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 To support, advocate and be a resource for people with Down syndrome
in Eastern Ohio and Western Pennsylvania.
Down Syndrome Association of the Valley
A Little Something Extra trichrome
Volume 2 Issue 1                                                                                                                                             1/15/10
Top 
In This Issue:
 
 
Join Our Mailing List
 
Quick Links
 
 
We are on Facebook,
join us!
 
 
thanks 
  
Thank You!
 
  Damin Printing Company Rene Damin, Ebensburg, PA
 
Home Elements
Doug Rodgers, Shops at Boardman Park
 
 
In Honor of:
 
Christian Trella
Joan Carradine
 
The Champlin Family Shirley Sibielski
 
Marina Donadio
Barbara New
 
volunteer 

 
 
We have many committees where you can get involved!
Here are just a few:
 
  • Education
  • Healthcare
  • Hospital Liaison
  • TULIP®  
  • D.A.D.S.
  • Buddy Walk
 
E-mail or call the office 330-726-3728 if you want to help! 
 
TaxTime 
 
It's TAX time! 
 
 
Don't forget to visit H & R Block to file your taxes. 
 
As a part of the H & R Block Non-profit referral program, DSAV will receive $25 for every new client that uses H & R Block to prepare their taxes.
  
 Click here for DSAV referral form
 
Print the referral form and take it to your local H & R Block office and help DSAV raise some funds.
Artists 
ATTENTION ARTISTS: 
 
WORLD DOWN SYNDROME DAY T-SHIRT DESIGN CONTEST IS UNDERWAY!
 
If you are an artist with Down syndrome, put your artistic abilities to work and design a T-shirt for World Down
Syndrome Day, March 21st 2010!
 
Create a WDSD TShirt design by hand or by computer using
your choice of art.  
 
 
 
recycle 
 
Don't forget, we still recylce ink cartidges, copier toners and cell phones. 
 
If you would like a collection box or have items for us, contact us. 
goodsearch 
 

Do you GOODSEARCH?
 
By using Goodsearch as your web search engine, you can support DSAV year-round.
 
  ~Simply use the Goodsearch.com search engine for web searches or shopping and we get a percentage of the sale or a penny for each search.   
 
Click on the GoodSearch box above, make sure your charity choice is the Down Syndrome Association of the Valley or DSAV and start searching and shopping!  Thank you!
 
 
supplies 
The DSAV Center for Success is participating in the Giant Eagle Apples for the Student program. Giant eagle provides the opportunity for us to get FREE computer and educational related equipment into our Center.  
 
Register at www.gianteagle.com or 1-800-474-4777
* Enter our ID# 5453
* Shop with a Giant Eagle Advantage Card
 
Each scan of a Giant Eagle Advantage Card will help our DSAV earn FREE equipment through March 19,2010.
 
NDSC 
The 38th Annual NDSC Convention will be held in Walt Disney World, Florida.  July 16-18th.
 
 
Stay warm this winter sporting DSAVwear!
 
 
 

E-mail or call the office 330-726-3728 to place  your order.  Limited sizes available!
 
Public Policy
Fellowship Program
 

The Joseph P. Kennedy, Jr. Foundation is seeking exemplary professionals and/or family members of persons with intellectual or developmental disabilities who are currently working or volunteering in the field of inclusive services and supports for people with intellectual and developmental disabilities for an intensive one-year Public Policy Fellowship in Washington, D.C.

The purpose of the Fellowship is to prepare both early career and veteran leaders to assume leadership in the public policy arena in their home state and/or nationally. The application deadline for 2010-2011 is March 5, 2010 by 5 p.m. EST.

The Fellowship starting date will be negotiated with the successful applicant. The Foundation anticipates up to three fellowships will be awarded for the period July, 2010-June 30, 2011. Click herefor more information.
 
 
 
Hello Members & Friends,
 
Happy New Year and welcome to 2010!
 
We have some exciting things lined up for the new year, be sure to read your e-news to keep up to date.
 
Thanks to all the moms who completed our survey.  We asked, you answered and what resulted is below.  Check it out!
 
Our first legal lecture for 2010, Developments in Special Education will be on Saturday, January 30th with attorney Judith Saltzman from Hickman & Lowder in Cleveland.  The lecture will be from 10:00 until noon at the Center for Success.  See below for details.
 
We are pleased to announce that through additional funds made available, we are able to offer the See and Learn literacy materials to those outside of Trumbull County.   Read Michele's article  to learn more about LAMP.
 
The ARC of NE Ohio is sponsoring a lecture on Waivers and Transistion later this month.  More information is here.
 
The DSAV Family Grant program is open again for the first quarter of 2010.  Click here for details and an application.  Deadline is March 15th.
 
And one final note,
Buddy Walk of the Valley 2010 will be held Saturday, August 14th at the Shops at Boardman Park.  We look forward to another great walk and some fun and exicting additions for your team building and enjoyment that day.  Our first planning meeting will be in February, so stay tuned.
 
~Kelly

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lovegrantDo you LOVE us?
 Write about it and we might win some money!
 
 
Intuit has developed a grant program titled "Love A Local Business", that rewards small businesses with grants up to $35,000.  The winners are determined based on the feedback and praise left by supporters like you.
 
  1. Simply click on the photo above
  2. In the Love a Business Box type in: Down Syndrome Association of the Valley or our zip "44512"
  3. In your own words, say why you love DSAV. 
 
Remember, the judges determine the winners based on the comments.  Be eloquent, be persuasive, BRAG on us!
 
We would love to win the $35,000 grand prize and be able to start a DSAV social enterprise for individuals with Down syndrome right here in the Valley!  But hey, we'll take the smaller prizes, too!
 
