Parkinson Association of the Rockies

 

Betty

Greetings!

 

Upcoming Events 
  • July 11: Yoga for Parkinson's - Denver
  • July 11: Rhythm & Grace Dance - Broomfield
  • July 11: Tremble Clefs - Boulder
  • July 11: PAR for the Course
  • July 12: Yoga for Parkinson's - Boulder
  • July 12: High Intensity Exercise
  • July 16: Rhythm & Grace - Denver
  • July 16: Yoga for Parkinson's - Stapleton

 

Parkinson's In the News

Who should be on our PD Resource List
Do you receive a service specific to Parkinson's disease from an organization or professional that you feel is exceptional? Help the Parkinson Association build our resource list by sharing recommendations with us. Email Lindsay Vassar at LVassar@ParkinsonRockies.org with the name and contact information for your referral suggestions. 
In This Issue
Tell us Your Feedback
Clinical Trials
Class Announcements
Celebrating Independence
Steamboat Springs Support Group
In Your Community
Quick Links

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Find a Neurologist 

Upcoming Events

PAR Classes 

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We would like to thank Teva Neuroscience for it's generous support towards the ParkinsonVoice and our bi-weekly e-news.
Teva Neuroscience 
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Tell us your Feedback!

Over the past year the Parkinson Association has been dedicated to providing new and innovative programs in Colorado. We started the Rhythm & Grace Dance for PD classes, Tremble Clefs, High Intensity exercise and expanded our yoga classes. 

 

What's next? What are you interested in seeing happen in your community? We are here to serve you and in order to do that, we need to know what you think is valuable. Please take 5 minutes to fill out our survey and give us your feedback. Thank you! 

 

To take the survey, please visit here

Clinical Trials

 

Moderate to Severe PD (with wearing off symptoms from Sinemet doses)
Title: A Phase 3, 12-Week, Double-Blind, Placebo-Controlled Efficacy and Safety Study of Preladenant in Subjects with Moderate to Severe Parkinson's Disease.
Investigator: Paul Brownstone, MD | Alpine Clinical Research Center, Boulder, CO
Purpose: The efficacy of Preladenant is to help reduce Parkinson's disease symptoms while preventing worsening of involuntary movements.
Eligibility: Diagnosed with PD and currently taking sufficient doses of Sinemet for 1 year or longer. Ages 30 to 85. Currently having "wearing off" symptoms.
Contact: Beverly Solis, (303) 443-7229
 
COMIRB #00-606
Overview: The purpose of the research study is to determine the effects of two different kinds of speech treatment on certain behaviors in individuals with PD. These behaviors include speech, voice, related communication behaviors, swallowing and body movement. Your participation is voluntary. You will be compensated for your participation. All assessments and treatment will be provided at no cost to you.
Eligibility: We are asking individuals with Parkinson's disease (age range 45-85) to take part in a voice and speech study at the National Center for Voice and Speech -Denver.
Investigator: Lorraine Ramig, Ph.D.
Contact: Heather Gustafson, M.A., CCC-SLP, (303) 534-0324 | National Voice and Speech Center
 
For more information on research trials in your 
area, visit the Clinical Trials section of our website.
The Parkinson Association of the Rockies has a variety of classes for you to partake in. Often times during the summer some classes have breaks or are on hold due to vacations and low attendance. 
 
If you are unsure of a class schedule, please contact the Parkinson Association office at (303) 830-1839 or Info@ParkinsonRockies.org.
Celebrating Independence, by Cari Friedman, LCSW
The 4th of July is celebrated throughout our country, representing our independence. Typically, like many summer festivities, Independence Day is celebrated by having a barbeque or participating in outdoor activities such as hiking, swimming and bike riding. Specific to this holiday are patriotic parades and fire work displays.

As you celebrated this holiday in honor of our national independence, I wonder if your personal independence crossed your mind. With the progression of Parkinson's disease, and aging in general, it is common to need more assistance from others. I want to give you some tips on remaining as "independent" as possible:
 
To read Cari's tips, click here.
New Support Group
A new support group is forming in Steamboat Springs. The first informational meeting will be held on Monday, July 30th at the Yampa Valley Medical Center, in the conference room. All are welcome!
 
Yampa Valley Medical Center, 1024 Central Park Drive, Steamboat Springs, CO 80487
 
For more information about this group,
 please contact Lindarose Berkley, LCSW at (970) 875-1088.
Deep Brain Stimulation, Are you a Candidate?
On Tuesday, July 17th Dr. Brooke Allen and Dr. Claudio Feler will present on Surgical Procedures for Parkinson's and Tremor. 

The program will be held from 5:00 - 6:30pm at Valley View Hospital, 1906 Blake Avenue, Glenwood Springs, CO 81601.  
A light meal will be provided. For more information or to RSVP please contact Janice at High Mountain Brain and Spine Surgery at (970) 384-6770.  

 

Breckenridge Outdoor Educational Center
Parkinson's disease doesn't mean giving up the joy of outdoor activities! The Breckenridge Outdoor Education Center (BOEC) hosts a series of retreats which provide unique physical outdoor experiences in an enjoyable wilderness setting, for people living with Parkinson's Disease. Come join the BOEC August 10 - 13, 2012! 
  • 4 Day, 3 night program based out of the Griffith Lodge in Breckenridge, CO
  • Cycling, Rafting and/or Canoeing, Adaptive Yoga and neuro-specific exercise
For more information visit www.BOEC.org or call 1-800-383-BOEC.
Full scholarships are available.