In This Issue
Independent Living Conference in Montenegro...
Real progress on Independent Living in Serbia...
News from Slovenia...
Role model...Marina Vujačić from Montenegro...
Introducing ENUSP...
UK is Breaching Human Rights of Disabled, UN told...
TANDIS (Tolerance and Non-Discrimination Information System)...
Able Tourism...
Annual meeting of Fundamental Rights Platform...
Call for Input into an Online Youth Network...
Presentation of the book on The family dimension of the UN Convention...
ENIL Youth Study Session in October 2012 - Meet the Team...
Zero Project: Call for Good Policy and Practice...
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Independent Living News! Editorial team
Jamie Bolling
Ines Bulic
Juan Benages
Danci Maraz

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    30th April, 2012


Enil logoIndependent

Living News!

European Network
on Independent Living

Nothing about us without us!


Editorial Team Update


  Welcome to another issue of Independent Living News! This time with a special focus on countries from the East Region of ENIL. 

We open this issue with a memorandum on Structural Funds by Prof. Gerard Quinn from the University of Ireland, Galway, highlighting the importance of using EU funding in line with the UN Convention on the Rights of Persons with Disabilities.

 The new Structural Funds Regulations 2014-2020 are currently negotiated in the Council of the EU and unfortunately last week the Council made a decision to remove ex ante conditionalities on anti-discrimination, gender equality and disability from the proposed Regulations. These ex ante conditionalities would ensure that EU funding is not used to discriminate against people with disabilities and other groups. 

  ENIL will be lobbying the European Parliament to ensure that the final Regulations contain all the important provisions. 

  We hope you will support us in this.



Download Structural Funds & Disability Memo  



We would like to inform you about an upcoming conference with the working title "Start up for Independent Living in Montenegro" that will take place in Bar, Montenegro on 24th and 25th May 2012. The conference will be co-organised by ENIL (European Network on Independent living), YHD (Association for Theory and Culture of Handicap) and UMHCG (Association of Youth with Disabilities of Montenegro). YHD is a nongovernmental organisation from Slovenia that has run a programme of Independent Living for disabled people for more than 16 years now including personal assistance for disabled persons. UMHCG runs projects providing support and opportunities to disabled young people to their enhance personal, educational and professional development.  



  1. Three CIL members (from Sombor, Smederevo and Leskovac) are on different lists for local parliament elections in May 2012.


The impact of having Gordana Rajkov as the first disabled MP has led more disabled people to become involved with politics, initially at a local level. Rajkov has influenced the disability movement and policy development at both national and level level, promoting the idea that  "disability could be the investment - not a burden".


CIL members - Julijana Catalinac from Sombor, Dusko Savic from Smederevo and Svetislav Marjanovic from Leskovac are on the lists of three political parties and have very good chances to become members of local city councils. There are four other DPOs in other Serbian cities who have become politically active for the next elections in May 2012.


This time we would like to tell you about about what has been going on over the  past few months in connection with our Independent Living programme. At the end of last year after a long battle lobbying politicians and raising public awareness, we finally succeeded in changing the Law on Ownership Transformation of the Slovenian Lottery, which changes the composition of the Council of the Foundation.   

Role model


Marina Vujačić from Montenegro



We are very pleased to introduce ENUSP to ENIL members. Please find some brief information about us below:


Introducing ENUSP

The European Network of (Ex-) Users and Survivors of Psychiatry (ENUSP, took shape in 1991 to connect mental health service users and survivors of psychiatry across Europe, and to advance our human rights and interests. "(Ex-)user and survivor" means a person who self-identifies as someone who experiences madness and/or mental health issues, and/or  has used or survived psychiatry or mental health services.


Today ENUSP brings together grassroots national, regional and local user/survivor groups and individuals across 39 countries - from Georgia to Portugal, Finland to Greece. Our network is 100%-owned and controlled by users and survivors, and  free from interference by others, including the pharmaceutical and medical industries.



