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 To support, advocate and be a resource for people with Down syndrome
in Eastern Ohio and Western Pennsylvania.
Down Syndrome Association of the Valley
A Little Something Extra trichrome
Volume 1 Issue 12                                                                                                                                             12/15/09
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In This Issue:
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Join Our Mailing List
 
Quick Links
 
 
PhotosChirstmas Party
 
  
 
 
 
 
 
 
 
 
 
 
 
 
 
 
   
  

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Thanks 
to all who have
given so generously
to DSAV in 2009.
 
Litco International
The Print Factory
Pro Business
H&R Block
Lana Kontos
Harrington, Hoppe & Mitchell
Berkman, Jorgensen, Masters
& Stafman
ECS Techs
Children's Rehab. Center
Elite Digital Graphics
Dennis & Amy Lewis
Lewis Development
Ray Donadio
Donadio & Wagner
Executive Web Mngmnt.
Paul Dieter - PMD Builders
Celeste Lisko
Thom Russo
Karen Stillwagon
Eric Dess
Drs. Nadler & Nadler
Doeberling Muccio PT
Chris & Kelly Donadio
Creekside Gardens
Mel & Bob Meinke   
Lee Beach
Jack Trella  
Jeff Miller 
Crosby Mook Office
Ken & Michele Jones
Zambia Jamison
Roxanne Morella 
Joe Toto
Dave Gordon
Bill & Stephanie Champlin
Sherry Freda Trust
Anthony Rossi Jr., Esq.
General Motors-Lordstown 
Dave & Carrie Oravec 
Hine Memorial Fund 
Pink Thumb Garden Club
Microsoft
Christopher Jones
Shaffali Nadler
Rich Pacholec 
Walt & Dorothy Kijowski  
Trumbull Co. Family Court
Bob & Amy Harris   
Rich Conklin          
Dr. & Mrs. Jon Eucker
Ray& Judy Donadio         
Dr. & Mrs. Paul Gould
TMH Surgery Center         
Dr. & Mrs. Terry Philibin
Joseph & Norma Conti 
Pat Morella   
Stacy Navarro 
The Home Depot
Marco & Lisa Rankin
Dr. & Mrs. Panos Zafrides
DeBartolo Corporation
Denise & John York
Howland Pizza Works   
Sandee Timmerman 
Michele Jones
TMH Surgery Center
Eric Sitch
Sandy Meinke
Living Lord Lutheran Church
Jeff Edwards 
Joe Morella
Gavin Trebilcock 

In Memory of Alice Schmalzried:
Altar & Rosary Society of
St. Mary's Church, Warren 

In Memory of Elsa Holub:
Marilyn Whittier
Deborah & Marc Bjelac
Dale & Pat McDougal
Phyllis & Raymond Housel
John Holub
Virginia Stempak
Ralph DiGirolamo
Pat Medallis
Newton Falls post VFW #3332
Kathy Carlson
Larry & Roxy Gurlea
John & Christina Counts
Lori & Randall Fiest
Richard & Cecilia Wolf
Harry & Patricia Benetis
Joellyn Sheronovich
Mr. & Mrs. Ken Mineo
Ruth Smith
Janet Mathews
Eileen Spada Fond
Arlene Kirby
 
In Memory of Dorothy McNally:
Roy & Donna Szanny
Bill & Annetta Timmerman
William & Mary Huzicka
William & Sandee Timmerman
Paul & Patricia Klein 
                           
2009 Buddy Walk
Walkers
Donors 
Sponsors 
 
 
Stay warm this winter sporting DSAVwear!
 
 
 

E-mail or call the office 330-726-3728 to place  your order.  Limited sizes available!
 
 

Planning for Buddy Walk® of the Valley 2010 will begin in January!
 
We have exciting new ways to register and some great new things planned for next year.
 
Please consider being a part of the planning committee!  It's our biggest event of the year!
 
E-mail or call the office 330-726-3728 if you want to help! 
 
 
Hello Members & Friends,
 
What a wonderful time we had at the DSAV member Christmas party at the Assumption Social Center of St, Mary's.
 
It was so great to meet so many new families.  We hope you enjoyed the food, fellowship and Santa!
 
