Happy July
Birthday to...
Marcus Timmerman
7/1/1998
Nicholas Campos
7/5/1998
Kayla Rivera
7/11/1991
Thomas Beck
7/16/1999
Jesse Ray Moore
7/16/2008
Olivia Molchak
7/19/1994
Dante Centofanti
7/26/2002
Chloe Bennington
7/30/2003
Francesca Bagnola
7/31/1995
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Tawnia Beckwith
Matt Simcox
Matt Burke
Janet Gordon
Dave Jackson
Lark Dickstein
Jack Trella
Best Buy Employees
Eric Dess
Celeste Lisko
Dennis Matey
Pat Suchanek
In Memory of Dorothy Kijowski
Will & Lori Bagnola |
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Office Hours:
June, July, August
Tuesday - Friday
10:00am - 1:00pm
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Welcome, to our newest members!
Cody Corvin
Lydia Detweiler
Professionals
Anthony - TriMedical Supplies |
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What is the Buddy Wall?
An area where you and your family can brag a little (or a lot) by creating a poster that tells a story about YOU!Things that can be included on your poster include: family photos, pictures with friends and family, awards, achievements, etc...
Where is the Buddy Wall?
The posters will be on display at the Shops at Boardman Park the day of the Buddy Walk and then will be in the windows of the DSAV Center for Success through National Down Syndrome Awareness month in October.
How do I participate?
Create your Poster on white, blue or yellow poster board no larger than 24" x 36"and bring it to the DSAV office during t-shirt pick-up week August 9th-12th.
What if I have questions?
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Help us reach the Buddy Walk® of the Valley 2010 Goal!
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Goal
$75,000
Raised
$26,623
28 Teams
311 Walkers |  |
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Florida Congressman, Ander Crenshaw continues to gather support for the Achieving a Better Life Experience (ABLE)Act which is to create tax-deferred savings accounts for the disabled.
Contact your local Representative to convene a hearing and vote on the ABLE Act today.
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Down Syndrome: Healthcare Updates for the Primary Care Pediatrician
On line continuing medical education courses (CME) are being offered for physicians to better help them understand
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medical conditions
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healthcare guidelines
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treatment options
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parent questions
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Thank you to our Buddy Walk Presenting, Platinum, Gold & Silver Sponsors!
Your donations help us provide programs, resources, medical services and hope to families in Eastern Ohio and Western Pa.
...with more joining us every day! |
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Filling New Parent Packs
With her school Coordinator
Posing after some Reading
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Hello Members & Friends,
We are thrilled to be bringing Nancy Gianni, the 2009 Chicagoan of the Year, to the Valley on July 27th. Nancy is the founder of GiGi's Playhouse and creator of the i have a voice traveling gallery which we are hosting in July and August. Nancy will be here for TV and radio interviews on the 27th and to speak at the unveiling reception of the gallery. Click here to read more.
We will indeed have a table in the Health & Medical building at the Canfield Fair. Thank you to those who have stepped up to take a shift. We will send out the schedule and your tickets in August.
Be sure to check out the new DSAV store! Proceeds from every item purchased to to the DSAV. So you can own stylish DSAV gear while supporting us too!
Last, but not least, Buddy Walk of the Valley 2010 is closer than you think...just 45 days away! Plenty of great things in store from food and games to a 9 foot stilt-walking clown, local musical groups, DJ Richie D, the Buddy Wall and the i have a voice gallery! Be sure your friends and family register by August 1st for their Buddy Walk of the Valley 2010 t-shirt!
~Kelly |
 Bike Run |
 If you love to RIDE, make plans to join the Quaker Steak & Lube Trivia Bike Run! Saturday, July 24thStart - 11:00am - Austintown Lube End - 3:00pm - Lube in Sharon 100 mile run on a scenic route through Conneaut and ending at the Lube in Sharon. Proceeds from the event go to the DSAV. |
 National Photo Gallery arrives this month |
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The i have a voice traveling gallery is a collection of beautifully shot portraits of children and adults with Down syndrome that captures their wisdom, their strength, their very essence.
Through the artful photography and moving first person accounts featured in this project, GiGi's Playhouse seekd to capture the beauty, depth and essence of individuals with Down syndrome while spreading positive awareness about the diagnosis.
Created by GiGi's Playhouse in partnership with the Chicago-based ideas company BAGBY and Photogrpher Thomas Balsamo, the gallery made its Chicago debut in April 2008. But that is only where the stories begin.
DSAV is proud to be hosting this inspirational gallery in the Mahoning Valley from July 27th through August 23rd at the Eastwood Mall, the Shops at Boardman Park and the Southern Park Mall!
Unveiling of the gallery will take place Tuesday, July 27th at the Eastwood Mall featuring Chicagoan of the year and creator of the gallery, Nancy Gianni.
