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A Mother's Story
by Charlotte Benson
Run to the Sun
A year ago, Lance Thompson, our good friend and avid runner, came to us with an idea to organize a 100-mile overnight relay run to raise money for the Foundation. Admittedly, I'm not a runner, and my first reaction was, "Who in the world is going to want to do that?!!"
(The rest of the story is continued HERE.)
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Featured
Fund-Raiser For the third year in a row, Adelante Boutique in Austin has hosted a BBDF party. Shoppers browsed the racks while enjoying refreshments, and Adelante donated a percentage of all sales to the Foundation. Thank you to owner Tricia Roberts for being a longtime supporter and to all the event organizers!
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Run to the Sun
May 14-15, 2011 |
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The Run to the Sun is just around the corner! Approximately 30 teams of eight runners each are participating in this inaugural 96-mile overnight r elay run May 14-15 from Mount Bonnell in Austin to Enchanted Rock in the Texas Hill Country. With a fundraising goal of $125,000, the teams have already raised $108,000--critical funding that the Beyond Batten Disease Foundation will use in its fight to eradicate Batten disease through research and prevention.
Sponsors:
We are excited to announce that Motorola is the event's leading sponsor. Thank you to all of our sponsors:
MOTOROLA
Thompson + Hanson
Gainsborough Waste
Gallion Irrigation
Horticultural Sales, Inc.
Just Trees
Master Hitch, Inc.
McDugald Steele Inc.
Professional Growers
Tree Source
White Rock Farms
Volunteers:
We need volunteers to help at the start and finish lines, as well as key points along the route. You also can help on May 12 with preparations and on May 30 with follow-up. Please click HERE to sign up to volunteer online. If you have children who would like to get involved, consider setting up a "cheer station" along the route to encourage the runners. If you have questions, contact us at runtothesun@beyondbatten.org.
Sunrise Finale:
Come join the fun and watch the teams as they depart from Mount Bonnell on May 14, starting at 2:30 p.m., or as they cross the finish line at Enchanted Rock at sunrise the following morning. The event will culminate in a family-friendly celebration, starting at 6 a.m. on May 15, and will feature breakfast, an awards presentation and a special musical performance by the Gospel Stars choir.
Thank you:
Our sincere gratitude goes out to all of the participants, sponsors, volunteers and supporters who are making this event possible. Thank you for providing hope to all the children and families affected by Batten Disease.
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The annual Hope on the Green Golf Tournament, benefitting the Will Herndon Fund for Juvenile Batten Disease Research of the BBDF, is on May 17, 2011, at Woodforest Golf Club at Fish Creek in Montgomery, Texas. Tickets and more information are available HERE.
Stay tuned for details on the 2011 Above and Beyond: An Evening of Hope, set for the fall in Austin. The planning has begun and we will announce the date soon!
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