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UPCOMING EVENTS:
Brown Bags Lunch on Health Reform - Sept 4
On Tuesday, September 4 at noon, we will host a brown-bag lunch at the LFNC offices on health care reform and how it will affect lupus patients and others with existing health conditions, as well as how it is being implemented in California.
What: Brown bag session on health care form. Bring your lunch and your questions!
Where: LFNC offices @ 2635 N First St #211, San Jose, CA.
When: 12 noon.
RSVP: to communications@lfnc.org or call 408-954-8600. Or just show up.
In October, the LFNC will be also holding brown bag sessions on the following topic:
Our brown bags are bring-your-own-lunch small group meetings to discuss specific issues. They're free! We will let you know the exact dates as soon as we schedule it. Be on the lookout!
Benlysta Webcast/Teleconference Series
Presented by Human Genome Sciences/GlaxoSmithKline
Aug 22 | Sep 26 | Oct 24 | Nov 28
8pm ET
Tune in from home!
A different lupus-related topic will be addressed each month such as Benlysta and the infusion process, how to strengthen communications with your doctors, tips for managing lupus, and information about financial assistance.
To register for these free events, call 1-877-423-6597
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Rene Astudillo
Editorial Assistant: Spandan Chakrabarti |
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Could Chronic Exposure to Staph Bacteria be a Risk Factor for Lupus?
 A Mayo Clinic study published in the Journal of Immunology links chronic exposure to the staph bacteria as a possible risk factor for lupus. In the study, mice exposed to proteins commonly found in staph (a bacteria commonly found on the skin and in the nose) developed lupus-like symptoms. Vaidehi Chowdhary, M.D., a Mayo Clinic rheumatologist and co-author of the study describes the next steps:
"We think this protein could be an important clue to what may cause or exacerbate lupus in certain genetically predisposed patients," Dr. Chowdhary says. "Our hope is to confirm these findings in lupus patients and hopefully prevent flares."
If the link is confirmed in subsequent studies, scientists will study whether limiting exposure to the bacteria can prevent development of lupus in the first place.
You can read more about the study here.
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LFNC Announces Series: Moving with Lupus
Building on our initial pilot class last year, and leveraging small grant from the Walmart Foundation, the Lupus Foundation of Northern California is happy to announce a series of exercise classes focused exclusively on patients with chronic pain. Led and developed by Regan Mizuno, a certified personal instructor and lupus patient herself, the classes will focus on reducing pain and giving participants the opportunity to reclaim more mobility. Check out the video below for a quick look.
 | | Moving with Lupus |
The schedule for the classes from this month till the end of this year will be as follows:
- Tuesday, August 28 from 8 pm to 9pm.
- Saturday, September 8 from 11 am to 12 noon.
- Tuesday, September 18 from 8 pm to 9pm.
- Saturday, September 29 from 11 am to 12 noon.
- Tuesday, October 9 from 8 pm to 9pm.
- Saturday, October 27 from 11 am to 12 noon.
- Tuesday, November 13 from 8 pm to 9pm.
- Tuesday, November 27 (burn your turkey off class!) from 8 pm to 9pm.
- Saturday, December 8 from 11 am to 12 noon.
Best of all, while the LFNC will be happy to accept donations, there is no cost for the classes for participants! Sign up here! Location TBA, schedule subject to change.
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Pharmaceutical Giant Partnering with Bay Area Biotech Company to Focus on Lupus
Pharmaceutical giant Pfizer has teamed up with South San Francisco biotech company Nodality to focus on lupus. Nodality uses an approach licensed from Stanford University that involves the use of flow cytometers to track disease-related molecules to help doctors choose the proper treatments for patients.
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35 years. $35,000. Help us get there!
Thirty-five years ago, the Lupus Foundation of Northern California was established to promote greater awareness about this little-known disease called lupus, assist patients and their families with their needs, and encourage novel research towards more effective treatment, and possibly a cure for, lupus.
Since the day we opened our doors, it has truly been a privilege to be a witness not just to the trials that lupus patients face but their triumphs, too. Thank you for letting us be a part of your lives.
As we celebrate our 35th anniversary, we are launching our fund campaign with a goal of raising $35,000. We need your help to get there. You have always been there for us, and we hope you will join us in this effort. As you can see on the chart above, over 90% of your contributions go straight to services, as we continue to strive to keep that focus. Please donate online, or if you prefer to donate by mail or fax, download this form and mail or fax it back with your generous donation to our office.
Recent developments in lupus research continue to give the lupus community renewed hope not only for the best quality of life among those living with the disease, but eventually a life without lupus.
LFNC is a 501(c)(3) charity (our non-profit tax ID number is 94-2469741), and your donation is tax deductible to the fullest extent of the law. Please make your contribution today!
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Still Seeking Lupus Patients for Clinical Trial of a New Investigational Medicine
 Male and female patients with Systemic Lupus Erythematosus (SLE) are being sought for a clinical study looking at a possible benefit of an investigational medicine. The study site is in Roseville, California and in the Sacramento area and will last approximately 56 weeks.In order to be eligible for the study, patients must be:
- Between the ages of 18 and 75
- Experiencing active disease during the time you join the study
- Receiving treatment for SLE
- There are also some other medical criteria that must be met for all patients wishing to join the study. A number of screening tests will determine suitability for the study.
If you or someone you know from the Sacramento area may benefit from this study, please contact Sharon Harp of Med Investigations directly at (916) 966-7452. |
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