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Volume 7 Issue 10  

 

topDecember 2011 

From The Director Heading

DearGreetings!

From our families to yours...

  

Mutlu Bayramlar (Turkish)

Ii holide eximnandi (South African Xhose)

Beannachtaí na Féile (Gaelic)
Hau'oli Lanui (Hawaiian)

Selamat Hari Raya (Indonesian)
Happy Hanukkah
Happy Kwanzaa


Happy Holidays!

 

May 2012 be the beginning of a better tomorrow for you and your family. 

  

 

-Jane A. Walker

Executive Director

 

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Resolution Achieved!

 

About this time of year we all begin to squirm and contemplate last year's resolutions we made and never achieved. Sometimes we even put on an extra push in December, just to say we at least tried.

 

Well, the MCF website has been one of those New Year's resolutions that's been at the top of our list for some time. Each year we would put it back on top and make it a priority-but then other priorities would bubble up, putting the website further down on the list.

 

No more! We are proud to invite everyone to check out our new MCF website, www.mdcoalition.org, that went live on Dec. 8, 2011 (made our 2011 New Year's resolution just under the wire).

 

The website has lots of new features, including our clickable Navigating Systems of Care chart-when you click on an agency, it takes you to a description of the agency, as well as a link to the agency website. In this way, families can better understand and navigate a very complex system.

 

In addition to the chart and description of agencies, you will find lots of resources and useful information about mental health issues for children, including diagnosis, medication, hospitalization and more.

 

Check it out and let us know what you think. E-mail us at info@mdcoalition.org. We welcome your feedback, but please don't ask us about 2012 New Year's resolutions!

 

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The Memories Linger

 

The MCF 12th Annual Luncheon was held Dec. 9, and some might say it was a tearful event. The focus of the luncheon was honoring military families and we were delighted to host a table of families from Fort Meade and to have Mrs. Audrey Rothstein, wife of the post's garrison commander, as our guest reader. This year's book selection, A Paper Hug, brought tears to everyone's eyes as Mrs. Rothstein read about a little boy whose father was being deployed. Each guest at the luncheon also wrote a personal holiday note to a service member that was mailed that afternoon through the Red Cross Holiday Mail for Heroes Program to members of the military serving abroad or in veterans' medical hospitals.

 

 

We also were pleased to present our 2011 awards to individuals who have made significant contributions to furthering the voice for families and youth. Robyn Horsey, left, was presented with the Youth Award and Osvaldina "Dina" Gomes Daley, director of the Caroline County Department of Social Services, second from left, and Dale Oberender, deputy director of the Caroline County Department of Social Services, were presented with the Jan Yocum dé Calderón advocacy award. The Family Leadership Award was presented to Michelle Zabel, right, director of the Innovations Institute at the University of Maryland. Our tremendous thanks go out to all those who came and to those organizations and individuals who provide support for our work. We couldn't do it without you. 

 


Mark Your Calendar for Jan. 24, 2012 JAPMP 

 

It's just about a month away now, so please get out next year's calendar and mark off Tuesday, Jan. 24, to attend our 12th annual Children's Mental Health Day in Annapolis. We have no doubt the dreaded six-letter word, b-u-d-g-e-t, will be at the top of everyone's issues list, as it has been for the last several years.

 

The voices of families and youth are the most powerful tools to influence legislators to protect funding for services for our children. Please join us at the Miller Senate Office Building, Rooms West 1 and 2, beginning with registration and breakfast at 8:45 a.m. We are planning an issues briefing with legislators and state agency representatives and have allotted more than two hours for you to visit your legislators personally.

 

Please remember to make appointments with your legislators before the 24th, between 10:30 a.m. and 1 p.m. if possible! We also are featuring a special program for youth, who will be able to tour the state capitol and watch the General Assembly in session during the issues briefing.

 

You'll need to bring a photo ID to get through security; food and cameras are prohibited and cell phones must be turned off. You can park at the Navy-Marine Corps Stadium off Rowe Boulevard for $5 and take a free trolley shuttle to the Legislative Services stop.

