Pacific Northwest Friends of FSH Research
Friends of FSH Research Newsletter

October 2009 Edition


Raku Fish


See our Redesigned Website!  Take a Look!
Telling Your Story

The importance of your personal story cannot be overstated- if you or your loved one has FSH Muscular Dystrophy your story could help to make an impact. 

Your story conveys to others in our community why FSH research is needed and  how a treatment  or therapy could change your life.

Please send your stories to: 
[email protected]

Your desires regarding your privacy will be honored.

Thank you.
Impacting FSH Research Today


caribbean Our 6th annual "FiSHing for a Cure" Caribbean Gala
Dinner and Auction will be held on January 30, 2010, in the new Grand Ballroom at the Bellevue Hyatt.  Don't miss this chance to experience the luxury of this beautiful facility and make a difference for those living with Facio-
scapulohumeral Muscular Dystrophy (FSH).

When our family embarked upon our mission of stimulating and funding Facioscapulohumeral Muscular Dystrophy research, we had absolutely no idea of what to expect.  YOU, our donors, supporters and friends have been incredible!  

With your support  - we are making a difference!

FSH research, a area long ignored, is now an emerging field of study growing both in the number of studies funded as well as the number of researchers at work. 

My warmest thanks to each of you,
Terry Colella

Please join us at this event - a chance for great food, fun and music on a Sunday, October 11th at the Belletini in Bellevue, Washington.  This is one event you will not want to miss!!

50 percent of the proceeds from this event will benefit Friends of FSH Research.
FSH affected back FSH:
The Most Common Form of Muscular Dystrophy

Facioscapulohumeral Muscular Dystrophy:  facio (face) scapulo (upper back) and humeral (upper arm) designate the first muscles that weaken and atrophy in this form of Muscular Dystrophy.  Over time muscles of the lower body also become affected, leaving 20 percent of those with this form of MD to require a wheelchair for their mobility.

A European consortium known as Orphanet, which includes both governmental and private members, has issued an epidemiology report which ranks FSH (also known as FSHD) as the most prevalent form of muscular dystrophy.


FiSHing for a Cure
Gala Dinner & Auction
January 30, 2009
Bellevue Hyatt

Your Donations Are Needed:

~behind the scenes
~dinner party
~cakes, treats
~gift certificates
~gardening package
~wines & foods
~artwork & crafts
~kids party, baby items
~condo & cabin stay
~boating/fishing trips
~ski or golf outing
~tickets to events
~Xbox, Wii, Zune
~services, tours, lessons
~anything else you can  imagine!

To Donate:  call Terry at 425-827-8954 or email
[email protected]

Circle of Friends

Friends of FSH Research
217 19th Place
Kirkland, Washington 98033
Follow-up Links
University of Washington

"Evaluation of the Pattern of Involvement in Skeletal Muscle of Subjects with Facioscapulohumeral Muscular Dystrophy"

Please go to our website for further information.

food and wine
 Dining Out for FSH Research

The Celebrated Chefs Dining program helps to fund FSH research while you enjoy dining out!  Enroll today in this exciting program that partners great restaurants and great charities. 
Searching for a Cure with GoodSearch

When you go online you can earn money for Facioscapulohumeral Muscular Dystrophy Research!

A toolbar, developed by GoodSearch & GoodShop & powered by Yahoo, takes just a few seconds to download.  Businesses are donating a percentage of each sale to Friends of FSH Research.  Spread the word and get your own fundraising toolbar!

Brian & Terry Colella Meet Friends of FSH Research

Friends of FSH Research established in 2004 in Kirkland, Washington, is a home based - volunteer run 501(3)(c) non-profit organization dedicated to expanding and
supporting FSH Muscular Dystrophy research. 

We welcome your comments, questions and suggestions.  Please contact us at 425-827-8954 or by email at [email protected].