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February 2010 In this Issue:
- Where Are The Cures?
Where Are The Cures? This month the Myelin Repair Foundation is launching a new web site called Where are the Cures? As our friends and supporters know, the mission of the MRF has always been twofold: first to bring a myelin repair treatment to market as quickly as possible and second to demonstrate the ARC model and prove that medical research and drug development for all diseases can be accelerated. As I travel across the country and talk to supporters and others interested in our work, it has become clear to me that while there is a small core of individuals and organizations who understand the roadblocks that are limiting the output of patient treatments, most patients and their families remain unaware of how the current system is failing us. The MRF is not alone in its belief that the current system for medical research is broken. Many others have written and commented on where things have gone wrong. Some have attempted to create change. But to drive greater change, many more need to be aware and let their voices be heard. This was the genesis of the Where are the Cures? web site. WhereAreTheCures.org is dedicated to educating all Americans about the current state of the medical research enterprise, the barriers that are slowing the delivery of patient treatments, and the innovators across the value chain who are challenging the status quo. The site provides a meeting place where patients, their families and all others can learn more and collectively raise their voices to gain momentum for change. You can help us tell spread the word about the need for change. Visit www.WhereAreTheCures.org today. Sign the Patient's Manifesto and ask your friends and family to do the same. You can make a difference.
Scott Johnson
Professor Brian Popko's New Mouse Model of MS
Dr. Popko and colleagues identified a gene called ZFP191 as being necessary for the development of oligodendrocyte cells, which in their fully mature form produce myelin. The researchers found that mice harboring a single mutation in ZFP191 display tremors and seizures, caused by a severe deficiency in CNS myelination. ZFP191 appears to be the first factor identified to be critical for the myelinating function of oligodendrocytes. Read more...
The Myelin Repair Foundation Expands Its Advisory Boards Last month the MRF named five new members of its senior advisory groups. "If you look at the combined scientific and industry horsepower on our staff and advisory boards, you'd see an organization that looks more like a biotech than a typical non-profit research foundation," says MRF President Scott Johnson.
Our Research on the Blood-Brain Barrier in MS
Cleveland Clinical Trial on Mesenchymal Stem Cells We recently learned about a Phase I Clinical Trial beginning at the Cleveland Clinic using mesenchymal stem cells. This trial is based on research funded by the Myelin Repair Foundation at the laboratory of Professor Bob Miller's at Case Western University.
Thank You To MRF Supporters This Past Month We're constantly amazed at the generosity and energy of our supporters. We would like to recognize Ania Brooks who celebrated her 50th Birthday with a Facebook Causes Birthday Wish. She raised $100 for the the Myelin Repair Foundation online. You can do the same by creating a Wish on Facebook. Colistie Harkness won her company's Charity Showdown in January with a speech about her experience with MS, its symptoms and also about her hope in the MRF. She won based on her public speaking skills and the content of her speech. Read more... Richard Cooper ran a marathon in honor of his sister Kellye and in memory of his father-in-law who passed away due to MS Read more... Rick Bone and Deb Kelson are auctioning off a beautiful blue acoustic guitar signed by 16 musicians on eBay this week. They will be sending us 50% of the proceeds from this signed guitar. Read about their auction on eBay and bid today. Auction ends this Friday, Feb 19. MRF Evangelist Idea: Support the Myelin Repair Foundation when you buy and sell on eBay. Read more... |
Video: Watch the video “Where Are The Cures?” and share with friends. Breaking through to CuresPlug into our BlogRead more and comment at our blog:
Our ProgressRead about our latest progress updates: In the News
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