeds from this event will benefit Friends of FSH Research.

FSH:
The Most Common Form of Muscular Dystrophy

Facioscapulohumeral Muscular Dystrophy: facio (face) scapulo (upper back) and humeral (upper arm) designate the first muscles that weaken and atrophy in this form of Muscular Dystrophy. Over time muscles of the lower body also become affected, leaving 20 percent of those with this form of MD to require a wheelchair for their mobility.

A European consortium known as Orphanet, which includes both governmental and private members, has issued an epidemiology report which ranks FSH (also known as FSHD) as the most prevalent form of muscular dystrophy.

FiSHing for a Cure
Gala Dinner & Auction
January 30, 2009
Bellevue Hyatt
5:00pm-10:00pm

Your Donations Are Needed:

~behind the scenes
~dinner party
~cakes, treats
~gift certificates
~gardening package
~wines & foods
~artwork & crafts
~flowers
~kids party, baby items
~condo & cabin stay
~boating/fishing trips
~ski or golf outing
~tickets to events
~Xbox, Wii, Zune
~services, tours, lessons
~anything else you can imagine!

To Donate: call Terry at 425-827-8954 or email
[email protected]