Center for Success®
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Our Sponsors
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Please remember:
Individuals with Down syndrome are not "down's kids" nor are they "Down syndrome people".
Those with Down syndrome want to be seen as a Person first, just as you do!
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Stay warm this winter sporting DSAVwear!
E-mail or call the office 330-726-3728 to place your order. Limited sizes available! | |
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Hello Members & Friends:
We are looking forward to the implementation of many of the DSAV programs over the next few months. Topping the list of priorities are:
- New Parent Pack distribution
- TULIP Program training
- Education Programs
- Healthcare Training/Information packs
- D.A.D.S.
There are many other opportunities and we hope you are able to attend one of our committee informational meetings this week to find out how you can get involved.
We also invite you to share with us what you would like to see us doing. We can't offer it, if we don't know about it.
Please join us: Monday, November 16 - 6:30pm - 7:30pm
Tuesday, November 17 - 10:30am - 11:30am
DSAV Center for Success
945 Boardman-Canfield Rd., Suite 12
Boardman, OH 44512
330-726-DSAV (3728)
Look for the 4th quarter DSAV Newsletter in your home mailbox soon. It is loaded with lots of good info and updates.
As always, contact me if you have any questions or comments.
Kelly |
We need your help...  |
The DSAV Center for Success® is open and we need your help to accomplish the DSAV vision and mission. See if there are areas below where you might be interested in volunteering with us.
- DSAV Office - individuals who possess computer knowledge (IE: Excel, Publisher, Contribute, Photoshop, MS office), as well as excellent administrative and communication skills.
- Education - certified teachers, paraprofessionals or parents with a strong interest in education to help get the Parents & Schools in Partnership program underway.
- Healthcare - licensed medical professionals to help implement our Healthcare Partnership program with physicians, health departments and nurses throughout the valley.
- Hospital Liaison - any DSAV member willing to keep in regular contact with area hospital maternity and social work departments ensuring our New Parent Packs are in place.
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TULIP® Parent Program - Parents who complete the training program will be available for phone calls or visits with new or expectant parents who receive a Ds diagnosis.
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Community Connections - requires the successful completion of the Community Connections training. Leaders host a meetings for other DSAV parents in their geographic area covering various topics and needs.
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D.A.D.S. - The national Dads Appreciating Down Syndrome organization is a great way for father's to create a network that meets their needs while assisting with the needs of DSAV. |
The DSAV Christmas party!
DATE: Saturday, December 5
TIME: 4:30pm - 7:00pm
LOCATION: Assumption Center of St. Mary's
356 S. Belle Vista Ave., Youngstown
A wonderful time of food, music, fun and gifts from Santa for our DSAV members and families.
Please RSVP number attending, plus name and ages of children for Santa's gift list. |
| Action Needed! |
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Senators Brownback (R-KS) and Sherrod Brown (D-OH) and Representatives Cathy McMorris Rodgers (R-WA), Patrick Kennedy (D-RI), and Pete Sessions (R-TX) introduced the Trisomy 21 Translational Research Parity Act of 2009 (S. 1762/H. 3656) or the "21 Act"
The 21 Act (S. 1762/H. 3656) is aimed at expanding, intensifying and coordinating Down syndrome translational research across the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC) and other Federal agencies. Specifically, this legislation would:
- Create at least six Down Syndrome Translational Research Centers of Excellence that provide an optimal venue and infrastructure for patient-oriented research, and conduct basic, clinical, and translational research on Down syndrome.
- Establish a Down Syndrome Coordinating Committee to coordinate activities across the National Institutes of Health (NIH) and with other Federal health programs and activities relating to Down syndrome.
- Develop a National Down Syndrome Patient Registry and Biobank, through cooperative agreements at the Centers for Disease Control and Prevention (CDC), to:
- Provide clinical care for patients with Down syndrome;
- Coordinate research and clinical activities through the Down Syndrome Translational Research Centers of Excellence with the activities of the National Down Syndrome Registry and Biobank.
- Create a common data entry and management system for Down syndrome patient data collection and analysis.
WHAT YOU CAN DO:
It is very important to identify more cosponsors for the legislation. Please take a few minutes to call or write your Senators and Representative today to ask them to cosponsor 21 Act! You can reach your Representative by calling the Capitol Switchboard at 202-224-3121. If you don't know who your Representative is, go to www.congress.org and enter your zip code in the upper right corner. We have included both a script and email/letter template to help you reach out to these offices. Please do not hesitate to contact me or Sara Weir sara.weir@bakerd.com or 202-312-7475 with any questions. Regards,
Madeleine Will
Director of the Policy Center
National Down Syndrome Society
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Extras you might be interested in... |
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We are pleased to announce collabortaive resources and opportunities for educators and families with the Ohio Department of Education's State Support Team Region 5. SST-5 serves Ashtabula, Trumbull, Mahoning and parts of Columbiana counties.
Click on the logo for their events calendar.
Details on our collaborative efforts coming soon! |
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IMAGINE THE POSSIBILITIES
The Arc of Greater Cleveland is facilitating the Partners in Policymaking® leadership training program between the months of January - May 2010. Partners in Policymaking® is an internationally recognized training series that is designed for adults with disabilities and for parents of children under the age of 12 with disabilities.
Currently, there are over one hundred-fifty Partners in Policymaking® graduates in Ohio.
Through participation in Partners in Policymaking®, individuals with developmental
disabilities and parents of children under the age of 12 with disabilities will become leaders.
Partners is about creating, working towards, and achieving a vision of shared values about individuals with disabilities. Application packets are available NOW, so call early to apply for the 2010 class of Partners in Policymaking ®. Please call at (216) 622-0755 extension 14 or email efakan@thearcofgreatercleveland.org for more information.
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The PEAL Center's Fourth Annual Inclusive Education Conference
Building Communities of Peace, Harmony and Respect
WHEN: March 16 and 17, 2009
WHERE: Four Points by Sheraton Pittsburgh North, Cranberry Township, PA
PEAL conference Brochure |
Great gift ideas... |
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Our Down syndrome awareness jewelry has been specifically designed for DSAV right here in the Valley by Twisted Crystal designers Zambia Jamison and Shaffali Nadler. All jewelry pieces are composed of Swarovski pearls and crystals along with sterling beads.
Bracelet/Anklet: The Sapphire and Jonquil colored Swarovski crystals are the signature colors for Down syndrome awareness and the three colored crystals signify the three copies of the 21st chromosome. The sterling silver tulip charm commemorates the Welcome to Holland poem. Bracelets have a sterling toggle clasp, while anklets are made with smaller pearls and beads close with a lobster clasp.
Rings: The three stones can be chosen to represent Down syndrome (two sapphire, one jonquil) or can be selected as birthstone colors. Please indicate color choice, order of colors and designate the finger it will be worn on for proper sizing.
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Our vision is for people with Down syndrome to be active participants in a fully inclusive society.
Our Mission is to provide support, advocacy resources, education and opportunity for those with Down syndrome and their families.
Our Core Values
The DSAV fosters a climate which encourages independence, support, advocacy and opportunity for all individuals with Down syndrome.
We strive to represent the needs of people with Down syndrome and their families to improve quality of life, preserve rights and advance their interests thereby enhancing their status as citizens and enabling maximum independence and participation in the community.
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