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Join your Pals at the Wednesday night dinners. The the locations rotate among various restaurants in Houston. See the schedule at the reception desk.
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"Information about Proton Therapy You Don't Hear in the Gown Room or on the Net"
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Dave Stevens talks on prostate cancer, proton therapy and hormone effects will be held on regular rotation for each "class" at the Proton Therapy Center. The next talk will be on Wednesday, February 1st at 10:00 am in the Proton Therapy Center large conference room.
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 | Not Your Father's Rodeo Feb, 28 - March 18, 2012 |
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Greetings!
Last Thursday evening Dave Stevens and I attended one of MD Anderson's Integrative Medicine lecture series. It was about "Living the Anti-Cancer Life: The Legacy of David Serban-Schreiber" and was presented by his brother, Franklin. Franklin shared his time by his brother's side in his last months and read us some poignant pages about the struggles and the laughs in the face of terminal cancer from David's intimate and moving memoir.
Dave Stevens writes about Franklin's talk in an article below. .
 | Franklin pausing in his talk
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Dr. Leonardo Cohen started the session and presented recent research findings in the anti-cancer field and I've summarized his slides briefly. This calls to mind how there's such a vast area of resources in the medical center and in the digital vaults that are kept up by M.D. Anderson. You need to mine this information or you'll miss public talks like this one as well as an ongoing program in Integrative Medicine offered to the patients (including patients of other hospitals) on a daily basis. Take a look at the monthly calendar.Remember the Wednesday night dinners coordinated by our volunteer Drew Cox. The schedule is posted on ProtonPals and Facebook. Please use the ProtonPals Facebook page as your place to gather names and to stay in touch with your class. I wanted to thank the guys with the purse strings for the new furniture in the "gown" room. I always thought the place could use a lift and now it has it. Also I think it's time to put an internet access device so you can sign up for ProtonPals while you're being staged for your time to be "Beam On". In Gratitude, Joe Landry |
Notes from "Not the Last Goodbye" |
 | Dr. David Serban-Schreiber |
Touching Moments as We Heard about David's Last Year
Many of you have read Anti-Cancer, by Dr. David Servan-Schreiber, a physician and psychologist. In it, he describes his first encounter with brain cancer in his early 30's, and how he recovered from it. Afterward, he studied the causes of cancer and discovered that changes in diet and lifestyle choices can reduce one's odds of getting cancer. All of this is described in detail in Anti-Cancer. If you haven't read it yet, you owe it to yourself to do so soon. David travelled the world with this message, and spoke at MD Anderson Cancer Center just over two years ago. Although David had one or two other encounters with brain cancer afterward, he survived them. Beginning in the spring of 2010, however, his brain cancer returned with a vengeance. This time, there was relatively little that could be done in the way of a cure. On Sunday, July 24, 2011, he passed away.
A few months before he died, David Servan-Schreiber dictated a memoir of his courageous battle, describing with great insight what it had been like for him during those final few months. It became an instant best-seller in his native France even in his last two weeks of his life. The English version is Not the Last Goodbye: On Life, Death, Healing & Cancer.
During the last year, David's brother Franklin Servan-Schreiber became one of his caregivers. This past Thursday evening, Franklin Servan-Schreiber spoke to a gathering of nearly 200 at MD Anderson Cancer Center about death and dying, a subject that our society avoids to such an extent that it is almost taboo as a topic for discussion.
Franklin had several suggestions for patients, family members and caregivers, based on his experience with his brother's death. First, the patient will have guilt feelings, that he has become a burden to his family and somehow has let them down. For awhile, David believed that his dying undermined what he said in Anti-Cancer, but his friends and family members assured him that this is not true. Second, both the patient and the family want a "timetable" as to when all the steps of dying will happen, but normally doctors won't tell them what those steps are, let alone when.
Third, deterioration is not gradual or linear, but in noticeable steps that happen without warning. Fourth, there are a lot of things that must be resolved as soon as possible, before the patient's condition makes it impossible to do so. A will, burial choices and arrangements for the children are obvious; less obvious are forgiveness issues, as in the situation of David's estranged ex-wife, who appeared at his deathbed.
