You get an extra hour of sleep this weekend!
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Center for Success®
The BIG scissors
Boardman Trustee Kathy Miller
State Senator Joe Schiavoni
Our good friend Celeste
Enjoying the play area
Dr. Elena Rossi
The reason for DSAV!
Guests
Joe Toto & Dr. Ciuba- Kent State |
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Our Sponsors
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Hello Members & Friends:
It was with much preparation and anticipation that we opened the doors of the DSAV Center for Success on October 22, 2009.
Thank you to all our members, community leaders, educators, healthcare professionals and new families who joined us for the ribbon cutting and open house.
We are thrilled to finally have a central location where everyone knows resources and programs will be accessible.
Many of you have asked: "What will the hours be?" The answer is: "We aren't sure, yet". We hope to establish some regular hours by mid-November.
Please make plans to attend our committee informational meetings in November. More info here.
At these meetings you will be able to find out about our programs, but is will also be a time for us to hear from you about what you might like to see the DSAV doing.
I look forward to seeing you in November.
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Click on links for stories & video:
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 DSAV Thanks! Back to Top
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Thank you to all those who made the opening of the DSAV Center for Success possible:
Hine Memorial Fund
Best Buy-Boardman
Home Depot
Walmart
Pro Business
Sherwin Williams Roxanne's Interiors
Sherry Freeda Trust
Elite Digital Graphics
Randy Walters Carpet Cleaning
Executive Computer Solutions
Office Max
Youngstown Curveforms
Biviano Carpet
Shanghai River
Eat 'N Park
Wedgewood Pizza
Our DSAV families who gave of their time and talent! |
We need your help... |
The DSAV Center for Success® is open and we need your help to accomplish the DSAV vision and mission. See if there are areas below where you might be interested in volunteering with us.
- DSAV Office - individuals who possess computer knowledge (IE: Excel, Publisher, Contribute, Photoshop, MS office), as well as excellent administrative and communication skills.
- Education - certified teachers, paraprofessionals or parents with a strong interest in education to help get the Parents & Schools in Partnership program underway.
- Healthcare - licensed medical professionals to help implement our Healthcare Partnership program with physicians, health departments and nurses throughout the valley.
- Hospital Liaison - any DSAV member willing to keep in regular contact with area hospital maternity and social work departments ensuring our New Parent Packs are in place.
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TULIP® Parent Program - Parents who complete the training program will be available for phone calls or visits with new or expectant parents who receive a Ds diagnosis.
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Community Connections - requires the successful completion of the Community Connections training. Leaders host a meetings for other DSAV parents in their geographic area covering various topics and needs.
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D.A.D.S. - The national Dads Appreciating Down Syndrome organization is a great way for father's to create a network that meets their needs while assisting with the needs of DSAV. |
Find out more & get involved...
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| We hope to see you at one of the
committee informational meetings:
Monday, November 16 - 6:30pm - 7:30pm
Tuesday, November 17 - 10:30am - 11:30am
DSAV Center for Success
945 Boardman-Canfield Rd., Suite 12
Boardman, OH 44512
330-726-DSAV (3728)
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Save the Date! |
The DSAV Christmas party!
DATE: Saturday, December 5
TIME: 4:30pm - 7:00pm
LOCATION: Assumption Center of St. Mary's
356 S. Belle Vista Ave., Youngstown
A wonderful time of food, music, fun and gifts from Santa for our DSAV members and families.
Please RSVP number attending, plus name and ages of children for Santa's gift list. |
| Action Needed! |
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Senators Brownback (R-KS) and Sherrod Brown (D-OH) and Representatives Cathy McMorris Rodgers (R-WA), Patrick Kennedy (D-RI), and Pete Sessions (R-TX) introduced the Trisomy 21 Translational Research Parity Act of 2009 (S. 1762/H. 3656) or the "21 Act"
The 21 Act (S. 1762/H. 3656) is aimed at expanding, intensifying and coordinating Down syndrome translational research across the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC) and other Federal agencies. Specifically, this legislation would:
- Create at least six Down Syndrome Translational Research Centers of Excellence that provide an optimal venue and infrastructure for patient-oriented research, and conduct basic, clinical, and translational research on Down syndrome.
- Establish a Down Syndrome Coordinating Committee to coordinate activities across the National Institutes of Health (NIH) and with other Federal health programs and activities relating to Down syndrome.
- Develop a National Down Syndrome Patient Registry and Biobank, through cooperative agreements at the Centers for Disease Control and Prevention (CDC), to:
- Provide clinical care for patients with Down syndrome;
- Coordinate research and clinical activities through the Down Syndrome Translational Research Centers of Excellence with the activities of the National Down Syndrome Registry and Biobank.
- Create a common data entry and management system for Down syndrome patient data collection and analysis.
WHAT YOU CAN DO:
It is very important to identify more cosponsors for the legislation. Please take a few minutes to call or write your Senators and Representative today to ask them to cosponsor 21 Act! You can reach your Representative by calling the Capitol Switchboard at 202-224-3121. If you don't know who your Representative is, go to www.congress.org and enter your zip code in the upper right corner. We have included both a script and email/letter template to help you reach out to these offices. Please do not hesitate to contact me or Sara Weir (sara.weir@bakerd.com/202-312-7475) with any questions. Regards,
Madeleine Will
Director of the Policy Center
National Down Syndrome Society
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Extras you might be interested in... |
Learning for Life Conference Series
Guiding Students Through Transition Two Critical Topics for Educators: √ Legal Issues In The Classroom √ Planning for Successful Secondary Transition WHEN: November 10, 2009
WHERE: The Galaxy - 201 Park Centre Drive, Wadsworth, Ohio
Conference Brochure & Details |
The ARC of the United States
National Convention
WHEN: Nov. 11-14, 2009
WHERE: David L. Lawrence Convention Center in Pittsburgh, PA
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 The Down Syndrome Association of Greater Cincinnati will be hosting a Postsecondary Education Conference: Promoting opportunities for students with intellectual disabilities.
When: November 13 - 14, 2009
Where: University of Cinciannti's Great Hall in the Tageman Center
Details: Call Janet at 513-761-5411
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The PEAL Center's Fourth Annual Inclusive Education Conference
Building Communities of Peace, Harmony and Respect
WHEN: March 16 and 17, 2009
WHERE: Four Points by Sheraton Pittsburgh North, Cranberry Township, PA
PEAL conference Brochure |
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Twisted Crystal Jewelry proudly creates the DSAV awareness bracelets, anklets and rings.
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Our vision is for people with Down syndrome to be active participants in a fully inclusive society.
Our Mission is to provide support, advocacy resources, education and opportunity for those with Down syndrome and their families.
Our Core Values
The DSAV fosters a climate which encourages independence, support, advocacy and opportunity for all individuals with Down syndrome.
We strive to represent the needs of people with Down syndrome and their families to improve quality of life, preserve rights and advance their interests thereby enhancing their status as citizens and enabling maximum independence and participation in the community.
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