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UPCOMING EVENTS:
Heads up for Brown Bags!
From August through October, the LFNC will be holding brown bag sessions on the following topics:
- Lupus self management
- The impact of health care reform on lupus patients.
Our brown bags are bring-your-own-lunch small group meetings to discuss specific issues. They're free! We will let you know the exact dates as soon as we schedule it. Be on the lookout!
Benlysta Webcast/Teleconference Series
Presented by Human Genome Sciences/GlaxoSmithKline
Aug 22 | Sep 26 | Oct 24 | Nov 28
8pm ET
Tune in from home!
A different lupus-related topic will be addressed each month such as Benlysta and the infusion process, how to strengthen communications with your doctors, tips for managing lupus, and information about financial assistance.
To register for these free events, call 1-877-423-6597
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Rene Astudillo
Editorial Assistant: Spandan Chakrabarti |
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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35 years. $35,000. Help us get there!
Thirty-five years ago, the Lupus Foundation of Northern California was established to promote greater awareness about this little-known disease called lupus, assist patients and their families with their needs, and encourage novel research towards more effective treatment, and possibly a cure for, lupus.
Since the day we opened our doors, it has truly been a privilege to be a witness not just to the trials that lupus patients face but their triumphs, too. Thank you for letting us be a part of your lives.
As we celebrate our 35th anniversary, we are launching our fund campaign with a goal of raising $35,000. We need your help to get there. You have always been there for us, and we hope you will join us in this effort. As you can see on the chart above, over 90% of your contributions go straight to services, as we continue to strive to keep that focus. Please donate online, or if you prefer to donate by mail or fax, download this form and mail or fax it back with your generous donation to our office.
Recent developments in lupus research continue to give the lupus community renewed hope not only for the best quality of life among those living with the disease, but eventually a life without lupus.
LFNC is a 501(c)(3) charity (our non-profit tax ID number is 94-2469741), and your donation is tax deductible to the fullest extent of the law. Please make your contribution today!
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New guidelines for treating lupus nephritis
Previously, we told you about entertainer Nick Cannon, who suffers from lupus nephritis. Lupus Nephritis, or lupus of the kidney is
 one of the more severe forms of lupus, even with close monitoring and treatment. It is with its severity in mind that the Lupus Foundation of Northern California welcomes guidelines for treating lupus nephritis from the American College of Rheumatology (ACR) published in the ACR official journal The Rheumatologist. Developed by a panel of experts from nephrology and rheumatology, the guidelines provide detailed recommendations for screening and treatment. Bevra Hahn, MD, professor of medicine and chief of rheumatology at the David Geffen School of Medicine at the University of California, Los Angeles, was chair of the guideline development committee and first author of the document. Dr. Hahn is a grant recipient of the Lupus Research Institute, the leading national lupus research organization LFNC is proud to partner with. You can learn more about the new guidelines here. As the guidelines themselves make clear, only your physician or your medical team can decide the best course for you, if you are suffering from lupus nephritis or any other form of lupus.
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Still Seeking Lupus Patients for Clinical Trial of a New Investigational Medicine
 Male and female patients with Systemic Lupus Erythematosus (SLE) are being sought for a clinical study looking at a possible benefit of an investigational medicine. The study site is in Roseville, California and in the Sacramento area and will last approximately 56 weeks.In order to be eligible for the study, patients must be:
- Between the ages of 18 and 75
- Experiencing active disease during the time you join the study
- Receiving treatment for SLE
- There are also some other medical criteria that must be met for all patients wishing to join the study. A number of screening tests will determine suitability for the study.
If you or someone you know from the Sacramento area may benefit from this study, please contact Sharon Harp of Med Investigations directly at (916) 966-7452. |
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Help Us be Recognized for Our Hard Work
We could be the top nonprofit on the list of Great Nonprofits for the health category. How cool would that be? If you have been involved with the Lupus Foundation - whether as a client, volunteer, donor or supporter - you know how important the work we do with your help is for the Northern California Lupus community.
You can make sure that LFNC gets the word out on lupus to even more people by giving us a great review. If you believe that together, you and LFNC make a difference, please click here to give us a great review with 5 stars! We are currently competing for the top spot in the health nonprofits category. (Last time we checked, we were No. 4 on the leader board across the U.S.!)
In 2010, the Lupus Foundation of Northern California was among the Top 15 Nonprofit Organizations in the entire U.S. in a campaign launched by GreatNonprofits. With your help, we can continue with this distinction in 2012!
Won't you help us participate in the awards by posting a review of your experience with us? All reviews will be visible to potential donors and volunteers. It's easy and only takes 2 minutes!
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