A special thank you to:
  • Canfield High School Helping Hands and NHS for assisting
  • Sam Chicarelli for the delicious cakes
  • St. Christine's 6th grade CCD class for the lovely cards
  • Jack, Kathy and Kara Trella for all your hard work
  • Santa for taking time out of your busy schedule
 
Be sure to check out some photos from the party in this e-news.
 
Our first lecture of the year will be on Saturday, January 30th with attorneys from Hickman & Lowder in Cleveland.  The lecture will be from 10:00 until noon at the Center for Success.  See below for details.
 
As we look forward to 2010, we continue to look to you, our members, for what you would like the DSAV to offer.  Please let us know what programs, resources or events that you would like to be involved with. 
 
I want to take this opportunity to wish you a joyous Christmas season.  I hope you take time to be with friends and family reflecting on the blessings of 2009 and preparing for a wonderful 2010.  I look forward to seeing you in the new year! 
 
 
~Kelly
 
Legal 
DSAV Legal Lecture Series
 
Attorneys Judith Saltzman and
Amanda Buzo from Hickman & Lowder
 
 
Saturday, January 30th
10:00am - Noon
DSAV Center for Success
 
 
Lecture if free to DSAV members, light refreshments will be provided.

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Suppplies for DSAV
 
ApplesforStudents 
GIANT EAGLE APPLES FOR THE STUDENT PROGRAM
The DSAV Center for Success is participating in the Giant Eagle Apples for the Student program.  Giant eagle provides the opportunity for us to get FREE computer and educational related equipment into our Center.  
 
The Giant Eagle Apples For the Student program is easy!
 
Register at
www.gianteagle.com or 1-800-474-4777
* Enter our ID# 5453
* Shop with a Giant Eagle Advantage Card
 
Instead of collecting receipts, each scan of a Giant Eagle Advantage Card will help our DSAV earn FREE equipment through March 19,2010.
 
Thank you for your support.
 

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Holiday Display 
 
Trees
Make plans during this holiday season to visit the Millcreek MetroParks Fellows Riverside Gardens.  Over 40 beautiful Christmas trees will be displayed during their annual  Winter Celebration.
 
Open Tuesdays through Sundays through January 3rd.
 
Be sure to look for the beautiful DSAV tree on the top floor of the Davis center, near the entrance to the Garden Cafe.
 
 

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 MaterialsLearning Materials Available

Through the DSAV LAMP (Language, Arts and Math Program)  and the Sherry Freda Fund, we are pleased to offer early literacy materials to our Trumbull County families. 

We currently offer materials from Down Syndrome Education International, a global leader in research and evidence based approaches to improving education for those with Down syndrome.  For more about Down Syndrome Education International visit their site.
 
These materials may be signed out and used until your child masters each level.  We then ask that the materials (minus your child's progress reports) be returned for other families to use.
 
The See and Learn Language and Reading program offers a structured, visual approach to early language learning, ideally suited to young children with Down syndrome. Developed by expert language and reading researchers and therapists, the program offers step-by-step guidance, resources and records sheet to chart progress.
   
 
Contact us or call 330-726-3728 to get your See and Learn Language and Reading kit. 
 
For families outside of Trumbull county, please contact us and we will work on arrangements to make the kits available to you.
 

 

We need your help...                      Volunteer
The DSAV Center for Success® is open and we need your help to accomplish the DSAV vision and mission.  See if there are areas below where you might be interested in volunteering with us. 
E-mail us with your questions or to help!
  • DSAV Office - individuals who possess computer knowledge (IE: Excel, Publisher,  Contribute, Photoshop, MS office), as well as excellent administrative and communication skills.
  • Education - certified teachers, paraprofessionals or parents with a strong interest in education to help get the Parents & Schools in Partnership program underway.
  • Healthcare - licensed medical professionals to help implement our Healthcare Partnership program with physicians, health departments and nurses throughout the valley.
  • Hospital Liaison - any DSAV member willing to keep in regular contact with area hospital maternity and social work departments ensuring our New Parent Packs are in place.
  • TULIP®  Parent Program - Parents who complete the training program will be available for phone calls or visits with new or expectant parents who receive a Ds diagnosis. 
  • Community Connections - requires the successful completion of the Community Connections training. Leaders host a  meetings for other DSAV parents  in their geographic area covering various topics and needs. 
  • D.A.D.S. - The national Dads Appreciating Down Syndrome organization is a great way for father's to create a network that meets their needs while assisting with the needs of DSAV. 