We'll keep you posted on how we do and thanks for sharing why you love us!
 

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JAM 

DSAV JAM  (Just About Moms)

Thank you to the dozens of moms that took our survey. 
 
We compiled your responses and you overwhelmingly want regularly scheduled moms group gathering!
 
Our first JAM session will be held Thursday, February 11th at the Austintown Panera from 6:00pm - 7:30pm.  The coffee (or beverage of your choice) is on DSAV!
 
Remember, this is for moms only!  No schedule, no agenda, no pressure!
 
We will discuss locations for future gatherings in 2010 and have the opportunity to chat.
 
Come out and enjoy the evening with other DSAV moms.

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Legal 
DSAV Legal Lecture Series
Developments in Special Education 
with
Attorney Judith Saltzman 
 from Hickman & Lowder
 
 
Saturday, January 30th
10:00am - Noon
DSAV Center for Success
 
 
Lecture is free, light refreshments provided.

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 MaterialsLiteracy Materials Update
 

LAMP - The Literacy, Arts and Math Program offers materials and resources for parents and educators to use in the home, the classroom or at the Center for Success ®. 

 

Through a generous gift from the Estate of Sherry Freda, the Down syndrome Association of the Valley has implemented a Literacy Program for individuals with Down syndrome in our region.  Providing worthwhile materials to meet the learning needs of children with Down syndrome is a major goal of this program. 

 

The first learning program to be implemented in January 2010 was the See and Learn Language and Reading Program.  This program was developed by Down Syndrome Education International which is a global leader in research and evidence based approaches to improving education for those with Down syndrome.  See and Learn supports language learning and reading, number and mathematics, speech and memory development by providing clear, step-by-step guidance through graded activities that are designed to develop specific skills. 

 

These activities can be practiced regularly at home, in groups or in the classroom. 

Contact Michele  if you are interested in learning more about Literacy programs or obtaining a copy of the See and Learn Language and Reading Program for home use.  Resources are provided free of charge to DSAV members and we ask that they be returned once the area of skill is mastered or you no longer need them. The DSAV will gladly provide one set or copy of the program/resource to schools and they are free to duplicate as needed.
 

LAMP "shines a light" on strategic programs and systems that suit the specific needs of those with Ds.  Dates and times may also be scheduled for specific age groups to work on various programs at the

Center for Success ®  or other specified locations.
 

 

 
 familygrant
We are happy to open the DSAV Family Grant program up again for the first quarter of 2010.
 
DSAV families may apply for up to $250 in grant funds for inclusive programs, medical or therapeutic needs or to attend Ds related conferences or programs.
 
 
Deadline is March 15th.  Applications will be reviewed by an independent grant committee.  Approval letters and checks made out to the provider will be mailed within 30 days following the deadline.   
 
 
CCAC
Post-Secondary Education opportunities at
Community College of Allegheny County (CCAC)
 

CCAC continues to expand their skills based offerings to include more subject areas and more locations! 

 
 

If you have any questions about the courses, e-mail

Kimberlee Bonifate or call her at 412-237-6594 

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 UPMC

 
 
The University of Pittsburgh Medical Center (UPMC) and the Down Syndrome Center at Children's Hospital of Pittsburgh are conducting a reserach study of adults (30+) with Down syndrome.
 
 

Please call Sheila Cannon, project coordinator, at the Down Syndrome Center at Children's Hospital (412) 692-7963 or Sarah Clayton at UPMC (412) 235-5485 if you would like additional information.

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Conferences & Seminars 

Waiver

Waiver & Transition Meeting

with Peggy Martin - State Family Advocate DODD
 

Thursday, January 28th

6:00pm - 8:00pm

 

Austintown Library Community Room

600 Raccoon Rd.

 

Hosted by the ARC of Ohio NE Branch & Turning Point Residential

 
 

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InclusiveEd
The PEAL Center's Fourth Annual Inclusive Education Conference
 Building Communities of Peace, Harmony and Respect
 

WHEN: March 16 and 17, 2009
WHERE: Four Points by Sheraton Pittsburgh North, Cranberry Township, PA
 

PEAL conference Brochure
 
 
 

Visit the PEAL Center website for great information in helping families of children with disabilities and special needs in Pennsylvania.

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USOD 
Our friends at the Up Side of Downs of greater Cleveland are in the running for a $10,000  grant through the Clorox Power a Bright Future program.
 
If they are one of the top five winners, they will receive a $10k grant and a spread in People magazine.  What a great opportunity to promote Down syndrome awareness and inclusion!
 
Their plans, should they win, are to open a Playroom in a location of their own in the Cleveland area.
 
Help them out by clicking here and voting through January 17th.
 

In the News                               news

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sst5 
 
Two great articles about DSAV in the
State Support Team 5 newsletter.
 
Click on logo above and go to pages 10 and 11 to read them.

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American Idol Contestant has sibs with Down syndrome
 
 
Watch her story and audition! 

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Why we do what we do...
Our vision is for people with Down syndrome to be active participants in a fully inclusive society.  
 
Our Mission is to provide support, advocacy resources, education and opportunity for those with Down syndrome and their families. 
 
 
Our Core Values 
 
The DSAV fosters a climate which encourages  independence, support, advocacy and opportunity for all individuals with Down syndrome. 
 
We strive to represent the needs of people with Down syndrome and their families to improve quality of life, preserve rights and advance their interests thereby enhancing their status as citizens and enabling maximum independence and participation in the community.

 

Kelly Donadio
Co-founder/President 
logotransnotagline 
330-726-DSAV (3728)