Fifth, a little denial is OK, if it helps everyone cope. Near the end, his family threw a birthday party for David with 100 guests. Sixth, whatever background the patient has, he should use it to help him deal with his fear. Even though David was agnostic, he found Psalm 23 to be extremely comforting; he realized that he was not being singled out to enter the "valley of the shadow of death" but that it is an experience common to all of us, eventually. Seventh, David's biggest fear was not death, but the pain part of it. Toward the end, the family moved him to a hospital so that when pain struck, it could be dealt with fast. Eighth, the best way to express love to a dying person is touching him, holding his hand.
In a talk full of profound observations, Franklin made this extraordinary suggestion that applies to every one of us: "Make your cancer experience useful --- do not allow this valuable experience to be wasted." David Servan-Schreiber lived that advice, to the benefit of every one of us.
Dave Stevens,
Director, ProtonPals
January 24, 2012
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Not the Last Goodbye | The Book
The book was drafted from a series of interviews held with David Serban-Schreiber. The interviews number around 15 over a span of a few weeks and grew increasingly shorter as he got weaker. It was published in French speaking countries where it went almost immediately to the top of the best seller list. Dave was able to see news of the publications. He didn't want to let you, his fans and the readers of his Anti-Cancer book, down and he doesn't.

Not the Last Goodbye: On Life, Death, Healing, and Cancer
by David Servan-Schreiber MD PhD by Viking Adult
Hardcover ~ Release Date: 2011-11-17
List Price: $22.00
Our Price: $10.45
Buy Now"In the last months of his life, Dr. David Servan-Schreiber gives us a rare glimpse at the universal experience of dying and reveals lessons on a good life and a good death. This book enriches our lives and provides comfort for those near the end of life and those who care for them. Dr. Servan-Schreiber encourages us to seek ''calm'' and be mindful of ourselves and the world around us. In this way, we will be healthier and so will the planet." (-Lorenzo Cohen, PhD, Professor and Director of the Integrative Medicine Program 20111021)
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Meeting Next Week
| Where the Answers are Hard to Find
The Beam News Presentation this coming Wednesday, February 1, 2012 is on "Questions on Proton Therapy where the answers are hard to find." It will be held between 10:00 am and 11:15 am in the Proton Center large Conference Room. The speaker will be Dave Stevens, one of our patients and a leader of the ProtonPals.
Whether you're currently a patient at the PTC or a Proton Center Alumnus, you're invited.
In his presentation, Dave will share his experiences and answer these questions:
■What happens to my PSA after Proton Therapy is over?
■What warning signs should I be on the lookout for?
■How can I tell if I am low risk, intermediate risk or high risk? And risk for what?
■Are there any side effects from Proton Therapy after I've "rung the gong?"
■Do the treatments continue to work after my 39 sessions are done?
■Why is a Gleason score so important? What does it look like under a microscope?
■What is the difference between a Gleason 7 (4+3) and a Gleason 7 (3+4)?
■What's next after if the protons don't kill all the cancer? What are the stages?
■What does it look like under a microscope when the protons kill cancer?
■If Proton Therapy kills the cancer, why do some men have hormone therapy?
■Doesn't the high dose radiation we get at the PTC make hormone therapy obsolete?
■Since I've been on Lupron, I'm having ED, mood swings, hot flashes and I just feel like sitting in my recliner all day. Does this happen to anyone else?
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In Texas Smaller is Better | ProTom International is installing a proton center in Michigan
Construction is progressing rapidly on the 3 bay center in Flint and after integration, commissioning and FDA approval, patient treatment is targeted for December 2012. read more
ProTom has other projects on the drawing board and one is the UK first proton center. The ProTom design with its small footprint and modular design is ideal for large urban center like London.