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Extras you might be interested in...

Scholarship 

Research Study Survey

Parent volunteers are being sought for a research study:
 
"My Kid Has More Chromosomes Than Yours!": The Journey to Resilience and Hope in Parenting a Child with Down Syndrome. The project coordinators are Nicole Springer, Ph.D., Texas Tech University and Briana Nelson Goff, Ph.D., Kansas State University, both parents of children with Down syndrome.
 
 
The researchers have two primary outcomes from this project:
 
  • an academic publications and presentations based on the research data
  • a consumer media publication for families with children with DS.
 

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Educational scholarships         scholarships

The Anne Ford and Allegra Ford Scholarship offers a $10,000 award to two graduating high school seniors with documented learning disabilities (LD) who are pursuing undergraduate degrees.  
 
The application for the 2010 Scholarship Award is now available and must be submitted no later than Dec. 31, 2009. 
Information
 

Safety 

Car seat safety is crucial.
 
If you have concerns about your child's car seat and/or your child is able to get out of the carseat while you are driving - it is time to have the car seat checked. 

The American Academy of Pediatrics has information on their website about car seat safety and when children can transition from rear facing to front facing to booster seats.

Locate a child seat safety check location here.

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Art 

Calling all Artists
with Down syndrome!

WORLD DOWN SYNDROME DAY
T-SHIRT DESIGN CONTEST IS UNDERWAY!

 
Put your artistic abilities to work and design a T-shirt for World Down Syndrome Day, March 21st 2010!
 
If you are an artist with Down syndrome, create a WDSD TShirt design by hand or by computer using your choice of art.  
 

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Conference 

Conferences & Seminars 

Cruise 

 
Buddy Cruise Holiday Special
Buddy Cruise is offering a special Holiday Promotion if you book before December 25th.
 
 

Buddy Cruise is a unique conference for individuals with Down syndrome and their loved ones. Join us and families from across the globe for a memorable voyage to the Bahamas onboard Royal Caribbean's Monarch of the Seas.

Taking place July 19th - July 23rd, following the NDSC Convention in Orlando, Florida!
 
 
 

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The PEAL Center's Fourth Annual Inclusive Education Conference
 Building Communities of Peace, Harmony and Respect
 

WHEN: March 16 and 17, 2009
WHERE: Four Points by Sheraton Pittsburgh North, Cranberry Township, PA
 

PEAL conference Brochure
 
 
Visit the PEAL Center website for great information in helping families of children with disabilities and special needs in Pennsylvania.

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In the News                               news

According to recent studies, the number of births of children with Down syndrome is increasing.
 

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Help DSAV raise funds             Funds

 
As 2009 comes to a close, "tax-time" comes to mind. 
 
Don't forget to visit H & R Block to filr your taxes. 
 
As a part of the H & R Block Non-profit referral program, DSAV will receive $25 for every new client that uses H & R Block to prepare their taxes.
  
 Click here for DSAV referral form
 
Print the referral form and take it to your local H & R Block office and help DSAV raise some funds.
Don't forget, we still recycle ink cartridges, copier toners and cell phones!
 
If you would like a collection box or information on the Advantage cartridge recycling program.
 
Do you GOODSEARCH?
 
By using Goodsearch as your web search engine, you can support DSAV year-round.
 
  ~Simply use the Goodsearch.com search engine for web searches or shopping and we get a percentage of the sale or a penny for each search.   
 
Click on the GoodSearch box below, make sure your charity choice is the Down Syndrome Association of the Valley or DSAV and start searching and shopping!  Thank you!
 
GoodSearchlogo

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Why we do what we do...
Our vision is for people with Down syndrome to be active participants in a fully inclusive society.  
 
Our Mission is to provide support, advocacy resources, education and opportunity for those with Down syndrome and their families. 
 
 
Our Core Values 
 
The DSAV fosters a climate which encourages  independence, support, advocacy and opportunity for all individuals with Down syndrome. 
 
We strive to represent the needs of people with Down syndrome and their families to improve quality of life, preserve rights and advance their interests thereby enhancing their status as citizens and enabling maximum independence and participation in the community.

 

Kelly Donadio
Co-founder/President 
logotransnotagline 
330-726-DSAV (3728)