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Pacific Northwest Friends of FSH Research Newsletter
 August 2009    Forward to a Friend
In This Issue
Shopping for a Cause
Partnership to Benefit FSH Research
FiSHing for a Cure Auction
FSH Workshop
Join Our List
Join Our Mailing List
Greetings!

Thank you for your support of Facioscapulohumeral Muscular Dystrophy research.   Due to your support,  there are more researchers at work examining the FSHD muscle cell biology than ever before & progress is being made.  You have helped to give people living with this disabling condition hope for a healthier, stronger future. 

Our family greatly appreciates the generous support we have received from friends and donors.  Your interest in Facioscapulohumeral Muscular Dystrophy & kindness to our son & our family has been heart warming. 

Our deepest thanks!
Terry & Rick Colella
Friends of FSH Research

 
Curtsy Bella - Shopping for a Cause - August 22nd
curtsy bella logo Making Your Shopping $$ Count

Come shop at Curtsy Bella near the University Village & support FSH Research.  Curtsy Bella is a specialty shop that carries unique gift items not found elsewhere.   Have a friend with a new baby? Need a great wedding gift or special gift for that special occasion? Curtsy Bella has it all. 

Come join us & enjoy champagne & chocolates while you shop - join us there August 22nd.
 
Eastside Women in Business - October 11th
Partnership Benefiting FSH Research

Eastside Women in Business (EWIB) is celebrating their 1st anniversary on October 11th at the Belletini in Bellevue, Washington.  Featuring wines, jazz, great food & a silent auction - 50% of the evening's proceeds will benefit Friends of FSH Research! 

We are honored to have been selected by EWIB as their charity partner!! 

With research - there is hope! 

Volunteers Needed.  Can you give a few hours to help with the silent auction set up?   Let us know how you wish to be involved in this fun evening. 

Contact Terry for information or to volunteer, call today 425-827-88954 or email fishauction@fshfriends.org.


"FiSHing for a Cure" Gala - SAVE THE DATE
caribbean Caribbean Nights

The sixth annual charity event supporting Facioscapulohumeral Muscular Dystrophy research (FSH) will be held on January 30, 2010 at the Bellevue Hyatt.  Friends of FSH Research will work closely with the Hyatt head chef to develop a Caribbean gourmet event you won't forget.  What could be better that a spot of Caribbean color & music in the middle of winter? 

  SAVE THE DATE  JANUARY 30, 2010

 
Start planning your table today!!  You will want to attend this fun filled evening with auctioneer John Curley.  Auction items are wanted! Contact Terry at 425-827-8954 or email at fishauction@fshfriends.org with your donation.

 
FSHD Scientists Meet at Fred Hutchinson Center

Friends of FSH Research is hosting an important FSH workshop on August 14th & 15th.  This meeting will be held at the Fred Hutchinson Research Center and will bring together some of the most respected FSH researchers to discuss their current research and develop plans for future studies.  

Your donations make workshops like this possible!! 

TAKE ACTION
back shot cropped Make a difference today!

  1. Sign a Petition to President Obama
  2. Join the Dining out Program
  3. Donate an item, artwork, service to the 6th annual "Fishing for a Cure" Auction
  4. Donate today & Join Our Circle of Friends
    (100% of your donation will fund research)

 
Friends of FSH Research...
  • 501(c)(3) non-profit organization
  • independent, family-organized
  • volunteer-run
Friends of FSH Research provides funding & support to research scientists in the hope of finding a treatment or cure for Facioscapulohumeral Muscular Dystrophy. 


 
 

I look forward to hearing from you about our newsletter.  Your comments, questions & suggestions are most welcomed.                                            
                                                               ~Terry