What's unique about this technology is that the size and weight of the compact accelerator is in great contrast with previous generations like the one built by Hitachi at MD Anderson Cancer Center and others by IBA in North America. The ProTom System is smaller, more capable and represents a new approach that could lead to even more accurate targeting of the proton beam. It will use protons for tomography. At the MDA Proton Center, our doctors precede proton therapy by mapping each patient's lower torso and prostate with a 3D scan that uses X-ray technology to target where the protons should go. By contrast, Pro Tom's system will use protons in its 3D scan that targets where the protons go. This change is believed to provide more accuracy and will need less margin.
If I understand it correctly; simulations will be done using proton beams in one of the bays. Competition for other compact systems is on full steam and Mevion (Still River Systems) is commissioning the one in St. Louis and IBA of Beligium who building Proteus One, is installing a single-room system for Shreveport, Louisiana. |
More Compact Proton Centers
| McLaren Health System in Flint Michigan
McLaren Health System, a large private health care provider in Michigan with a ten-hospital system, is building a proton therapy center in Flint with ProTom's technical help. Day to day work on the site, expected to be finished in the fall, can be seen by anyone thanks to a webcam the hospital set up to record its progress. But that's not the interesting part. According to McLaren the cost for the whole center - synchrotron plus construction - is only around $65 million, one-third of the original $168 million estimate when McLaren first announced the project. Cost savings mostly come from the synchrotron's(accelerator) dramatically smaller footprint, ProTom said. It weighs 15 tons, making it much lighter than a typical 200-plus-ton cyclotron. There's also less radiation exposure, so less shielding is needed. "the shielding at McLaren at the greatest width is five and a half feet," ProTom's CEO Steve Spotts said.
It's also less of a power hog, an Spotts said the power savings could total "several hundred thousands of dollars" per year. From dotmed article you can read here.
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Did You Know? | Factoid from Advanced Proton Solutions
- It is estimated that 360,000 patients in the United States could benefit from Proton Therapy.
- One Treatment room has the capacity to treat approximately300-350 patients annually.
- There are currently approximately 30 treatment rooms in operation in the United States.
- There are 30 rooms currently in development.
- There is a potential need for 1,120 treatment rooms in the United States.
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NJ Leads Nation in Opposing USPSTF PSA Testing Recommendation |
Governor Chris Christie Signs Resolution Passed
Unanimously by Legislature
The resolution (AJR89/SJR77), "memorializing the Congress of the United States to seek the withdrawal of the United States Preventive Services Task Force recommendation against prostate-specific antigen-based screening for prostate cancer for men in all age groups," was sponsored by Assembly members DeCroce and Joan Quigley and Senators Loretta Weinberg, Joseph Vitale and Fred Madden. It was passed by a vote of 74-0 in the Assembly and 36-0 in the Senate. EDITOR: Our take on this - There are many articles being written about how this issue has been politicized. We would reply that when a task force (the USPSTF) whose purpose is to develop recommendations based on facts, plays loose with the facts and writes a very specific recommendation about not using PSA screening, it's time to stand up and be heard. We made our position known with a letter from Dave Stevens to Dr. Robert Cosby of the USPSTF on November 7, 2011. read the letter Like the mammogram USPSTF flap about 2 years ago (Dec. 2009) which was put on hold with the David Vitter amendment in the US Senate, we need to educate the policy makers, regulators, insurers and other key stakeholders about PSA screening.
In the area of mammograms - The Vitter amendment specifically set aside the most recent USPSTF guidelines, noting that "those issued in or around November 2009" were not to be used in determining coverage requirements.
Read more about the Vitter Amendment. For more information about the facts, see the ProtonPals website and archive of newsletters from last October and November. To learn more about the New Jersey Patient Care and Access Coalition read on at NJPCAC
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The Management of Gleason 6 Prostate Cancer | Is Radical Prostatectomy Surgery the Gold Standard of PCa Treatments?