 

For more information and to register, please call 410.730.8267.

 

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Tips for Navigating the Holidaysreportcard    

 

Children with behavioral and emotional disorders can be overwhelmed by the holiday season-bright lights, hustle and bustle, holiday songs, even television and radio advertisements can seem louder and more numerous.

 

Here are some ideas we hope will help you and your families to have a calm, healthy, enjoyable holiday:

 

 

  1. Have an escape plan. It's usually not worth it to stick it out if things are breaking down-even if you miss out on a few treasured rituals with family or friends. Have a time limit in mind from the start, and if things are going well you can always extend your visit-but also you will be ready to go at a moment's notice. If you are away from home, stay in a hotel to give your child a quiet place; if guests are coming to you, make the child's room off-limits so as to provide a refuge.
  2. Don't make holiday outfits mandatory. Sure, people are going to notice if your child is in sweats or a superhero costume while everyone else preens in holiday finery. But it doesn't really matter-your aim is to have as stress-free a time as possible, and fighting over clothing isn't worth the hassle.
  3. Be prepared on the food front. If you can, make sure ahead of time the holiday gathering you're attending will have something your child enjoys-and if not, then be sure to bring something you know he or she will eat. Of course, if you're hosting, you can be sure to have a favorite food or two available. Again, the goal is a low-stress day!
  4. Volunteer to watch the kids. If there's a time the children are off on their own, you can be the one to provide the adult eyes-making it easy to intervene when necessary, as well as to assess your child's level of overstimulation and act accordingly. You also can ensure all children are included in appropriate games.
  5. Bring supplies. Hand-held games, small toys, a stuffed animal, a book or two-even if he or she doesn't play with them, there is comfort in knowing some familiar items are available and may help your child maintain calm.
  6. Keep yourself centered. It's inevitable that holiday gatherings feature a relative who thinks they know best how to parent your child with special needs-and he or she isn't shy about offering opinions and advice. Just keep reminding yourself:I do not have to apologize for being a good parent to my child. You know best what they need and providing it is your responsibility. Period.
  7. Don't overbook. Many children with behavioral and emotional disabilities-especially younger ones-can only handle one or two special festivities during the holidays, so pacing yourself is a good idea. Be selective in accepting invitations that include your child; perhaps you can make arrangements to attend a gathering without your child. Friends and family members may be disappointed, but better one or two successful events than four or five miserable ones!  

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Family Leadership Institutedisabledpplsavingsplan

MCF's annual Family Leadership Institute is slated to run six weekends from March 2 to May 12, 2012, in Columbia, Md.

 

Parents and caregivers of children with behavioral challenges are invited to apply for FLI to learn about leadership, collaboration and advocacy. Throughout the spring, FLI-ers will meet with representatives of state agencies, allied groups, education and legal organizations and support each other as participants learn how to help their children, their families and their communities.

 

Applications are due by Jan. 20, 2012. For more information, contact Carol Allenza at 410.730.8267 or MDFLI@mdcoalition.org.
 

Tax Deductions for Special Educationjan242012

A recent article from The Wall Street Jouranl highlighted tax deductions frequently overlooked by parents and guardians with special needs who pay for special services out of their own pockets. Such services may be supplemental therapy beyond that provided by schools, or even social skills or other similar classes.

 

These are expenses often eligible for deduction; however, many tax preparers and families don't realize the breadth of the medical expense deduction category. According to the article, tax rules allow medical deductions for "diagnosis, cure, mitigation, or treatment...primarily to alleviate or prevent a physical or mental defect or illness" (IRS publication 502).

 

That can include the cost of a school or program if prescribed by a licensed health care professional. It might even cover costs for a special two-year college certificate program for students with severe learning disabilities, such as the Reach program run by the University of Iowa, which costs as much as $40,000 a year.

 

In addition, such therapies as occupational therapy, music therapy, dance therapy, physical therapy, social skills groups and horseback riding may be covered by the medical expense deduction-and if covered, travel costs for the student also are deductible at either 19 cents or 23½ cents per mile. Certain other expenses of both student and parent/guardian also may be covered, according to The Wall Street Journal article.

