Parkinson Association of the Rockies

 

Betty

Greetings!

 

Upcoming Events

 

  • April 19: CardinalCare: Community Caregiving Workshop
  • April 28: Semi-Annual Support Group Leader Summit
  • May 15: Education PAR Excellence - The Heart and Soul of Ritual, Connection
  • June 3: 2012 Parkinson Association Vitality Walk
  • June 7: Tremble Clefs, South Denver Begins
  • June 9: The Doctor Is In, Grand Junction
  • June 16: The Doctor Is In, Colorado Springs

 

PD In the News

 

Parkinson's Awareness Month in Colorado

A special thank you to Governor John Hickenlooper and Mayor Michael Hancock for proclaiming April Parkinson's Awareness month in Denver and throughout Colorado. 

 

Let your community know why they should be talking about Parkinson's Awareness Month. Write a letter to your editor about the cause. For a letter template, visit here. For more on the National Resolution from Congress visit here.

In This Issue
Triumph Breakfast
CardinalCare Workshop
2012 Vitality Walk
Support Group Leader Summit
Ask the Doc
Research Trials
Share Your Story
Community Events
Colfax Marathon
Quick Links

Find a Support Group

Find a Neurologist 

Upcoming Events

PAR Classes 

Donate Today 

 

Support the programs of 

the Parkinson Association

Donate Today! 

We would like to thank Teva Neuroscience for it's generous support towards the ParkinsonVoice and our bi-weekly e-news.
Teva Neuroscience 
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Triumph Breakfast

Communities Connected at Triumph

 

On Wednesday, April 11 the Parkinson Association hosted Triumph, a first annual breakfast honoring National Parkinson Awareness Month.

 

The goal of Triumph was to connect with community partners interested in investing in the Parkinson Association's expanding and innovative programs. The program included testimonies from individuals affected by Parkinson's disease who live triumphantly, with special guest speaker, Kirk Hall author of Carson and His Shaky Paws Grampa.

 

Stonebridge Check Presentation

Almost 100 individuals were introduced to the Parkinson Association for the first time at Triumph and over $25,000 was raised. We would like to especially thank Stonebridge Companies for choosing the Parkinson Association to be the beneficiary of their Annual Conference's Silent Auction. During the program Stonebridge Companies presented a check for $10,000.    

 

Special thanks to all those who attend this event and provided support for the programs and services which help those affected by Parkinson's to live triumphantly. We would also like to thank our event sponsors, LandTitle Guarantee Company, Littleton Adventist Hospital and Mentronic for making this event possible. 

CardinalCare Community Caregiving Workshop
One of the greatest challenges we face in the United States today is effectively and compassionately caring for one another. Whether challenged by illness, disability or the natural process of aging, we will all require the help and assistance of others - professional healthcare providers as well as family and friends.
 
CardinalCare is an affordable, effective model of communal caregiving that organizes a group of informal caregivers to provide trusted, sustained and continuous support to an individual or family in need. Primary caregivers need not feel isolated, alone and exhausted. Family members, friends and community members who are called to share the care, transform the experience for all involved. By coming together and sharing the responsibilities of care, we experience the heart and soul of caring.  
 
Program Information Touching Hearts
Thursday, April 19th 
9:00am - 1:00pm 
Most Precious Blood Parish Center 
2225 South Colorado BoulevardDenver, CO 80222
Speaker: Jane W. Barton, MTS, MASM
 
This program is appropriate for anyone currently caring for someone who is living with a chronic illness or anyone who anticipates caring for another person in the future. This program is free, but registration is required. For more information or to register, please call us at (303) 830-1839 or email Info@ParkinsonRockies.org.
2012 Vitality Walk - Enhancing Lives With Every Step 
On Sunday, June 3, 2012 the Parkinson Association of the Rockies will host the 10th annual Vitality Walk! This year we are expanding the walk to include two sites: Wash Park in Denver and Lehigh Park in Erie. Two sites, 2,000 steps and one unforgettable experience! 

 

Our goal is to draw more than 1,000 walkers to promote community awareness about Parkinson's disease and raise over $100,000 to support the services of the Parkinson Association of the Rockies. Participants will enjoy music, food and discover new products and services at the Resource Fair. 

 

Walk the walk that connects communities and enhances lives. Walk the walk and let others know that we can do something about PD. Walk the Parkinson Association Vitality Walk.
 