Be looking for your invitation to the unveiling reception in the mail soon! |
BUDDY WALK ® |
BUDDY WALK ® OF THE VALLEY 2010
How can you help make this the best
Buddy Walk of the Valley yet?
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Volunteers Needed |
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Many of you have asked how you can help with the Buddy walk. Here are a couple of great opportunities:
- Join us for a basket raffle wrapping party on Tuesday, July 13th from 11-1.
- Help stuff 1000 goody bags on Thursday July 29th from 11-1
Join us either or both days at the DSAV Center for Success. We'll have some fun and DSAV will provide lunch! |
Canfield Fair |
Taking the DSAV vision and mission to thousands of people...
...with some fun and freebies along the way!
The DSAV will have a table in the Medical & Health building at the 164th Canfield Fair from Wednesday, Sept. 1st through Monday, Sept. 6th.
We will have the "Low Tone Zone" where fair goers can attempt certain activities with simulated low muscle tone. Plenty of DSAV giveaways too.
THANK YOU to all who have already stepped up to volunteer at the fair, we could use a few more people to take care of the entire six days and not have anyone host the table alone.
Shifts will be:
10:00am - 1:30pm
1:30pm - 5:00pm
5:00pm - 8:30pm.
If you are available, please call the office: 330-726-3728 or e-mail us as soon as possible so we can put the schedule together. |
DSAV offers Opportunities |
DSAV partners with Mohawk area schools
Mrs. Anissa Fracul, Job Coordinator at MohawkHigh School in Pennsylvania contacted the DSAV this past school year regarding a community program involving one of her students, Nicole Gallo. Nicole, who happens to have Down syndrome, is working toward her Diploma in June 2011. In addition to her studies at school, Nicole rotates through various sites throughout the community. Nicole's objective on her rather impressive resume is to "obtain a position in a work environment that will enable me to contribute and further develop my communication, social and office skills."
This past school year Mrs. Fracul and Nicole visited the DSAV Center for Success once a month and through the DSAV Work Inclusive Network (WIN) program. Nicole worked with co-founder, Michele Jones, in volunteering with the LAMP-Literacy, Arts and Math program at the center and also assisted with mailings, photocopying and general office duties. See some photos here.
It was a pleasure to work with Nicole and Mrs. Fracul and we are thrilled to continue this program in the fall. Any area schools that are interested in working with the Down syndrome Association of the Valley WIN program can contact Michele Jones at 330-726-3728 or email her.
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Feeding Issues |
Thrive Place Development Center in Pittsburgh exists to help children with feeding and sensory delays achieve their greatest potential through structured, positive therapy plans.
Thrive Place believes in the power of everyday triumphs. For children struggling with feeding and sensory issues, they offer skilled care and compassion - and to their caregivers, they offer expertise, hope and restorative balance. Everyday struggles can turn into everyday miracles in as little as 2-6 months at Thrive Place.
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Ds Research Study |
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Down Syndrome Research Study
Marcia Van Riper at the University of North Carolina at Chapel Hill is conducting a study, "Adaptation and Resiliency in Families of Children with Down Syndrome", to learn about factors that influence how families respond following the birth of a child with Down syndrome.
If you are the parent of a child with Down syndrome, you are invited to participate. Call 919-966-4284 or email to get a copy of the consent form, a link to the online questionnaire and to get further information about the project.
The project has been approved by the institutional review board for human subjects research at the University of North Carolina at Chapel Hill. If you agree to take part, all information you give will be confidential. No one except their research team will have access to your information. |
NEW DSAV Store |
 Want to show your DSAV support?
Offering a variety of clothing and accessory items, this is the place to purchase DSAV logo items and show your support year-round.
Just some of what is available:
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polo shirts
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fleece items
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hats
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golf towels
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blankets
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aprons
A portion of every sale helps to fund the DSAV mission and vision! Thank you! |
Recycle and Help DSAV |
 Help the Environment and DSAV!
The DSAV has a cartridge, toner and cell phone recycling fundraising program set up through Advantage Cartridge Recycling. Area businesses serve as drop off sites and volunteers are responsible for collecting the cartridges and bringing them to the center for packing and shipping. We currently have drop off points at:
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DSAV Center for Success - Boardman
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Doeberling Muccio Chiropractic - Niles, Kinsman, Youngstown & Warren
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Modern Dental Concepts - Niles and Champion
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GM-Lordstown
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NEO Orthopedics - Warren
If you are interested in helping with this program and know of businesses in your area to serve as collection points please call 330-726-3728 or email us. |
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Our vision is for people with Down syndrome to be active participants in a fully inclusive society.
Our Mission is to provide support, advocacy resources, education and opportunity for those with Down syndrome and their families.
Our Core Values
The DSAV fosters a climate which encourages independence, support, advocacy and opportunity for all individuals with Down syndrome.
We strive to represent the needs of people with Down syndrome and their families to improve quality of life, preserve rights and advance their interests thereby enhancing their status as citizens and enabling maximum independence and participation in the community.
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