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Ethics Lecture Podcast

Last fall, Charlotte Benson was invited to deliver the Delta Gamma Lectureship on Values and Ethics at the University of Texas.  Click HERE to listen to a podcast of her lecture.  (It is approximately 24 minutes long.)
  
 
Featured
Fund-Raiser

  Caroline Campbell, a junior in the Academy of Global Studies at Austin High School, demonstrated compassion and leadership during the Christmas season by creating her own unique fundraiser.  Using her grandmother's recipes and her love for cooking, she baked and delivered over 40 casseroles throughout the community and raised $1,264!  We are very grateful for all of her hard work on behalf of the Foundation. 

 

CCphoto 
 

If you would like to hold your own fund-raising event, please visit the Get Involved section of our Web site. 
 
 Run to the Sun

An overnight relay run from Austin to Enchanted Rock

 

May 14-15, 2011

27 teams have registered and there's room for a few more!

If you're not a runner and would like to participate,
you can volunteer.

Please visit: www.runtothesunrelay.com for more information.
Rare Disease Day
  February 26, 2011  

In honor of Rare Disease Day, over 35 retailers and businesses in several cities are donating a percentage of their proceeds this Saturday, February 26th to the Beyond Batten Disease Foundation.

 

Rare Disease Day is an international event held each year to raise awareness about these neglected diseases.  Although individually rare, together they affect almost 1 out of every 10 Americans!

 

Please help show your appreciation by visiting the following establishments on the 26th and spreading the word to your family and friends:

 

AUSTIN:

  • 1379 Family Sports Shop - 2727 Exposition Blvd.
  • Adelante Boutique - 1206 W. 38th Street
  • Austin Pilates Barn (Feb. 24 & Feb. 25) - 1300 Northwood Rd.  
  • Bella-Mi - 1601 W. 38th Street
  • bettysport - 916A W. 12th Street
  • Briley's Upholstery Shop - 2117 Northland Drive
  • Corefit Training -  Bootcamp class - call 576-4888 to register
  • Four Hands Furniture - 2090 Woodward Street
  • Girl Next Door - 250 W. 2nd Street
  • Hayden Avery - 1515-A W. 35th Street
  • Hutson Clothing Co. - 3663 Bee Cave Road
  • Kids Cook - 3742 Far West Blvd., #111
  • Mellow Johnny's - 400 Nueces Street
  • The Menagerie - 1601 W. 38th Street
  • Monogram Lady - 3818 Far West Blvd., #108
  • Over the Rainbow - 2727 Exposition Blvd.
  • Perri Berri - 2805 Bee Caves Road
  • Reform Pilates - 3110-A Windsor Road
  • Tarrytown Nails - 2414 Exposition Blvd.
  • The Tavern - 922 W. 12th Street
  • Teo's - 1206 W. 38th Street
  • Touch of Sass - 5th and Lamar
  • Tracy Bethel Skincare - 2208 Sunny Slope Drive
  • Valentines Too - 3801 N. Capital of Texas Hwy., #G
  • Wendow Fine Living - 1512 W. 35th St. Cutoff, #100
  • Wildflower Organics - 908 N. Lamar 

BATON ROUGE:

  • By Design Interiors (Feb. 25) - 16645 Highland Road, Suite K
  • Fireside Antiques - 14007 Perkins Road
  • Paper-N-Things - 7649 Jefferson Highway
  • Red Onion - 15680 Perkins Road
  • Samir Oriental Rugs - 744 Jefferson Highway
  • Stephen Black Ltd. - 8210 Jefferson Highway
  • Taylor Clark Gallery (Feb. 25) - 2623 Government Street

 DALLAS:

  • Chick-fil-A - 12120 Inwood Road
  • Sammy's BBQ - 2126 Leonard
  • Pinkberry - 5959 Royal Lane, Suite 622

 HOUSTON:

  • Sweet Lola Yogurt Bar - 304 Gray
  • Thompson + Hanson - 3600 W. Alabama

Thank you to all the volunteers who helped recruit this year's participants!

 

BBDF on Facebook
by Frances Behrmann, Volunteer

Social Networks are a quick and timely way to keep track of the Beyond Batten Disease Foundation. If you "like" our page on Facebook you can receive updates and news about the Foundation automatically! By "liking" it, you can also promote the Foundation on your own Facebook page.

If you belong to Facebook, you can join us today by clicking this icon Find us on Facebook   to take you to the Foundation's page where you can then clicFB Likek the "like" button at the top of the page (it looks like the image to the left) to make us part of your social network presence.

You can take your support for our social network presence one step further and recommend the page to your friends. By selecting the option "Share" on the Foundation's page (located at the bottom of the left-hand column) you can post it to your profile and ask your friends to visit the page and "like" it.  This will help us to communicate our message and information about Batten Disease to a wider audience.