In This Issue
Active Citizenship & Disability - Toward a 21st Century
Fundamental Rights of Persons with Intellectual Disabilities
DREAM - Disability Rights Expanding Accessible Markets...
INNOSERV research project for innovative social services...
Common European Guidelines on De-institutionalisation...
ENIL is active in the FRA...
NNDR launched a new webpage and a blog...
How the media is demonising Disabled People in Europe...
Jim Mansell Recognised for Outstanding Contribution to Social Care...
Recent reports...
Freedom Drive Road Movie Contest Reminder...
ENIL Hearing on Cuts at the European Parliament...
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Independent Living News! Editorial team
Jamie Bolling
Ines Bulic
Juan Benages

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    19th December, 2011


Enil logoIndependent

Living News!

European Network
on Independent Living

Nothing about us without us!


Editorial Team Update


Greetings ENIL members and supporters! 


This newsletter, the last for 2011, is a special edition covering the subject of research. We introduce the projects with which ENIL is or has been involved this past year. There are also some references to other recent reports that we consider interesting and important as well as to the disability research networks: NNDR and ANED.

ENIL also takes the opportunity to wish everyone a great holiday season! We are looking forward to another year of work even though some of our work at this time is quite discouraging. Cuts are affecting members all through Europe. But this is only more reason to have a stronger and more effective ENIL. Thanks for all the cooperation and support provided to ENIL!.


Jamie Bolling 

ENIL - Executive Director 


National University of Ireland Galway's Centre for Disability Law and Policy

That was the title of the conference presenting the coming book on modern disability services to which ENIL has contributed this year. The book has been written by Dr Andrew Power a former member of the research staff at the National University of Ireland Galway's Centre for Disability Law and Policy ( and will be published in 2012. The book is an international comparison of the relative reform in support delivery models for people with disability. ENIL contributed to the chapters on Sweden and France. The other chapters will cover Canada, USA, UK and Ireland.  



Fundamental Rights of Persons with Intellectual Disabilities and Persons with Mental Health Problems 


John Evans, a member of the Advisory Board of ENIL, is representing ENIL and its project ECCL (the European Coalition for Community Living) in the project 'Fundamental Rights of Persons with Intellectual Disabilities and Persons with Mental Health Problems', launched by the EU Fundamental Rights Agency in 2009 and finishing in 2012.


The project aims to better understand how the fundamental rights of persons with mental health problems and persons with intellectual disabilities are safeguarded in the EU and where violations of rights occur.


Read more... 

DREAM - Disability Rights Expanding Accessible Markets


DREAM Project


ENIL is an Associated Partner in the EU funded project DREAM - Disability Rights Expanding Accessibly Markets, led by the Centre for Disability Law and Policy at the National University of Ireland, Galway. During the 3-year project, ENIL will host two early stage researchers (ESRs) - Ciara Brennan and Orla Kelly - based at the University of Iceland. Ciara is focusing on the Right to Independent Living and the development of user-led personal assistance, and Orla will be doing research on ways to advance de-institutionalisation and community living. Both researchers are expected to join ENIL for up to three months in 2012.  


INNOSERV research project for innovative social services 


The INNOSERV is a research project for innovative social services and was a response to the FP7-Cooperation call FP7-SSH-2011-3 . The call proposed a social platform to be established to suggest innovative research agendas for social services which will help define future research activities. The objectives of the project are:

* Highly communicable 'innovative service examples': to present a solid picture of recently developed innovative practices meeting differentiated needs in the sectors of health, education, and welfare by producing short visual films representing key aspects of innovative service delivery and outcomes (so called 'podcasts').



Through its project the European Coalition for Community Living, ENIL is a member of the Expert Group on the Transition from Institutional to Community-based Care (EEG). The Group, established in 2009 at the initiative of the then Commissioner Spidla, has already produced the Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care (2009). 


ENIL is active in the FRA (The European Union Agency for Fundamental Rights) and supports the research the FRA is conducting. The FRA launched a report on 'The legal protection of persons with mental health problems under non-discrimination law' in October.


The publication analysed how national and international non-discrimination legislation and case law defines "disability" and the consequences of this for the "duty to provide reasonable accommodation" for people with disabilities in employment.


The findings of the comparative legal research showed that people with mental health problems in the EU can benefit from the prohibition of discrimination on the grounds of disability under EU law.



Nordic Network on Disability Research new website

NNDR is a multidisciplinary network of disability researchers. The purpose of NNDR is to advance research and development in the field of disability. The main meeting place for the network is the biennial NNDR conference.

In order to increase the activity between our conferences, the NNDR launched a new webpage and a blog in October of this year. The intention is to have another forum to present and discuss disability issues. All members are invited to follow the blog written by varying authors, and post comments. It is also possible to get updates on the blog sent by RSS feed.


How the media is demonising Disabled People in Europe


Picture shows some UK newspaper headlines in 2011including 'Just 1 in 14 incapacity benefit claimants' is unfit for work' and 'Sick Benefits:75% are faking' along with 'No Respite for Broke Britain'

Extract from the article 'How the media is demonising Disabled People in Europe' by Debbie Jolly


'Disabled people in Europe are losing their battle in the fight for disability rights. While some countries have problems making their governments understand that assistance is needed for the extra costs of disability for independent living, P.A.s, and self determination, in other parts of Europe unfair financial cuts to disability assistance and support are being backed up by a campaign in the media showing disabled people as unworthy of the support they receive. The media do this by calling disabled people frauds.' 


Download full report:  

DOC Format 

PDF Format 



Jim Mansell, Emeritus Professor of Learning Disability at the Tizard Centre at the University of Kent, and a member of the Advisory Council of the European Coalition for Community Living (ECCL), was awarded the SCIE Knowledge Award for Outstanding Contribution to Knowledge in Social Care for 2011. 


Zero Project
The Zero Project is a project of the ESSL Foundation. It allows for a new approach to broad-based advocacy and the work to remove barriers. In 2010 the ESSL Social published its Index Pilot Study.  
New guide for the monitoring process of the CRPD.
The guide was developed as part of a project of the Mental Health Initiative and the Law and Health Initiative of the Open Society Public Health Program, it
offers a detailed look at the rights identified in the UN Convention on the Rights of Persons with Disabilities (CRPD), especially Article 19 of the CRPD. 


If you took part in this year's Freedom Drive and have videos or photos documenting your journey (or your time in Strasbourg), please send them to the ENIL Secretariat - [email protected] - by the end of January 2012.


The most successful documentary will win a stipend to cover some of the costs of participating in the 2013 Freedom Drive, and will be featured during the week-long event.



Save the Date!
9 February 2012, European Parliament


On 9 February 2012 ENIL is holding a hearing at the European Parliament entitled'Defend the Right of Independent Living - How the EU's Austerity Policy Is Undermining the Lives of People with Disabilities'. The hearing is hosted by the European United Left / Nordic Green Left Parliamentary Group.


ENIL and its partner organisations will use the hearing to present evidence about the impact austerity measures are having on people with disabilities in the EU, and will set out actions that can be taken by the European Parliament and the European Commission to address this situation. These will include the ENIL Proposal for the European Parliament Resolution on the effect of cuts in public spending on persons with disabilities in the EU.


Read the ENIL Proposal

DOC Format

PDF Format



In order to improve the ENIL Newsletter in 2012, we have created a short survey. There are only nine questions, so the survey should not take more than five minutes to complete. Thank you in advance for your feedback!.


To complete the survey, please click on this link.