It's easy to get good results when operating on young healthy patients with low risk prostate cancer. Recent analysis of the data series shows that results don't warrant the gold standard seal as these patients would have done well without treatment. Bob Marckini frames the decision this way in the January BOB Tales as the bottom line: "Why choose something that is painful, invasive, requires anesthesia, and carries risk of infection with a high probablility of impotence and incontinence... when you have an alternative that is painless and non-invasive, cures cancer at least as well, and leaves you with better quality of life after treatment?" Read this and more here http://www.protonbob.com/pdfs/2012-01-BT.pdf
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Influences on Cancer Outcome
| Notes from Dr. Leonardo Cohen's Talk on Recent Anti-Cancer Research and Findings.
There's a lot of information and evidence that nutrition, sedentary behavior, obesity, and stress - social support influences cancer outcome. Between 50 to 70% of cancer can be prevented through appropriate lifestyle choices. For example he cited the Kenfield article published in the Journal of Clinical Oncology published Feb. 2011 showing where physical activity was associated with lower overall mortality and prostate cancer mortality. A modest amount of vigorous activity greater than 3 hours per week may substantially improve prostate cancer survival. Additionally physical activity lowers inflammatory factors, increases anti inflammatory cytokines and inhibits production of pro- inflammatory cytokines. Cytokines are known as the hormones of the immune system and play a role in immune response. The findings cited in the Kenfield article are based on a randomized study using elderly patients. Don't look now but "I are one" according to my age and newspaper headlines. There's an excellent video by Dr. Cohen covering most aspects of the Integrative Medicine department at the MD Anderson web site and slides from this presentation will be made available on the site at some later time.
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If the Man You Love Has Prostate Cancer | Sex and Prostate Cancer: it's not just a physical problem
I went to a workshop at the Houston Jung Center last Saturday and while at lunch I was asked by a woman about the big elephant in the room. You know this is just a term since it's not so big anymore and but it was the catalyst needed to write this brief article. After I got home I sent the prostate cancer patient's wife some information about the best online resources I've found. Regrettably I have few specifics of what MD Anderson has to offer with the exception of a wonderful psychiatric nurse who has presented to our group two or three times. Her name is Mary Hughes and the title of her talk is "You've Lost That Loving Feeling." With a search engine I see where there was a study on Couples Counseling at MD Anderson and video discussing some of the issues. I also used Google Search, I see sections at Mayo and John Hopkins addressing the issue. Here are some key resource sites for your consideration: A Prostate Cancer Forum for Ladies Only An international site for women only and has over 948 members and 90,000 posts. His Prostate Cancer many articles about intimacy after prostate cancer treatment. How about a home study course including prostate health coaching. Rabbi Ed Weisberg, who's a prostate cancer survivor, has large website which seems to have grown tremendously since I last looked at it. It is called conquerprostatecancer and a large part of his focus is about intimacy after illness and surgery.
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About the ProtonPals Organization Thanks for subscribing to the newsletter and using the ProtonPals website. We won't sell or give your addresses to anyone. You'll receive one or at most two mailings a month from us. If you're a new subscriber you may want to note that the past newsletters are archived back to May 2009.
We're a group who chose proton beam therapy to cure their cancer and were treated at University of Texas M.D. Anderson Proton Therapy Center in Houston, Texas. The "Pals" formed a network in order to:
Stay up to date with treatment cure resultsProvide support to others and Center activitiesBe informed on any side- effectsPromote proton radiation since it's widely regarded to have a significant advantage over conventional x-rays.Attract and nurture more Pals who support our cause, patient-to-patient and friend-to-friend
Support ProtonPals by letting us know how you're doing. That is so important to newly diagnosed men and their wives and partners. As a former patient we'd all welcome your help in getting the word out about proton radiation and how you're doing. Please donate using the Donate Icon below or mail a check made out to ProtonPals, Ltd.(we're a tax deductible non-profit) at my home address. Read more about about it on the website How to Help - Giving
Sincerely,  Joe Landry, Founder ProtonPals, Ltd. ProtonPals, Ltd. is a 501 (c) (3) public charity incorporated in Texas.
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