 You could win a pair of free movie tickets just by "liking" us on our new LFNC Facebook page! Drawing every two weeks. Click HERE to "like" us. A great way to connect with the lupus community: patients, families, friends, supporters!
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REGISTER NOW
FOR THE 18TH ANNUAL
5K RUN AND WALK FOR LUPUS
Sunday, June 10, 2012 | West Valley College, Saratoga
Also announcing...
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"DOUBLE THE PACE" FUND CAMPAIGN
As of February 1, 2012, we have reached 51% of our goal. Please help us reach our goal of $68,000 by June 30, 2012.
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Rene Astudillo
Editorial Assistant: Spandan Chakrabarti |
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION 
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All About TTP
Some diseases and conditions, INCLUDING LUPUS, can possibly cause or lead to Thrombotic thrombocytopenic purpura, or TTP, a blood disorder that causes blood clots to form in small blood vessels throughout the body.
Blood clots can limit or block the flow of oxygen to the brain, kidneys and heart, causing serious health problems. TTP can also affect the level of blood platelets which help form blood clots. With decreased platelets, bleeding problems can occur inside the body, underneath the skin, or from the surface of the skin.
TTP, though rare, can be fatal or cause lasting damage such as brain damage or stroke if not treated right away. Treatments for TTP include infusions of fresh frozen plasma and plasma exchange -- both of which have greatly improved the outlook of this disorder.
To learn more about TTP, types of TTP, causes, diagnosis and treatment, click HERE.
 In last week's newsletter, we talked about the late J Dilla, famed American record producer who passed away from lupus and TTP.
Also, in one of our featured videos on the LFNC YouTube Channel, Evanne Grate, a Web designer from San Francisco and co-facilitator of our San Francisco subchapter, talks about her experience with lupus, including TTP which almost cut her life short. Click below to watch video.
 | | A New Purpose In Life |
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THE HANGOUT this Saturday!
The Hangout, a group by and for young adults concerned about lupus meets this Saturday, February 18, 2012, starting at 1pm at the LFNC Office. Anyone interested in a safe and supportive group environment where young lupus patients and their friends come together to share their concerns, hopes and experiences is welcome to attend (and you can literally just hang out!) Details HERE.
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CLINICAL TRIALS
Interested in participating in a clinical trial for lupus treatment or other disease studies and research?
The National Institutes for Health has a web site that talks about clinical trials, ongoing research and how individuals can participate. |
2012 Spring Lupus Mini-Conference : "Outlook for Lupus Treatment and Research" Saturday, April 28, 2012 | 11am-4pm | Kaiser Redwood City
R. Elaine Lambert, MD,
heads the list of speakers and presenters at LFNC's 2012 Spring Mini-Conference on April 28, at Kaiser Permanente in Redwood City. Lambert is Adjunct Clinical Professor of Medicine at Stanford University School of Medicine in Stanford, California. She works in a private rheumatology practice at Sports Orthopedic and Rehabilitation Medicine Associates in Redwood City. Lambert will talk about "Early-Adaptor Experiences in the Treatment of Lupus: Benlysta and Other Drugs in the Pipeline."
Click HERE
to download CONFERENCE REGISTRATION FORM.
CEU credits available to RNs.
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You asked for it, you've got it!
(Overwhelming choice based on our recent poll)
LFNC'S CHARITY CAR DRAWING
Win this 2012 Honda Civic Sedan LX plus a chance to win early-bird drawing
prize of a 7-day Cruise to Mexico or the Caribbean on Holland America Line! See DETAILS
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