Parkinson Association of the Rockies

 

Betty

Greetings!

Upcoming Events

 

  • May 15: Education PAR Excellence - The Heart and Soul of Ritual - Connection
  • May 19: Parkinson's Clinical Research in Colorado
  • June 3: 2012 Parkinson Association Vitality Walk
  • June 7: Tremble Clefs, South Denver Begins
  • June 9: The Doctor Is In, Grand Junction
  • June 16: The Doctor Is In, Colorado Springs

 

PD In the News

 

Volunteers Needed

Volunteers are needed for several mailing projects coming up in the next two weeks. If you are available and interested in helping, please contact Susan Lanzer at (303) 830-1839 or SLanzer@ParkinsonRockies.org.

In This Issue
2012 Vitality Walk
Parkinson's Clinical Research
Research Trials
Support Group Announcements
Community Events
Quick Links

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Find a Neurologist 

Upcoming Events

PAR Classes 

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We would like to thank Teva Neuroscience for it's generous support towards the ParkinsonVoice and our bi-weekly e-news.
Teva Neuroscience 
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Formerly Shake, Rattle and Stroll  
On Sunday, June 3, 2012 the Parkinson Association of the Rockies will host the 10th annual Vitality Walk! This year we are expanding the walk to include two sites: Wash Park in Denver and Lehigh Park in Erie. Two sites, 2,000 steps and one unforgettable experience! 

 

Our goal is to draw more than 1,000 walkers to promote community awareness about Parkinson's disease and raise over $100,000 to support the services of the Parkinson Association of the Rockies. Participants will enjoy music, food and discover new products and services at the Resource Fair. 

 

Walk the walk that connects communities and enhances lives. Walk the walk and let others know that we can do something about PD. Walk the Parkinson Association Vitality Walk.
 
Thank you to all those who have created teams and begun raising funds. There are already 33 teams created but less then 200 individuals have registered to participate. Forward this email to your family, friends, co-workers, neighbors, etc. and encourage your them to sign-up today! Don't forget, dogs are welcome at both sites.

 

Wash Park, Denver - Walk Start inside park near Franklin and Mississippi 
Lehigh Park, Erie - 751 Eichhorn Drive, Erie

 

8:00 am Registration Begins 
9:00 am Walk Start 
10:00 am Resource fair and entertainment (Denver only) 

 

Registration $30/person. For more information or to register visit HERE!
Parkinson's Clinical Research in Colorado
A Discussion of Cutting-Edge Research 
and the Essential Role that Parkinson's Patients Play
The Parkinson's Disease Foundation, the Parkinson Association of the Rockies, the Colorado Neurological Institute and the University of Colorado Medical School invite you and your guests to join us for an educational forum on Parkinson's research and to recognize the contributions of Parkinson's clinical research participants.
 
Clinical trials and studies play a critical role in the development of new and better medicines. Yet, enrollment of patients is one of the top challenges clinical researchers face. Slow and/or low enrollment slows the research process and deters potential funders from investing in research. Across all diseases, 80 percent of clinical trials finish late due to difficulties enrolling participants and nearly one-third of trials fail to recruit a single subject and cannot ever begin. Only one in 10 people with PD takes part in a trial. We can do better.  
 
Date & Time
Saturday, May 19, 2012 | 10:00 AM - 12:30 PM

Location
Bethany Lutheran Church | 4500 East Hampden Ave., Englewood, CO 80113
Located just east of Colorado Boulevard on Dahlia and Hampden in Cherry Hills Village. Please use north entrance. PLEASE NOTE: This is a different location than previous Saturday programs.

RSVP by Wednesday, May 16
Admission for this program is free, but registration is required. Register by calling or emailing Susan at the Parkinson Association of the Rockies at 303-830-1839 or SLanzer@ParkinsonRockies.org.
Exercise, Yoga and Dance Class Updates
Rhythm & Grace - Denver Dance for PD Classes
Join us on May 21st for the beginning of our summer Rhythm & Grace Dance classes in Denver. Classes will continue at the Colorado Ballet, 1278 Lincoln Street, Denver from Noon to 1:15pm.

Tremble Clefs - South Denver Beginning on June 7th
Tremble Clefs at Shalom Cares Wellness Center, 14800 E. Belleview Drive, Aurora, will begin on June 7th from 10:30 - 11:30am. Classes are $5/person.
The Tremble Clefs program focuses on utilizing good breathing practice, louder voice volume and wider pitch range; thus addressing some of the most serious voice symptoms found in people with Parkinson's. Participation in a Tremble Clefs singing program can help address common symptoms of PD through breathing, stretching and posture activities, vocal exercise and rhythm and movement. 