Source:  Stephen Naysmith - Herald Scotland


A SCOTTISH campaigner will this morning (2nd April 2012) tell the 

Human Rights Council of the UN that the UK Government is in breach of its human rights obligations to disabled people.

In Geneva today, Dr Pauline Nolan, Policy Officer for Inclusion Scotland

, will submit evidence to a preliminary hearing ahead of a planned review of the human rights record of 14 states, including the UK.



TANDIS (Tolerance and Non-Discrimination Information System) was developed by the OSCE Office for Democratic Institutions and Human Rights (ODIHR). The ODIHR serves as a collection point for information related to tolerance and non-discrimination on the basis of information received from the participating States, and in co-operation with civil society and intergovernmental organisations. TANDIS was developed by the ODIHR's Tolerance and Non-Discrimination department in order to share and promote practices and initiatives and to provide information on issues related to tolerance and non-discrimination throughout the OSCE region.  



The new Q Mark in relation to ABLE Tourism was launched on 12th April 2012 by Minister Phil Hogan TD in Dublin, Ireland.


Able Tourism is the new Q Mark for accessibility created by Excellence Ireland Quality Association, the guardians of the Q Mark, in association with Fáilte Ireland. Their aim is to become global trendsetters by turning Ireland into the first ABLE destination in the world.


The Fundamental Rights Platform (FRP) of the European Union Agency for Fundamental Rights (FRA) had its two day annual meeting in Vienna. The annual meeting brings together members of the Agency's network to work in partnership on fundamental rights. This 5th FRP meeting aimed to:

  • encourage a European debate on fundamental rights among different civil society organisations;
  • facilitate knowledge exchange and the sharing of of promising practices among Fundamental Rights Platform participants;
  • inform the work of the FRA about challenges and promising initiatives on the ground;
  • create opportunities for networking and further cooperation between civil society, the FRA and other actors.
Read more... 


International Network for Young Disabled People

We are two disabled young people, planning to set up an international online network for disabled young people aged 16-30, to network, skill and knowledge share. 

We believe that by providing an interactive space for disabled young people to do so will not only allow young disabled people from around the world to share and in turn, learn new knowledge and skills, but also that it will empower disabled young people to connect and create positive change in their communities. 


We intend this network to be built and run by disabled young people, for disabled young people. 


We are contacting you because of your expertise and we would very much appreciate your input. We have created a questionnaire to help us design the site, which can be found at The survey is only 9 short questions and will close on 27 May 2012. 



On the occasion of the International Day of Families COFACE will present together with Ádám Kósa (MEP, Chair of the Disability Intergroup) the new COFACE publication, The family dimension of the United Nations Convention on the rights of persons with disabilities at the European Parliament in Brussels on 15 May 2012, from 16:00 to 17:30.


Background information


With this publication, COFACE aims to highlight the family dimension of the Convention, contribute to its dissemination, support the implementation of the European Commission's European Disability Strategy 2010-2020 as well as the European Parliament's report on mobility and inclusion of people with disabilities drafted by Ádám KÓSA MEP. It also aims at empowering European citizens living with disabilities and their families.


ENIL Youth Study Session in October 2012 - Meet the Team

 The project will entail a weeklong study session at the Council of Europe with the purpose of encouraging and supporting disabled young people to advocate for human rights in their countries and at European level. Participants will have an opportunity to gain a better understanding of disability issues and acquire skills to promote the views of other disabled young  people from their countries. The project team consists of 5 members who have the responsibility for choosing who will  attend the study session at the Council of Europe

and running the session.



Conferencia Valencia 

The deadline for sending good practice has been extended until 15 May.


The European Network on Independent Living (ENIL) is supporting the Zero Project in collecting good policy and practice examples for next year's international conference and report. The focus is on the right of persons with disabilities to work and the deadline to submit nominations is 30th April 2012.