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Executive Director Search 

Our search is underway for a new Executive Director and the position description can be viewed here. If you or someone you know meets the job requirements and would like to apply, please contact us at info@beyondbatten.org.


A Mother's Story 
by guest columnist
Missy Herndon

 
Nicole Murphy & Missy Herndon
 
The Torch of Hope
 
To read the story,
click HERE.


Featured
Fundraiser

 
Every child loves a lemonade stand! On August 10, five precocious children attending The Gummy Bear Gourmet cooking camp, under the direction of Ashley Crider, struck out to put their love of squeezing lemons to
the test...

Continue the story HERE. 

 
Research Strategy: Beyond the "Valley of Death"

Beyond Batten Disease Foundation is spearheading a unique, cohesive  strategic plan to drive research in Batten disease. Watch the following video to see how BBDF is working with academia, the pharmaceutical industry, and government agencies to cross the "Valley of Death" between initial scientific discoveries and meaningful progress toward treatments and cures.

Beyond the Valley of Death:  

A Strategic Path Toward a Cure for Batten Disease

 

 

Please click the image to view video.   
HOPE Under the Stars  
 
Saturday, September 15, 2012
6:00pm Cocktails
7:30pm Dinner & Presentation 

4th Annual HOPE Under the Stars  
benefiting the Will Herndon Fund for Juvenile Batten Disease Research
of Beyond Batten Disease Foundation 

We invite you to join us for a memorable evening of dinner and dancing. Enjoy the music of the Bucktown All Stars from New Orleans, take a turn on the mechanical bull, or try your hand at the casino tables--all while raising money for a cure for Batten disease! 
The Woodlands Resort and Conference Center, The Woodlands, TX
Dress is "Texas Chic" 

Upcoming Events 

October 13:  Will's Warriors will lace up their running shoes and run in the 10 for Texas ten-mile race in The Woodlands, TX. The Junior Warriors will take part in a kids fun run before the race. Learn more.  

 

October 19:  The 4th Annual Brake Specialists' Plus HOPE Charity Golf Tournament in Austin benefiting BBDF. Register to play or sponsor or volunteer at the event.  

  Run to the Sun Relay logo 

April 20-21, 2013:  Run to the Sun, a 95 mile, overnight relay benefiting BBDF. More details coming soon.