New Yoga Class Beginning in South Denver
Beginning today, May 15th, a new yoga class will be held at Cherry Creek Retirement Village,14555 East Hampden Avenue, Aurora from 10:00 - 11:00am. You do not need to be a resident to attend the class. The class is $2/person. 

High Intensity PAR for the Course
The South West YMCA High Intensity PAR for the Course class has been cancelled due to lack of attendance. This class was held on Wednesday's from 3:00 - 4:00pm. The Low Intensity class will still take place from 2:00 - 3:00pm. 
 
For more information about any of our classes or to register,
please call (303) 830-1839 or email Info@ParkinsonRockies.org.
Research Trials

Colorado Neurological Institute 
Self-Efficacy Learning Program for Recently Diagnosed Parkinson's Patients
Overview:
The purpose of the study is to determine whether the teaching of self-efficacy skills to patients recently diagnosed with Parkinson's disease in monthly support group meetings over a 12-month period will result in better physical and emotional functioning, better quality of life, and more self-efficacy after 12 months.
Eligibility: Diagnosed with PD within 3 years, between ages 30-80, live within 90 minutes of the south Denver metro area, and have not previously participated in a Parkinson's support group.
Contact: Lisa Fox, (303) 783-4974

The University of Colorado
COMIRB # 11-1237
Exploratory study of different doses of endurance exercise in people with Parkinson's disease
Investigator: Margaret Schenkman, PT, PhD
Overview: This study will help us learn more about physical exercise for people who are newly diagnosed with Parkinson's disease (PD) and will help us to better understand what exercise guidelines should be used in the future. This study will compare two aerobic exercise prescriptions to no exercise.
Eligibility: People who are newly diagnosed with PD, between 40-80 years old, have not yet started any medication for PD and do not anticipate starting medication in the next 6 months.
Contact: Lindsey Pederson, Lindsey.pederson@ucdenver.edu, (720) 848-6481

For more information on research trials in your area visit the 
Research and Alternative Therapies section of our website.
Support Group Announcements 
New Support Group: Young Onset Parkinson's Disease 
The Young Onset Support Group is for people diagnosed with Parkinson's disease at a younger age who might also be managing a career and raising a family.

Their goal is to be positive and action oriented about living with PD. They will hear from neurologists, exercise professionals, psychologists and other experts about what they can do to manage and slow down the progression of our PD. The group will learn about special concerns and therapies for young onset PD, and will share tips and personal information on how they are managing the disease while balancing work and family life. The group also aims to make new friends and plan some social events for those interested.

The official time and date of the group meetings is to be determined. Currently they are meeting at a rotation of restaurants and coffee shops as the group grows.

To explore whether this group is right for you and to RSVP, contact Tonia Cliff at toniacliff@frii.com or Katie Strittmatter at kstrittmatter@comcast.net.

 

Roaring Fork Valley Support Group
The Roaring Fork Valley Parkinson's Support Group will meet on Tuesday, May 15th from 5:00 - 6:30pm at the El Jebel Community Center, Mount Sopris Room. The El Jebel Center is located at 0020 Eagle County Drive, El Jebel, CO 81623. This month the group will focus on "Parkinson's Disease: Staying in Motion" with Sally Rubenstein, DPT. For more information please email Info@RoaringForkNeurology.com or call (970) 927-1141. 
Community Events
CardinalCare: The Heart and Soul of Caring
by Jane W. Barton, MTS, MASM, CSA 
 
AARP is pleased to offer an innovative, educational experience for caregivers, care receivers, family members, healthcare professionals, pastoral care providers, and community members. Please join us for a lively discussion and engaging presentation about the experience of caregiving. All are welcome!
 
June 2, 2012 | 8:00 a.m. - 1:00 p.m. 
First Plymouth Congregational Church UCC 
3501 S. Colorado Blvd., Englewood, CO 80113 
 
Lunch Provided | FREE - Registration REQUIRED! 
(Donations Gladly Accepted) 
 
CardinalCare: The Heart and Soul of Caring 
One of the greatest challenges we face in the United States today is effectively and compassionately caring for one another. Whether challenged by illness, disability or the natural process of aging, we will all require the help and assistance of others - professional healthcare providers as well as family and friends. CardinalCare is an affordable, effective approach to caregiving that organizes a group of informal caregivers to provide trusted, sustained and continuous support to an individual or family in need - communal care. Primary caregivers need not feel isolated, alone and exhausted. Family members, friends and community members who are called to share the care transform the experience for all involved. By coming together and sharing the responsibilities of care, we experience the heart and soul of caring. 
 
For more information or to register for this program, 
please visit here or call 1(877) 926-8300.