Thank you to all those who have created teams and begun raising funds. We have heard from Gary Sobol, Boot Camp Warriors Team Captain that, "No team will have more people walking then us." If that's not a challenge to other Team Captains, I don't know what is! 

 

Sunday, June 3, 2012
Wash Park, Denver - Walk Start inside park near Franklin and Mississippi 
Lehigh Park, Erie - 751 Eichhorn Drive, Erie

 

8:00 am Registration Begins 
9:00 am Walk Start 
10:00 am Resource fair and entertainment (Denver only) 

 

Registration $30/person. For more information or to register visit HERE!
Support Group Leader Summit
This year the Parkinson Association is holding two Support Group Leader Summits: April 28th and September 15th. On April 28th we will focus on leadership and community. 

As always, we encourage individuals from groups who have been acting in a leadership role (past or present) or who are interested in acting in a leadership role to attend. 

Summit Details

April 28, 2012 | 11:00am - 3:00pm
Villages at Lowry | 150 Quebec Street, Denver, CO 8023
Lunch will be served  
 
To RSVP, please call (303) 830-1839 or email LVassar@ParkinsonRockies.org. 

Ask the Doc

Do you ever leave  your doctor's office thinking, "Oh, I forgot to ask that question!"? Now you can ask the Parkinson Association and we'll get it answered for you! Submit your questions by April 27th to Lindsay Vassar at (303)  830-1839 or LVassar@ParkinsonRockies.org.

 

Beginning in June we'll publish the answers via video on our website and YouTube. We will announce the beginning of the videos through our e-newsletter in late May. 

Research Trials
Colorado Neurological Institute 
Cogane: We are recruiting newly diagnosed patients for this 34 week trial who have not been symptomatically treated for Parkinson's to participate in this phase 2 placebo controlled study of this neuroprotective agent to potentially slow progression of and treat Parkinson's disease.
Contact: Lisa Fox: (303) 783-4974
 
University of Colorado
COMIRB #10-1311
Title: Functional Connectivity of the Motor Network in Two Major Subtypes of PD
Investigator: Brian Berman, MD
Overview: This research study will use magnetic resonance imaging (MRI) to see how the brain reacts while resting and doing a finger-tapping task while on and off PD medication. Compensation provided.
Eligibility: People with PD between 50-80 years old on a stable dose of PD medication.
Contact: Erika Shelton, (303) 724-5865
 
For more information on research trials in your area visit the 
Research and Alternative Therapies section of our website.

Share Your Story
April is National Parkinson Awareness month. It would be great for you to make your voices heard throughout the community. There are a number of ways you can help the public become aware of Parkinson's disease. You can write letters to the editor or your Congressman making them aware of the needs of the 17,000 people in Colorado who have Parkinson's. It is important to keep the needs of the Parkinson's community in the forefrontRead More

Community Events
Parkinson's Boot Camp - Boulder 
Parkinson's boot camp is a group exercise program designed to improve quality of life functions in people with Parkinson's disease. These include, hand dexterity, improving small step sizes, poor axial mobility, small amplitude movement, stopping speed, walking posture, gait, balance (crossing a mountain stream) and agility. In addition we practice group exercises simulating real life challenges such as getting in and out of a chair in an airplane, movie theatre or restaurant, as well as walking sideways in tight spaces. Significant time is spent on various balancing courses.

Class Details
Monday, Wednesday and Friday
1:15 - 2:30pm
Boulder YMCA | Spirit, Mind & Body Room | 2850 Mapleton Ave, Boulder

Cost
YMCA Members - No Charge
Non-members - $12/visit
*Membership for those not eligible for the SilverSneakers® program is $40/month

For more information about the class, please call (303) 442-2778.

Attention Colfax Marathon Participants... Colfax Marathon

You're participation in this event can support the Parkinson Association of the Rockies

 

Once again the Parkinson Association is a Colfax Marathon Charity Partner. Participation in this event means that you will be a part of one of the nation's largest charity partner programs! And, Parkinson Association of the Rockies keeps 100% of the funds you raise! You can participate in the marathon, half marathon or relay all the while raising funds for the Association.

 

Click here to learn more about the 2012 DaVita Charity Partners Program for the Kaiser Permanente Colfax Marathon. Click here to register today.   

 

Thank you to those who have already signed up!