Parkinson Association of the Rockies

 

Betty

Greetings!

 

Upcoming Events 
  • June 27: Yoga for Parkinson's - Denver
  • June 27: Rhythm & Grace Dance - Broomfield
  • June 27: Tremble Clefs - Boulder
  • June 27: PAR for the Course
  • June 28: Yoga for Parkinson's - Boulder
  • June 28: High Intensity Exercise
  • June 28: Tremble Clefs - South Denver

 

Parkinson's In the News

Who should be on our PD Resource List
Do you receive a service specific to Parkinson's disease from an organization or professional that you feel is exceptional? Help the Parkinson Association build our resource list by sharing recommendations with us. Email Lindsay Vassar at LVassar@ParkinsonRockies.org with the name and contact information for your referral suggestions. 
In This Issue
2012 Programs Survey
Clinical Trials
Mr. Shaky Paws
In Your Community
Quick Links

Find a Support Group

Find a Neurologist 

Upcoming Events

PAR Classes 

Donate Today 

 

Support the programs of 

the Parkinson Association

Donate Today! 

We would like to thank Teva Neuroscience for it's generous support towards the ParkinsonVoice and our bi-weekly e-news.
Teva Neuroscience 
Connect With Us
   Like me on Facebook   Follow me on Twitter   View my videos on YouTube   Visit my blog   PD Life
Give us your Feedback!

Over the past year the Parkinson Association has been dedicated to providing new and innovative programs in Colorado. We started the Rhythm & Grace Dance for PD classes, Tremble Clefs, High Intensity exercise and expanded our yoga classes. 

 

What's next? What are you interested in seeing happen in your community? We are here to serve you and in order to do that, we need to know what you think is valuable. Please take 5 minutes to fill out our survey and give us your feedback. Thank you! 

 

To take the survey, please visit here

Clinical Trials 

 

COMIRB #10-1472
Title: Multi-Center, Double-Blind, Placebo-Controlled Phase II Study Of Pioglitazone In Early Parkinson's disease (FS-ZONE)
Investigator: Maureen Leehey, MD
Overview: This research study plans to study the effect of pioglitazone (Actos) on the progression (change over time) of PD over 44 weeks. The study will evaluate whether pioglitazone (Actos) is safe and well tolerated.
Eligibility: People at least 30+ years old with PD less than 5 years ago on a stable dose of rasagiline or selegiline. Cannot be diabetic.
Contact: Jacci Bainbridge, (303) 724-2614 | University of Colorado, Movement Disorders
 
Motor Fluctuations 
Overview: A 12-week, double-blind, placebo-controlled study to explore the efficacy and safety of an oral medication when combined with increased doses of L-dopa in patients with OFF time and moderate-severe L-dopa induced dyskinesia. 
Eligibility: This 12-week study will evaluate whether the use of this oral medication can increase the therapeutic window of L-dopa in patients whose control of their Parkinson's disease symptoms is limited by the development of dyskinesia's when higher dose of L-dopa are used.
Contact: Breanna Nickels, (303) 357-5445 | Colorado Neurological Institute
 
For more information on research trials in your 
area, visit the Clinical Trials section of our website.
Mr. Shaky Paws Top 10 Recommendations for PWP's 
Be sure your doctor is a movement disorder specialist/neurologist (MDS). 
Even if your doctor is a neurologist, this does not mean that he/she has the experience or education with movement disorders that will enable them to provide the specific care you need. Visit here for a list of MDS's in your state. If your insurance company prevents you from seeing an MDS, let them know that this is a serious problem for you and seek a referral. If you cannot obtain one, let your local support group leader know so they can report it to the regional PD organization for follow up. If you have this type of insurance company problem or if there are no MDS locations in your area, locate a neurologist who has demonstrable experience working with PD.

Exercise
There are many things related to PD that are beyond your control. Getting regular exercise is something you can control that can make a big difference in your symptoms and your quality of life. Establish a plan with your MDS that is appropriate based on your age and condition. Visit here for helpful suggestions regarding exercise and living well.

 
Participate in clinical research trials. 
When you do this you accomplish two things. First, you help with the advancement of knowledge that will lead to a cure. Second, you learn things that may help you. For information on specific studies including availability, location, and timing of research trials visit PD Trials or the Fox Trial Finder
 
To read the rest of Shaky Paws Top 10 Recommendations visit our blog here.
The Our America with Lisa Ling television show produced by and shown on OWN (Oprah Winfrey Network) will be showing a series of stories about family caregivers. They are currently looking for volunteers to follow and film on location for 2-3 days.

According to the Show's Announcement, they are looking for people who can say yes to at least one of the following questions:
  • Will you be moving your elderly parent(s) into your home between July 1st and Aug. 1st 2012?
  • Or are you currently caring for your parent(s) full time in your home? 
  • Does your parent have dementia or Alzheimer's? 
  • Is it difficult to juggle a career, family and the needs of your aging parent(s)? 
  • Did you give up a job or career to care for your parent(s)?
If you are interested in participating or reading more about the project, please visit Oprah's Website. This series has potential to bring more exposure to the often hidden struggles caregivers face while providing much needed care.