 

Click here to read the complete article.  

 

Child and Adolescent Bipolar Brain StudyBipolar

 

The National Institute of Mental Health (NIMH) is seeking boys and girls ages 6-17 with bipolar disorder who are not doing well on their current medication(s) to participate in a research study, which includes outpatient assessment, full or partial hospitalization, discontinuation of all current medication, brain imaging and starting new medications at the NIH Clinical Center in Bethesda, Md.

 

No novel or experimental treatments are part of this study. Participants will receive a thorough clinical evaluation and must meet the following conditions:

  • Currently in treatment for bipolar disorder with a psychiatrist who agrees it is appropriate for the child to participate in the study;
  • Psychiatrically unstable on current medications; and
  • Able to fill out daily self-rating forms and cooperate with study procedures (includes genetics study, MRI, neuropsychological and behavioral testing).

 

There is no charge for participating in this study; travel and lodging expenses are paid for by NIMH. For more information, call 301.496.5645.

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ADHD StudyADHD
 

The Kennedy Krieger Institute in Baltimore is seeking parents/guardians of children ages 3-17 who have been diagnosed with Attention-deficit/Hyperactivity Disorder (ADHD) to participate in a short-term research study to evaluate the social, academic, emotional and functional outcomes of such children.

 

Participants will be asked to complete two online surveys six months apart. Each survey will take about 10-15 minutes to complete and will ask questions about the child's symptoms and the impact of those symptoms on the child. Parents/guardians also will be asked to report on treatment options they have pursued.

 

Responses will be kept strictly confidential and only aggregate data will be reported from the study. Participants will receive a $5 Target gift card upon completion of each survey. You can access the survey by clicking here.

 

For more information, contact Koriakin@kennedykrieger.org or call 443.923.7927.

 

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Upcoming Eventsevents 


Winter Art Camp-Dec. 26-29, 11:30 a.m.-2 p.m. Youth and young adults ages 16-24 who have dealt with mental health challenges are welcome to get creative with drawing, painting and collage making at a free camp that includes a side trip to Brookside Gardens. Preregistration is required by Dec. 18; call after that date regarding space availability. To reserve your space contact Celia Serkin, 301.879.5200 ext. 27 or cserkin@mcfof.org. Montgomery County Federation of Families for Children's Mental Health, 13321 New Hampshire Ave., Terrace B, Silver Spring.  

 

Overview of the Wraparound Process Training-Jan. 11, 2012, 9 a.m.-12 noon. Free training from the University of Maryland's Innovations Institute offers CEUs also for social workers, psychologists and counselors. Administrators, supervisors, family partners, youth partners, facilitators and other cross-system stakeholders are invited to learn about wraparound, including principles and key elements as well as the phases and activities of the process. Click here to register; for more information, call 410.706.0961 or e-mail innovations@psych.umaryland.edu. UMB SMC Campus Center, 620 West Lombard St., Room 349, Baltimore.

 

Child & Adolescent Needs & Strengths (CANS) Training-Jan. 26, 9 a.m.-4:30 p.m. With successful completion of this training, participants will be able to rate items on the Child & Adolescent Needs & Strengths (CANS) measure reliably and have the foundation for utilizing this measure in their work. A certification test will be administered at the end of the session. CEUs are available for social workers. Click here to register; for more information, call 410.706.0961 or e-mail innovations@psych.umaryland.edu. UMB SMC Campus Center, 620 West Lombard St., Room 349, Baltimore.

 

12th Annual Children's Mental Health Day in Annapolis-Jan. 24, 2012, 8:45 a.m.

Please visit www.mdcoalition.org for more information.

 

 

10632 Little Patuxent Pkwy Suite 119 | Columbia, MD 21044 | Phone: 410.730.8267 | Toll Free: 1.888.607.3637 | Fax: 410.730.8331 | E-mail: info@mdcoalition.org | Web: www.mdcoalition.org | Like us on FacebookLike us on Facebook
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